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Looking for a friend IRL; LA/OC

Tue Jul 18, 2017 2:51 am by crypticcalico

Hello!

I am hoping to find a friend in the LA/OC area that I can meet up with in person. I live in Long Beach, California and I am willing to drive a bit to meet. The only person that I've told about this is my doctor(s) and someone who couldn't wrap their brain around it. It would be nice to be able to talk to someone else who understands.

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Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 20

Owner of vulvodyniSuppoet.com

Wed Jul 19, 2017 10:28 pm by LaurenVV

Hi, I started vulvodyniasupport.com at the age of 28.
I was a leader when there was no help, no forums etc.

As I went on my path, I found acupuncture, herbs and time helped me recover.
Most never do.

I met a wonderful woman named Hanna. She was a patient and became a support leader. She lived in FLoroda.

I have moved on from the support world and found a career that allowed
Me to bring my …

Comments: 0

anyone from southern california in here?

Tue Jul 12, 2011 6:43 pm by Melissa777

Hi Im just wondering if anyone here is from so cal- USA
I am in san diego- but from LA!!!

Comments: 6

Anyone else try Cold Laser therapy/ Low Level Laser Therapy for their vestibulodynia?

Tue Jul 04, 2017 9:01 am by Tired89

Hello everyone. It's been quite a long time since I've posted. I've been extremely depressed and bottling it all up. I've been seeing a pelvic floor therapist (it's only been 4 visits) for my provoked vestibulodynia and the only reason she can get inside of me to do myofascial release and to use the dilators is because I use BLT (benzocaine, lidocaine, tetracaine) ointment on my vestibule prior …

Comments: 2

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 1

New member

Sat Mar 18, 2017 7:37 pm by Lisa1627

Hi ladies. I am new to the forum. I have had what I think is vulvodynia caused from hsv 2. So not only do I have the burning vag but the constant feeling of being contagious. I can honestly say that I hate my life and myself right now. There are days when I think I would rather be dead. I tried the amitryptline and it helped but if it's only making my brain think I don't have pain then it's …

Comments: 12

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 3

Recovered from Vulvodynia

Thu May 04, 2017 9:42 pm by chancesunny

Hey everyone,

Im a new member on this forum and wanted to share my story so I can help anyone who is feeling helpless. Maybe what worked for me can work for you. I'll try to make this short so you can go get better!

I had vulvodynia for about 3-4 years. In the beginning, it started with pain that I thought was just a yeast infection and then I thought it was a urinary tract infection or …

Comments: 2


Male visitor

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Male visitor

Post  outsider on Wed Jan 18, 2017 11:19 pm

Hello!

I am a 25 year old guy who has erectile dysfunction following an injury a few years ago. I am here because I think that men and women with sexual dysfunction could benefit from dating each other. My experience has been that women have lost interest when they found out that penetrative sex was not possible with me.
So I am interested in learning more about female sexual disorders. Do young women with vulvodynia have the same concerns about whether they will ever find a loving partner?

outsider

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Re: Male visitor

Post  emalita on Sun Feb 26, 2017 10:21 pm

Hi there!

Yes, of course we fear never being able to find a loving partner due to our sexual restrictions. That fear creates stress and anxiety which makes pain conditions that much worse, but I'm slowly working on coming to terms with who I am, which includes this condition.

emalita

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Re: Male visitor

Post  Mark on Tue Apr 11, 2017 7:14 pm

Hi Outsider,

It's been a while since you posted I know, but hopefully you'll see my message.
Like you, I'm male. I don't have any penis-related problems but it wouldn't matter if I did because my wife has vulvodynia.
Basically I think you're right, men with erection problems would make good partners for women with vulvodynia. My wife jokes that women want men for four things:
Love/companionship
Physical closeness
Orgasms
Babies
You don't need erections to do the first three of these things. In fact you might find you're better at all three than men who just think with their dicks and are too eager to stick it in and pump away.
Three things to bear in mind. Firstly some women with vulvodynia have such bad pain or have their condition triggered by touching any part of their genitals (not just the actual vagina where the penis goes in ). So they can't have any type of sex at all. That's OK if you can live without it. But if you need the enjoyment of making a woman climax it could be frustrating for you. Secondly if you meet someone who wants kids, can you get enough of an erection to masturbate occasionally to produce semen for assisted conception? Sorry to be so direct but it's something to bear in mind. And thirdly re the closeness thing, there are things you might not think of until you're in a relationship that are different about being in love with a woman who has this condition. Someone in pain can be short tempered or needy at times and there could be things she can't do. These could include travelling (my wife hates being on a plane if she has her pain) and doing certain activities that require wearing trousers rather than skirts and dresses. Sports etc perhaps.
Have you thought about posting in the general chat/off topic forum here to see if there are any single girls here who'd go on a date with you? It's wrong to generalise but there are some really nice people here and my wife is wonderful and I think sometimes people who've had to face bad things come out of it kinder and more determined than others, so women who have vulvodynia can be very special people :-).

Mark

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Re: Male visitor

Post  emalita on Tue Apr 11, 2017 8:56 pm

Just to add, there are dating sites for people with sexual dysfunction. Below is one option, but if you Google it you will find others:

2date4love.com

emalita

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Re: Male visitor

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