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New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

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Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

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Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

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Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

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Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

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Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

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Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

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Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1


Pain management - what works for me

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Pain management - what works for me

Post  sj17 on Tue May 16, 2017 4:11 pm

Hi all,
This is a quick message just to let you know what has been the only thing really to significantly reduce my pain and that is CBD oil. I would recommend you do a bit of research before buying it however it is largely available in the US and in the U.K. through CBD brothers. It is much more effective than nerve medications such as Neurotin or Gabapentin etc. and has less side effects. It is completely legal as it does not contain the illegal properties made from cannabis which is the THC nor is it medical marijuana. It's a type of hemp oil that has been repeatedly effective for people with nerve pain, epilepsy and so forth. I have had unprovoked Vulvodynia now for five years; burning, itchy and soreness on my vestibule region and this is the only thing that takes the pain away. Happy to answer any questions or PM me for any advice.

sj17

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Topically?

Post  amyhp on Tue May 16, 2017 10:17 pm

Do you put it on topically? My symptoms are similar to yours minus the itching. I have also had surgery which has increased my pain.

amyhp

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Re: Pain management - what works for me

Post  sj17 on Wed May 17, 2017 8:07 am

Hi Amy. What surgery did you have? And no, I ingest the oil - I put about four drops on my tongue as required. The taste isn't great but worth the relief.

sj17

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Re: Pain management - what works for me

Post  amyhp on Wed May 17, 2017 12:46 pm

I had a full vulvar vestibulectomy

amyhp

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Re: Pain management - what works for me

Post  sj17 on Wed May 17, 2017 1:45 pm

Was your pain provoked or unprovoked and how long a ago was it?

sj17

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Re: Pain management - what works for me

Post  amyhp on Wed May 17, 2017 1:50 pm

I sent you a private message.

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Re: Pain management - what works for me

Post  SinclairSassy on Mon May 22, 2017 1:42 pm

Hi sarahjane!

Which oil do you use? I see five on the CBD Brothers website.

Thank you!

SinclairSassy

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Re: Pain management - what works for me

Post  sj17 on Mon May 22, 2017 3:00 pm

The blue edition one x x

sj17

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Re: Pain management - what works for me

Post  SinclairSassy on Mon May 22, 2017 8:05 pm

Awesome! Thank you so much for getting back to me.

SinclairSassy

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Re: Pain management - what works for me

Post  SinclairSassy on Fri May 26, 2017 6:21 pm

I just tried to purchase some oil from the CBD Brothers website and my credit card company denied the charge and is sending me all kinds of text and email alerts saying that there is a possible security breach on my credit card. I guess that is because I am in the US and not the UK. I must be an idiot for not being able to figure out how to buy this stuff without an international incident happening. Wink

I filled out the form on the website and chose the US for shipping. I guess I need to call my credit card company to see what is going on.

SinclairSassy

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Re: Pain management - what works for me

Post  Lisa1627 on Tue Jun 06, 2017 11:37 am

Hi Ladies,

I have purchased the oil and Sarahjane I am praying it works as well as you say it does.
I wonder if you can use it topically also? I just ordered yesterday, so will update as soon as I know anything. Thank you!
Lisa

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Re: Pain management - what works for me

Post  SinclairSassy on Fri Jun 09, 2017 5:15 pm

I finally got everything straight with my credit card company and my order should be here any day now. Fingers, eyes, and toes crossed that it will provide relief.

SinclairSassy

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Re: Pain management - what works for me

Post  SinclairSassy on Mon Jun 26, 2017 11:07 pm

Yes - I also wondered if you can use it topically.

I have tried it three times orally and it has not helped. (So very sad. I wanted this to work.)

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Re: Pain management - what works for me

Post  sj17 on Sat Aug 12, 2017 9:49 am

Sorry ladies. I didn't receive any notifications for this thread of forum. I ingested 4 or 5 drops in my mouth and it seemed to help with the pain dramatically xx

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Re: Pain management - what works for me

Post  sj17 on Sat Aug 12, 2017 9:58 am

Just to add I have never used it topically. It might be worth adding a few more drops to your tongue and seeing if the increased concentration helps

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Re: Pain management - what works for me

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