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Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

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7 years later and life looks bleak :(

Wed Dec 06, 2017 2:50 am by RainyShay77

So 7 years ago I had a case of BV...the antibiotic caused a horrible yeast infection which took 5 months to 'get rid of'. During this time I had allergic reactions to 2 of the yeast infection creams which magnified the pain. Over the past 7 years I've tried multiple rounds of physical therapy (they only slightly helped), chiropractic, nerve blocks, medications to target nerve pain (amitriptyline, …

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Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Hello,
Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

Comments: 1

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

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New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1

Vulvodynia help

Tue Nov 14, 2017 4:27 pm by Katiej

Hi guys new here and newly diagnosed. So I had bv and then after alot of antibiotics and home remedies I still continued to have weird symptoms despite swabs being negative. Two seperate gynes have told me I have vulvodynia as a result of the area being overwhelmed. So first gave me lidocaine which xidnt do much. No I am on amitriptyline for the past 5 days. Seems to be kicking in a little (im a …

Comments: 3

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5


pain clinic tomorrow morning!!!

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pain clinic tomorrow morning!!!

Post  Sebby (Admin) on Sun Aug 01, 2010 7:22 pm



Ive got my pain clinic appointment tomorrow morning like 9.15am! Im suppossed to talk about my vulva at 9.15am!!

Anyway I have made loadsa notes, mainly from this forum...fanx guys for the advice!! I want to ask about the painkilling options such as the anti-convulsants, nerve blockers etc and also about physical therapy

I do hope I have at least an understanding doctor who even though may not have treated this before is willing to help!

Wish me luck ladies

Sebby
xxxx
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Re: pain clinic tomorrow morning!!!

Post  Sarah001 on Sun Aug 01, 2010 7:32 pm

Good luck Sebby, I'm sure you'll be fine! If it's any reassurance I've been prescribed Amitriptyline for my joint problems but I do find it also decreases the vulvar pain too (although I am like a zombie too unfortunately!) so painkillers of various kinds do help with the symptoms while we look for solutions. Ask them anything you want to and don't be shy!
Let us know how you get on. x
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Re: pain clinic tomorrow morning!!!

Post  naomi on Sun Aug 01, 2010 7:41 pm

good luck chick!!!!!!

Ive got everything crossed for you!!

Ask if you can get their email address...when Ive seen some people they dont mind and its good for asking any questions you might have forgotten to ask.

Also ask for their direct line, quite often ive found some consultants have about 6 blummin secretarys and you end up doing the rounds!!

let us know how it goes xxxxx
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Re: pain clinic tomorrow morning!!!

Post  maggie on Mon Aug 02, 2010 8:19 pm


sebby, how did you get on today, was thinking of you.


maggie x

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Re: pain clinic tomorrow morning!!!

Post  naomi on Mon Aug 02, 2010 8:21 pm

I know I keep logging on to hear the news! Come on Sebby don't leave us in suspenders!!!! Question
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Re: pain clinic tomorrow morning!!!

Post  maggie on Mon Aug 02, 2010 8:38 pm


sebby, where are yooooooooou!!!!

maggie

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Re: pain clinic tomorrow morning!!!

Post  Sebby (Admin) on Tue Aug 03, 2010 11:34 am


Sorry sorry...

Had an odd day yesterday went out after the appointment and fell straight to sleep on the sofa when I got in so now my neck hurts...lol

Ok well the doctor at least had heard of the condition, so thats a good start!

He said he has treated it before and wants to try nerve block injections first. I think I will try this first as taking the anti-convulsant meds scares me more. Mum has taken Pregabalin before and had a very bad reaction to it so Im a little nervous.

I have to wait now for my appointment for the nerve block injection. He said they give it in the lower back..Im scared!

Has anyone else had these? Does it hurt!!! I dont know why Im so worried Ive had tatoo's! My aunt said she has had it and it wasnt too bad

Also how long does it last? I was told 6 weeks?

Also he said if this one doesnt work he will try a peroneal nerve block and they also do something called peroneal nerve stimulation in St Thomas Hospital in London which can help reduce the pain? I will have to look this up!

I was wondering if there are also any side effects with the nerve block? Ive been too scared to Google it at the moment! I have been living in the 'ignorance is bliss' place lol

Im just hoping that it helps with the pain even just reducing it will do me. I also hope it doesnt errrrr how do I put this interfer with any sexual feelings down there hahaha

Thanks for thinking of me girls

Godbless

Sebby
xxxx

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Re: pain clinic tomorrow morning!!!

Post  naomi on Wed Aug 04, 2010 4:10 pm

fingers crossed for you Sebby. Ok 'everything' crossed! Very Happy

Maybe they could numb the area before the injection? or cool it? when I had ingrowing toe nails (still do dohhhh) they rubbed a cooling, numbing gel on. Ask about that poss?

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Re: pain clinic tomorrow morning!!!

Post  Sarah001 on Wed Aug 04, 2010 6:41 pm

Do you mean pudendal nerve block rather than peroneal? The pundendal nerve is one of 3 main ones that supplies the vulva and is in the actual pelvis itself. The physio I saw yesterday said they can use the biofeedback machines to stimulate the pudendal nerve but I haven't actually had it done.
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Re: pain clinic tomorrow morning!!!

Post  Sebby (Admin) on Wed Aug 04, 2010 9:07 pm


Oh yes thats what I meant! duh haha yeah I will ask about the cooling method. Im soo nervous Shocked
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Re: pain clinic tomorrow morning!!!

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