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New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 4

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 13

Hello. Happy to have found this group.

Fri Dec 07, 2018 9:01 pm by foxysugarpants

I am new here and hope to gain some insight into my vulva pain. I suffered for a long time not realizing that there are ways to feel better. I saw the Dr. yesterday and I am starting P/T pelvic and valium suppositories. queen

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Had this for 5 years, looking for people who understand

Sat Oct 06, 2018 9:46 pm by blackberrie

Hey all. I'm really struggling to find anyone in real life who can really understand what I'm going through. I've had vestibulodynia for 5 years now and I'm single. Obviously it has completely affected how I approach dating and sex and the fact that I can't really talk to people irl about it has made me feel very lonely. I've found that a lot of the women who have this problem are married and …

Comments: 3

Anyone have pain with urination?

Tue Oct 16, 2018 2:35 pm by mertzwl

Hi everyone - I can't believe I've been dealing with this for almost 10 years and an appointment scheduler at a urogyn office is the one to suggest I look into vulvodynia. Honestly, I don't care, I just thankful I might have an answer.

I have pain in one specific spot right around the urethral opening so it always coincides with urinating (it's not a uti). Does anyone else deal with pain …

Comments: 6

Diagnosed recently, looking for advice

Sun Sep 02, 2018 12:51 am by Cloudberry

Hi everyone,

I'm so glad I found this forum! I was diagnosed with vulvodynia/vulvar vestibulitis (still not sure about the difference between all the different terms) a couple of months ago and I could do with some advice. This is probably going to be a lot of text because I just want to get everything off my chest, so please bear with me.

I’m a woman in my late 20s. Before getting diagnosed …

Comments: 4

From a concerned husband

Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot …

Comments: 4

6 year sufferer but I’ve found some hope

Wed Oct 10, 2018 1:33 am by Npage14

Hey, ladies! I’m new to this support group, I’ve thought about doing something like this for a while so I wanted to try this out! I’ve had vulvodynia for 6 years now, I am self diagnosed. I’m 20 now and the pain started when I had my first encounter with sexual contact when I was 14(I still remained a virgin though it was fingering). For a couple years the pain was so bad I could hardly …

Comments: 0

Hurting, Burning, Itching, and Worn Out

Thu Aug 09, 2018 10:55 pm by donnambr

This vulvodynia that I'm currently suffering with is so cruel. I hurt, I burn, I itch. When I first got this several years ago, before the internet, I though I was the only one with this awful disorder. Doctors couldn't figure it out. I felt so alone and devastated. Somehow it disappeared for a few years and now I'm suffering again. This dreaded V misery is back and I feel like I will be with …

Comments: 5


Chronic tiredness (possibly V related)

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Chronic tiredness (possibly V related)

Post  tinkerbelle2 on Fri Dec 09, 2016 3:21 pm

I've felt so so tired, weak & lethargic for about 3 years now and I'm just so fed up.

I've had the V for 7 years now but I think the tiredness I'm feeling is definitely affected by it / exacerbated by it. I'm only 24 and I just want to enjoy being young and have fun and enjoy life. I'm a positive person by nature but this is a miserable existence. The v hasn't been TOO bad recently, which is great obviously, although it is definitely still there, burning away every day. I think when I have other health problems the V bothers me less which is strange, or I am less aware of it /or maybe I've just developed a higher pain tolerance or got used to it?

I keep going to the docs about the fatigue and they can't find much wrong - aside for some vitamin deficincies which could contribute plus have had sinusitis.

I just feel so physically, emotionally and mentally drained and exhausted. My body is so weak and I'm possibly struggling with some depression as well. I have anxiety and worrt a lot which could also be making me tired. Luckily one good thing is, I have no trouble sleeping. I rarely wake up in the night.  I could probably sleep and sleep...That's probably not healthy either. I never wake up feeling refreshed and always have a headache Sad


Last edited by tinkerbelle2 on Thu Sep 14, 2017 5:51 pm; edited 1 time in total (Reason for editing : Typos)
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Re: Chronic tiredness (possibly V related)

Post  PainBlogger on Fri Dec 09, 2016 10:03 pm

Mention fibromyalgia to your GP. Maybe ask for referral to a pain management specialist. Pain plus tiredness could be fibromyalgia.

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Re: Chronic tiredness (possibly V related)

Post  mary jane on Thu Jun 08, 2017 10:30 pm

tinkerbelle2 wrote:I've felt so so tired for about 3 years now and I'm just so fed up. I've had the V for 7 years now but I think the tiredness I'm feeling is definitely affected by it / exacerbated by it. I'm only 24 and I just want to enjoy being young and have fun and enjoy life. I'm a positive person by nature but this is a miserable existence. The v hasn't been TOO bad recentl which is great obviously although it is definitely still there, burning away every day. I think when I have other health problems it bothers me less which is strange, or maybe I've just develoled higher lan tolerance or got used to it?

I keep going to the docs and they can't find much wrong - aside for some vitamin deficincies which could contribute plus have had some sinus issues.

I just feel so physically, emotionally and mentally drained and exhausted. My body is so weak and I'm possibly struggling with some depression as well. I have anxiety and worrt a lot which could also be making me tired. Luckily one good thing is, I have no trouble sleeping. I rarely wake up in the night.  I could probably sleep and sleep...That's probably not healthy either. I never wake up feeling refreshed and always have a headache Sad


Sending hugs xxx

You are really young and shouldn't be this fatigued.. I also have had excruciating fatigue this past year, it's usually caused by long term anxiety and vitamin D deficiency..maybe you have this too? Low vitamin D can cause bad exhaustion and needs treatment !

I use an app called Pacifica, it's for anxiety and stress, it's actually really good !!! They have a few free audios included and I love how it automatically asks you how you're feeling in the evenings. I'm really sorry to hear you are feeling depressed, I struggle with depression too and have recently been referred to mental health team for my anxiety and depression, maybe you can get this too ??

I wouldn't jump to conclusions about fibromyalgia yet, it tends to have more severe symptoms I think ..

hope you're well

xxx
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Re: Chronic tiredness (possibly V related)

Post  tinkerbelle2 on Thu Sep 14, 2017 5:53 pm

PainBlogger wrote:Mention fibromyalgia to your GP. Maybe ask for referral to a pain management specialist. Pain plus tiredness could be fibromyalgia.

Thank you girl. I don't feel that it is fibromyalgia as I've researched it before but I suppose it's always worth ruling it out. Hope you're doing ok xx
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Re: Chronic tiredness (possibly V related)

Post  tinkerbelle2 on Thu Sep 14, 2017 6:00 pm

mary jane wrote:

Sending hugs xxx

You are really young and shouldn't be this fatigued.. I also have had excruciating fatigue this past year, it's usually caused by long term anxiety and vitamin D deficiency..maybe you have this too? Low vitamin D can cause bad exhaustion and needs treatment !

I use an app called Pacifica, it's for anxiety and stress, it's actually really good !!! They have a few free audios included and I love how it automatically asks you how you're feeling in the evenings. I'm really sorry to hear you are feeling depressed, I struggle with depression too and have recently been referred to mental health team for my anxiety and depression, maybe you can get this too ??

I wouldn't jump to conclusions about fibromyalgia yet, it tends to have more severe symptoms I think ..

hope you're well

xxx

Mary Jane I love you sorry for a very belated reply I've been terrible at replying to messages. Thanks so much,you've always brightened me up. Funnily enough vitamin D is one of my deficiencies so that's interesting! Zinc and iron also. All can cause low energy plus being in constant chronic pain AND being anxious isn't a great mix haha..How are things for you? V wise and mental health wise? How was it with the mental health team? I'm going to start seeing a new therapist. That app sounds good, I will check it out!
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Re: Chronic tiredness (possibly V related)

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