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New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 3

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 13

Hello. Happy to have found this group.

Fri Dec 07, 2018 9:01 pm by foxysugarpants

I am new here and hope to gain some insight into my vulva pain. I suffered for a long time not realizing that there are ways to feel better. I saw the Dr. yesterday and I am starting P/T pelvic and valium suppositories. queen

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Had this for 5 years, looking for people who understand

Sat Oct 06, 2018 9:46 pm by blackberrie

Hey all. I'm really struggling to find anyone in real life who can really understand what I'm going through. I've had vestibulodynia for 5 years now and I'm single. Obviously it has completely affected how I approach dating and sex and the fact that I can't really talk to people irl about it has made me feel very lonely. I've found that a lot of the women who have this problem are married and …

Comments: 3

Anyone have pain with urination?

Tue Oct 16, 2018 2:35 pm by mertzwl

Hi everyone - I can't believe I've been dealing with this for almost 10 years and an appointment scheduler at a urogyn office is the one to suggest I look into vulvodynia. Honestly, I don't care, I just thankful I might have an answer.

I have pain in one specific spot right around the urethral opening so it always coincides with urinating (it's not a uti). Does anyone else deal with pain …

Comments: 6

Diagnosed recently, looking for advice

Sun Sep 02, 2018 12:51 am by Cloudberry

Hi everyone,

I'm so glad I found this forum! I was diagnosed with vulvodynia/vulvar vestibulitis (still not sure about the difference between all the different terms) a couple of months ago and I could do with some advice. This is probably going to be a lot of text because I just want to get everything off my chest, so please bear with me.

I’m a woman in my late 20s. Before getting diagnosed …

Comments: 4

From a concerned husband

Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot …

Comments: 4

6 year sufferer but I’ve found some hope

Wed Oct 10, 2018 1:33 am by Npage14

Hey, ladies! I’m new to this support group, I’ve thought about doing something like this for a while so I wanted to try this out! I’ve had vulvodynia for 6 years now, I am self diagnosed. I’m 20 now and the pain started when I had my first encounter with sexual contact when I was 14(I still remained a virgin though it was fingering). For a couple years the pain was so bad I could hardly …

Comments: 0

Hurting, Burning, Itching, and Worn Out

Thu Aug 09, 2018 10:55 pm by donnambr

This vulvodynia that I'm currently suffering with is so cruel. I hurt, I burn, I itch. When I first got this several years ago, before the internet, I though I was the only one with this awful disorder. Doctors couldn't figure it out. I felt so alone and devastated. Somehow it disappeared for a few years and now I'm suffering again. This dreaded V misery is back and I feel like I will be with …

Comments: 5


Hydroxyzine hydrochloride for Vulvodynia (treatment)

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Hydroxyzine hydrochloride for Vulvodynia (treatment)

Post  mary jane on Fri Jun 02, 2017 6:23 pm

Hi all,

I'm posting this for information purposes, was reading some other forum and saw a user said she treats her V with this medication... I was blown away and wanted to post here ..I hope it helps others

Originally Posted by Rebecca___p View Post

"Hi girls, I've had this pain for as long as I can remember (I'm 17 due to the pain being sometimes unnameable and just made me so fed up nothing could be done). I've been to 2 gynaecologists 1 of which helped me out so much and can thank my treatment for. I didn't even realise I had this until he told me, and was shocked that my previous gynaecologist did not see this. Vulvar vestibulitis (aka vulvodynia) is caused mainly by having thrush multiple times, making the nerves in the vulvar more sensitive. He told me that he had a treatment and I was so happy. -I am easily susceptible to thrush:((-
He prescribed me Atarax (an anti anxiety medication) it has been succesful in treating my discomfort. He first prescribed me 10 millagrams as he wasn't sure how I would be with the side effects/will cure my VVS with this low dose, (which are just drowsyness but can be managed by taking in at night -I didn't get any of the side effects-) it helped out my VVS but not treated it completely (I only took this for 28 days). He then prescribed me a higher dose of 25mg (which I am currently on for 3 months till my next check up). If that has treated it I will have to take the pills for 6 months for it to go. However if I still have it I will have to move to 30mg. But he is so helpful and said either way we are treating it. I hope this helped girls. It's hard to find a good gynaecologist that knows what vulvodynia is and how to treat it well."


I never tried it in the past since others worked for me, but it makes sense..it calmes the central nervous system and it stops sending pain signals.

I hope this helps someone

xx
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mary jane

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Re: Hydroxyzine hydrochloride for Vulvodynia (treatment)

Post  Meggiemay on Fri Jun 02, 2017 6:49 pm

I take this for my hives, it's also an anti-histamine. Unfortunately, it doesn't help my V, but i've read others have had success. Definitely worth a try.

Meggiemay

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Re: Hydroxyzine hydrochloride for Vulvodynia (treatment)

Post  Guest on Tue Aug 08, 2017 11:51 pm

Hydrox is the first thing that truly made a difference for me.... though I have IC and not V. But at 10mg I knew something was different and as I increased to 50mg, the difference was remarkable. I went from thinking how to stop living to wondering how to live every day! It also makes sense for me since I have terrible allergies.

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Re: Hydroxyzine hydrochloride for Vulvodynia (treatment)

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