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I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 1

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 8

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0

Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 6

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 4

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35


Just been diagnosed with Vulvodynia and would like some help dealing with it please!

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Just been diagnosed with Vulvodynia and would like some help dealing with it please!

Post  JS007 on Wed Dec 02, 2015 2:21 pm

Hi everyone, I am new to this forum but would like some advice and support on this subject. I am 33 years old and I went to the gyneo today after seeing several GP's and being given medication for thrush and UTI's etc over the past 5 months. This was a second appointment as at my first referral she kindly did all the swab tests and had a good look round...luckily today with was confirming how my symptons have been etc. I am currently on 30mg of Amitriptyline which I was given by my GP has was not great over the past couple of months. I have now been told to keep increasing this drug and try to get to grips with this diagnosis! my anxiety is not great and I am worried that I am going to have to live with this forever and the sensations I have down below are not going to leave me????
I would really love to hear some positive stories about this condition - sadly my trigger appears to be going to the toilet, as soon as I wake up and go to the bathroom it all starts and stays for the rest of the day?? has anyone else struggled with this trigger??
I am trying to stay positive but as you all know this condition is mentally and physically draining!! My husband has been fantastic and we are trying for our first bubba so would like something positive to focus on!!
I hope to hear from other people that this will sort itself out! Smile

JS007

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Re: Just been diagnosed with Vulvodynia and would like some help dealing with it please!

Post  PainBlogger on Wed Dec 02, 2015 4:41 pm

My main trigger seems to be going to the toilet. Sometimes my pain will be at a low background level of 1/10 and then I'll empty my bladder and my pain level will shoot up. I've had the problem since thrush and a UTI about 17 months ago. Generally, my pain is less than it was back then though. I do now have days when, if not provoked by touching the problem area (that includes by sitting on hard chairs), my pain is as low as 1/10. So, when I have the bad days, I try to keep thinking positively that it will slowly continue to get better.

It's good that you have something positive to focus on and are able to try for a baby with this condition. The thing I find most difficult to cope with with my condition is that my OH and I can't try and I'm not getting any younger.

Have you tried eliminating all problem foods and drinks from your diet like caffeine, alcohol, chocolate, artificial sweeteners, citrus fruit and juice, vinegar (basically anything acidic or bladder/urethra/vulva irritating)? Some people find a low oxalate diet helps. If you search low oxalate diet you can get a list of high oxalate foods. Urine is most concentrated in the morning as it's been accumulating overnight in the bladder. I always have a drink of water before I go to bed. Sometimes it means I wake quite early desperate for the toilet, but better to have something in the bladder (sometimes I have urgency to go with little in there and then it hurts even more).


PainBlogger

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