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» I'm sorry im rambling
Today at 5:49 am by Jet227

» Diagnosed Recently
Thu Feb 14, 2019 6:35 pm by davesjen

» New and need advice and help
Wed Feb 13, 2019 12:42 pm by feeling desperate

» New here would very much appreciate advice at the end of my rope
Wed Feb 13, 2019 12:33 pm by feeling desperate

» MonaLisa Touch
Sat Feb 09, 2019 3:46 pm by Julquint

» New member desperate need of other vulvadynia sufferers
Sat Feb 09, 2019 10:09 am by Tfc13

» The pain CAN get better - What's worked for me
Sat Feb 09, 2019 8:17 am by Ginger

» Remission and relapse and again and again
Thu Feb 07, 2019 1:10 pm by mary jane

» Long term pain after partial vestibulectomy?
Wed Feb 06, 2019 1:56 pm by mary jane

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 0

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 1

New member desperate need of other vulvadynia sufferers

Fri Feb 08, 2019 6:55 pm by Tfc13

Hi there hope some1 reading this is going through the same shit as me!, I'm new to this so don't really know where to start , I'm Teresa , I've just been diagnosed with vestibular vulvadynia , after countless appointments with GPS being misdiagnosed, tested for god knows everything , eventually under my gynochologist ,who done all her necessary tests, I now have been given a diagnosis I'm in …

Comments: 5

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 7

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 13

Hello. Happy to have found this group.

Fri Dec 07, 2018 9:01 pm by foxysugarpants

I am new here and hope to gain some insight into my vulva pain. I suffered for a long time not realizing that there are ways to feel better. I saw the Dr. yesterday and I am starting P/T pelvic and valium suppositories. queen

Comments: 0


Male visitor

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Male visitor

Post  outsider on Wed Jan 18, 2017 11:19 pm

Hello!

I am a 25 year old guy who has erectile dysfunction following an injury a few years ago. I am here because I think that men and women with sexual dysfunction could benefit from dating each other. My experience has been that women have lost interest when they found out that penetrative sex was not possible with me.
So I am interested in learning more about female sexual disorders. Do young women with vulvodynia have the same concerns about whether they will ever find a loving partner?

outsider

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Re: Male visitor

Post  emalita on Sun Feb 26, 2017 10:21 pm

Hi there!

Yes, of course we fear never being able to find a loving partner due to our sexual restrictions. That fear creates stress and anxiety which makes pain conditions that much worse, but I'm slowly working on coming to terms with who I am, which includes this condition.

emalita

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Re: Male visitor

Post  Mark on Tue Apr 11, 2017 7:14 pm

Hi Outsider,

It's been a while since you posted I know, but hopefully you'll see my message.
Like you, I'm male. I don't have any penis-related problems but it wouldn't matter if I did because my wife has vulvodynia.
Basically I think you're right, men with erection problems would make good partners for women with vulvodynia. My wife jokes that women want men for four things:
Love/companionship
Physical closeness
Orgasms
Babies
You don't need erections to do the first three of these things. In fact you might find you're better at all three than men who just think with their dicks and are too eager to stick it in and pump away.
Three things to bear in mind. Firstly some women with vulvodynia have such bad pain or have their condition triggered by touching any part of their genitals (not just the actual vagina where the penis goes in ). So they can't have any type of sex at all. That's OK if you can live without it. But if you need the enjoyment of making a woman climax it could be frustrating for you. Secondly if you meet someone who wants kids, can you get enough of an erection to masturbate occasionally to produce semen for assisted conception? Sorry to be so direct but it's something to bear in mind. And thirdly re the closeness thing, there are things you might not think of until you're in a relationship that are different about being in love with a woman who has this condition. Someone in pain can be short tempered or needy at times and there could be things she can't do. These could include travelling (my wife hates being on a plane if she has her pain) and doing certain activities that require wearing trousers rather than skirts and dresses. Sports etc perhaps.
Have you thought about posting in the general chat/off topic forum here to see if there are any single girls here who'd go on a date with you? It's wrong to generalise but there are some really nice people here and my wife is wonderful and I think sometimes people who've had to face bad things come out of it kinder and more determined than others, so women who have vulvodynia can be very special people :-).

Mark

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Re: Male visitor

Post  emalita on Tue Apr 11, 2017 8:56 pm

Just to add, there are dating sites for people with sexual dysfunction. Below is one option, but if you Google it you will find others:

2date4love.com

emalita

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Re: Male visitor

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