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New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 3

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 13

Hello. Happy to have found this group.

Fri Dec 07, 2018 9:01 pm by foxysugarpants

I am new here and hope to gain some insight into my vulva pain. I suffered for a long time not realizing that there are ways to feel better. I saw the Dr. yesterday and I am starting P/T pelvic and valium suppositories. queen

Comments: 0

Had this for 5 years, looking for people who understand

Sat Oct 06, 2018 9:46 pm by blackberrie

Hey all. I'm really struggling to find anyone in real life who can really understand what I'm going through. I've had vestibulodynia for 5 years now and I'm single. Obviously it has completely affected how I approach dating and sex and the fact that I can't really talk to people irl about it has made me feel very lonely. I've found that a lot of the women who have this problem are married and …

Comments: 3

Anyone have pain with urination?

Tue Oct 16, 2018 2:35 pm by mertzwl

Hi everyone - I can't believe I've been dealing with this for almost 10 years and an appointment scheduler at a urogyn office is the one to suggest I look into vulvodynia. Honestly, I don't care, I just thankful I might have an answer.

I have pain in one specific spot right around the urethral opening so it always coincides with urinating (it's not a uti). Does anyone else deal with pain …

Comments: 6

Diagnosed recently, looking for advice

Sun Sep 02, 2018 12:51 am by Cloudberry

Hi everyone,

I'm so glad I found this forum! I was diagnosed with vulvodynia/vulvar vestibulitis (still not sure about the difference between all the different terms) a couple of months ago and I could do with some advice. This is probably going to be a lot of text because I just want to get everything off my chest, so please bear with me.

I’m a woman in my late 20s. Before getting diagnosed …

Comments: 4

From a concerned husband

Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot …

Comments: 4

6 year sufferer but I’ve found some hope

Wed Oct 10, 2018 1:33 am by Npage14

Hey, ladies! I’m new to this support group, I’ve thought about doing something like this for a while so I wanted to try this out! I’ve had vulvodynia for 6 years now, I am self diagnosed. I’m 20 now and the pain started when I had my first encounter with sexual contact when I was 14(I still remained a virgin though it was fingering). For a couple years the pain was so bad I could hardly …

Comments: 0

Hurting, Burning, Itching, and Worn Out

Thu Aug 09, 2018 10:55 pm by donnambr

This vulvodynia that I'm currently suffering with is so cruel. I hurt, I burn, I itch. When I first got this several years ago, before the internet, I though I was the only one with this awful disorder. Doctors couldn't figure it out. I felt so alone and devastated. Somehow it disappeared for a few years and now I'm suffering again. This dreaded V misery is back and I feel like I will be with …

Comments: 5


So glad ive found this site!

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So glad ive found this site!

Post  bethybelle951 on Mon Apr 20, 2015 8:07 pm

Hi my name is Beth I am 19 years old and have been diagnosed with vulvodynia for about a year now. Since then it has seemed to have controlled my life. I don't feel like myself anymore and it feels like all these medical problems will never end. But I've never been a stranger to medical problems/ hospitals. to tell you about myself. when I was born I had a major heart problem called truncus arteriosus which was treatable with a surgery. then as I got older I developed more problems starting with endometriosis and currently have the vulvodynia as well. When I found out I had the endometriosis I was devastated and my depression hit me so hard I didn't think I could get any lower. then after having he surgery to help the endometriosis the pain was still not going away. and my doctors search for other solutions to my pain.
finally my normal ob/gyn told me that it was very possible that I have been suffering from vulvodynia for 6 years and sent me to a specialist .

Going to the specialist was very overwhelming I even brought my two biggest cheerleaders to help me my mom and my fiancée. But it seems since that visit I have been slowly losing hope and motivation that anything will work. Finally I decided to see if there was a support group I could join to help get me through this. because it feels as though I cant talk to anyone about this.

I was very relieved to have found this site. I feel bad that other people are going through what i'm going through but i'm glad i'm not alone anymore.

I've given up on some of my treatment but reading on this site how women have made it through the other side and I have found many other things to try and im finally getting a sense of hope again. I cant wait to read more stories and hopefully chat with others about it. and find strength where I once felt I had lost it.

my cousin the other night told me I was the strongest person she knew. it made me feel good because I've never seen myself as a strong person. you just do what you have to do and hope for the best. I love you

bethybelle951

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Re: So glad ive found this site!

Post  x_chelss@live.com on Mon Apr 27, 2015 4:08 pm

I've just turned 20 and I had vulvodynia for 3 1/2 years. I know exactly how you feel to be so young and think you have to deal with this for the rest of your life but please don't give up! Your cousins right, you are strong. Not many people can suffer with pain every day and still remain happy and positive!
My friend has endermitrisosis she had the surgery it didn't help her neither, but she then had surgery for vulvodynia (after failed treatments) and she's now fine like me.


I had the surgery back in January 2015 and I am already seeing a difference in my life and I feel so sad knowing your the same age but still going through this.
What part of the world are you from? I am from the UK Birmingham.
I'm glad you have supportive people around you, I to felt lost at one point before my surgery even thought about killing myself because I just lost all hope with being in pain but there is a light at the end of the tunnel. Your closer to the light than you think you just need to keep fighting! For yourself, your mom & your finance


Good luck Beth x


x_chelss@live.com

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