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» VULVODYNIA AND SUICIDE
Yesterday at 11:20 pm by Faezeh

» a video for you guys
Yesterday at 2:53 am by lavrose

» my rock bottom, psychological effects of vulvodynia, I told him he can leave me
Yesterday at 2:45 am by lavrose

» New and need some help
Fri Feb 23, 2018 1:12 pm by fairlight10

» Acupuncture gave me my life back!
Thu Feb 22, 2018 11:25 pm by Bx11

» Anyone from New Jersey
Thu Feb 22, 2018 10:47 pm by LindafromNJ

» vaginal cream
Thu Feb 22, 2018 10:46 pm by LindafromNJ

» Acupuncture advice please
Thu Feb 22, 2018 2:25 am by ryn207

» Please tell me this can get better
Mon Feb 19, 2018 2:10 am by anon99

New and need some help

Wed Feb 21, 2018 4:30 pm by LindafromNJ

New to this site ad trying to figure out how it works.  I am trying to post as a new member so I am hoping this goes thru.  I am a senior adult and have just been diagnosed by the Drexil Vaginitis Center to have vulvodynia along with Vestibulitis (not sure if spelled correctly).  My symptoms are vaginal burning, itching, soreness around the vaginal opening with one spot in particular.  Some …

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Anyone from New Jersey

Thu Feb 22, 2018 10:47 pm by LindafromNJ

Looking to maybe talk to someone from NJ to see if there are any support groups in this state.

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vaginal cream

Thu Feb 22, 2018 10:46 pm by LindafromNJ

I have been given ABC cream to start using for my condition. This is gabapentin, amitriptyline and baclofen cream. Has anyone tried this. Also has anyone used lidocaine. My doctor told me not to use it. It is so sore at the vaginal opening. Has anyone used it there. Please respond!!

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MAY HAVE FOUND A CURE- PLEASE READ

Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist


after having a vestibulectomy with no success, I decided to visit …

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NO PAIN DURING SEX

Sat Feb 10, 2018 12:18 am by rockylife

I HAVE NO PAIN DURING SEX, BUT I FEEL THIS BURNING SENSATION ALL DAY JUST BESIDE THE VAGINAL OPENING. DO I REALLY HAVE A VULVODYNIA? I'M CONFUSED.

Comments: 2

Newby not sure where to turn

Thu Feb 01, 2018 3:32 pm by Cerjo87

Hi this is all very new to me , well the talking about it bit is , the pain while having sex and also the uncomfortable feelings after and feeling like I have  sistitus most of the time I’m very used to , I’ve suffered for 7 years now I’m only 30 . Finally after all this time the doctors or should I say my gp has said I have Vulvodynia and have givin me gabapentin to try .i told her I’d …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



Comments: 8

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 4

Vulvodynia from #metoo media coverage

Thu Jan 25, 2018 9:01 pm by dooleyhornberg

I am wondering if anyone else in this forum has experience an increase or flare up in their vulvodynia as a result of the coverage of the sexual abuse scandals in Hollywood, DC, and the recent gymnastics scandal. I have definitely had a flare up.

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pain clinic tomorrow morning!!!

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pain clinic tomorrow morning!!!

Post  Sebby (Admin) on Sun Aug 01, 2010 7:22 pm



Ive got my pain clinic appointment tomorrow morning like 9.15am! Im suppossed to talk about my vulva at 9.15am!!

Anyway I have made loadsa notes, mainly from this forum...fanx guys for the advice!! I want to ask about the painkilling options such as the anti-convulsants, nerve blockers etc and also about physical therapy

I do hope I have at least an understanding doctor who even though may not have treated this before is willing to help!

Wish me luck ladies

Sebby
xxxx
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Re: pain clinic tomorrow morning!!!

Post  Sarah001 on Sun Aug 01, 2010 7:32 pm

Good luck Sebby, I'm sure you'll be fine! If it's any reassurance I've been prescribed Amitriptyline for my joint problems but I do find it also decreases the vulvar pain too (although I am like a zombie too unfortunately!) so painkillers of various kinds do help with the symptoms while we look for solutions. Ask them anything you want to and don't be shy!
Let us know how you get on. x
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Re: pain clinic tomorrow morning!!!

Post  naomi on Sun Aug 01, 2010 7:41 pm

good luck chick!!!!!!

Ive got everything crossed for you!!

Ask if you can get their email address...when Ive seen some people they dont mind and its good for asking any questions you might have forgotten to ask.

Also ask for their direct line, quite often ive found some consultants have about 6 blummin secretarys and you end up doing the rounds!!

let us know how it goes xxxxx
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Re: pain clinic tomorrow morning!!!

Post  maggie on Mon Aug 02, 2010 8:19 pm


sebby, how did you get on today, was thinking of you.


maggie x

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Re: pain clinic tomorrow morning!!!

Post  naomi on Mon Aug 02, 2010 8:21 pm

I know I keep logging on to hear the news! Come on Sebby don't leave us in suspenders!!!! Question
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Re: pain clinic tomorrow morning!!!

Post  maggie on Mon Aug 02, 2010 8:38 pm


sebby, where are yooooooooou!!!!

maggie

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Re: pain clinic tomorrow morning!!!

Post  Sebby (Admin) on Tue Aug 03, 2010 11:34 am


Sorry sorry...

Had an odd day yesterday went out after the appointment and fell straight to sleep on the sofa when I got in so now my neck hurts...lol

Ok well the doctor at least had heard of the condition, so thats a good start!

He said he has treated it before and wants to try nerve block injections first. I think I will try this first as taking the anti-convulsant meds scares me more. Mum has taken Pregabalin before and had a very bad reaction to it so Im a little nervous.

I have to wait now for my appointment for the nerve block injection. He said they give it in the lower back..Im scared!

Has anyone else had these? Does it hurt!!! I dont know why Im so worried Ive had tatoo's! My aunt said she has had it and it wasnt too bad

Also how long does it last? I was told 6 weeks?

Also he said if this one doesnt work he will try a peroneal nerve block and they also do something called peroneal nerve stimulation in St Thomas Hospital in London which can help reduce the pain? I will have to look this up!

I was wondering if there are also any side effects with the nerve block? Ive been too scared to Google it at the moment! I have been living in the 'ignorance is bliss' place lol

Im just hoping that it helps with the pain even just reducing it will do me. I also hope it doesnt errrrr how do I put this interfer with any sexual feelings down there hahaha

Thanks for thinking of me girls

Godbless

Sebby
xxxx

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Re: pain clinic tomorrow morning!!!

Post  naomi on Wed Aug 04, 2010 4:10 pm

fingers crossed for you Sebby. Ok 'everything' crossed! Very Happy

Maybe they could numb the area before the injection? or cool it? when I had ingrowing toe nails (still do dohhhh) they rubbed a cooling, numbing gel on. Ask about that poss?

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Re: pain clinic tomorrow morning!!!

Post  Sarah001 on Wed Aug 04, 2010 6:41 pm

Do you mean pudendal nerve block rather than peroneal? The pundendal nerve is one of 3 main ones that supplies the vulva and is in the actual pelvis itself. The physio I saw yesterday said they can use the biofeedback machines to stimulate the pudendal nerve but I haven't actually had it done.
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Re: pain clinic tomorrow morning!!!

Post  Sebby (Admin) on Wed Aug 04, 2010 9:07 pm


Oh yes thats what I meant! duh haha yeah I will ask about the cooling method. Im soo nervous Shocked
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Re: pain clinic tomorrow morning!!!

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