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I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

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Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

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New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

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MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

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New member desperate need of other vulvadynia sufferers

Fri Feb 08, 2019 6:55 pm by Tfc13

Hi there hope some1 reading this is going through the same shit as me!, I'm new to this so don't really know where to start , I'm Teresa , I've just been diagnosed with vestibular vulvadynia , after countless appointments with GPS being misdiagnosed, tested for god knows everything , eventually under my gynochologist ,who done all her necessary tests, I now have been given a diagnosis I'm in …

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Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 7

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 13

Hello. Happy to have found this group.

Fri Dec 07, 2018 9:01 pm by foxysugarpants

I am new here and hope to gain some insight into my vulva pain. I suffered for a long time not realizing that there are ways to feel better. I saw the Dr. yesterday and I am starting P/T pelvic and valium suppositories. queen

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Cleveland Clinic - Pain Management, Weston, FL

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Cleveland Clinic - Pain Management, Weston, FL

Post  SinclairSassy on Sat Apr 28, 2018 8:18 pm


Has anyone gone to a Pain Management doctor at Cleveland Clinic - Weston, FL? My primary care doctor (the only doctor that actually pays attention to my whole body, not just one disease/affliction) told me that the city I live in is too small to have a facility that could work through all of the nerve, back, V pain I have and suggested I go to Mayo Clinic or Cleveland Clinic. Mayo really didn't seem to have anyone that knew about V, so I crossed that one out. Cleveland Clinic in Cleveland had a couple of people that worked with V. But as I was looking at doctors, I saw that there are some in Florida that list V as a specialty. Florida is much closer for me (I live in Alabama).

Of course, I have seen other doctors that list V as a specialty, but the minute you sit down and tell them what is going on, they suddenly realize that maybe V should not be listed under the specialties they treat - so it's always a crap shoot.


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Re: Cleveland Clinic - Pain Management, Weston, FL

Post  SinclairSassy on Tue May 22, 2018 7:13 pm

I guess, as usual, the answer is no. There is no help out there, is there?


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Re: Cleveland Clinic - Pain Management, Weston, FL

Post  infinitelywondering on Sat Jun 02, 2018 9:09 am

Sinclair Sassy,

That is simply not true. There’s certainly HELP out there, it’s just whether it can cure you. Everybody is different and th cause of Vulvodynia can be different so of course not all treatments are going to work. It’s about trying to look positively on what is (as we all know) a very negative situation. When I started looking positively about things I started to feel a bit better- obviously not cured but just happier in myself.

I think it’s alwaus good to try and be as positive as possible especially on a forum where so many others are suffering and it’s perhaps not always the best to send out a negative message. Keep fighting and you’ll get there one day- we all will.

This forum in itself is help. There’s physio. Antidepressants for nerve pain. Lidocaine. Surgery. Diet. Biofeedback and dilators. Aloe Vera feel. Steroid creams. Pelvic floor exercises. Botox injections. Laser therapy

That’s to name just a few^

Keep going and don’t lose hope


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Re: Cleveland Clinic - Pain Management, Weston, FL

Post  Alana3 on Sat Aug 11, 2018 12:37 pm

I wish I had seen this sooner! Yes I've been to Cleveland clinic in Westin but chose to stay with my private doctor Dr. Trabin in west palm beach who is affiliated with Cleveland. If you can go to him hes an absolute God send, but the doctors at Cleveland were top notch also! I just prefer private practice. Dr. T did my vestibulectomy and I have no complaints. If you have questions, feel free to directly message me aa I'm not on here anymore much.


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Re: Cleveland Clinic - Pain Management, Weston, FL

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