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Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

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Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

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New member

Sat Mar 18, 2017 7:37 pm by Lisa1627

Hi ladies. I am new to the forum. I have had what I think is vulvodynia caused from hsv 2. So not only do I have the burning vag but the constant feeling of being contagious. I can honestly say that I hate my life and myself right now. There are days when I think I would rather be dead. I tried the amitryptline and it helped but if it's only making my brain think I don't have pain then it's …

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Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 3

Recovered from Vulvodynia

Thu May 04, 2017 9:42 pm by chancesunny

Hey everyone,

Im a new member on this forum and wanted to share my story so I can help anyone who is feeling helpless. Maybe what worked for me can work for you. I'll try to make this short so you can go get better!

I had vulvodynia for about 3-4 years. In the beginning, it started with pain that I thought was just a yeast infection and then I thought it was a urinary tract infection or …

Comments: 2

New here, my story and looking for advice

Wed Apr 26, 2017 9:02 am by rachiecakes

Hi All!

I was really hoping to get some feedback from everyone here - it's very hard dealing with an issue like this because no one really understands what I'm going through!

Im 28 years old I've had interstitial cystitis for 3 years - but never an vaginal issues. About 6 months ago I got a yeast infection following a course of antibiotics - similarly I developed IC after a bad UTI. The itching …

Comments: 4

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 2

Male visitor

Wed Jan 18, 2017 11:19 pm by outsider

Hello!

I am a 25 year old guy who has erectile dysfunction following an injury a few years ago. I am here because I think that men and women with sexual dysfunction could benefit from dating each other. My experience has been that women have lost interest when they found out that penetrative sex was not possible with me.
So I am interested in learning more about female sexual disorders. Do young …

Comments: 3

New Here: Question/My Story

Mon Apr 03, 2017 2:00 am by overit14

Hi everyone. I came across this site by Googling "vulvar pain support". I feel like my case is different than most I read about so I was wondering if anyone else here experiences this in the way that I do.

This started in 2012 and has happened off and on since. I get really, really red and it's very painful, swollen and burns. Sometimes it may be a little itchy, but mostly it just …

Comments: 6


I have always wondered about this...

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I have always wondered about this...

Post  flashlight on Tue Apr 12, 2011 1:30 am

Hi, all.

Does sexual arousal or orgasm (from a female "wet dream" or external clitoral stimulation alone...not intercourse) cause you pain hours later or the next day? It makes those few seconds of pleasure so not worth it for me. It is just cruel, right? I can't have pain free sex...and, if I do happen to get aroused and want to go through with external stimulation to the point of orgasm, as it seems like a good idea at the time, then I suffer for it the next day or later on with increased burning. I have read on some of these posts that some people think that getting the blood flowing is good. For me, it just causes more pain. Anybody else have my experience?

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Re: I have always wondered about this...

Post  noni on Tue Apr 12, 2011 2:35 am

Hey flashlight,

I havent been brave enough to test this theory...wearing clothes hurts so I can only imagine when that other type of activity would do to me.

But still I think everyone is different and I dont think avoiding our sexual sides is healthy either.

We cant win it seems.
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Re: I have always wondered about this...

Post  Aussie on Tue Apr 12, 2011 6:27 am

I used to have this, before I knew how to use my muscles down there, before I saw a physio. I worked out that it was because for some reason my pelvic floor tensed during arousal. So when I orgasmed and tensed the muscles even more it caused pain. I have now learned to relax during stimulation ( it took a lot of work because it was automatic for me, always has been I think) and don't suffer with the burning the next day. Once you get control of the muscles you can feel when they are relaxed or not.

Hope this is helpful

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Re: I have always wondered about this...

Post  Zazu on Tue Apr 12, 2011 4:30 pm

Hi there,

I found recently (in the last 6 weeks or so) that orgasms have started to be painful, too. For me there is pain right when it happens (burning at the opening), followed by deep pain (uterine) that can go on for a few hours. I haven't noticed that it causes a flare up of more vulvar irritation later on, though. I think that the deep pain is caused by endometriosis, which my gyno suspects that I have. Is your pain deep or at the vulva, flashlight?
My physio seems to mostly do muscle relaxation and trigger point stuff down there - she hasn't taught me anything about muscle control down there. Aussie, how did you learn pelvic floor control?
Thanks!

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Re: I have always wondered about this...

Post  Aussie on Wed Apr 13, 2011 10:44 pm

biofeedback.

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Re: I have always wondered about this...

Post  Sarah001 on Thu Apr 14, 2011 1:16 pm

I've done some biofeedback too Zazu, it's worth at least having a couple of sessions. I had an incredibly tight pelvic floor (still have actually) and couldn't release the muscles at all at the start. While I was chatting to the therapist my pelvic floor was getting tighter and tighter and I could see the line on the screen going up but couldn't stop it! I really felt like the PF was relaxed and it wasn't at all.
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Re: I have always wondered about this...

Post  lisa98 on Thu Apr 14, 2011 10:54 pm

I asked my physio about bifeedback, she seemed very dismissive, said its probably not what I need. Should I press this point, do you think? I want to try everything that might help. I might just ask her more about why she thinks it would not help. Has anyone else been told something similar?

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Re: I have always wondered about this...

Post  Sarah001 on Fri Apr 15, 2011 12:52 pm

Biofeedback is useful is you aren't controlling your pelvic floor properly, it shows you how much it's tensed on a day to day basis and what it does when you do certain things. If you think you may have a tight pelvic floor that you need to be more in touch with then it's worth a go. You can also get your resting tone from biofeedback and learn how much the tone is spiking up and down when it's supposed to be resting (PF instability which Dr Glazer is convinced it's critical to fix) I don't know why your physio is being so dismissive as they use it for all manner of physio related problems in different ways, is it that your physio can't provide you with biofeedback and doesn't want to lose a client to someone who can? If you want to try it then push, it's up to you at the end of the day.
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Re: I have always wondered about this...

Post  lisa98 on Mon Apr 18, 2011 9:43 am

Thanks, Sarah. I don't think it was fear of losing a paitient- she mentioned she had done it before and I think they have the equipment at the centre she is at. I think she just developed a whole plan for me and biofeedback wasnt part of it. I have been steadily improving doing her exercises and seeing her regularly, so I think ill just put myself in her hands for a while. Partly because I trust in her informed opinion, but probably mostly just because Im so tired of thinking about this stupid thing and just want someone else to make decisions and look after me.

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the pain

Post  flashlight on Fri May 13, 2011 2:46 am

for me, the pain is burning. If I don't have any penetration, just external stimulation, I just get worse burning. So, that doesn't make sense, because there is no involvement of the muscles except for what contracts during orgasm, if it occurs...But, i get worse pain even if I just have unrelieved arousal. If I do actually have sex, the burning fire at the introitus is hideous. I have no internal pain. Just can't get past the threshold without causing agony. The outside is fine, the inside is fine, but the "mucosal" surface inside the labia minora is just red, red, red and on fire.

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Been there

Post  saskatownv on Fri May 13, 2011 2:58 am

Yup....even arousal w/out sex hurts.

Sally

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Re: I have always wondered about this...

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