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» Can you guys tell me your experiences with diflucan/Fluconazole?
Today at 1:29 am by ryn207

» So frustrating!!
Today at 1:25 am by ryn207

» Looking for suggestions or encouragement
Today at 1:19 am by ryn207

» Looking for a friend..... and new problems
Yesterday at 10:00 pm by VVSSufferer

» Vestibulectomy recovery question!
Sun Jan 14, 2018 11:37 pm by Kezz

» Prescription creams that work!
Sun Jan 14, 2018 4:46 am by Mintaherb

» Struggling
Sun Jan 14, 2018 4:29 am by Mintaherb

» Went Away and Came Back
Sat Jan 13, 2018 10:56 am by mary jane

» Amitriptyline given for vulvodyina pain
Sat Jan 13, 2018 1:39 am by ryn207

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



Comments: 5

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 11

7 years later and life looks bleak :(

Wed Dec 06, 2017 2:50 am by RainyShay77

So 7 years ago I had a case of BV...the antibiotic caused a horrible yeast infection which took 5 months to 'get rid of'. During this time I had allergic reactions to 2 of the yeast infection creams which magnified the pain. Over the past 7 years I've tried multiple rounds of physical therapy (they only slightly helped), chiropractic, nerve blocks, medications to target nerve pain (amitriptyline, …

Comments: 7

Newly diagnosed - and prescribed amitriptyline cream/physio/psychology

Sun Jan 07, 2018 9:38 am by sophiarp

Hi everyone,

I'm so happy to have stumbled across this forum. I have just been diagnosed and am really struggling emotionally. It's nice to find this forum and feel a little less alone.

I've been prescribed amitriptyline cream. Has anyone had success with this? I was happy to have avoided the amitriptyline tablets. I'm also participating in physio and have been told I need to see a psychologist …

Comments: 2

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 11

Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Hello,
Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

Comments: 1

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1


Pain management - what works for me

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Pain management - what works for me

Post  sj17 on Tue May 16, 2017 4:11 pm

Hi all,
This is a quick message just to let you know what has been the only thing really to significantly reduce my pain and that is CBD oil. I would recommend you do a bit of research before buying it however it is largely available in the US and in the U.K. through CBD brothers. It is much more effective than nerve medications such as Neurotin or Gabapentin etc. and has less side effects. It is completely legal as it does not contain the illegal properties made from cannabis which is the THC nor is it medical marijuana. It's a type of hemp oil that has been repeatedly effective for people with nerve pain, epilepsy and so forth. I have had unprovoked Vulvodynia now for five years; burning, itchy and soreness on my vestibule region and this is the only thing that takes the pain away. Happy to answer any questions or PM me for any advice.

sj17

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Topically?

Post  amyhp on Tue May 16, 2017 10:17 pm

Do you put it on topically? My symptoms are similar to yours minus the itching. I have also had surgery which has increased my pain.

amyhp

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Re: Pain management - what works for me

Post  sj17 on Wed May 17, 2017 8:07 am

Hi Amy. What surgery did you have? And no, I ingest the oil - I put about four drops on my tongue as required. The taste isn't great but worth the relief.

sj17

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Re: Pain management - what works for me

Post  amyhp on Wed May 17, 2017 12:46 pm

I had a full vulvar vestibulectomy

amyhp

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Re: Pain management - what works for me

Post  sj17 on Wed May 17, 2017 1:45 pm

Was your pain provoked or unprovoked and how long a ago was it?

sj17

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Re: Pain management - what works for me

Post  amyhp on Wed May 17, 2017 1:50 pm

I sent you a private message.

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Re: Pain management - what works for me

Post  SinclairSassy on Mon May 22, 2017 1:42 pm

Hi sarahjane!

Which oil do you use? I see five on the CBD Brothers website.

Thank you!

SinclairSassy

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Re: Pain management - what works for me

Post  sj17 on Mon May 22, 2017 3:00 pm

The blue edition one x x

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Re: Pain management - what works for me

Post  SinclairSassy on Mon May 22, 2017 8:05 pm

Awesome! Thank you so much for getting back to me.

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Re: Pain management - what works for me

Post  SinclairSassy on Fri May 26, 2017 6:21 pm

I just tried to purchase some oil from the CBD Brothers website and my credit card company denied the charge and is sending me all kinds of text and email alerts saying that there is a possible security breach on my credit card. I guess that is because I am in the US and not the UK. I must be an idiot for not being able to figure out how to buy this stuff without an international incident happening. Wink

I filled out the form on the website and chose the US for shipping. I guess I need to call my credit card company to see what is going on.

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Re: Pain management - what works for me

Post  Lisa1627 on Tue Jun 06, 2017 11:37 am

Hi Ladies,

I have purchased the oil and Sarahjane I am praying it works as well as you say it does.
I wonder if you can use it topically also? I just ordered yesterday, so will update as soon as I know anything. Thank you!
Lisa

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Re: Pain management - what works for me

Post  SinclairSassy on Fri Jun 09, 2017 5:15 pm

I finally got everything straight with my credit card company and my order should be here any day now. Fingers, eyes, and toes crossed that it will provide relief.

SinclairSassy

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Re: Pain management - what works for me

Post  SinclairSassy on Mon Jun 26, 2017 11:07 pm

Yes - I also wondered if you can use it topically.

I have tried it three times orally and it has not helped. (So very sad. I wanted this to work.)

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Re: Pain management - what works for me

Post  sj17 on Sat Aug 12, 2017 9:49 am

Sorry ladies. I didn't receive any notifications for this thread of forum. I ingested 4 or 5 drops in my mouth and it seemed to help with the pain dramatically xx

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Re: Pain management - what works for me

Post  sj17 on Sat Aug 12, 2017 9:58 am

Just to add I have never used it topically. It might be worth adding a few more drops to your tongue and seeing if the increased concentration helps

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Re: Pain management - what works for me

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