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I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

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Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

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New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

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MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

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New member desperate need of other vulvadynia sufferers

Fri Feb 08, 2019 6:55 pm by Tfc13

Hi there hope some1 reading this is going through the same shit as me!, I'm new to this so don't really know where to start , I'm Teresa , I've just been diagnosed with vestibular vulvadynia , after countless appointments with GPS being misdiagnosed, tested for god knows everything , eventually under my gynochologist ,who done all her necessary tests, I now have been given a diagnosis I'm in …

Comments: 5

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 7

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 13

Hello. Happy to have found this group.

Fri Dec 07, 2018 9:01 pm by foxysugarpants

I am new here and hope to gain some insight into my vulva pain. I suffered for a long time not realizing that there are ways to feel better. I saw the Dr. yesterday and I am starting P/T pelvic and valium suppositories. queen

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Chronic tiredness (possibly V related)

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Chronic tiredness (possibly V related)

Post  tinkerbelle2 on Fri Dec 09, 2016 3:21 pm

I've felt so so tired, weak & lethargic for about 3 years now and I'm just so fed up.

I've had the V for 7 years now but I think the tiredness I'm feeling is definitely affected by it / exacerbated by it. I'm only 24 and I just want to enjoy being young and have fun and enjoy life. I'm a positive person by nature but this is a miserable existence. The v hasn't been TOO bad recently, which is great obviously, although it is definitely still there, burning away every day. I think when I have other health problems the V bothers me less which is strange, or I am less aware of it /or maybe I've just developed a higher pain tolerance or got used to it?

I keep going to the docs about the fatigue and they can't find much wrong - aside for some vitamin deficincies which could contribute plus have had sinusitis.

I just feel so physically, emotionally and mentally drained and exhausted. My body is so weak and I'm possibly struggling with some depression as well. I have anxiety and worrt a lot which could also be making me tired. Luckily one good thing is, I have no trouble sleeping. I rarely wake up in the night.  I could probably sleep and sleep...That's probably not healthy either. I never wake up feeling refreshed and always have a headache Sad


Last edited by tinkerbelle2 on Thu Sep 14, 2017 5:51 pm; edited 1 time in total (Reason for editing : Typos)
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Re: Chronic tiredness (possibly V related)

Post  PainBlogger on Fri Dec 09, 2016 10:03 pm

Mention fibromyalgia to your GP. Maybe ask for referral to a pain management specialist. Pain plus tiredness could be fibromyalgia.

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Re: Chronic tiredness (possibly V related)

Post  mary jane on Thu Jun 08, 2017 10:30 pm

tinkerbelle2 wrote:I've felt so so tired for about 3 years now and I'm just so fed up. I've had the V for 7 years now but I think the tiredness I'm feeling is definitely affected by it / exacerbated by it. I'm only 24 and I just want to enjoy being young and have fun and enjoy life. I'm a positive person by nature but this is a miserable existence. The v hasn't been TOO bad recentl which is great obviously although it is definitely still there, burning away every day. I think when I have other health problems it bothers me less which is strange, or maybe I've just develoled higher lan tolerance or got used to it?

I keep going to the docs and they can't find much wrong - aside for some vitamin deficincies which could contribute plus have had some sinus issues.

I just feel so physically, emotionally and mentally drained and exhausted. My body is so weak and I'm possibly struggling with some depression as well. I have anxiety and worrt a lot which could also be making me tired. Luckily one good thing is, I have no trouble sleeping. I rarely wake up in the night.  I could probably sleep and sleep...That's probably not healthy either. I never wake up feeling refreshed and always have a headache Sad


Sending hugs xxx

You are really young and shouldn't be this fatigued.. I also have had excruciating fatigue this past year, it's usually caused by long term anxiety and vitamin D deficiency..maybe you have this too? Low vitamin D can cause bad exhaustion and needs treatment !

I use an app called Pacifica, it's for anxiety and stress, it's actually really good !!! They have a few free audios included and I love how it automatically asks you how you're feeling in the evenings. I'm really sorry to hear you are feeling depressed, I struggle with depression too and have recently been referred to mental health team for my anxiety and depression, maybe you can get this too ??

I wouldn't jump to conclusions about fibromyalgia yet, it tends to have more severe symptoms I think ..

hope you're well

xxx
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Re: Chronic tiredness (possibly V related)

Post  tinkerbelle2 on Thu Sep 14, 2017 5:53 pm

PainBlogger wrote:Mention fibromyalgia to your GP. Maybe ask for referral to a pain management specialist. Pain plus tiredness could be fibromyalgia.

Thank you girl. I don't feel that it is fibromyalgia as I've researched it before but I suppose it's always worth ruling it out. Hope you're doing ok xx
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Re: Chronic tiredness (possibly V related)

Post  tinkerbelle2 on Thu Sep 14, 2017 6:00 pm

mary jane wrote:

Sending hugs xxx

You are really young and shouldn't be this fatigued.. I also have had excruciating fatigue this past year, it's usually caused by long term anxiety and vitamin D deficiency..maybe you have this too? Low vitamin D can cause bad exhaustion and needs treatment !

I use an app called Pacifica, it's for anxiety and stress, it's actually really good !!! They have a few free audios included and I love how it automatically asks you how you're feeling in the evenings. I'm really sorry to hear you are feeling depressed, I struggle with depression too and have recently been referred to mental health team for my anxiety and depression, maybe you can get this too ??

I wouldn't jump to conclusions about fibromyalgia yet, it tends to have more severe symptoms I think ..

hope you're well

xxx

Mary Jane I love you sorry for a very belated reply I've been terrible at replying to messages. Thanks so much,you've always brightened me up. Funnily enough vitamin D is one of my deficiencies so that's interesting! Zinc and iron also. All can cause low energy plus being in constant chronic pain AND being anxious isn't a great mix haha..How are things for you? V wise and mental health wise? How was it with the mental health team? I'm going to start seeing a new therapist. That app sounds good, I will check it out!
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Re: Chronic tiredness (possibly V related)

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