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New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

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Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1


Hydroxyzine hydrochloride for Vulvodynia (treatment)

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Hydroxyzine hydrochloride for Vulvodynia (treatment)

Post  mary jane on Fri Jun 02, 2017 6:23 pm

Hi all,

I'm posting this for information purposes, was reading some other forum and saw a user said she treats her V with this medication... I was blown away and wanted to post here ..I hope it helps others

Originally Posted by Rebecca___p View Post

"Hi girls, I've had this pain for as long as I can remember (I'm 17 due to the pain being sometimes unnameable and just made me so fed up nothing could be done). I've been to 2 gynaecologists 1 of which helped me out so much and can thank my treatment for. I didn't even realise I had this until he told me, and was shocked that my previous gynaecologist did not see this. Vulvar vestibulitis (aka vulvodynia) is caused mainly by having thrush multiple times, making the nerves in the vulvar more sensitive. He told me that he had a treatment and I was so happy. -I am easily susceptible to thrush:((-
He prescribed me Atarax (an anti anxiety medication) it has been succesful in treating my discomfort. He first prescribed me 10 millagrams as he wasn't sure how I would be with the side effects/will cure my VVS with this low dose, (which are just drowsyness but can be managed by taking in at night -I didn't get any of the side effects-) it helped out my VVS but not treated it completely (I only took this for 28 days). He then prescribed me a higher dose of 25mg (which I am currently on for 3 months till my next check up). If that has treated it I will have to take the pills for 6 months for it to go. However if I still have it I will have to move to 30mg. But he is so helpful and said either way we are treating it. I hope this helped girls. It's hard to find a good gynaecologist that knows what vulvodynia is and how to treat it well."


I never tried it in the past since others worked for me, but it makes sense..it calmes the central nervous system and it stops sending pain signals.

I hope this helps someone

xx
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Re: Hydroxyzine hydrochloride for Vulvodynia (treatment)

Post  Meggiemay on Fri Jun 02, 2017 6:49 pm

I take this for my hives, it's also an anti-histamine. Unfortunately, it doesn't help my V, but i've read others have had success. Definitely worth a try.

Meggiemay

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Re: Hydroxyzine hydrochloride for Vulvodynia (treatment)

Post  Guest on Tue Aug 08, 2017 11:51 pm

Hydrox is the first thing that truly made a difference for me.... though I have IC and not V. But at 10mg I knew something was different and as I increased to 50mg, the difference was remarkable. I went from thinking how to stop living to wondering how to live every day! It also makes sense for me since I have terrible allergies.

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Re: Hydroxyzine hydrochloride for Vulvodynia (treatment)

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