pain clinic tomorrow morning!!!

Ive got my pain clinic appointment tomorrow morning like 9.15am! Im suppossed to talk about my vulva at 9.15am!!

Anyway I have made loadsa notes, mainly from this forum...fanx guys for the advice!! I want to ask about the painkilling options such as the anti-convulsants, nerve blockers etc and also about physical therapy

I do hope I have at least an understanding doctor who even though may not have treated this before is willing to help!

Wish me luck ladies

Sebby
xxxx

Good luck Sebby, I'm sure you'll be fine! If it's any reassurance I've been prescribed Amitriptyline for my joint problems but I do find it also decreases the vulvar pain too (although I am like a zombie too unfortunately!) so painkillers of various kinds do help with the symptoms while we look for solutions. Ask them anything you want to and don't be shy!
Let us know how you get on. x

good luck chick!!!!!!

Ive got everything crossed for you!!

Ask if you can get their email address...when Ive seen some people they dont mind and its good for asking any questions you might have forgotten to ask.

Also ask for their direct line, quite often ive found some consultants have about 6 blummin secretarys and you end up doing the rounds!!

let us know how it goes xxxxx

sebby, how did you get on today, was thinking of you.


maggie x

I know I keep logging on to hear the news! Come on Sebby don't leave us in suspenders!!!!

sebby, where are yooooooooou!!!!

maggie

Sorry sorry...

Had an odd day yesterday went out after the appointment and fell straight to sleep on the sofa when I got in so now my neck hurts...lol

Ok well the doctor at least had heard of the condition, so thats a good start!

He said he has treated it before and wants to try nerve block injections first. I think I will try this first as taking the anti-convulsant meds scares me more. Mum has taken Pregabalin before and had a very bad reaction to it so Im a little nervous.

I have to wait now for my appointment for the nerve block injection. He said they give it in the lower back..Im scared!

Has anyone else had these? Does it hurt!!! I dont know why Im so worried Ive had tatoo's! My aunt said she has had it and it wasnt too bad

Also how long does it last? I was told 6 weeks?

Also he said if this one doesnt work he will try a peroneal nerve block and they also do something called peroneal nerve stimulation in St Thomas Hospital in London which can help reduce the pain? I will have to look this up!

I was wondering if there are also any side effects with the nerve block? Ive been too scared to Google it at the moment! I have been living in the 'ignorance is bliss' place lol

Im just hoping that it helps with the pain even just reducing it will do me. I also hope it doesnt errrrr how do I put this interfer with any sexual feelings down there hahaha

Thanks for thinking of me girls

Godbless

Sebby
xxxx

fingers crossed for you Sebby. Ok 'everything' crossed!

Maybe they could numb the area before the injection? or cool it? when I had ingrowing toe nails (still do dohhhh) they rubbed a cooling, numbing gel on. Ask about that poss?

Do you mean pudendal nerve block rather than peroneal? The pundendal nerve is one of 3 main ones that supplies the vulva and is in the actual pelvis itself. The physio I saw yesterday said they can use the biofeedback machines to stimulate the pudendal nerve but I haven't actually had it done.

Oh yes thats what I meant! duh haha yeah I will ask about the cooling method. Im soo nervous