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» Change in birth control question
Yesterday at 3:47 pm by Jo44

» It feels like I’m going to have pain forever
Mon Jul 16, 2018 12:11 pm by mhhh

» It feels like I’m going to have pain forever
Mon Jul 16, 2018 10:01 am by dunkelma

» It feels like I’m going to have pain forever
Mon Jul 16, 2018 8:51 am by dunkelma

» Honey decreased my pain considerably!
Sun Jul 15, 2018 12:53 pm by mhhh

» Birth control pills can cause vestibulitis
Sun Jul 15, 2018 1:15 am by MDias

» Gabapentin gel and pregnancy
Sat Jul 14, 2018 4:15 pm by Georgie 121212

» From a concerned husband
Fri Jul 13, 2018 6:02 pm by emalita

» I'M NEW - Do I listen to my gyno who I feel has it wrong?
Fri Jul 13, 2018 2:58 pm by Gaby

From a concerned husband

Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot …

Comments: 1

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 9

Hi girls! New in this forum

Fri Jul 13, 2018 2:31 pm by Gaby

Hi everyone!

Also joining the V club, Here my story:

It all started last year in september with a very bad throat infection for which i had to take antibiotics for about a month. This cause several yeast infections (candidia albicans).... one after the other!. I had them every month from october 2017 till march 2018. During this period i use an incredible amount of anti-fungal creams and …

Comments: 0

Newbie and feeling helpless

Wed Jul 11, 2018 1:52 pm by Taylor1

Hi, I found out a few weeks ago that I have this condition, started off at the end of April as a uti took strong antibiotics then got a thrush infection and now this.. My doctor has tried me on amitriptyline and gabipentin and both made me so poorly I couldn't take it plus I have seen what long use of these drugs has done to my mom for pain and its not good. I am using coconut oil which does …

Comments: 1

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 5

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0


Male visitor

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Male visitor

Post  outsider on Wed Jan 18, 2017 11:19 pm

Hello!

I am a 25 year old guy who has erectile dysfunction following an injury a few years ago. I am here because I think that men and women with sexual dysfunction could benefit from dating each other. My experience has been that women have lost interest when they found out that penetrative sex was not possible with me.
So I am interested in learning more about female sexual disorders. Do young women with vulvodynia have the same concerns about whether they will ever find a loving partner?

outsider

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Re: Male visitor

Post  emalita on Sun Feb 26, 2017 10:21 pm

Hi there!

Yes, of course we fear never being able to find a loving partner due to our sexual restrictions. That fear creates stress and anxiety which makes pain conditions that much worse, but I'm slowly working on coming to terms with who I am, which includes this condition.

emalita

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Re: Male visitor

Post  Mark on Tue Apr 11, 2017 7:14 pm

Hi Outsider,

It's been a while since you posted I know, but hopefully you'll see my message.
Like you, I'm male. I don't have any penis-related problems but it wouldn't matter if I did because my wife has vulvodynia.
Basically I think you're right, men with erection problems would make good partners for women with vulvodynia. My wife jokes that women want men for four things:
Love/companionship
Physical closeness
Orgasms
Babies
You don't need erections to do the first three of these things. In fact you might find you're better at all three than men who just think with their dicks and are too eager to stick it in and pump away.
Three things to bear in mind. Firstly some women with vulvodynia have such bad pain or have their condition triggered by touching any part of their genitals (not just the actual vagina where the penis goes in ). So they can't have any type of sex at all. That's OK if you can live without it. But if you need the enjoyment of making a woman climax it could be frustrating for you. Secondly if you meet someone who wants kids, can you get enough of an erection to masturbate occasionally to produce semen for assisted conception? Sorry to be so direct but it's something to bear in mind. And thirdly re the closeness thing, there are things you might not think of until you're in a relationship that are different about being in love with a woman who has this condition. Someone in pain can be short tempered or needy at times and there could be things she can't do. These could include travelling (my wife hates being on a plane if she has her pain) and doing certain activities that require wearing trousers rather than skirts and dresses. Sports etc perhaps.
Have you thought about posting in the general chat/off topic forum here to see if there are any single girls here who'd go on a date with you? It's wrong to generalise but there are some really nice people here and my wife is wonderful and I think sometimes people who've had to face bad things come out of it kinder and more determined than others, so women who have vulvodynia can be very special people :-).

Mark

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Re: Male visitor

Post  emalita on Tue Apr 11, 2017 8:56 pm

Just to add, there are dating sites for people with sexual dysfunction. Below is one option, but if you Google it you will find others:

2date4love.com

emalita

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Re: Male visitor

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