Log in

I forgot my password

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 1

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 8

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0

Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 6

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 4

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35


There is hope after all!!

Go down

There is hope after all!!

Post  Cbrimer28 on Sat Apr 28, 2018 2:55 am

Hey guys, I’ve been a part of this group a while, the silent one in the back. I have maybe posted two or 3 times. This journey has really put me through hell, with the pain of course, but also the emotion of it. I was broken. Tired. Defeated. I went so long without even getting on these sites because I felt I had no good news to give. These young girls with their new diagnoses begging with someone to say it gets easier. And I didn’t want to be the one to say, it likely won’t, because there is no help in that. I was scorned. I’ve seen so many doctors I lost count. And only ONE has ever looked me in the face and said I think I can cure you. Excuse me, you said cure, not just offer relief? He said yes, it will be a long road, but together we can get there. I believe him. I’m going on 12 years of this terrible condition that has closed doors on a healthy sex life. And babies. Don’t even get me started. Anyway, I don’t want to run around saying this guy is a miracle worker, because we are in the first stages. But he had a plan. A diagnosis(multiple) and treatment for it. He told me I had conditions I’d never heard of. I got more in one visit from him than all my other doctors combined. He is different. I drove from SC to Washington DC because I truly felt he could help me. I had already done my research. For the first time in a long time, I don’t feel like I’m destined to ride this out in misery the rest of my life. It’s not just “something you’re born with” like that’s an excuse to deal with this. I was tired of being the guinea pig and getting looked at like I was crazy. I made the big step, slightly stalked the dr, and ended up being his patient. I do not regret any of it. His Name is Andrew Goldstein and this is what he does. All the conditions that no one else knows how to manage, he does. So if someone out there wants to no more about him I’d be happy to talk about him. He is by far the best chance I’ve ever had to rid myself of this disease permanently.

Maybe this will be a beacon of hope to someone else, like it was for me.

Casha Brimer (now Whitaker)

*vestibulodynia, severe pelvic floor dysfunction, low levels of estrogen and testosterone, cervical ectropion. Those are some of the crosses that I bear, that will hopefully be long gone. Trust me, no one is too complicated.

Cbrimer28

Posts : 3
Join date : 2014-10-10

View user profile

Back to top Go down

Re: There is hope after all!!

Post  fairlight10 on Sat Apr 28, 2018 9:33 am

Hi Cbrimber. I have read many posts saying what a help Andrew Goldstein has been. Just finding this forum was a relief for me. Knowing I wasn't the only one suffering was a help.Thank you for posting and keep us informed of your journey to eradicate this spiteful condition.

fairlight10

Posts : 61
Join date : 2016-04-17

View user profile

Back to top Go down

Re: There is hope after all!!

Post  bambi82 on Tue May 15, 2018 4:25 pm

Hi Cbrimber,
What are the treatments Dr Goldstein is advising for your conditions? I also have a cervical ectropion. Estrogen/testosterone creams, gels? Pelvic floor rehab/physio? I would be interested in the treatments he offers for you.

Glad you got some light at the end of the tunnel, wish there were doctors in the UK offering such hope or anything above a steroid cream or antidepressant which is so poor but are the only offerings here.

bambi82

Posts : 2
Join date : 2017-03-19

View user profile

Back to top Go down

Re: There is hope after all!!

Post  Cbrimer28 on Wed May 16, 2018 2:50 am

Hi bambi82,


A ton of things came out of my visit with dr Goldstein. He took me off birth control completely and said under no circumstances do I go back on it. He gave me an estrogen/testosterone cream, Valium suppositories, pelvic floor rehab. I go back in July and he said if the muscles werent loosened he would make them loosen with Botox. So we will see. I started the suppositories and I go for my second PT appointment Thursday.

Cbrimer28

Posts : 3
Join date : 2014-10-10

View user profile

Back to top Go down

Re: There is hope after all!!

Post  Sponsored content


Sponsored content


Back to top Go down

Back to top

- Similar topics

 
Permissions in this forum:
You cannot reply to topics in this forum