Log in

I forgot my password

Latest topics
I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 3

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 8

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0

Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 6

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 4

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35


I have always wondered about this...

Go down

I have always wondered about this...

Post  flashlight on Tue Apr 12, 2011 1:30 am

Hi, all.

Does sexual arousal or orgasm (from a female "wet dream" or external clitoral stimulation alone...not intercourse) cause you pain hours later or the next day? It makes those few seconds of pleasure so not worth it for me. It is just cruel, right? I can't have pain free sex...and, if I do happen to get aroused and want to go through with external stimulation to the point of orgasm, as it seems like a good idea at the time, then I suffer for it the next day or later on with increased burning. I have read on some of these posts that some people think that getting the blood flowing is good. For me, it just causes more pain. Anybody else have my experience?

flashlight

Posts : 13
Join date : 2011-03-27

View user profile

Back to top Go down

Re: I have always wondered about this...

Post  noni on Tue Apr 12, 2011 2:35 am

Hey flashlight,

I havent been brave enough to test this theory...wearing clothes hurts so I can only imagine when that other type of activity would do to me.

But still I think everyone is different and I dont think avoiding our sexual sides is healthy either.

We cant win it seems.
avatar
noni

Posts : 242
Join date : 2011-01-10
Age : 30
Location : Ontario

View user profile

Back to top Go down

Re: I have always wondered about this...

Post  Aussie on Tue Apr 12, 2011 6:27 am

I used to have this, before I knew how to use my muscles down there, before I saw a physio. I worked out that it was because for some reason my pelvic floor tensed during arousal. So when I orgasmed and tensed the muscles even more it caused pain. I have now learned to relax during stimulation ( it took a lot of work because it was automatic for me, always has been I think) and don't suffer with the burning the next day. Once you get control of the muscles you can feel when they are relaxed or not.

Hope this is helpful

Aussie

Posts : 230
Join date : 2011-03-15
Age : 29
Location : Queensland, Australia

View user profile

Back to top Go down

Re: I have always wondered about this...

Post  Zazu on Tue Apr 12, 2011 4:30 pm

Hi there,

I found recently (in the last 6 weeks or so) that orgasms have started to be painful, too. For me there is pain right when it happens (burning at the opening), followed by deep pain (uterine) that can go on for a few hours. I haven't noticed that it causes a flare up of more vulvar irritation later on, though. I think that the deep pain is caused by endometriosis, which my gyno suspects that I have. Is your pain deep or at the vulva, flashlight?
My physio seems to mostly do muscle relaxation and trigger point stuff down there - she hasn't taught me anything about muscle control down there. Aussie, how did you learn pelvic floor control?
Thanks!

Zazu

Posts : 64
Join date : 2011-04-05
Location : Canada

View user profile

Back to top Go down

Re: I have always wondered about this...

Post  Aussie on Wed Apr 13, 2011 10:44 pm

biofeedback.

Aussie

Posts : 230
Join date : 2011-03-15
Age : 29
Location : Queensland, Australia

View user profile

Back to top Go down

Re: I have always wondered about this...

Post  Sarah001 on Thu Apr 14, 2011 1:16 pm

I've done some biofeedback too Zazu, it's worth at least having a couple of sessions. I had an incredibly tight pelvic floor (still have actually) and couldn't release the muscles at all at the start. While I was chatting to the therapist my pelvic floor was getting tighter and tighter and I could see the line on the screen going up but couldn't stop it! I really felt like the PF was relaxed and it wasn't at all.
avatar
Sarah001

Posts : 1164
Join date : 2010-06-11
Age : 45
Location : UK

View user profile

Back to top Go down

Re: I have always wondered about this...

Post  lisa98 on Thu Apr 14, 2011 10:54 pm

I asked my physio about bifeedback, she seemed very dismissive, said its probably not what I need. Should I press this point, do you think? I want to try everything that might help. I might just ask her more about why she thinks it would not help. Has anyone else been told something similar?

lisa98

Posts : 33
Join date : 2010-07-31

View user profile

Back to top Go down

Re: I have always wondered about this...

Post  Sarah001 on Fri Apr 15, 2011 12:52 pm

Biofeedback is useful is you aren't controlling your pelvic floor properly, it shows you how much it's tensed on a day to day basis and what it does when you do certain things. If you think you may have a tight pelvic floor that you need to be more in touch with then it's worth a go. You can also get your resting tone from biofeedback and learn how much the tone is spiking up and down when it's supposed to be resting (PF instability which Dr Glazer is convinced it's critical to fix) I don't know why your physio is being so dismissive as they use it for all manner of physio related problems in different ways, is it that your physio can't provide you with biofeedback and doesn't want to lose a client to someone who can? If you want to try it then push, it's up to you at the end of the day.
avatar
Sarah001

Posts : 1164
Join date : 2010-06-11
Age : 45
Location : UK

View user profile

Back to top Go down

Re: I have always wondered about this...

Post  lisa98 on Mon Apr 18, 2011 9:43 am

Thanks, Sarah. I don't think it was fear of losing a paitient- she mentioned she had done it before and I think they have the equipment at the centre she is at. I think she just developed a whole plan for me and biofeedback wasnt part of it. I have been steadily improving doing her exercises and seeing her regularly, so I think ill just put myself in her hands for a while. Partly because I trust in her informed opinion, but probably mostly just because Im so tired of thinking about this stupid thing and just want someone else to make decisions and look after me.

lisa98

Posts : 33
Join date : 2010-07-31

View user profile

Back to top Go down

the pain

Post  flashlight on Fri May 13, 2011 2:46 am

for me, the pain is burning. If I don't have any penetration, just external stimulation, I just get worse burning. So, that doesn't make sense, because there is no involvement of the muscles except for what contracts during orgasm, if it occurs...But, i get worse pain even if I just have unrelieved arousal. If I do actually have sex, the burning fire at the introitus is hideous. I have no internal pain. Just can't get past the threshold without causing agony. The outside is fine, the inside is fine, but the "mucosal" surface inside the labia minora is just red, red, red and on fire.

flashlight

Posts : 13
Join date : 2011-03-27

View user profile

Back to top Go down

Been there

Post  saskatownv on Fri May 13, 2011 2:58 am

Yup....even arousal w/out sex hurts.

Sally

saskatownv

Posts : 15
Join date : 2011-02-07

View user profile

Back to top Go down

Re: I have always wondered about this...

Post  Sponsored content


Sponsored content


Back to top Go down

Back to top

- Similar topics

 
Permissions in this forum:
You cannot reply to topics in this forum