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» Can you guys tell me your experiences with diflucan/Fluconazole?
Today at 1:29 am by ryn207

» So frustrating!!
Today at 1:25 am by ryn207

» Looking for suggestions or encouragement
Today at 1:19 am by ryn207

» Looking for a friend..... and new problems
Yesterday at 10:00 pm by VVSSufferer

» Vestibulectomy recovery question!
Sun Jan 14, 2018 11:37 pm by Kezz

» Prescription creams that work!
Sun Jan 14, 2018 4:46 am by Mintaherb

» Struggling
Sun Jan 14, 2018 4:29 am by Mintaherb

» Went Away and Came Back
Sat Jan 13, 2018 10:56 am by mary jane

» Amitriptyline given for vulvodyina pain
Sat Jan 13, 2018 1:39 am by ryn207

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



Comments: 5

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 11

7 years later and life looks bleak :(

Wed Dec 06, 2017 2:50 am by RainyShay77

So 7 years ago I had a case of BV...the antibiotic caused a horrible yeast infection which took 5 months to 'get rid of'. During this time I had allergic reactions to 2 of the yeast infection creams which magnified the pain. Over the past 7 years I've tried multiple rounds of physical therapy (they only slightly helped), chiropractic, nerve blocks, medications to target nerve pain (amitriptyline, …

Comments: 7

Newly diagnosed - and prescribed amitriptyline cream/physio/psychology

Sun Jan 07, 2018 9:38 am by sophiarp

Hi everyone,

I'm so happy to have stumbled across this forum. I have just been diagnosed and am really struggling emotionally. It's nice to find this forum and feel a little less alone.

I've been prescribed amitriptyline cream. Has anyone had success with this? I was happy to have avoided the amitriptyline tablets. I'm also participating in physio and have been told I need to see a psychologist …

Comments: 2

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 11

Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Hello,
Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

Comments: 1

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1


Glad I found this support group

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Glad I found this support group

Post  Chinchilla on Tue Mar 16, 2010 8:55 pm

Hi, I have both Vulvodynia and Interstitial Cystitis. I find the symptoms hard to distinguish between the two but I will do my best to tell my experience with Vulvodynia. When I was in my teens and hit puberty it would burn like hell (literally, like fire) when I peed. I tried to tell my mom but since it burned the most during my period, she assumed it was just period pain, and I was too naive and shy to tell her differently. My very first physical exam by a doctor was to check if I had a yeast infection. I did not, but whenever I told my mom I was in pain, she would buy me Canesten. I used it but it never helped. Throughout the years I learned ways to cope. I discovered that Always brand pads caused burning and Kotex brand pads did not cause nearly as much burning (I've never been a tampon user). I use panty liners as little as possible and would rather get my panties a little dirty than use a liner if I don't really need it (sorry if TMI). I only use white cotton panties. I use the mildest soap possible (I used to use Ivory brand but found out Dove sensitive skin is better for me). I avoid soda pop and orange juice like the plague!! Anything acidic causes burning, but those two are the worst! I also use a very mild laundry detergent, and it has to be powder, not liquid!! And I drink tons and tons of water to dilute the urine.

I got married in 2005 (yes, I was a virgin till then, believe it or not!) and intercourse was never enjoyable but that's because I was on antidepressants. I withdrew from the antidepressants throughout 2007 and sex got better. In 2008 I went off the birth control pill and sex got even better! But then in 2009 everything went downhill Sad . I started getting pelvic pain (aching in my pubic bone) as well as various aching and stabbing pains in my vulva and around my ovaries and bladder. I was misdiagnosed numerous times, varying from appendicitis to a pelvic infection. I ended up going in for a laparoscopy to see if I had endometriosis. I did not. Everything, including my appendix, was fine. BTW, wow, did it burn to pee after the surgery! I had not drank water in a long time and I think I may have had a catheter in during surgery.

I have not had as bad pelvic pain as I did in 2009 but I still have various aches and pains in the areas I listed above, but I am not as worried about them and I believe they come mostly from my IC and Vulvodynia. The vulva burning got a lot worse in 2010 and that is where I am at today. I do not know what made it worse. I used to just get burning when I peed, and then only if I'd drank/ate something acidic or hadn't drank enough water, or directly after sex. But now I get burning in the vulva area when I sit for a long period of time, when I wear tight jeans, and sometimes it just burns continually no matter what! Sometimes I have days or weeks where it's not too bad and other times it's weeks of pure agony. I wear loose sweat pants almost all the time and am terrified of sex.

Speaking of sex, my husband and I are trying to conceive. So I wouldn't exactly say we're infertile...but it's kinda hard to conceive when you don't have sex, lol Sad ! (Yes, that is a 'lol' with a crying face!) My doctor gave me lidocaine but I haven't tried it yet. I've also heard of soaking a pad in water, freezing it, and then wearing that to numb the pain (I heard about this in relation to tearing after delivery - not for me personally). So I was thinking of trying that, either before or after sex, maybe both.

I have seen a uro-gyno. I went to see if I had IC and he ended up diagnosing me with either Vulvodynia or Vulvar Vestibulus Syndrome. He touched the area around the vaginal opening with a cotton swab and I flinched every time until I was crying. I am supposed go see another doctor yet in relation to this but she hasn't phoned me yet.

Another thing I should mention is the itching. My understanding is this is not common with Vulvodynia but it IS a symptom of it and does affect some women. For me the itching can get almost as bad as the burning. The itching is located between the inner and outer labia and under the hood (sorry if TMI). My doctor always gave me a topical cream for this but I quit using it when I realized it helped only temporarily and wasn't a cure to any "yeast" as she claimed. I now use Aveeno powder mixed with water and that helps a little and at least it's natural.

Anyway, I have been rambling on for a while now, but that is my story in a nutshell...a large nutshell, lol! Once again, thank you for this support group!
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Re: Glad I found this support group

Post  Sebby (Admin) on Tue Mar 23, 2010 7:50 pm

Thanks so much for sharing, I too used to have recurrent yeast infections, or what I thought were yeast infections when I was a teenager.
I do hope you manage to conceive, let me know how the Lidocaine works? I know it sounds extreme but if the worst came to the worst would you use artifial insemination? I reckon I would if I really could not have intercourse.
I too also get itching, about a week ago it was so bad I had to stop myself from scratching as I know that when I do that it just then gets sore.

Take Care and sending you blesses for a pregnancy soon!!!

Sebby
xxx
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Re: Glad I found this support group

Post  Chinchilla on Wed Mar 24, 2010 7:42 pm

Thanks so much for your reply, Sebby. I will let you know if the lidocaine works...whenever the next time is I have the courage to try sex, that is! My husband & I have talked about artificial insemination and we are okay with it - of course, only with hubby's sperm! I have heard about the turkey baster idea, too. But the other day we went to my in-laws for a meal and I saw a turkey baster lying on the kitchen counter...and my immediate thought was OH SHOOT THAT'S HUGE! LOL! Do they come in smaller sizes, lol?!? I should be ovulating mid-April and I hope to try the lidocaine then and every other remedy I know of to reduce pain both during and after! Thanks for the blessings I love you
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Re: Glad I found this support group

Post  Sebby (Admin) on Thu Mar 25, 2010 9:34 pm

Good luck for mid April, pray those sperm swim for their lives! I have never actually seen a turkey baster, well I probably have but didnt take much notice of it but I did wonder how big they were! Im tempted to Google it now to see how big they look lol. Take care and good luck

Sebby
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Lidocaine

Post  Chinchilla on Tue Apr 27, 2010 8:32 pm

OK, everybody who wants to know how lidocaine works, I now have results to tell you about. I will try not to give TMI! Let me briefly sum it up to say:

The Good Thing: It works to numb the area so that you feel very minimal pain!! YAY!!
The Bad News: IT ALSO NUMBS HUBBY!! So if you're trying to get preggo.....doesn't work so well.

So yah, if you want more details, I can give them, lol, but for now I'll just keep it at that!
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Re: Glad I found this support group

Post  Sebby (Admin) on Wed May 05, 2010 8:47 pm

Thanks for the info, shame it numbs the man tho.I did wonder about that.

Im wondering if there is a way to apply it that wont affect him too much?

Do you have to put it on the inside? maybe just put it on the outside?

Have you tried that preseed lubricant that you posted about? that looks worth a try.

Good luck and keep us informed. I do hope and pray you will fall pregnant soon. Sending you best wishes and good vibes.

Sebby
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Re: Glad I found this support group

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