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» Had this for 5 years, looking for people who understand
Sun Nov 18, 2018 11:22 pm by srbry

» IMPORTANT FOR UK SUFFERERS
Sun Nov 18, 2018 8:42 pm by srbry

» Found relief after more than 15 years of pain!
Thu Oct 25, 2018 4:29 pm by AlwaysInPain

» Back pain, burning feet and vulvodynia....all related?
Sat Oct 20, 2018 3:50 am by lindsey_taylor

» Anyone have pain with urination?
Thu Oct 18, 2018 9:55 am by Gaby

» New member - just looking for feedback
Mon Oct 15, 2018 5:40 pm by mertzwl

» Will I ever be able to wear jeans?
Sun Oct 14, 2018 4:14 pm by Npage14

» Amitriptyline Success and new-found love
Thu Oct 11, 2018 8:29 pm by megaanx

» Diagnosed recently, looking for advice
Wed Oct 10, 2018 2:30 pm by wuhujen

Had this for 5 years, looking for people who understand

Sat Oct 06, 2018 9:46 pm by blackberrie

Hey all. I'm really struggling to find anyone in real life who can really understand what I'm going through. I've had vestibulodynia for 5 years now and I'm single. Obviously it has completely affected how I approach dating and sex and the fact that I can't really talk to people irl about it has made me feel very lonely. I've found that a lot of the women who have this problem are married and …

Comments: 3

Anyone have pain with urination?

Tue Oct 16, 2018 2:35 pm by mertzwl

Hi everyone - I can't believe I've been dealing with this for almost 10 years and an appointment scheduler at a urogyn office is the one to suggest I look into vulvodynia. Honestly, I don't care, I just thankful I might have an answer.

I have pain in one specific spot right around the urethral opening so it always coincides with urinating (it's not a uti). Does anyone else deal with pain …

Comments: 6

Diagnosed recently, looking for advice

Sun Sep 02, 2018 12:51 am by Cloudberry

Hi everyone,

I'm so glad I found this forum! I was diagnosed with vulvodynia/vulvar vestibulitis (still not sure about the difference between all the different terms) a couple of months ago and I could do with some advice. This is probably going to be a lot of text because I just want to get everything off my chest, so please bear with me.

I’m a woman in my late 20s. Before getting diagnosed …

Comments: 4

From a concerned husband

Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot …

Comments: 4

6 year sufferer but I’ve found some hope

Wed Oct 10, 2018 1:33 am by Npage14

Hey, ladies! I’m new to this support group, I’ve thought about doing something like this for a while so I wanted to try this out! I’ve had vulvodynia for 6 years now, I am self diagnosed. I’m 20 now and the pain started when I had my first encounter with sexual contact when I was 14(I still remained a virgin though it was fingering). For a couple years the pain was so bad I could hardly …

Comments: 0

Hurting, Burning, Itching, and Worn Out

Thu Aug 09, 2018 10:55 pm by donnambr

This vulvodynia that I'm currently suffering with is so cruel. I hurt, I burn, I itch. When I first got this several years ago, before the internet, I though I was the only one with this awful disorder. Doctors couldn't figure it out. I felt so alone and devastated. Somehow it disappeared for a few years and now I'm suffering again. This dreaded V misery is back and I feel like I will be with …

Comments: 5

Hi girls! New in this forum

Fri Jul 13, 2018 2:31 pm by Gaby

Hi everyone!

Also joining the V club, Here my story:

It all started last year in september with a very bad throat infection for which i had to take antibiotics for about a month. This cause several yeast infections (candidia albicans).... one after the other!. I had them every month from october 2017 till march 2018. During this period i use an incredible amount of anti-fungal creams and …

Comments: 1

Newbie and feeling helpless

Wed Jul 11, 2018 1:52 pm by Taylor1

Hi, I found out a few weeks ago that I have this condition, started off at the end of April as a uti took strong antibiotics then got a thrush infection and now this.. My doctor has tried me on amitriptyline and gabipentin and both made me so poorly I couldn't take it plus I have seen what long use of these drugs has done to my mom for pain and its not good. I am using coconut oil which does …

Comments: 3

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 6


Male visitor

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Male visitor

Post  outsider on Wed Jan 18, 2017 11:19 pm

Hello!

I am a 25 year old guy who has erectile dysfunction following an injury a few years ago. I am here because I think that men and women with sexual dysfunction could benefit from dating each other. My experience has been that women have lost interest when they found out that penetrative sex was not possible with me.
So I am interested in learning more about female sexual disorders. Do young women with vulvodynia have the same concerns about whether they will ever find a loving partner?

outsider

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Re: Male visitor

Post  emalita on Sun Feb 26, 2017 10:21 pm

Hi there!

Yes, of course we fear never being able to find a loving partner due to our sexual restrictions. That fear creates stress and anxiety which makes pain conditions that much worse, but I'm slowly working on coming to terms with who I am, which includes this condition.

emalita

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Re: Male visitor

Post  Mark on Tue Apr 11, 2017 7:14 pm

Hi Outsider,

It's been a while since you posted I know, but hopefully you'll see my message.
Like you, I'm male. I don't have any penis-related problems but it wouldn't matter if I did because my wife has vulvodynia.
Basically I think you're right, men with erection problems would make good partners for women with vulvodynia. My wife jokes that women want men for four things:
Love/companionship
Physical closeness
Orgasms
Babies
You don't need erections to do the first three of these things. In fact you might find you're better at all three than men who just think with their dicks and are too eager to stick it in and pump away.
Three things to bear in mind. Firstly some women with vulvodynia have such bad pain or have their condition triggered by touching any part of their genitals (not just the actual vagina where the penis goes in ). So they can't have any type of sex at all. That's OK if you can live without it. But if you need the enjoyment of making a woman climax it could be frustrating for you. Secondly if you meet someone who wants kids, can you get enough of an erection to masturbate occasionally to produce semen for assisted conception? Sorry to be so direct but it's something to bear in mind. And thirdly re the closeness thing, there are things you might not think of until you're in a relationship that are different about being in love with a woman who has this condition. Someone in pain can be short tempered or needy at times and there could be things she can't do. These could include travelling (my wife hates being on a plane if she has her pain) and doing certain activities that require wearing trousers rather than skirts and dresses. Sports etc perhaps.
Have you thought about posting in the general chat/off topic forum here to see if there are any single girls here who'd go on a date with you? It's wrong to generalise but there are some really nice people here and my wife is wonderful and I think sometimes people who've had to face bad things come out of it kinder and more determined than others, so women who have vulvodynia can be very special people :-).

Mark

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Re: Male visitor

Post  emalita on Tue Apr 11, 2017 8:56 pm

Just to add, there are dating sites for people with sexual dysfunction. Below is one option, but if you Google it you will find others:

2date4love.com

emalita

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Re: Male visitor

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