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» Vestibulectomy
Fri Aug 18, 2017 12:39 pm by Hopeitworks

» Anyone been to see Dr.Claire Bailey in Birmingham?
Tue Aug 15, 2017 6:36 pm by Kezz

» Recently Diagnosed.... Help!
Tue Aug 15, 2017 2:57 pm by amyhp

» Discomfort from my own liquids
Sun Aug 13, 2017 4:27 am by Hopeitworks

» Anyone else have burning on the front of thighs?
Sun Aug 13, 2017 2:20 am by Hopeitworks

» Partial Vestibulectomy
Sun Aug 13, 2017 1:38 am by infinitelywondering

» Anyone being treated by Drexel University???
Sat Aug 12, 2017 8:50 pm by Hopeitworks

» Post Vestibulectomy Pain !!!
Sat Aug 12, 2017 8:00 pm by sj17

» Pain management - what works for me
Sat Aug 12, 2017 9:58 am by sj17

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 4

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

Comments: 0

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 1

New to the site and just had a vestibulectomy

Fri Aug 04, 2017 12:19 am by Hopeitworks

Hello Everyone,

I have been suffering from vulvodynia for years! So I decided to go ahead and have vestibulectomy on July 28, 2017. I really wished I would of found this site before I went through with the surgery. Maybe I would have been more prepared to deal with recovering. I just need someone to talk and I dont mind hearing your story.

Comments: 2

Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering

Heya,

I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 0

can anyone recommend a good dermatologist in LA?

Thu Jul 27, 2017 4:17 pm by saffron

Hi, I am wondering if anyone knows a vulvar dermatologist in Los Angeles? My problems seem to be external, but I'm having trouble finding a knowledgable doctor. My current dermatologist is pretty cosmetic based and I'm afraid all the products he prescribed actually made my situation so much worse!

I know there a few drs in Orange County/San Diego, but was hoping to stay local as even …

Comments: 3

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 0


Male visitor

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Male visitor

Post  outsider on Wed Jan 18, 2017 11:19 pm

Hello!

I am a 25 year old guy who has erectile dysfunction following an injury a few years ago. I am here because I think that men and women with sexual dysfunction could benefit from dating each other. My experience has been that women have lost interest when they found out that penetrative sex was not possible with me.
So I am interested in learning more about female sexual disorders. Do young women with vulvodynia have the same concerns about whether they will ever find a loving partner?

outsider

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Re: Male visitor

Post  emalita on Sun Feb 26, 2017 10:21 pm

Hi there!

Yes, of course we fear never being able to find a loving partner due to our sexual restrictions. That fear creates stress and anxiety which makes pain conditions that much worse, but I'm slowly working on coming to terms with who I am, which includes this condition.

emalita

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Re: Male visitor

Post  Mark on Tue Apr 11, 2017 7:14 pm

Hi Outsider,

It's been a while since you posted I know, but hopefully you'll see my message.
Like you, I'm male. I don't have any penis-related problems but it wouldn't matter if I did because my wife has vulvodynia.
Basically I think you're right, men with erection problems would make good partners for women with vulvodynia. My wife jokes that women want men for four things:
Love/companionship
Physical closeness
Orgasms
Babies
You don't need erections to do the first three of these things. In fact you might find you're better at all three than men who just think with their dicks and are too eager to stick it in and pump away.
Three things to bear in mind. Firstly some women with vulvodynia have such bad pain or have their condition triggered by touching any part of their genitals (not just the actual vagina where the penis goes in ). So they can't have any type of sex at all. That's OK if you can live without it. But if you need the enjoyment of making a woman climax it could be frustrating for you. Secondly if you meet someone who wants kids, can you get enough of an erection to masturbate occasionally to produce semen for assisted conception? Sorry to be so direct but it's something to bear in mind. And thirdly re the closeness thing, there are things you might not think of until you're in a relationship that are different about being in love with a woman who has this condition. Someone in pain can be short tempered or needy at times and there could be things she can't do. These could include travelling (my wife hates being on a plane if she has her pain) and doing certain activities that require wearing trousers rather than skirts and dresses. Sports etc perhaps.
Have you thought about posting in the general chat/off topic forum here to see if there are any single girls here who'd go on a date with you? It's wrong to generalise but there are some really nice people here and my wife is wonderful and I think sometimes people who've had to face bad things come out of it kinder and more determined than others, so women who have vulvodynia can be very special people :-).

Mark

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Re: Male visitor

Post  emalita on Tue Apr 11, 2017 8:56 pm

Just to add, there are dating sites for people with sexual dysfunction. Below is one option, but if you Google it you will find others:

2date4love.com

emalita

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