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» New here would very much appreciate advice at the end of my rope
Fri Jan 11, 2019 1:46 am by Jma990o

» Diagnosed Recently
Tue Jan 08, 2019 3:55 pm by flissyg

» Looking for suggestions or encouragement
Thu Jan 03, 2019 11:09 am by Gaby

» Clinical Trial for Vulvodynia Treatment
Wed Dec 19, 2018 7:13 pm by wramirez

» New and need advice and help
Thu Dec 13, 2018 9:48 am by Derry59

» Things that have worked for me
Tue Dec 11, 2018 11:32 am by Amethyst

» Found relief after more than 15 years of pain!
Tue Dec 11, 2018 11:17 am by Amethyst

» I'm new to this forum and would love some advice! :)
Tue Dec 11, 2018 3:06 am by Cin124

» I think I know what causes vulvodynia-it's the memory of pain
Sat Dec 08, 2018 1:24 pm by foxysugarpants

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 2

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

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Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 6

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 4

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 13

Hello. Happy to have found this group.

Fri Dec 07, 2018 9:01 pm by foxysugarpants

I am new here and hope to gain some insight into my vulva pain. I suffered for a long time not realizing that there are ways to feel better. I saw the Dr. yesterday and I am starting P/T pelvic and valium suppositories. queen

Comments: 0

Had this for 5 years, looking for people who understand

Sat Oct 06, 2018 9:46 pm by blackberrie

Hey all. I'm really struggling to find anyone in real life who can really understand what I'm going through. I've had vestibulodynia for 5 years now and I'm single. Obviously it has completely affected how I approach dating and sex and the fact that I can't really talk to people irl about it has made me feel very lonely. I've found that a lot of the women who have this problem are married and …

Comments: 3

Anyone have pain with urination?

Tue Oct 16, 2018 2:35 pm by mertzwl

Hi everyone - I can't believe I've been dealing with this for almost 10 years and an appointment scheduler at a urogyn office is the one to suggest I look into vulvodynia. Honestly, I don't care, I just thankful I might have an answer.

I have pain in one specific spot right around the urethral opening so it always coincides with urinating (it's not a uti). Does anyone else deal with pain …

Comments: 6

Diagnosed recently, looking for advice

Sun Sep 02, 2018 12:51 am by Cloudberry

Hi everyone,

I'm so glad I found this forum! I was diagnosed with vulvodynia/vulvar vestibulitis (still not sure about the difference between all the different terms) a couple of months ago and I could do with some advice. This is probably going to be a lot of text because I just want to get everything off my chest, so please bear with me.

I’m a woman in my late 20s. Before getting diagnosed …

Comments: 4


Found relief after more than 15 years of pain!

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Found relief after more than 15 years of pain!

Post  AlwaysInPain on Mon Oct 22, 2018 12:45 am

I have not been active in this forum since I wanted to clear my head and not think about vulvodynia at all. But I want to share with all of you how I came to be pain free (not 100% yet but I know someday I will be). I had been suffering this horrible pain for more that 15 years and been diagnosed almost 10 years ago. Have been to so many doctors that I can not even count and been treated to so many different kinds of treatments. I was at my worst in 2016 when I started seeing this particular doctor from Phoenix who said specializes in vulvar pain. Was in treatment for a year which to me made it worst to the point that was super depressed and that I dont even want to go out the house coz the pain was just horrible even to go for a walk. The pain was mixed, burning, itching, needle prick, knife stabbing. So I decided to stop treatment and dropped all medication. I got pregnant in 2017 and the pain was bearable. Gave birth on 2018 and the pain was back to being bad but not as bad as what I experience in 2016. Urination was hard, it burned all the time. As you all know, after having a baby, you have to wear pads since you will be bleeding for weeks or months... I was not wearing pads at all because the pain bothered me. I was just in bed and put a mat under me so I dont have to wear pads. I just wear them if i really have to leave the house other than that, I was underwear free and blood would just drip on the floor which I will just clean. Sorry for TMI but just describing how much this pain was bothering me.

This is where it all got better for me, I have discovered A probiotic that is called RenewLife Extra Care Ultimate Flora. I was intrigue when I saw this because the doctor from Phoenix was explaining that all the pain that I'm experiencing was from my flora being imbalanced or not being normal. Having read the description on the probiotic that mentioned it will help with our flora I have decided to try it since there was nothing to loose. After a week of using it, it had given me pain relief! It was a huge difference. I don't burn when I urinate now. I waited till I have finish a bottle for this probiotic to post here since I wanted to see if this really helped me. Three months of taking it and I can say I am 90% better from back in 2016. I am still not 100% but I think part of it all psychological. Having this pain for more than 15 years changed me and I still think of the pain a lot so psychologically it still affects me. I know someday I will be able to stop thinking about this horrible pain and put it all behind me.

To any of you who would like to try and take this probiotic pills, please let me know if it worked for you or not. I would want to know if I was able to help somebody with this post. Thank you so much. Feel free to message me if you want to know more about my experience. I have a very long history and did not what to bore everyone with it.

AlwaysInPain

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Re: Found relief after more than 15 years of pain!

Post  fairlight10 on Mon Oct 22, 2018 7:43 pm

Sorry to hear you have suffered this horrible condition for so long. Pleased you have found something that is helping you manage. I will Google this probiotic. Thank you for telling us your story.

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Re: Found relief after more than 15 years of pain!

Post  AlwaysInPain on Thu Oct 25, 2018 4:29 pm

Try them and please let me know if it works for you.

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Re: Found relief after more than 15 years of pain!

Post  Juliebo on Sun Dec 09, 2018 6:51 pm

Thank you for your experience. I tried looking for this probiotic and found different strengths. Exactly which one is it your using?

https://www.amazon.com/s/ref=a9_asc_1?rh=i%3Aaps%2Ck%3ARenewLife+Extra+Care+Ultimate+Flora&keywords=RenewLife+Extra+Care+Ultimate+Flora&ie=UTF8&qid=1544380762

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Re: Found relief after more than 15 years of pain!

Post  AlwaysInPain on Mon Dec 10, 2018 7:49 pm

Hi,
I am using the RenewLife Extra Care with 30 Billion live cultures and 13 probiotic strains. Link is below. But When I went thru the different kinds in amazon, I found one that is for vaginal health and is the RenewLife Womens Vaginal with 50 Billion live cultires and 10 probiotic strains. I might try try Vaginal one once I finish my old bottle.

Good luck! I hope it will work for you too.


https://www.amazon.com/Renew-Life-Ultimate-Probiotic-Vegetable/dp/B07B11HQF8/ref=sr_1_4_a_it?ie=UTF8&qid=1544470709&sr=8-4&keywords=RenewLife%2BExtra%2BCare%2BUltimate%2BFlora&th=1

https://www.amazon.com/Renew-Life-Ultimate-Probiotic-vegetable/dp/B0042KULCG/ref=sr_1_2_a_it?ie=UTF8&qid=1544470709&sr=8-2-spons&keywords=RenewLife%2BExtra%2BCare%2BUltimate%2BFlora&th=1

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Re: Found relief after more than 15 years of pain!

Post  Juliebo on Mon Dec 10, 2018 11:08 pm

Thank you. My pain is strickly on the vulva, not the vagina. I have tried the 50 Billion and didn't get any relief. Sad...

Juliebo

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Re: Found relief after more than 15 years of pain!

Post  AlwaysInPain on Tue Dec 11, 2018 7:19 am

I am sorry to hear that. Maybe give it a little time to work? Its been really hard because Vulvodynia is so generalized that different people have very different symptoms and pain. My pain is more on the vulva too.

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Re: Found relief after more than 15 years of pain!

Post  Juliebo on Tue Dec 11, 2018 7:30 am

I guess I can try it again. Thanks for helping me.

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Thank you, will try

Post  Amethyst on Tue Dec 11, 2018 11:17 am

Thank you for letting us know about that. I have tried different probiotics in the past and have heard of the one your talking about. I'm not sure if I've tried it in the past, but probiotics have always helped my digestive tract feel better and that seems to be linked to all of this.

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Re: Found relief after more than 15 years of pain!

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