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» Anyone have pain with urination?
Yesterday at 9:55 am by Gaby

» New member - just looking for feedback
Mon Oct 15, 2018 5:40 pm by mertzwl

» Will I ever be able to wear jeans?
Sun Oct 14, 2018 4:14 pm by Npage14

» Amitriptyline Success and new-found love
Thu Oct 11, 2018 8:29 pm by megaanx

» Diagnosed recently, looking for advice
Wed Oct 10, 2018 2:30 pm by wuhujen

» Dose HAVING VULVODYNIA MEANS YOU HAVE LUPUS?? HELP IM FREAKING OUT!
Wed Oct 10, 2018 2:01 pm by pussycat

» From a concerned husband
Wed Oct 10, 2018 1:46 pm by shope610

» Had this for 5 years, looking for people who understand
Wed Oct 10, 2018 1:55 am by Npage14

» 6 year sufferer but I’ve found some hope
Wed Oct 10, 2018 1:33 am by Npage14

Anyone have pain with urination?

Tue Oct 16, 2018 2:35 pm by mertzwl

Hi everyone - I can't believe I've been dealing with this for almost 10 years and an appointment scheduler at a urogyn office is the one to suggest I look into vulvodynia. Honestly, I don't care, I just thankful I might have an answer.

I have pain in one specific spot right around the urethral opening so it always coincides with urinating (it's not a uti). Does anyone else deal with pain …

Comments: 6

Diagnosed recently, looking for advice

Sun Sep 02, 2018 12:51 am by Cloudberry

Hi everyone,

I'm so glad I found this forum! I was diagnosed with vulvodynia/vulvar vestibulitis (still not sure about the difference between all the different terms) a couple of months ago and I could do with some advice. This is probably going to be a lot of text because I just want to get everything off my chest, so please bear with me.

I’m a woman in my late 20s. Before getting diagnosed …

Comments: 4

From a concerned husband

Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot …

Comments: 4

Had this for 5 years, looking for people who understand

Sat Oct 06, 2018 9:46 pm by blackberrie

Hey all. I'm really struggling to find anyone in real life who can really understand what I'm going through. I've had vestibulodynia for 5 years now and I'm single. Obviously it has completely affected how I approach dating and sex and the fact that I can't really talk to people irl about it has made me feel very lonely. I've found that a lot of the women who have this problem are married and …

Comments: 2

6 year sufferer but I’ve found some hope

Wed Oct 10, 2018 1:33 am by Npage14

Hey, ladies! I’m new to this support group, I’ve thought about doing something like this for a while so I wanted to try this out! I’ve had vulvodynia for 6 years now, I am self diagnosed. I’m 20 now and the pain started when I had my first encounter with sexual contact when I was 14(I still remained a virgin though it was fingering). For a couple years the pain was so bad I could hardly …

Comments: 0

Hurting, Burning, Itching, and Worn Out

Thu Aug 09, 2018 10:55 pm by donnambr

This vulvodynia that I'm currently suffering with is so cruel. I hurt, I burn, I itch. When I first got this several years ago, before the internet, I though I was the only one with this awful disorder. Doctors couldn't figure it out. I felt so alone and devastated. Somehow it disappeared for a few years and now I'm suffering again. This dreaded V misery is back and I feel like I will be with …

Comments: 5

Hi girls! New in this forum

Fri Jul 13, 2018 2:31 pm by Gaby

Hi everyone!

Also joining the V club, Here my story:

It all started last year in september with a very bad throat infection for which i had to take antibiotics for about a month. This cause several yeast infections (candidia albicans).... one after the other!. I had them every month from october 2017 till march 2018. During this period i use an incredible amount of anti-fungal creams and …

Comments: 1

Newbie and feeling helpless

Wed Jul 11, 2018 1:52 pm by Taylor1

Hi, I found out a few weeks ago that I have this condition, started off at the end of April as a uti took strong antibiotics then got a thrush infection and now this.. My doctor has tried me on amitriptyline and gabipentin and both made me so poorly I couldn't take it plus I have seen what long use of these drugs has done to my mom for pain and its not good. I am using coconut oil which does …

Comments: 3

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 6


Pain management - what works for me

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Pain management - what works for me

Post  sj17 on Tue May 16, 2017 4:11 pm

Hi all,
This is a quick message just to let you know what has been the only thing really to significantly reduce my pain and that is CBD oil. I would recommend you do a bit of research before buying it however it is largely available in the US and in the U.K. through CBD brothers. It is much more effective than nerve medications such as Neurotin or Gabapentin etc. and has less side effects. It is completely legal as it does not contain the illegal properties made from cannabis which is the THC nor is it medical marijuana. It's a type of hemp oil that has been repeatedly effective for people with nerve pain, epilepsy and so forth. I have had unprovoked Vulvodynia now for five years; burning, itchy and soreness on my vestibule region and this is the only thing that takes the pain away. Happy to answer any questions or PM me for any advice.

sj17

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Topically?

Post  amyhp on Tue May 16, 2017 10:17 pm

Do you put it on topically? My symptoms are similar to yours minus the itching. I have also had surgery which has increased my pain.

amyhp

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Re: Pain management - what works for me

Post  sj17 on Wed May 17, 2017 8:07 am

Hi Amy. What surgery did you have? And no, I ingest the oil - I put about four drops on my tongue as required. The taste isn't great but worth the relief.

sj17

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Re: Pain management - what works for me

Post  amyhp on Wed May 17, 2017 12:46 pm

I had a full vulvar vestibulectomy

amyhp

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Re: Pain management - what works for me

Post  sj17 on Wed May 17, 2017 1:45 pm

Was your pain provoked or unprovoked and how long a ago was it?

sj17

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Re: Pain management - what works for me

Post  amyhp on Wed May 17, 2017 1:50 pm

I sent you a private message.

amyhp

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Re: Pain management - what works for me

Post  SinclairSassy on Mon May 22, 2017 1:42 pm

Hi sarahjane!

Which oil do you use? I see five on the CBD Brothers website.

Thank you!

SinclairSassy

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Re: Pain management - what works for me

Post  sj17 on Mon May 22, 2017 3:00 pm

The blue edition one x x

sj17

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Re: Pain management - what works for me

Post  SinclairSassy on Mon May 22, 2017 8:05 pm

Awesome! Thank you so much for getting back to me.

SinclairSassy

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Re: Pain management - what works for me

Post  SinclairSassy on Fri May 26, 2017 6:21 pm

I just tried to purchase some oil from the CBD Brothers website and my credit card company denied the charge and is sending me all kinds of text and email alerts saying that there is a possible security breach on my credit card. I guess that is because I am in the US and not the UK. I must be an idiot for not being able to figure out how to buy this stuff without an international incident happening. Wink

I filled out the form on the website and chose the US for shipping. I guess I need to call my credit card company to see what is going on.

SinclairSassy

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Re: Pain management - what works for me

Post  Lisa1627 on Tue Jun 06, 2017 11:37 am

Hi Ladies,

I have purchased the oil and Sarahjane I am praying it works as well as you say it does.
I wonder if you can use it topically also? I just ordered yesterday, so will update as soon as I know anything. Thank you!
Lisa

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Re: Pain management - what works for me

Post  SinclairSassy on Fri Jun 09, 2017 5:15 pm

I finally got everything straight with my credit card company and my order should be here any day now. Fingers, eyes, and toes crossed that it will provide relief.

SinclairSassy

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Re: Pain management - what works for me

Post  SinclairSassy on Mon Jun 26, 2017 11:07 pm

Yes - I also wondered if you can use it topically.

I have tried it three times orally and it has not helped. (So very sad. I wanted this to work.)

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Re: Pain management - what works for me

Post  sj17 on Sat Aug 12, 2017 9:49 am

Sorry ladies. I didn't receive any notifications for this thread of forum. I ingested 4 or 5 drops in my mouth and it seemed to help with the pain dramatically xx

sj17

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Re: Pain management - what works for me

Post  sj17 on Sat Aug 12, 2017 9:58 am

Just to add I have never used it topically. It might be worth adding a few more drops to your tongue and seeing if the increased concentration helps

sj17

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CBD oil

Post  Jo44 on Tue Apr 24, 2018 3:41 pm


SinclairSassy wrote:Yes - I also wondered if you can use it topically.

I have tried it three times orally and it has not helped. (So very sad. I wanted this to work.)

Hi huni, I belong to a Facebook CBD oil support group & one thing I have now learnt with CBD oil is that it needs to be started very slowly & taken every day twice or 3 times a day. It needs to build up in your system it doesn’t work like a “paracetamol “ would for a headache Ie; straight away.

Start week one with one drop twice/three times a day, then second week 2 drops each times etc & so on.

I am taking CBD oil & 10 days in, still early days but have had some good days & some not so good! X

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Re: Pain management - what works for me

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