Log in

I forgot my password

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25


I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 1

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured


Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 1

Recently Diagnosed which has motivated my research study

Tue Mar 06, 2018 4:54 pm by ebclose2free

Hi everyone,

My name is Eliza Barach and I was diagnosed with vulvodynia in October of 2017. I'm also PhD student at the State University of New York at Albany. I work several professors at SUNY, but one in particular, Dr. Mitch Earleywine researches marijuana and its possible efficacy as an alternative treatment. Our previous examined cannabis and symptoms of PMS/PMDD and found that women …

Comments: 0


Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist

after having a vestibulectomy with no success, I decided to visit …

Comments: 3

New and desperate for advice

Sat Mar 03, 2018 2:37 pm by srbry

Hi everyone,

I'm new here and was told to find a support group because this is all getting a bit much really...

I lost my virginity when I was 18 and it hurt - that was normal. Loads of women had told me that it hurt so that was fine I didn't question that. I was with the same guy for a couple of months and each time after that it was uncomfortable and not great. I didn't tell him because I …

Comments: 3

New and need some help

Wed Feb 21, 2018 4:30 pm by LindafromNJ

New to this site ad trying to figure out how it works.  I am trying to post as a new member so I am hoping this goes thru.  I am a senior adult and have just been diagnosed by the Drexil Vaginitis Center to have vulvodynia along with Vestibulitis (not sure if spelled correctly).  My symptoms are vaginal burning, itching, soreness around the vaginal opening with one spot in particular.  Some …

Comments: 9

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 12

Can A Cut In Vestibule cause Vulvodynia?

Thu Mar 01, 2018 1:07 am by rockylife

Can a cut in the vestibule area cause vulvodynia? Is it possible that some nerve a were damaged that’s why I feel this pain in my area without visible lesions?

Comments: 0

Anyone from New Jersey

Thu Feb 22, 2018 10:47 pm by LindafromNJ

Looking to maybe talk to someone from NJ to see if there are any support groups in this state.

Comments: 3

So glad ive found this site!

Go down

So glad ive found this site!

Post  bethybelle951 on Mon Apr 20, 2015 8:07 pm

Hi my name is Beth I am 19 years old and have been diagnosed with vulvodynia for about a year now. Since then it has seemed to have controlled my life. I don't feel like myself anymore and it feels like all these medical problems will never end. But I've never been a stranger to medical problems/ hospitals. to tell you about myself. when I was born I had a major heart problem called truncus arteriosus which was treatable with a surgery. then as I got older I developed more problems starting with endometriosis and currently have the vulvodynia as well. When I found out I had the endometriosis I was devastated and my depression hit me so hard I didn't think I could get any lower. then after having he surgery to help the endometriosis the pain was still not going away. and my doctors search for other solutions to my pain.
finally my normal ob/gyn told me that it was very possible that I have been suffering from vulvodynia for 6 years and sent me to a specialist .

Going to the specialist was very overwhelming I even brought my two biggest cheerleaders to help me my mom and my fiancée. But it seems since that visit I have been slowly losing hope and motivation that anything will work. Finally I decided to see if there was a support group I could join to help get me through this. because it feels as though I cant talk to anyone about this.

I was very relieved to have found this site. I feel bad that other people are going through what i'm going through but i'm glad i'm not alone anymore.

I've given up on some of my treatment but reading on this site how women have made it through the other side and I have found many other things to try and im finally getting a sense of hope again. I cant wait to read more stories and hopefully chat with others about it. and find strength where I once felt I had lost it.

my cousin the other night told me I was the strongest person she knew. it made me feel good because I've never seen myself as a strong person. you just do what you have to do and hope for the best. I love you


Posts : 1
Join date : 2015-04-20

View user profile

Back to top Go down

Re: So glad ive found this site!

Post  x_chelss@live.com on Mon Apr 27, 2015 4:08 pm

I've just turned 20 and I had vulvodynia for 3 1/2 years. I know exactly how you feel to be so young and think you have to deal with this for the rest of your life but please don't give up! Your cousins right, you are strong. Not many people can suffer with pain every day and still remain happy and positive!
My friend has endermitrisosis she had the surgery it didn't help her neither, but she then had surgery for vulvodynia (after failed treatments) and she's now fine like me.

I had the surgery back in January 2015 and I am already seeing a difference in my life and I feel so sad knowing your the same age but still going through this.
What part of the world are you from? I am from the UK Birmingham.
I'm glad you have supportive people around you, I to felt lost at one point before my surgery even thought about killing myself because I just lost all hope with being in pain but there is a light at the end of the tunnel. Your closer to the light than you think you just need to keep fighting! For yourself, your mom & your finance

Good luck Beth x


Posts : 50
Join date : 2014-02-12

View user profile

Back to top Go down

Back to top

- Similar topics

Permissions in this forum:
You cannot reply to topics in this forum