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New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

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Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

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Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1


Chronic tiredness (possibly V related)

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Chronic tiredness (possibly V related)

Post  tinkerbelle2 on Fri Dec 09, 2016 3:21 pm

I've felt so so tired, weak & lethargic for about 3 years now and I'm just so fed up.

I've had the V for 7 years now but I think the tiredness I'm feeling is definitely affected by it / exacerbated by it. I'm only 24 and I just want to enjoy being young and have fun and enjoy life. I'm a positive person by nature but this is a miserable existence. The v hasn't been TOO bad recently, which is great obviously, although it is definitely still there, burning away every day. I think when I have other health problems the V bothers me less which is strange, or I am less aware of it /or maybe I've just developed a higher pain tolerance or got used to it?

I keep going to the docs about the fatigue and they can't find much wrong - aside for some vitamin deficincies which could contribute plus have had sinusitis.

I just feel so physically, emotionally and mentally drained and exhausted. My body is so weak and I'm possibly struggling with some depression as well. I have anxiety and worrt a lot which could also be making me tired. Luckily one good thing is, I have no trouble sleeping. I rarely wake up in the night.  I could probably sleep and sleep...That's probably not healthy either. I never wake up feeling refreshed and always have a headache Sad


Last edited by tinkerbelle2 on Thu Sep 14, 2017 5:51 pm; edited 1 time in total (Reason for editing : Typos)
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Re: Chronic tiredness (possibly V related)

Post  PainBlogger on Fri Dec 09, 2016 10:03 pm

Mention fibromyalgia to your GP. Maybe ask for referral to a pain management specialist. Pain plus tiredness could be fibromyalgia.

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Re: Chronic tiredness (possibly V related)

Post  mary jane on Thu Jun 08, 2017 10:30 pm

tinkerbelle2 wrote:I've felt so so tired for about 3 years now and I'm just so fed up. I've had the V for 7 years now but I think the tiredness I'm feeling is definitely affected by it / exacerbated by it. I'm only 24 and I just want to enjoy being young and have fun and enjoy life. I'm a positive person by nature but this is a miserable existence. The v hasn't been TOO bad recentl which is great obviously although it is definitely still there, burning away every day. I think when I have other health problems it bothers me less which is strange, or maybe I've just develoled higher lan tolerance or got used to it?

I keep going to the docs and they can't find much wrong - aside for some vitamin deficincies which could contribute plus have had some sinus issues.

I just feel so physically, emotionally and mentally drained and exhausted. My body is so weak and I'm possibly struggling with some depression as well. I have anxiety and worrt a lot which could also be making me tired. Luckily one good thing is, I have no trouble sleeping. I rarely wake up in the night.  I could probably sleep and sleep...That's probably not healthy either. I never wake up feeling refreshed and always have a headache Sad


Sending hugs xxx

You are really young and shouldn't be this fatigued.. I also have had excruciating fatigue this past year, it's usually caused by long term anxiety and vitamin D deficiency..maybe you have this too? Low vitamin D can cause bad exhaustion and needs treatment !

I use an app called Pacifica, it's for anxiety and stress, it's actually really good !!! They have a few free audios included and I love how it automatically asks you how you're feeling in the evenings. I'm really sorry to hear you are feeling depressed, I struggle with depression too and have recently been referred to mental health team for my anxiety and depression, maybe you can get this too ??

I wouldn't jump to conclusions about fibromyalgia yet, it tends to have more severe symptoms I think ..

hope you're well

xxx
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Re: Chronic tiredness (possibly V related)

Post  tinkerbelle2 on Thu Sep 14, 2017 5:53 pm

PainBlogger wrote:Mention fibromyalgia to your GP. Maybe ask for referral to a pain management specialist. Pain plus tiredness could be fibromyalgia.

Thank you girl. I don't feel that it is fibromyalgia as I've researched it before but I suppose it's always worth ruling it out. Hope you're doing ok xx
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Re: Chronic tiredness (possibly V related)

Post  tinkerbelle2 on Thu Sep 14, 2017 6:00 pm

mary jane wrote:

Sending hugs xxx

You are really young and shouldn't be this fatigued.. I also have had excruciating fatigue this past year, it's usually caused by long term anxiety and vitamin D deficiency..maybe you have this too? Low vitamin D can cause bad exhaustion and needs treatment !

I use an app called Pacifica, it's for anxiety and stress, it's actually really good !!! They have a few free audios included and I love how it automatically asks you how you're feeling in the evenings. I'm really sorry to hear you are feeling depressed, I struggle with depression too and have recently been referred to mental health team for my anxiety and depression, maybe you can get this too ??

I wouldn't jump to conclusions about fibromyalgia yet, it tends to have more severe symptoms I think ..

hope you're well

xxx

Mary Jane I love you sorry for a very belated reply I've been terrible at replying to messages. Thanks so much,you've always brightened me up. Funnily enough vitamin D is one of my deficiencies so that's interesting! Zinc and iron also. All can cause low energy plus being in constant chronic pain AND being anxious isn't a great mix haha..How are things for you? V wise and mental health wise? How was it with the mental health team? I'm going to start seeing a new therapist. That app sounds good, I will check it out!
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Re: Chronic tiredness (possibly V related)

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