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» Did going off antidepressants cause this?
Today at 2:08 am by ryn207

» 7 months since the diagnosis
Yesterday at 11:43 pm by agtoronto

» Sex after vulvodynia (husband edition)
Mon Aug 13, 2018 12:15 pm by emalita

» burning sensation and small cut? Maybe thrush?
Sun Aug 12, 2018 8:24 pm by emalita

» can v return after vestibulectomy?
Sun Aug 12, 2018 12:01 pm by Alana3

» Cleveland Clinic - Pain Management, Weston, FL
Sat Aug 11, 2018 12:37 pm by Alana3

» Hurting, Burning, Itching, and Worn Out
Fri Aug 10, 2018 7:55 pm by fairlight10

» GREATFULL FOR THIS WEBSITE
Thu Aug 09, 2018 8:37 pm by Nicola Jost

» Can you guys tell me your experiences with diflucan/Fluconazole?
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Hurting, Burning, Itching, and Worn Out

Thu Aug 09, 2018 10:55 pm by donnambr

This vulvodynia that I'm currently suffering with is so cruel. I hurt, I burn, I itch. When I first got this several years ago, before the internet, I though I was the only one with this awful disorder. Doctors couldn't figure it out. I felt so alone and devastated. Somehow it disappeared for a few years and now I'm suffering again. This dreaded V misery is back and I feel like I will be with …

Comments: 1

Hi girls! New in this forum

Fri Jul 13, 2018 2:31 pm by Gaby

Hi everyone!

Also joining the V club, Here my story:

It all started last year in september with a very bad throat infection for which i had to take antibiotics for about a month. This cause several yeast infections (candidia albicans).... one after the other!. I had them every month from october 2017 till march 2018. During this period i use an incredible amount of anti-fungal creams and …

Comments: 1

Newbie and feeling helpless

Wed Jul 11, 2018 1:52 pm by Taylor1

Hi, I found out a few weeks ago that I have this condition, started off at the end of April as a uti took strong antibiotics then got a thrush infection and now this.. My doctor has tried me on amitriptyline and gabipentin and both made me so poorly I couldn't take it plus I have seen what long use of these drugs has done to my mom for pain and its not good. I am using coconut oil which does …

Comments: 3

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 6

From a concerned husband

Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot …

Comments: 3

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 10

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4


Chronic tiredness (possibly V related)

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Chronic tiredness (possibly V related)

Post  tinkerbelle2 on Fri Dec 09, 2016 3:21 pm

I've felt so so tired, weak & lethargic for about 3 years now and I'm just so fed up.

I've had the V for 7 years now but I think the tiredness I'm feeling is definitely affected by it / exacerbated by it. I'm only 24 and I just want to enjoy being young and have fun and enjoy life. I'm a positive person by nature but this is a miserable existence. The v hasn't been TOO bad recently, which is great obviously, although it is definitely still there, burning away every day. I think when I have other health problems the V bothers me less which is strange, or I am less aware of it /or maybe I've just developed a higher pain tolerance or got used to it?

I keep going to the docs about the fatigue and they can't find much wrong - aside for some vitamin deficincies which could contribute plus have had sinusitis.

I just feel so physically, emotionally and mentally drained and exhausted. My body is so weak and I'm possibly struggling with some depression as well. I have anxiety and worrt a lot which could also be making me tired. Luckily one good thing is, I have no trouble sleeping. I rarely wake up in the night.  I could probably sleep and sleep...That's probably not healthy either. I never wake up feeling refreshed and always have a headache Sad


Last edited by tinkerbelle2 on Thu Sep 14, 2017 5:51 pm; edited 1 time in total (Reason for editing : Typos)
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Re: Chronic tiredness (possibly V related)

Post  PainBlogger on Fri Dec 09, 2016 10:03 pm

Mention fibromyalgia to your GP. Maybe ask for referral to a pain management specialist. Pain plus tiredness could be fibromyalgia.

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Re: Chronic tiredness (possibly V related)

Post  mary jane on Thu Jun 08, 2017 10:30 pm

tinkerbelle2 wrote:I've felt so so tired for about 3 years now and I'm just so fed up. I've had the V for 7 years now but I think the tiredness I'm feeling is definitely affected by it / exacerbated by it. I'm only 24 and I just want to enjoy being young and have fun and enjoy life. I'm a positive person by nature but this is a miserable existence. The v hasn't been TOO bad recentl which is great obviously although it is definitely still there, burning away every day. I think when I have other health problems it bothers me less which is strange, or maybe I've just develoled higher lan tolerance or got used to it?

I keep going to the docs and they can't find much wrong - aside for some vitamin deficincies which could contribute plus have had some sinus issues.

I just feel so physically, emotionally and mentally drained and exhausted. My body is so weak and I'm possibly struggling with some depression as well. I have anxiety and worrt a lot which could also be making me tired. Luckily one good thing is, I have no trouble sleeping. I rarely wake up in the night.  I could probably sleep and sleep...That's probably not healthy either. I never wake up feeling refreshed and always have a headache Sad


Sending hugs xxx

You are really young and shouldn't be this fatigued.. I also have had excruciating fatigue this past year, it's usually caused by long term anxiety and vitamin D deficiency..maybe you have this too? Low vitamin D can cause bad exhaustion and needs treatment !

I use an app called Pacifica, it's for anxiety and stress, it's actually really good !!! They have a few free audios included and I love how it automatically asks you how you're feeling in the evenings. I'm really sorry to hear you are feeling depressed, I struggle with depression too and have recently been referred to mental health team for my anxiety and depression, maybe you can get this too ??

I wouldn't jump to conclusions about fibromyalgia yet, it tends to have more severe symptoms I think ..

hope you're well

xxx
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Re: Chronic tiredness (possibly V related)

Post  tinkerbelle2 on Thu Sep 14, 2017 5:53 pm

PainBlogger wrote:Mention fibromyalgia to your GP. Maybe ask for referral to a pain management specialist. Pain plus tiredness could be fibromyalgia.

Thank you girl. I don't feel that it is fibromyalgia as I've researched it before but I suppose it's always worth ruling it out. Hope you're doing ok xx
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Re: Chronic tiredness (possibly V related)

Post  tinkerbelle2 on Thu Sep 14, 2017 6:00 pm

mary jane wrote:

Sending hugs xxx

You are really young and shouldn't be this fatigued.. I also have had excruciating fatigue this past year, it's usually caused by long term anxiety and vitamin D deficiency..maybe you have this too? Low vitamin D can cause bad exhaustion and needs treatment !

I use an app called Pacifica, it's for anxiety and stress, it's actually really good !!! They have a few free audios included and I love how it automatically asks you how you're feeling in the evenings. I'm really sorry to hear you are feeling depressed, I struggle with depression too and have recently been referred to mental health team for my anxiety and depression, maybe you can get this too ??

I wouldn't jump to conclusions about fibromyalgia yet, it tends to have more severe symptoms I think ..

hope you're well

xxx

Mary Jane I love you sorry for a very belated reply I've been terrible at replying to messages. Thanks so much,you've always brightened me up. Funnily enough vitamin D is one of my deficiencies so that's interesting! Zinc and iron also. All can cause low energy plus being in constant chronic pain AND being anxious isn't a great mix haha..How are things for you? V wise and mental health wise? How was it with the mental health team? I'm going to start seeing a new therapist. That app sounds good, I will check it out!
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Re: Chronic tiredness (possibly V related)

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