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Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

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Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

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Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

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Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 6


pain clinic tomorrow morning!!!

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pain clinic tomorrow morning!!!

Post  Sebby (Admin) on Sun Aug 01, 2010 7:22 pm



Ive got my pain clinic appointment tomorrow morning like 9.15am! Im suppossed to talk about my vulva at 9.15am!!

Anyway I have made loadsa notes, mainly from this forum...fanx guys for the advice!! I want to ask about the painkilling options such as the anti-convulsants, nerve blockers etc and also about physical therapy

I do hope I have at least an understanding doctor who even though may not have treated this before is willing to help!

Wish me luck ladies

Sebby
xxxx
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Re: pain clinic tomorrow morning!!!

Post  Sarah001 on Sun Aug 01, 2010 7:32 pm

Good luck Sebby, I'm sure you'll be fine! If it's any reassurance I've been prescribed Amitriptyline for my joint problems but I do find it also decreases the vulvar pain too (although I am like a zombie too unfortunately!) so painkillers of various kinds do help with the symptoms while we look for solutions. Ask them anything you want to and don't be shy!
Let us know how you get on. x
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Re: pain clinic tomorrow morning!!!

Post  naomi on Sun Aug 01, 2010 7:41 pm

good luck chick!!!!!!

Ive got everything crossed for you!!

Ask if you can get their email address...when Ive seen some people they dont mind and its good for asking any questions you might have forgotten to ask.

Also ask for their direct line, quite often ive found some consultants have about 6 blummin secretarys and you end up doing the rounds!!

let us know how it goes xxxxx
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Re: pain clinic tomorrow morning!!!

Post  maggie on Mon Aug 02, 2010 8:19 pm


sebby, how did you get on today, was thinking of you.


maggie x

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Re: pain clinic tomorrow morning!!!

Post  naomi on Mon Aug 02, 2010 8:21 pm

I know I keep logging on to hear the news! Come on Sebby don't leave us in suspenders!!!! Question
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Re: pain clinic tomorrow morning!!!

Post  maggie on Mon Aug 02, 2010 8:38 pm


sebby, where are yooooooooou!!!!

maggie

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Re: pain clinic tomorrow morning!!!

Post  Sebby (Admin) on Tue Aug 03, 2010 11:34 am


Sorry sorry...

Had an odd day yesterday went out after the appointment and fell straight to sleep on the sofa when I got in so now my neck hurts...lol

Ok well the doctor at least had heard of the condition, so thats a good start!

He said he has treated it before and wants to try nerve block injections first. I think I will try this first as taking the anti-convulsant meds scares me more. Mum has taken Pregabalin before and had a very bad reaction to it so Im a little nervous.

I have to wait now for my appointment for the nerve block injection. He said they give it in the lower back..Im scared!

Has anyone else had these? Does it hurt!!! I dont know why Im so worried Ive had tatoo's! My aunt said she has had it and it wasnt too bad

Also how long does it last? I was told 6 weeks?

Also he said if this one doesnt work he will try a peroneal nerve block and they also do something called peroneal nerve stimulation in St Thomas Hospital in London which can help reduce the pain? I will have to look this up!

I was wondering if there are also any side effects with the nerve block? Ive been too scared to Google it at the moment! I have been living in the 'ignorance is bliss' place lol

Im just hoping that it helps with the pain even just reducing it will do me. I also hope it doesnt errrrr how do I put this interfer with any sexual feelings down there hahaha

Thanks for thinking of me girls

Godbless

Sebby
xxxx

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Re: pain clinic tomorrow morning!!!

Post  naomi on Wed Aug 04, 2010 4:10 pm

fingers crossed for you Sebby. Ok 'everything' crossed! Very Happy

Maybe they could numb the area before the injection? or cool it? when I had ingrowing toe nails (still do dohhhh) they rubbed a cooling, numbing gel on. Ask about that poss?

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Re: pain clinic tomorrow morning!!!

Post  Sarah001 on Wed Aug 04, 2010 6:41 pm

Do you mean pudendal nerve block rather than peroneal? The pundendal nerve is one of 3 main ones that supplies the vulva and is in the actual pelvis itself. The physio I saw yesterday said they can use the biofeedback machines to stimulate the pudendal nerve but I haven't actually had it done.
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Re: pain clinic tomorrow morning!!!

Post  Sebby (Admin) on Wed Aug 04, 2010 9:07 pm


Oh yes thats what I meant! duh haha yeah I will ask about the cooling method. Im soo nervous Shocked
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Re: pain clinic tomorrow morning!!!

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