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» It feels like I’m going to have pain forever
Yesterday at 12:11 pm by mhhh

» It feels like I’m going to have pain forever
Yesterday at 10:01 am by dunkelma

» It feels like I’m going to have pain forever
Yesterday at 8:51 am by dunkelma

» Honey decreased my pain considerably!
Sun Jul 15, 2018 12:53 pm by mhhh

» Birth control pills can cause vestibulitis
Sun Jul 15, 2018 1:15 am by MDias

» Gabapentin gel and pregnancy
Sat Jul 14, 2018 4:15 pm by Georgie 121212

» From a concerned husband
Fri Jul 13, 2018 6:02 pm by emalita

» I'M NEW - Do I listen to my gyno who I feel has it wrong?
Fri Jul 13, 2018 2:58 pm by Gaby

» Hi girls! New in this forum
Fri Jul 13, 2018 2:31 pm by Gaby

From a concerned husband

Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot …

Comments: 1

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 9

Hi girls! New in this forum

Fri Jul 13, 2018 2:31 pm by Gaby

Hi everyone!

Also joining the V club, Here my story:

It all started last year in september with a very bad throat infection for which i had to take antibiotics for about a month. This cause several yeast infections (candidia albicans).... one after the other!. I had them every month from october 2017 till march 2018. During this period i use an incredible amount of anti-fungal creams and …

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Newbie and feeling helpless

Wed Jul 11, 2018 1:52 pm by Taylor1

Hi, I found out a few weeks ago that I have this condition, started off at the end of April as a uti took strong antibiotics then got a thrush infection and now this.. My doctor has tried me on amitriptyline and gabipentin and both made me so poorly I couldn't take it plus I have seen what long use of these drugs has done to my mom for pain and its not good. I am using coconut oil which does …

Comments: 1

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 5

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0


pain clinic tomorrow morning!!!

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pain clinic tomorrow morning!!!

Post  Sebby (Admin) on Sun Aug 01, 2010 7:22 pm



Ive got my pain clinic appointment tomorrow morning like 9.15am! Im suppossed to talk about my vulva at 9.15am!!

Anyway I have made loadsa notes, mainly from this forum...fanx guys for the advice!! I want to ask about the painkilling options such as the anti-convulsants, nerve blockers etc and also about physical therapy

I do hope I have at least an understanding doctor who even though may not have treated this before is willing to help!

Wish me luck ladies

Sebby
xxxx
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Re: pain clinic tomorrow morning!!!

Post  Sarah001 on Sun Aug 01, 2010 7:32 pm

Good luck Sebby, I'm sure you'll be fine! If it's any reassurance I've been prescribed Amitriptyline for my joint problems but I do find it also decreases the vulvar pain too (although I am like a zombie too unfortunately!) so painkillers of various kinds do help with the symptoms while we look for solutions. Ask them anything you want to and don't be shy!
Let us know how you get on. x
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Re: pain clinic tomorrow morning!!!

Post  naomi on Sun Aug 01, 2010 7:41 pm

good luck chick!!!!!!

Ive got everything crossed for you!!

Ask if you can get their email address...when Ive seen some people they dont mind and its good for asking any questions you might have forgotten to ask.

Also ask for their direct line, quite often ive found some consultants have about 6 blummin secretarys and you end up doing the rounds!!

let us know how it goes xxxxx
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Re: pain clinic tomorrow morning!!!

Post  maggie on Mon Aug 02, 2010 8:19 pm


sebby, how did you get on today, was thinking of you.


maggie x

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Re: pain clinic tomorrow morning!!!

Post  naomi on Mon Aug 02, 2010 8:21 pm

I know I keep logging on to hear the news! Come on Sebby don't leave us in suspenders!!!! Question
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Re: pain clinic tomorrow morning!!!

Post  maggie on Mon Aug 02, 2010 8:38 pm


sebby, where are yooooooooou!!!!

maggie

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Re: pain clinic tomorrow morning!!!

Post  Sebby (Admin) on Tue Aug 03, 2010 11:34 am


Sorry sorry...

Had an odd day yesterday went out after the appointment and fell straight to sleep on the sofa when I got in so now my neck hurts...lol

Ok well the doctor at least had heard of the condition, so thats a good start!

He said he has treated it before and wants to try nerve block injections first. I think I will try this first as taking the anti-convulsant meds scares me more. Mum has taken Pregabalin before and had a very bad reaction to it so Im a little nervous.

I have to wait now for my appointment for the nerve block injection. He said they give it in the lower back..Im scared!

Has anyone else had these? Does it hurt!!! I dont know why Im so worried Ive had tatoo's! My aunt said she has had it and it wasnt too bad

Also how long does it last? I was told 6 weeks?

Also he said if this one doesnt work he will try a peroneal nerve block and they also do something called peroneal nerve stimulation in St Thomas Hospital in London which can help reduce the pain? I will have to look this up!

I was wondering if there are also any side effects with the nerve block? Ive been too scared to Google it at the moment! I have been living in the 'ignorance is bliss' place lol

Im just hoping that it helps with the pain even just reducing it will do me. I also hope it doesnt errrrr how do I put this interfer with any sexual feelings down there hahaha

Thanks for thinking of me girls

Godbless

Sebby
xxxx

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Re: pain clinic tomorrow morning!!!

Post  naomi on Wed Aug 04, 2010 4:10 pm

fingers crossed for you Sebby. Ok 'everything' crossed! Very Happy

Maybe they could numb the area before the injection? or cool it? when I had ingrowing toe nails (still do dohhhh) they rubbed a cooling, numbing gel on. Ask about that poss?

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Re: pain clinic tomorrow morning!!!

Post  Sarah001 on Wed Aug 04, 2010 6:41 pm

Do you mean pudendal nerve block rather than peroneal? The pundendal nerve is one of 3 main ones that supplies the vulva and is in the actual pelvis itself. The physio I saw yesterday said they can use the biofeedback machines to stimulate the pudendal nerve but I haven't actually had it done.
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Re: pain clinic tomorrow morning!!!

Post  Sebby (Admin) on Wed Aug 04, 2010 9:07 pm


Oh yes thats what I meant! duh haha yeah I will ask about the cooling method. Im soo nervous Shocked
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Re: pain clinic tomorrow morning!!!

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