Vulvodynia Support
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» Hope to all my suffering ladies
I have always wondered about this... EmptyFri Oct 23, 2020 12:04 am by ringostarr26

» Please tell me this can get better
I have always wondered about this... EmptySat Jul 18, 2020 7:38 pm by sammykramer

» By no means cured, but doing much better!
I have always wondered about this... EmptyMon Mar 16, 2020 1:26 pm by tinkerbelle2

» How I cured my Vulvodynia!
I have always wondered about this... EmptySat Dec 07, 2019 11:54 am by Millie

» 7 months since the diagnosis
I have always wondered about this... EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
I have always wondered about this... EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
I have always wondered about this... EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
I have always wondered about this... EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
I have always wondered about this... EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


I have always wondered about this...

+3
Aussie
noni
flashlight
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Post  flashlight Tue Apr 12, 2011 1:30 am

Hi, all.

Does sexual arousal or orgasm (from a female "wet dream" or external clitoral stimulation alone...not intercourse) cause you pain hours later or the next day? It makes those few seconds of pleasure so not worth it for me. It is just cruel, right? I can't have pain free sex...and, if I do happen to get aroused and want to go through with external stimulation to the point of orgasm, as it seems like a good idea at the time, then I suffer for it the next day or later on with increased burning. I have read on some of these posts that some people think that getting the blood flowing is good. For me, it just causes more pain. Anybody else have my experience?

flashlight

Posts : 13
Join date : 2011-03-27

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Post  noni Tue Apr 12, 2011 2:35 am

Hey flashlight,

I havent been brave enough to test this theory...wearing clothes hurts so I can only imagine when that other type of activity would do to me.

But still I think everyone is different and I dont think avoiding our sexual sides is healthy either.

We cant win it seems.
noni
noni

Posts : 242
Join date : 2011-01-10
Age : 36
Location : Ontario

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Post  Aussie Tue Apr 12, 2011 6:27 am

I used to have this, before I knew how to use my muscles down there, before I saw a physio. I worked out that it was because for some reason my pelvic floor tensed during arousal. So when I orgasmed and tensed the muscles even more it caused pain. I have now learned to relax during stimulation ( it took a lot of work because it was automatic for me, always has been I think) and don't suffer with the burning the next day. Once you get control of the muscles you can feel when they are relaxed or not.

Hope this is helpful

Aussie

Posts : 230
Join date : 2011-03-15
Age : 35
Location : Queensland, Australia

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Post  Zazu Tue Apr 12, 2011 4:30 pm

Hi there,

I found recently (in the last 6 weeks or so) that orgasms have started to be painful, too. For me there is pain right when it happens (burning at the opening), followed by deep pain (uterine) that can go on for a few hours. I haven't noticed that it causes a flare up of more vulvar irritation later on, though. I think that the deep pain is caused by endometriosis, which my gyno suspects that I have. Is your pain deep or at the vulva, flashlight?
My physio seems to mostly do muscle relaxation and trigger point stuff down there - she hasn't taught me anything about muscle control down there. Aussie, how did you learn pelvic floor control?
Thanks!

Zazu

Posts : 64
Join date : 2011-04-05
Location : Canada

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Post  Aussie Wed Apr 13, 2011 10:44 pm

biofeedback.

Aussie

Posts : 230
Join date : 2011-03-15
Age : 35
Location : Queensland, Australia

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Post  Sarah001 Thu Apr 14, 2011 1:16 pm

I've done some biofeedback too Zazu, it's worth at least having a couple of sessions. I had an incredibly tight pelvic floor (still have actually) and couldn't release the muscles at all at the start. While I was chatting to the therapist my pelvic floor was getting tighter and tighter and I could see the line on the screen going up but couldn't stop it! I really felt like the PF was relaxed and it wasn't at all.
Sarah001
Sarah001

Posts : 1164
Join date : 2010-06-11
Age : 50
Location : UK

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Post  lisa98 Thu Apr 14, 2011 10:54 pm

I asked my physio about bifeedback, she seemed very dismissive, said its probably not what I need. Should I press this point, do you think? I want to try everything that might help. I might just ask her more about why she thinks it would not help. Has anyone else been told something similar?

lisa98

Posts : 33
Join date : 2010-07-31

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Post  Sarah001 Fri Apr 15, 2011 12:52 pm

Biofeedback is useful is you aren't controlling your pelvic floor properly, it shows you how much it's tensed on a day to day basis and what it does when you do certain things. If you think you may have a tight pelvic floor that you need to be more in touch with then it's worth a go. You can also get your resting tone from biofeedback and learn how much the tone is spiking up and down when it's supposed to be resting (PF instability which Dr Glazer is convinced it's critical to fix) I don't know why your physio is being so dismissive as they use it for all manner of physio related problems in different ways, is it that your physio can't provide you with biofeedback and doesn't want to lose a client to someone who can? If you want to try it then push, it's up to you at the end of the day.
Sarah001
Sarah001

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Location : UK

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Post  lisa98 Mon Apr 18, 2011 9:43 am

Thanks, Sarah. I don't think it was fear of losing a paitient- she mentioned she had done it before and I think they have the equipment at the centre she is at. I think she just developed a whole plan for me and biofeedback wasnt part of it. I have been steadily improving doing her exercises and seeing her regularly, so I think ill just put myself in her hands for a while. Partly because I trust in her informed opinion, but probably mostly just because Im so tired of thinking about this stupid thing and just want someone else to make decisions and look after me.

lisa98

Posts : 33
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Post  flashlight Fri May 13, 2011 2:46 am

for me, the pain is burning. If I don't have any penetration, just external stimulation, I just get worse burning. So, that doesn't make sense, because there is no involvement of the muscles except for what contracts during orgasm, if it occurs...But, i get worse pain even if I just have unrelieved arousal. If I do actually have sex, the burning fire at the introitus is hideous. I have no internal pain. Just can't get past the threshold without causing agony. The outside is fine, the inside is fine, but the "mucosal" surface inside the labia minora is just red, red, red and on fire.

flashlight

Posts : 13
Join date : 2011-03-27

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Post  saskatownv Fri May 13, 2011 2:58 am

Yup....even arousal w/out sex hurts.

Sally

saskatownv

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