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I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 1

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 8

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0

Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 6

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 4

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35


So glad ive found this site!

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So glad ive found this site!

Post  bethybelle951 on Mon Apr 20, 2015 8:07 pm

Hi my name is Beth I am 19 years old and have been diagnosed with vulvodynia for about a year now. Since then it has seemed to have controlled my life. I don't feel like myself anymore and it feels like all these medical problems will never end. But I've never been a stranger to medical problems/ hospitals. to tell you about myself. when I was born I had a major heart problem called truncus arteriosus which was treatable with a surgery. then as I got older I developed more problems starting with endometriosis and currently have the vulvodynia as well. When I found out I had the endometriosis I was devastated and my depression hit me so hard I didn't think I could get any lower. then after having he surgery to help the endometriosis the pain was still not going away. and my doctors search for other solutions to my pain.
finally my normal ob/gyn told me that it was very possible that I have been suffering from vulvodynia for 6 years and sent me to a specialist .

Going to the specialist was very overwhelming I even brought my two biggest cheerleaders to help me my mom and my fiancée. But it seems since that visit I have been slowly losing hope and motivation that anything will work. Finally I decided to see if there was a support group I could join to help get me through this. because it feels as though I cant talk to anyone about this.

I was very relieved to have found this site. I feel bad that other people are going through what i'm going through but i'm glad i'm not alone anymore.

I've given up on some of my treatment but reading on this site how women have made it through the other side and I have found many other things to try and im finally getting a sense of hope again. I cant wait to read more stories and hopefully chat with others about it. and find strength where I once felt I had lost it.

my cousin the other night told me I was the strongest person she knew. it made me feel good because I've never seen myself as a strong person. you just do what you have to do and hope for the best. I love you

bethybelle951

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Re: So glad ive found this site!

Post  x_chelss@live.com on Mon Apr 27, 2015 4:08 pm

I've just turned 20 and I had vulvodynia for 3 1/2 years. I know exactly how you feel to be so young and think you have to deal with this for the rest of your life but please don't give up! Your cousins right, you are strong. Not many people can suffer with pain every day and still remain happy and positive!
My friend has endermitrisosis she had the surgery it didn't help her neither, but she then had surgery for vulvodynia (after failed treatments) and she's now fine like me.


I had the surgery back in January 2015 and I am already seeing a difference in my life and I feel so sad knowing your the same age but still going through this.
What part of the world are you from? I am from the UK Birmingham.
I'm glad you have supportive people around you, I to felt lost at one point before my surgery even thought about killing myself because I just lost all hope with being in pain but there is a light at the end of the tunnel. Your closer to the light than you think you just need to keep fighting! For yourself, your mom & your finance


Good luck Beth x


x_chelss@live.com

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