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Gabapentin Gel. or other topical creams
Thu May 10, 2018 9:43 am by Rosie21
Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.
Comments: 2
Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?
Sat Aug 01, 2015 4:17 pm by Fielder
Hi everyone,
I'm a newbie. I live in the UK.
I'm trying to work out the best cushion to get for my vulvodynia. I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.
I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …
I'm a newbie. I live in the UK.
I'm trying to work out the best cushion to get for my vulvodynia. I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.
I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …
Comments: 11
An absolute success story- please read!
Fri Mar 08, 2019 10:57 pm by Persevere1990
Dear All,
I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.
I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …
I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.
I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …
Comments: 0
I'm sorry im rambling
Thu Feb 21, 2019 5:49 am by Jet227
hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …
Comments: 1
New member need advice please
Thu Feb 28, 2019 11:33 pm by PANDORA123
Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.
Thanks
Thanks
Comments: 5
MonaLisa Touch
Fri Feb 08, 2019 7:35 pm by rl2091
Hi All,
I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …
I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …
Comments: 3
Diagnosed Recently
Tue Jan 08, 2019 3:55 pm by flissyg
Hi All,
I’m so glad I’ve found a place where there are others who understand how I feel!
So this is my story:-
I’m 36, and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”. The following morning I woke up …
I’m so glad I’ve found a place where there are others who understand how I feel!
So this is my story:-
I’m 36, and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”. The following morning I woke up …
Comments: 4
New and need advice and help
Wed Dec 05, 2018 3:26 pm by Cin124
Hi everyone,
About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …
About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …
Comments: 6
New here would very much appreciate advice at the end of my rope
Wed Jan 09, 2019 9:09 pm by Jma990o
This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …
Comments: 3
Dealing with anxiety
+2
Sarah001
Sebby (Admin)
6 posters
Page 1 of 1
Dealing with anxiety
Hey guys
The last few weeks have been so stressful at work and then I got a period and a flare up
I feel like I can just about get through each day with my anxiety being so high. I have had anxiety since I can remember. I am getting counselling and it is helping but some days I just wana sleep (which I dont do well) and get some respite from my brain
I have had problems with my biofeedback sensor and will be getting a new one by the end of the month. I am guilty of not chasing this up and getting the order done and dusted. I think I just couldnt think about that along with everything else and I have let myself down with my treatment.
Its bloody stupid how anxiety just takes over my life and stops me even looking after myself properly!!
I know I have much to be thankful for and I need to focus on that.
Do you guys get anxiety? and how do you deal with it?
The last few weeks have been so stressful at work and then I got a period and a flare up
I feel like I can just about get through each day with my anxiety being so high. I have had anxiety since I can remember. I am getting counselling and it is helping but some days I just wana sleep (which I dont do well) and get some respite from my brain
I have had problems with my biofeedback sensor and will be getting a new one by the end of the month. I am guilty of not chasing this up and getting the order done and dusted. I think I just couldnt think about that along with everything else and I have let myself down with my treatment.
Its bloody stupid how anxiety just takes over my life and stops me even looking after myself properly!!
I know I have much to be thankful for and I need to focus on that.
Do you guys get anxiety? and how do you deal with it?
Re: Dealing with anxiety
I get very anxious but have to admit the Ami I take makes this less intense. Sometimes I listen to a hypnosis recording for relaxation if I can find time which helps alot and I also try to think of what my Mum used to tell us during very stressful periods and she always used to say "it will come and it will go and be over" and she's so right. Don't feel bad about the sensor, I don't always get everything done in a timely manner, you haven't let yourself down at all and as soon as you get the sensor you'll be back on track again. Can you do the pelvic floor work without the sensor? Or perhaps a modified version until it arrives? The whole V thing just creates stress and then makes things worse because we tense up and it's such a vicious cycle.
I know you mentioned you can't take Ami but have you thought about Valerian tea to help you sleep? It's very effective and relaxing. Just do your best not to worry and spend some time every day doing deep breathing and knowing this situation won't last forever. xx
I know you mentioned you can't take Ami but have you thought about Valerian tea to help you sleep? It's very effective and relaxing. Just do your best not to worry and spend some time every day doing deep breathing and knowing this situation won't last forever. xx
Sarah001- Posts : 1164
Join date : 2010-06-11
Age : 50
Location : UK
Re: Dealing with anxiety
sebby!
I deal with it by having the biggest, longest cry...til i have no more tears. Then..the most important part....hug from my mum!
Sertraline 150mg daily for the anxiety and also pregabalin 300mg for anxiety and pain relief (bollox is it). BUT monday afternoon head doctor appointments really help....Cognitive Anaylic Therapy...has helped me no end, god knows where id be now without all of this i dread to think. The NHS r a pile of w&nk to say the least, private healthcare is no better. WOuld help if they actually did some research instead of just thrusting random steriod creams at us!!
I deal with it by having the biggest, longest cry...til i have no more tears. Then..the most important part....hug from my mum!
Sertraline 150mg daily for the anxiety and also pregabalin 300mg for anxiety and pain relief (bollox is it). BUT monday afternoon head doctor appointments really help....Cognitive Anaylic Therapy...has helped me no end, god knows where id be now without all of this i dread to think. The NHS r a pile of w&nk to say the least, private healthcare is no better. WOuld help if they actually did some research instead of just thrusting random steriod creams at us!!
naomi- Moderator
- Posts : 262
Join date : 2010-04-09
Location : Cheltenham
Re: Dealing with anxiety
and i forgot.....VODKKKKKKKKA!!!
naomi- Moderator
- Posts : 262
Join date : 2010-04-09
Location : Cheltenham
Re: Dealing with anxiety
Last night I had a dream about having a panic attack FFS I want a tropical island, sparkling water and cocktails - even my dreams are fucked up!
How about our retreat Missys? I also want a hug from Naomi's Mother.
How about our retreat Missys? I also want a hug from Naomi's Mother.
Mouse- Posts : 303
Join date : 2010-09-09
Location : New Zealand
Re: Dealing with anxiety
heheee of course! we arent a huggy family to be honest so when we do hug its lush
yeh i get the nightmares too....its sucks and is all too consuming.
lets book a holiday next year (i must rob a bank to pay for this but i will worry about which bank at a later date
hope ur ok Mouse! xxx
yeh i get the nightmares too....its sucks and is all too consuming.
lets book a holiday next year (i must rob a bank to pay for this but i will worry about which bank at a later date
hope ur ok Mouse! xxx
naomi- Moderator
- Posts : 262
Join date : 2010-04-09
Location : Cheltenham
Re: Dealing with anxiety
Which bank shall we rob? lol
Thanks girls xx
Sometimes the anxiety just hits me so hard and I cant even think straight. I appreciate all of your advice. I will try that tea to help me sleep too as I dont sleep well at all. (Been up since 5.30am grrrrrrrr)
Im not sure what pelvic floor work I can do without the sensor? I guess im so scared to try anything and then I get it wrong and cause myself more pain.
The flare up is still going but I think it is calming down a bit. I really just have been a highly strung misery this last week. Dunno how my fella has put up with me but he does and is so supportive and lovely I think I am dreaming him! LOL I should be thankful really and I am its just sometimes the pain and anxiety just takes over my brain!
Godbless you girls xx
Re: Dealing with anxiety
Hey ladies,
I've had to put up with my anxiety for many years...im so tired of it. But now with V it has just gotten worse. Im scared the pain will return (I mean, full on pain)...and just trying to manage this condition is so stressful. I dont have enough time, and theres not enough time in the world, for me to focus my energy on this condition. Theres a life I need to live!!!! There are experiences I dont wanna miss out on because my vagina is trying to get my attention.
Take care girls...
I've had to put up with my anxiety for many years...im so tired of it. But now with V it has just gotten worse. Im scared the pain will return (I mean, full on pain)...and just trying to manage this condition is so stressful. I dont have enough time, and theres not enough time in the world, for me to focus my energy on this condition. Theres a life I need to live!!!! There are experiences I dont wanna miss out on because my vagina is trying to get my attention.
Take care girls...
noni- Posts : 242
Join date : 2011-01-10
Age : 36
Location : Ontario
Re: Dealing with anxiety
Getting pretty sick of the anxiety but I am trying the one day at a time thing....or one moment at a time!
I think I fear getting really ill, like either with pain or with mental health. I keep telling myself that I am doing well despite all the crap over the last two years.
I often think of myself as weak. I dont think this kind of thinking helps. I mean I still manage day to day with these health conditions but then I think of those people who have it worse than me and feel guilty
Maybe I just have to accept the life thats mine...and do the best I can whatever life throws at me
I'll keep praying
Re: Dealing with anxiety
Sebby,
Have you tried hypnotherapy. I know, I thougth it was a load of bs untill I tried it for anxiety and depresson. I had had this for 4 years and had been to countless therapists but because I didn't have a 'cause' ie trauma or abuse or death they couldn't really help. It was like one day I woke up with depression.
Hypnotherapy was the only thing that worked. I have yet to feel depressed even with v. I got some anxiety when this all started but then I just listened to the tapes my therapist did and I don't have it anymore.
Have you tried hypnotherapy. I know, I thougth it was a load of bs untill I tried it for anxiety and depresson. I had had this for 4 years and had been to countless therapists but because I didn't have a 'cause' ie trauma or abuse or death they couldn't really help. It was like one day I woke up with depression.
Hypnotherapy was the only thing that worked. I have yet to feel depressed even with v. I got some anxiety when this all started but then I just listened to the tapes my therapist did and I don't have it anymore.
Aussie- Posts : 230
Join date : 2011-03-15
Age : 35
Location : Queensland, Australia
Similar topics
» Anxiety and Depression
» Just been diagnosed with Vulvodynia and would like some help dealing with it please!
» Just been diagnosed with Vulvodynia and would like some help dealing with it please!
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Fri Oct 23, 2020 12:04 am by ringostarr26
» Please tell me this can get better
Sat Jul 18, 2020 7:38 pm by sammykramer
» By no means cured, but doing much better!
Mon Mar 16, 2020 1:26 pm by tinkerbelle2
» How I cured my Vulvodynia!
Sat Dec 07, 2019 11:54 am by Millie
» 7 months since the diagnosis
Wed Aug 14, 2019 2:38 am by agtoronto
» Gabapentin Gel. or other topical creams
Sat Jun 15, 2019 5:22 pm by mary jane
» IMPORTANT FOR UK SUFFERERS
Sat Jun 15, 2019 5:21 pm by mary jane
» Help New Diagnosis
Sat Jun 15, 2019 5:07 pm by mary jane
» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
Tue Jun 11, 2019 12:56 am by VVSSufferer