Log in
Similar topics
Latest topics
Gabapentin Gel. or other topical creams
Thu May 10, 2018 9:43 am by Rosie21
Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.
Comments: 2
Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?
Sat Aug 01, 2015 4:17 pm by Fielder
Hi everyone,
I'm a newbie. I live in the UK.
I'm trying to work out the best cushion to get for my vulvodynia. I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.
I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …
I'm a newbie. I live in the UK.
I'm trying to work out the best cushion to get for my vulvodynia. I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.
I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …
Comments: 11
An absolute success story- please read!
Fri Mar 08, 2019 10:57 pm by Persevere1990
Dear All,
I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.
I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …
I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.
I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …
Comments: 0
I'm sorry im rambling
Thu Feb 21, 2019 5:49 am by Jet227
hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …
Comments: 1
New member need advice please
Thu Feb 28, 2019 11:33 pm by PANDORA123
Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.
Thanks
Thanks
Comments: 5
MonaLisa Touch
Fri Feb 08, 2019 7:35 pm by rl2091
Hi All,
I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …
I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …
Comments: 3
Diagnosed Recently
Tue Jan 08, 2019 3:55 pm by flissyg
Hi All,
I’m so glad I’ve found a place where there are others who understand how I feel!
So this is my story:-
I’m 36, and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”. The following morning I woke up …
I’m so glad I’ve found a place where there are others who understand how I feel!
So this is my story:-
I’m 36, and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”. The following morning I woke up …
Comments: 4
New and need advice and help
Wed Dec 05, 2018 3:26 pm by Cin124
Hi everyone,
About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …
About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …
Comments: 6
New here would very much appreciate advice at the end of my rope
Wed Jan 09, 2019 9:09 pm by Jma990o
This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …
Comments: 3
Pain management - what works for me
5 posters
Page 1 of 1
Pain management - what works for me
Hi all,
This is a quick message just to let you know what has been the only thing really to significantly reduce my pain and that is CBD oil. I would recommend you do a bit of research before buying it however it is largely available in the US and in the U.K. through CBD brothers. It is much more effective than nerve medications such as Neurotin or Gabapentin etc. and has less side effects. It is completely legal as it does not contain the illegal properties made from cannabis which is the THC nor is it medical marijuana. It's a type of hemp oil that has been repeatedly effective for people with nerve pain, epilepsy and so forth. I have had unprovoked Vulvodynia now for five years; burning, itchy and soreness on my vestibule region and this is the only thing that takes the pain away. Happy to answer any questions or PM me for any advice.
This is a quick message just to let you know what has been the only thing really to significantly reduce my pain and that is CBD oil. I would recommend you do a bit of research before buying it however it is largely available in the US and in the U.K. through CBD brothers. It is much more effective than nerve medications such as Neurotin or Gabapentin etc. and has less side effects. It is completely legal as it does not contain the illegal properties made from cannabis which is the THC nor is it medical marijuana. It's a type of hemp oil that has been repeatedly effective for people with nerve pain, epilepsy and so forth. I have had unprovoked Vulvodynia now for five years; burning, itchy and soreness on my vestibule region and this is the only thing that takes the pain away. Happy to answer any questions or PM me for any advice.
sj17- Posts : 32
Join date : 2017-05-06
Topically?
Do you put it on topically? My symptoms are similar to yours minus the itching. I have also had surgery which has increased my pain.
amyhp- Posts : 34
Join date : 2015-09-22
Re: Pain management - what works for me
Hi Amy. What surgery did you have? And no, I ingest the oil - I put about four drops on my tongue as required. The taste isn't great but worth the relief.
sj17- Posts : 32
Join date : 2017-05-06
Re: Pain management - what works for me
I had a full vulvar vestibulectomy
amyhp- Posts : 34
Join date : 2015-09-22
Re: Pain management - what works for me
Was your pain provoked or unprovoked and how long a ago was it?
sj17- Posts : 32
Join date : 2017-05-06
Re: Pain management - what works for me
I sent you a private message.
amyhp- Posts : 34
Join date : 2015-09-22
Re: Pain management - what works for me
Hi sarahjane!
Which oil do you use? I see five on the CBD Brothers website.
Thank you!
Which oil do you use? I see five on the CBD Brothers website.
Thank you!
SinclairSassy- Posts : 27
Join date : 2016-08-02
Location : Huntsville, AL
Re: Pain management - what works for me
The blue edition one x x
sj17- Posts : 32
Join date : 2017-05-06
Re: Pain management - what works for me
Awesome! Thank you so much for getting back to me.
SinclairSassy- Posts : 27
Join date : 2016-08-02
Location : Huntsville, AL
Re: Pain management - what works for me
I just tried to purchase some oil from the CBD Brothers website and my credit card company denied the charge and is sending me all kinds of text and email alerts saying that there is a possible security breach on my credit card. I guess that is because I am in the US and not the UK. I must be an idiot for not being able to figure out how to buy this stuff without an international incident happening.
I filled out the form on the website and chose the US for shipping. I guess I need to call my credit card company to see what is going on.
I filled out the form on the website and chose the US for shipping. I guess I need to call my credit card company to see what is going on.
SinclairSassy- Posts : 27
Join date : 2016-08-02
Location : Huntsville, AL
Re: Pain management - what works for me
Hi Ladies,
I have purchased the oil and Sarahjane I am praying it works as well as you say it does.
I wonder if you can use it topically also? I just ordered yesterday, so will update as soon as I know anything. Thank you!
Lisa
I have purchased the oil and Sarahjane I am praying it works as well as you say it does.
I wonder if you can use it topically also? I just ordered yesterday, so will update as soon as I know anything. Thank you!
Lisa
Lisa1627- Posts : 11
Join date : 2017-03-17
Age : 53
Re: Pain management - what works for me
I finally got everything straight with my credit card company and my order should be here any day now. Fingers, eyes, and toes crossed that it will provide relief.
SinclairSassy- Posts : 27
Join date : 2016-08-02
Location : Huntsville, AL
Re: Pain management - what works for me
Yes - I also wondered if you can use it topically.
I have tried it three times orally and it has not helped. (So very sad. I wanted this to work.)
I have tried it three times orally and it has not helped. (So very sad. I wanted this to work.)
SinclairSassy- Posts : 27
Join date : 2016-08-02
Location : Huntsville, AL
Re: Pain management - what works for me
Sorry ladies. I didn't receive any notifications for this thread of forum. I ingested 4 or 5 drops in my mouth and it seemed to help with the pain dramatically xx
sj17- Posts : 32
Join date : 2017-05-06
Re: Pain management - what works for me
Just to add I have never used it topically. It might be worth adding a few more drops to your tongue and seeing if the increased concentration helps
sj17- Posts : 32
Join date : 2017-05-06
CBD oil
SinclairSassy wrote:Yes - I also wondered if you can use it topically.
I have tried it three times orally and it has not helped. (So very sad. I wanted this to work.)
Hi huni, I belong to a Facebook CBD oil support group & one thing I have now learnt with CBD oil is that it needs to be started very slowly & taken every day twice or 3 times a day. It needs to build up in your system it doesn’t work like a “paracetamol “ would for a headache Ie; straight away.
Start week one with one drop twice/three times a day, then second week 2 drops each times etc & so on.
I am taking CBD oil & 10 days in, still early days but have had some good days & some not so good! X
Jo44- Posts : 35
Join date : 2015-02-10
Similar topics
» Cleveland Clinic - Pain Management, Weston, FL
» What medication works?? Need Help dealing with this!
» Neogyn cream - a new treatment for Vulva Pain?
» What medication works?? Need Help dealing with this!
» Neogyn cream - a new treatment for Vulva Pain?
Page 1 of 1
Permissions in this forum:
You cannot reply to topics in this forum
|
|
Fri Oct 23, 2020 12:04 am by ringostarr26
» Please tell me this can get better
Sat Jul 18, 2020 7:38 pm by sammykramer
» By no means cured, but doing much better!
Mon Mar 16, 2020 1:26 pm by tinkerbelle2
» How I cured my Vulvodynia!
Sat Dec 07, 2019 11:54 am by Millie
» 7 months since the diagnosis
Wed Aug 14, 2019 2:38 am by agtoronto
» Gabapentin Gel. or other topical creams
Sat Jun 15, 2019 5:22 pm by mary jane
» IMPORTANT FOR UK SUFFERERS
Sat Jun 15, 2019 5:21 pm by mary jane
» Help New Diagnosis
Sat Jun 15, 2019 5:07 pm by mary jane
» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
Tue Jun 11, 2019 12:56 am by VVSSufferer