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I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25


I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

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I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured


Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

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Recently Diagnosed which has motivated my research study

Tue Mar 06, 2018 4:54 pm by ebclose2free

Hi everyone,

My name is Eliza Barach and I was diagnosed with vulvodynia in October of 2017. I'm also PhD student at the State University of New York at Albany. I work several professors at SUNY, but one in particular, Dr. Mitch Earleywine researches marijuana and its possible efficacy as an alternative treatment. Our previous examined cannabis and symptoms of PMS/PMDD and found that women …

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Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist

after having a vestibulectomy with no success, I decided to visit …

Comments: 3

New and desperate for advice

Sat Mar 03, 2018 2:37 pm by srbry

Hi everyone,

I'm new here and was told to find a support group because this is all getting a bit much really...

I lost my virginity when I was 18 and it hurt - that was normal. Loads of women had told me that it hurt so that was fine I didn't question that. I was with the same guy for a couple of months and each time after that it was uncomfortable and not great. I didn't tell him because I …

Comments: 3

New and need some help

Wed Feb 21, 2018 4:30 pm by LindafromNJ

New to this site ad trying to figure out how it works.  I am trying to post as a new member so I am hoping this goes thru.  I am a senior adult and have just been diagnosed by the Drexil Vaginitis Center to have vulvodynia along with Vestibulitis (not sure if spelled correctly).  My symptoms are vaginal burning, itching, soreness around the vaginal opening with one spot in particular.  Some …

Comments: 9

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 12

Can A Cut In Vestibule cause Vulvodynia?

Thu Mar 01, 2018 1:07 am by rockylife

Can a cut in the vestibule area cause vulvodynia? Is it possible that some nerve a were damaged that’s why I feel this pain in my area without visible lesions?

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Anyone from New Jersey

Thu Feb 22, 2018 10:47 pm by LindafromNJ

Looking to maybe talk to someone from NJ to see if there are any support groups in this state.

Comments: 3

Just been diagnosed with Vulvodynia and would like some help dealing with it please!

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Just been diagnosed with Vulvodynia and would like some help dealing with it please!

Post  JS007 on Wed Dec 02, 2015 2:21 pm

Hi everyone, I am new to this forum but would like some advice and support on this subject. I am 33 years old and I went to the gyneo today after seeing several GP's and being given medication for thrush and UTI's etc over the past 5 months. This was a second appointment as at my first referral she kindly did all the swab tests and had a good look round...luckily today with was confirming how my symptons have been etc. I am currently on 30mg of Amitriptyline which I was given by my GP has was not great over the past couple of months. I have now been told to keep increasing this drug and try to get to grips with this diagnosis! my anxiety is not great and I am worried that I am going to have to live with this forever and the sensations I have down below are not going to leave me????
I would really love to hear some positive stories about this condition - sadly my trigger appears to be going to the toilet, as soon as I wake up and go to the bathroom it all starts and stays for the rest of the day?? has anyone else struggled with this trigger??
I am trying to stay positive but as you all know this condition is mentally and physically draining!! My husband has been fantastic and we are trying for our first bubba so would like something positive to focus on!!
I hope to hear from other people that this will sort itself out! Smile


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Re: Just been diagnosed with Vulvodynia and would like some help dealing with it please!

Post  PainBlogger on Wed Dec 02, 2015 4:41 pm

My main trigger seems to be going to the toilet. Sometimes my pain will be at a low background level of 1/10 and then I'll empty my bladder and my pain level will shoot up. I've had the problem since thrush and a UTI about 17 months ago. Generally, my pain is less than it was back then though. I do now have days when, if not provoked by touching the problem area (that includes by sitting on hard chairs), my pain is as low as 1/10. So, when I have the bad days, I try to keep thinking positively that it will slowly continue to get better.

It's good that you have something positive to focus on and are able to try for a baby with this condition. The thing I find most difficult to cope with with my condition is that my OH and I can't try and I'm not getting any younger.

Have you tried eliminating all problem foods and drinks from your diet like caffeine, alcohol, chocolate, artificial sweeteners, citrus fruit and juice, vinegar (basically anything acidic or bladder/urethra/vulva irritating)? Some people find a low oxalate diet helps. If you search low oxalate diet you can get a list of high oxalate foods. Urine is most concentrated in the morning as it's been accumulating overnight in the bladder. I always have a drink of water before I go to bed. Sometimes it means I wake quite early desperate for the toilet, but better to have something in the bladder (sometimes I have urgency to go with little in there and then it hurts even more).


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