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I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

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Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

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New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

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MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

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New member desperate need of other vulvadynia sufferers

Fri Feb 08, 2019 6:55 pm by Tfc13

Hi there hope some1 reading this is going through the same shit as me!, I'm new to this so don't really know where to start , I'm Teresa , I've just been diagnosed with vestibular vulvadynia , after countless appointments with GPS being misdiagnosed, tested for god knows everything , eventually under my gynochologist ,who done all her necessary tests, I now have been given a diagnosis I'm in …

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Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 7

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 13

Hello. Happy to have found this group.

Fri Dec 07, 2018 9:01 pm by foxysugarpants

I am new here and hope to gain some insight into my vulva pain. I suffered for a long time not realizing that there are ways to feel better. I saw the Dr. yesterday and I am starting P/T pelvic and valium suppositories. queen

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There is hope after all!!

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There is hope after all!!

Post  Cbrimer28 on Sat Apr 28, 2018 2:55 am

Hey guys, I’ve been a part of this group a while, the silent one in the back. I have maybe posted two or 3 times. This journey has really put me through hell, with the pain of course, but also the emotion of it. I was broken. Tired. Defeated. I went so long without even getting on these sites because I felt I had no good news to give. These young girls with their new diagnoses begging with someone to say it gets easier. And I didn’t want to be the one to say, it likely won’t, because there is no help in that. I was scorned. I’ve seen so many doctors I lost count. And only ONE has ever looked me in the face and said I think I can cure you. Excuse me, you said cure, not just offer relief? He said yes, it will be a long road, but together we can get there. I believe him. I’m going on 12 years of this terrible condition that has closed doors on a healthy sex life. And babies. Don’t even get me started. Anyway, I don’t want to run around saying this guy is a miracle worker, because we are in the first stages. But he had a plan. A diagnosis(multiple) and treatment for it. He told me I had conditions I’d never heard of. I got more in one visit from him than all my other doctors combined. He is different. I drove from SC to Washington DC because I truly felt he could help me. I had already done my research. For the first time in a long time, I don’t feel like I’m destined to ride this out in misery the rest of my life. It’s not just “something you’re born with” like that’s an excuse to deal with this. I was tired of being the guinea pig and getting looked at like I was crazy. I made the big step, slightly stalked the dr, and ended up being his patient. I do not regret any of it. His Name is Andrew Goldstein and this is what he does. All the conditions that no one else knows how to manage, he does. So if someone out there wants to no more about him I’d be happy to talk about him. He is by far the best chance I’ve ever had to rid myself of this disease permanently.

Maybe this will be a beacon of hope to someone else, like it was for me.

Casha Brimer (now Whitaker)

*vestibulodynia, severe pelvic floor dysfunction, low levels of estrogen and testosterone, cervical ectropion. Those are some of the crosses that I bear, that will hopefully be long gone. Trust me, no one is too complicated.

Cbrimer28

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Re: There is hope after all!!

Post  fairlight10 on Sat Apr 28, 2018 9:33 am

Hi Cbrimber. I have read many posts saying what a help Andrew Goldstein has been. Just finding this forum was a relief for me. Knowing I wasn't the only one suffering was a help.Thank you for posting and keep us informed of your journey to eradicate this spiteful condition.

fairlight10

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Re: There is hope after all!!

Post  bambi82 on Tue May 15, 2018 4:25 pm

Hi Cbrimber,
What are the treatments Dr Goldstein is advising for your conditions? I also have a cervical ectropion. Estrogen/testosterone creams, gels? Pelvic floor rehab/physio? I would be interested in the treatments he offers for you.

Glad you got some light at the end of the tunnel, wish there were doctors in the UK offering such hope or anything above a steroid cream or antidepressant which is so poor but are the only offerings here.

bambi82

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Re: There is hope after all!!

Post  Cbrimer28 on Wed May 16, 2018 2:50 am

Hi bambi82,


A ton of things came out of my visit with dr Goldstein. He took me off birth control completely and said under no circumstances do I go back on it. He gave me an estrogen/testosterone cream, Valium suppositories, pelvic floor rehab. I go back in July and he said if the muscles werent loosened he would make them loosen with Botox. So we will see. I started the suppositories and I go for my second PT appointment Thursday.

Cbrimer28

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Re: There is hope after all!!

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