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Gabapentin Gel. or other topical creams
Thu May 10, 2018 9:43 am by Rosie21
Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.
Comments: 2
Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?
Sat Aug 01, 2015 4:17 pm by Fielder
Hi everyone,
I'm a newbie. I live in the UK.
I'm trying to work out the best cushion to get for my vulvodynia. I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.
I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …
I'm a newbie. I live in the UK.
I'm trying to work out the best cushion to get for my vulvodynia. I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.
I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …
Comments: 11
An absolute success story- please read!
Fri Mar 08, 2019 10:57 pm by Persevere1990
Dear All,
I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.
I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …
I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.
I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …
Comments: 0
I'm sorry im rambling
Thu Feb 21, 2019 5:49 am by Jet227
hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …
Comments: 1
New member need advice please
Thu Feb 28, 2019 11:33 pm by PANDORA123
Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.
Thanks
Thanks
Comments: 5
MonaLisa Touch
Fri Feb 08, 2019 7:35 pm by rl2091
Hi All,
I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …
I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …
Comments: 3
Diagnosed Recently
Tue Jan 08, 2019 3:55 pm by flissyg
Hi All,
I’m so glad I’ve found a place where there are others who understand how I feel!
So this is my story:-
I’m 36, and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”. The following morning I woke up …
I’m so glad I’ve found a place where there are others who understand how I feel!
So this is my story:-
I’m 36, and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”. The following morning I woke up …
Comments: 4
New and need advice and help
Wed Dec 05, 2018 3:26 pm by Cin124
Hi everyone,
About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …
About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …
Comments: 6
New here would very much appreciate advice at the end of my rope
Wed Jan 09, 2019 9:09 pm by Jma990o
This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …
Comments: 3
I have always wondered about this...
+3
Aussie
noni
flashlight
7 posters
Page 1 of 1
I have always wondered about this...
Hi, all.
Does sexual arousal or orgasm (from a female "wet dream" or external clitoral stimulation alone...not intercourse) cause you pain hours later or the next day? It makes those few seconds of pleasure so not worth it for me. It is just cruel, right? I can't have pain free sex...and, if I do happen to get aroused and want to go through with external stimulation to the point of orgasm, as it seems like a good idea at the time, then I suffer for it the next day or later on with increased burning. I have read on some of these posts that some people think that getting the blood flowing is good. For me, it just causes more pain. Anybody else have my experience?
Does sexual arousal or orgasm (from a female "wet dream" or external clitoral stimulation alone...not intercourse) cause you pain hours later or the next day? It makes those few seconds of pleasure so not worth it for me. It is just cruel, right? I can't have pain free sex...and, if I do happen to get aroused and want to go through with external stimulation to the point of orgasm, as it seems like a good idea at the time, then I suffer for it the next day or later on with increased burning. I have read on some of these posts that some people think that getting the blood flowing is good. For me, it just causes more pain. Anybody else have my experience?
flashlight- Posts : 13
Join date : 2011-03-27
Re: I have always wondered about this...
Hey flashlight,
I havent been brave enough to test this theory...wearing clothes hurts so I can only imagine when that other type of activity would do to me.
But still I think everyone is different and I dont think avoiding our sexual sides is healthy either.
We cant win it seems.
I havent been brave enough to test this theory...wearing clothes hurts so I can only imagine when that other type of activity would do to me.
But still I think everyone is different and I dont think avoiding our sexual sides is healthy either.
We cant win it seems.
noni- Posts : 242
Join date : 2011-01-10
Age : 36
Location : Ontario
Re: I have always wondered about this...
I used to have this, before I knew how to use my muscles down there, before I saw a physio. I worked out that it was because for some reason my pelvic floor tensed during arousal. So when I orgasmed and tensed the muscles even more it caused pain. I have now learned to relax during stimulation ( it took a lot of work because it was automatic for me, always has been I think) and don't suffer with the burning the next day. Once you get control of the muscles you can feel when they are relaxed or not.
Hope this is helpful
Hope this is helpful
Aussie- Posts : 230
Join date : 2011-03-15
Age : 35
Location : Queensland, Australia
Re: I have always wondered about this...
Hi there,
I found recently (in the last 6 weeks or so) that orgasms have started to be painful, too. For me there is pain right when it happens (burning at the opening), followed by deep pain (uterine) that can go on for a few hours. I haven't noticed that it causes a flare up of more vulvar irritation later on, though. I think that the deep pain is caused by endometriosis, which my gyno suspects that I have. Is your pain deep or at the vulva, flashlight?
My physio seems to mostly do muscle relaxation and trigger point stuff down there - she hasn't taught me anything about muscle control down there. Aussie, how did you learn pelvic floor control?
Thanks!
I found recently (in the last 6 weeks or so) that orgasms have started to be painful, too. For me there is pain right when it happens (burning at the opening), followed by deep pain (uterine) that can go on for a few hours. I haven't noticed that it causes a flare up of more vulvar irritation later on, though. I think that the deep pain is caused by endometriosis, which my gyno suspects that I have. Is your pain deep or at the vulva, flashlight?
My physio seems to mostly do muscle relaxation and trigger point stuff down there - she hasn't taught me anything about muscle control down there. Aussie, how did you learn pelvic floor control?
Thanks!
Zazu- Posts : 64
Join date : 2011-04-05
Location : Canada
Re: I have always wondered about this...
biofeedback.
Aussie- Posts : 230
Join date : 2011-03-15
Age : 35
Location : Queensland, Australia
Re: I have always wondered about this...
I've done some biofeedback too Zazu, it's worth at least having a couple of sessions. I had an incredibly tight pelvic floor (still have actually) and couldn't release the muscles at all at the start. While I was chatting to the therapist my pelvic floor was getting tighter and tighter and I could see the line on the screen going up but couldn't stop it! I really felt like the PF was relaxed and it wasn't at all.
Sarah001- Posts : 1164
Join date : 2010-06-11
Age : 50
Location : UK
Re: I have always wondered about this...
I asked my physio about bifeedback, she seemed very dismissive, said its probably not what I need. Should I press this point, do you think? I want to try everything that might help. I might just ask her more about why she thinks it would not help. Has anyone else been told something similar?
lisa98- Posts : 33
Join date : 2010-07-31
Re: I have always wondered about this...
Biofeedback is useful is you aren't controlling your pelvic floor properly, it shows you how much it's tensed on a day to day basis and what it does when you do certain things. If you think you may have a tight pelvic floor that you need to be more in touch with then it's worth a go. You can also get your resting tone from biofeedback and learn how much the tone is spiking up and down when it's supposed to be resting (PF instability which Dr Glazer is convinced it's critical to fix) I don't know why your physio is being so dismissive as they use it for all manner of physio related problems in different ways, is it that your physio can't provide you with biofeedback and doesn't want to lose a client to someone who can? If you want to try it then push, it's up to you at the end of the day.
Sarah001- Posts : 1164
Join date : 2010-06-11
Age : 50
Location : UK
Re: I have always wondered about this...
Thanks, Sarah. I don't think it was fear of losing a paitient- she mentioned she had done it before and I think they have the equipment at the centre she is at. I think she just developed a whole plan for me and biofeedback wasnt part of it. I have been steadily improving doing her exercises and seeing her regularly, so I think ill just put myself in her hands for a while. Partly because I trust in her informed opinion, but probably mostly just because Im so tired of thinking about this stupid thing and just want someone else to make decisions and look after me.
lisa98- Posts : 33
Join date : 2010-07-31
the pain
for me, the pain is burning. If I don't have any penetration, just external stimulation, I just get worse burning. So, that doesn't make sense, because there is no involvement of the muscles except for what contracts during orgasm, if it occurs...But, i get worse pain even if I just have unrelieved arousal. If I do actually have sex, the burning fire at the introitus is hideous. I have no internal pain. Just can't get past the threshold without causing agony. The outside is fine, the inside is fine, but the "mucosal" surface inside the labia minora is just red, red, red and on fire.
flashlight- Posts : 13
Join date : 2011-03-27
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Fri Oct 23, 2020 12:04 am by ringostarr26
» Please tell me this can get better
Sat Jul 18, 2020 7:38 pm by sammykramer
» By no means cured, but doing much better!
Mon Mar 16, 2020 1:26 pm by tinkerbelle2
» How I cured my Vulvodynia!
Sat Dec 07, 2019 11:54 am by Millie
» 7 months since the diagnosis
Wed Aug 14, 2019 2:38 am by agtoronto
» Gabapentin Gel. or other topical creams
Sat Jun 15, 2019 5:22 pm by mary jane
» IMPORTANT FOR UK SUFFERERS
Sat Jun 15, 2019 5:21 pm by mary jane
» Help New Diagnosis
Sat Jun 15, 2019 5:07 pm by mary jane
» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
Tue Jun 11, 2019 12:56 am by VVSSufferer