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Diagnosed recently, looking for advice

Sun Sep 02, 2018 12:51 am by Cloudberry

Hi everyone,

I'm so glad I found this forum! I was diagnosed with vulvodynia/vulvar vestibulitis (still not sure about the difference between all the different terms) a couple of months ago and I could do with some advice. This is probably going to be a lot of text because I just want to get everything off my chest, so please bear with me.

I’m a woman in my late 20s. Before getting diagnosed …

Comments: 3

Hurting, Burning, Itching, and Worn Out

Thu Aug 09, 2018 10:55 pm by donnambr

This vulvodynia that I'm currently suffering with is so cruel. I hurt, I burn, I itch. When I first got this several years ago, before the internet, I though I was the only one with this awful disorder. Doctors couldn't figure it out. I felt so alone and devastated. Somehow it disappeared for a few years and now I'm suffering again. This dreaded V misery is back and I feel like I will be with …

Comments: 5

Hi girls! New in this forum

Fri Jul 13, 2018 2:31 pm by Gaby

Hi everyone!

Also joining the V club, Here my story:

It all started last year in september with a very bad throat infection for which i had to take antibiotics for about a month. This cause several yeast infections (candidia albicans).... one after the other!. I had them every month from october 2017 till march 2018. During this period i use an incredible amount of anti-fungal creams and …

Comments: 1

Newbie and feeling helpless

Wed Jul 11, 2018 1:52 pm by Taylor1

Hi, I found out a few weeks ago that I have this condition, started off at the end of April as a uti took strong antibiotics then got a thrush infection and now this.. My doctor has tried me on amitriptyline and gabipentin and both made me so poorly I couldn't take it plus I have seen what long use of these drugs has done to my mom for pain and its not good. I am using coconut oil which does …

Comments: 3

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 6

From a concerned husband

Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot …

Comments: 3

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 10

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0


So glad ive found this site!

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So glad ive found this site!

Post  bethybelle951 on Mon Apr 20, 2015 8:07 pm

Hi my name is Beth I am 19 years old and have been diagnosed with vulvodynia for about a year now. Since then it has seemed to have controlled my life. I don't feel like myself anymore and it feels like all these medical problems will never end. But I've never been a stranger to medical problems/ hospitals. to tell you about myself. when I was born I had a major heart problem called truncus arteriosus which was treatable with a surgery. then as I got older I developed more problems starting with endometriosis and currently have the vulvodynia as well. When I found out I had the endometriosis I was devastated and my depression hit me so hard I didn't think I could get any lower. then after having he surgery to help the endometriosis the pain was still not going away. and my doctors search for other solutions to my pain.
finally my normal ob/gyn told me that it was very possible that I have been suffering from vulvodynia for 6 years and sent me to a specialist .

Going to the specialist was very overwhelming I even brought my two biggest cheerleaders to help me my mom and my fiancée. But it seems since that visit I have been slowly losing hope and motivation that anything will work. Finally I decided to see if there was a support group I could join to help get me through this. because it feels as though I cant talk to anyone about this.

I was very relieved to have found this site. I feel bad that other people are going through what i'm going through but i'm glad i'm not alone anymore.

I've given up on some of my treatment but reading on this site how women have made it through the other side and I have found many other things to try and im finally getting a sense of hope again. I cant wait to read more stories and hopefully chat with others about it. and find strength where I once felt I had lost it.

my cousin the other night told me I was the strongest person she knew. it made me feel good because I've never seen myself as a strong person. you just do what you have to do and hope for the best. I love you

bethybelle951

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Re: So glad ive found this site!

Post  x_chelss@live.com on Mon Apr 27, 2015 4:08 pm

I've just turned 20 and I had vulvodynia for 3 1/2 years. I know exactly how you feel to be so young and think you have to deal with this for the rest of your life but please don't give up! Your cousins right, you are strong. Not many people can suffer with pain every day and still remain happy and positive!
My friend has endermitrisosis she had the surgery it didn't help her neither, but she then had surgery for vulvodynia (after failed treatments) and she's now fine like me.


I had the surgery back in January 2015 and I am already seeing a difference in my life and I feel so sad knowing your the same age but still going through this.
What part of the world are you from? I am from the UK Birmingham.
I'm glad you have supportive people around you, I to felt lost at one point before my surgery even thought about killing myself because I just lost all hope with being in pain but there is a light at the end of the tunnel. Your closer to the light than you think you just need to keep fighting! For yourself, your mom & your finance


Good luck Beth x


x_chelss@live.com

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