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» I'm sorry im rambling
Today at 5:49 am by Jet227

» Diagnosed Recently
Thu Feb 14, 2019 6:35 pm by davesjen

» New and need advice and help
Wed Feb 13, 2019 12:42 pm by feeling desperate

» New here would very much appreciate advice at the end of my rope
Wed Feb 13, 2019 12:33 pm by feeling desperate

» MonaLisa Touch
Sat Feb 09, 2019 3:46 pm by Julquint

» New member desperate need of other vulvadynia sufferers
Sat Feb 09, 2019 10:09 am by Tfc13

» The pain CAN get better - What's worked for me
Sat Feb 09, 2019 8:17 am by Ginger

» Remission and relapse and again and again
Thu Feb 07, 2019 1:10 pm by mary jane

» Long term pain after partial vestibulectomy?
Wed Feb 06, 2019 1:56 pm by mary jane

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 0

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 1

New member desperate need of other vulvadynia sufferers

Fri Feb 08, 2019 6:55 pm by Tfc13

Hi there hope some1 reading this is going through the same shit as me!, I'm new to this so don't really know where to start , I'm Teresa , I've just been diagnosed with vestibular vulvadynia , after countless appointments with GPS being misdiagnosed, tested for god knows everything , eventually under my gynochologist ,who done all her necessary tests, I now have been given a diagnosis I'm in …

Comments: 5

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 7

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 13

Hello. Happy to have found this group.

Fri Dec 07, 2018 9:01 pm by foxysugarpants

I am new here and hope to gain some insight into my vulva pain. I suffered for a long time not realizing that there are ways to feel better. I saw the Dr. yesterday and I am starting P/T pelvic and valium suppositories. queen

Comments: 0


So glad ive found this site!

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So glad ive found this site!

Post  bethybelle951 on Mon Apr 20, 2015 8:07 pm

Hi my name is Beth I am 19 years old and have been diagnosed with vulvodynia for about a year now. Since then it has seemed to have controlled my life. I don't feel like myself anymore and it feels like all these medical problems will never end. But I've never been a stranger to medical problems/ hospitals. to tell you about myself. when I was born I had a major heart problem called truncus arteriosus which was treatable with a surgery. then as I got older I developed more problems starting with endometriosis and currently have the vulvodynia as well. When I found out I had the endometriosis I was devastated and my depression hit me so hard I didn't think I could get any lower. then after having he surgery to help the endometriosis the pain was still not going away. and my doctors search for other solutions to my pain.
finally my normal ob/gyn told me that it was very possible that I have been suffering from vulvodynia for 6 years and sent me to a specialist .

Going to the specialist was very overwhelming I even brought my two biggest cheerleaders to help me my mom and my fiancée. But it seems since that visit I have been slowly losing hope and motivation that anything will work. Finally I decided to see if there was a support group I could join to help get me through this. because it feels as though I cant talk to anyone about this.

I was very relieved to have found this site. I feel bad that other people are going through what i'm going through but i'm glad i'm not alone anymore.

I've given up on some of my treatment but reading on this site how women have made it through the other side and I have found many other things to try and im finally getting a sense of hope again. I cant wait to read more stories and hopefully chat with others about it. and find strength where I once felt I had lost it.

my cousin the other night told me I was the strongest person she knew. it made me feel good because I've never seen myself as a strong person. you just do what you have to do and hope for the best. I love you

bethybelle951

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Re: So glad ive found this site!

Post  x_chelss@live.com on Mon Apr 27, 2015 4:08 pm

I've just turned 20 and I had vulvodynia for 3 1/2 years. I know exactly how you feel to be so young and think you have to deal with this for the rest of your life but please don't give up! Your cousins right, you are strong. Not many people can suffer with pain every day and still remain happy and positive!
My friend has endermitrisosis she had the surgery it didn't help her neither, but she then had surgery for vulvodynia (after failed treatments) and she's now fine like me.


I had the surgery back in January 2015 and I am already seeing a difference in my life and I feel so sad knowing your the same age but still going through this.
What part of the world are you from? I am from the UK Birmingham.
I'm glad you have supportive people around you, I to felt lost at one point before my surgery even thought about killing myself because I just lost all hope with being in pain but there is a light at the end of the tunnel. Your closer to the light than you think you just need to keep fighting! For yourself, your mom & your finance


Good luck Beth x


x_chelss@live.com

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