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I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

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I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

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Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

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What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

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I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

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Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 6

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 4

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

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Pain management - what works for me

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Pain management - what works for me

Post  sj17 on Tue May 16, 2017 4:11 pm

Hi all,
This is a quick message just to let you know what has been the only thing really to significantly reduce my pain and that is CBD oil. I would recommend you do a bit of research before buying it however it is largely available in the US and in the U.K. through CBD brothers. It is much more effective than nerve medications such as Neurotin or Gabapentin etc. and has less side effects. It is completely legal as it does not contain the illegal properties made from cannabis which is the THC nor is it medical marijuana. It's a type of hemp oil that has been repeatedly effective for people with nerve pain, epilepsy and so forth. I have had unprovoked Vulvodynia now for five years; burning, itchy and soreness on my vestibule region and this is the only thing that takes the pain away. Happy to answer any questions or PM me for any advice.

sj17

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Topically?

Post  amyhp on Tue May 16, 2017 10:17 pm

Do you put it on topically? My symptoms are similar to yours minus the itching. I have also had surgery which has increased my pain.

amyhp

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Re: Pain management - what works for me

Post  sj17 on Wed May 17, 2017 8:07 am

Hi Amy. What surgery did you have? And no, I ingest the oil - I put about four drops on my tongue as required. The taste isn't great but worth the relief.

sj17

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Re: Pain management - what works for me

Post  amyhp on Wed May 17, 2017 12:46 pm

I had a full vulvar vestibulectomy

amyhp

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Re: Pain management - what works for me

Post  sj17 on Wed May 17, 2017 1:45 pm

Was your pain provoked or unprovoked and how long a ago was it?

sj17

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Re: Pain management - what works for me

Post  amyhp on Wed May 17, 2017 1:50 pm

I sent you a private message.

amyhp

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Re: Pain management - what works for me

Post  SinclairSassy on Mon May 22, 2017 1:42 pm

Hi sarahjane!

Which oil do you use? I see five on the CBD Brothers website.

Thank you!

SinclairSassy

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Re: Pain management - what works for me

Post  sj17 on Mon May 22, 2017 3:00 pm

The blue edition one x x

sj17

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Re: Pain management - what works for me

Post  SinclairSassy on Mon May 22, 2017 8:05 pm

Awesome! Thank you so much for getting back to me.

SinclairSassy

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Re: Pain management - what works for me

Post  SinclairSassy on Fri May 26, 2017 6:21 pm

I just tried to purchase some oil from the CBD Brothers website and my credit card company denied the charge and is sending me all kinds of text and email alerts saying that there is a possible security breach on my credit card. I guess that is because I am in the US and not the UK. I must be an idiot for not being able to figure out how to buy this stuff without an international incident happening. Wink

I filled out the form on the website and chose the US for shipping. I guess I need to call my credit card company to see what is going on.

SinclairSassy

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Re: Pain management - what works for me

Post  Lisa1627 on Tue Jun 06, 2017 11:37 am

Hi Ladies,

I have purchased the oil and Sarahjane I am praying it works as well as you say it does.
I wonder if you can use it topically also? I just ordered yesterday, so will update as soon as I know anything. Thank you!
Lisa

Lisa1627

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Re: Pain management - what works for me

Post  SinclairSassy on Fri Jun 09, 2017 5:15 pm

I finally got everything straight with my credit card company and my order should be here any day now. Fingers, eyes, and toes crossed that it will provide relief.

SinclairSassy

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Re: Pain management - what works for me

Post  SinclairSassy on Mon Jun 26, 2017 11:07 pm

Yes - I also wondered if you can use it topically.

I have tried it three times orally and it has not helped. (So very sad. I wanted this to work.)

SinclairSassy

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Re: Pain management - what works for me

Post  sj17 on Sat Aug 12, 2017 9:49 am

Sorry ladies. I didn't receive any notifications for this thread of forum. I ingested 4 or 5 drops in my mouth and it seemed to help with the pain dramatically xx

sj17

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Re: Pain management - what works for me

Post  sj17 on Sat Aug 12, 2017 9:58 am

Just to add I have never used it topically. It might be worth adding a few more drops to your tongue and seeing if the increased concentration helps

sj17

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CBD oil

Post  Jo44 on Tue Apr 24, 2018 3:41 pm


SinclairSassy wrote:Yes - I also wondered if you can use it topically.

I have tried it three times orally and it has not helped. (So very sad. I wanted this to work.)

Hi huni, I belong to a Facebook CBD oil support group & one thing I have now learnt with CBD oil is that it needs to be started very slowly & taken every day twice or 3 times a day. It needs to build up in your system it doesn’t work like a “paracetamol “ would for a headache Ie; straight away.

Start week one with one drop twice/three times a day, then second week 2 drops each times etc & so on.

I am taking CBD oil & 10 days in, still early days but have had some good days & some not so good! X

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Re: Pain management - what works for me

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