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New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 3

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 13

Hello. Happy to have found this group.

Fri Dec 07, 2018 9:01 pm by foxysugarpants

I am new here and hope to gain some insight into my vulva pain. I suffered for a long time not realizing that there are ways to feel better. I saw the Dr. yesterday and I am starting P/T pelvic and valium suppositories. queen

Comments: 0

Had this for 5 years, looking for people who understand

Sat Oct 06, 2018 9:46 pm by blackberrie

Hey all. I'm really struggling to find anyone in real life who can really understand what I'm going through. I've had vestibulodynia for 5 years now and I'm single. Obviously it has completely affected how I approach dating and sex and the fact that I can't really talk to people irl about it has made me feel very lonely. I've found that a lot of the women who have this problem are married and …

Comments: 3

Anyone have pain with urination?

Tue Oct 16, 2018 2:35 pm by mertzwl

Hi everyone - I can't believe I've been dealing with this for almost 10 years and an appointment scheduler at a urogyn office is the one to suggest I look into vulvodynia. Honestly, I don't care, I just thankful I might have an answer.

I have pain in one specific spot right around the urethral opening so it always coincides with urinating (it's not a uti). Does anyone else deal with pain …

Comments: 6

Diagnosed recently, looking for advice

Sun Sep 02, 2018 12:51 am by Cloudberry

Hi everyone,

I'm so glad I found this forum! I was diagnosed with vulvodynia/vulvar vestibulitis (still not sure about the difference between all the different terms) a couple of months ago and I could do with some advice. This is probably going to be a lot of text because I just want to get everything off my chest, so please bear with me.

I’m a woman in my late 20s. Before getting diagnosed …

Comments: 4

From a concerned husband

Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot …

Comments: 4

6 year sufferer but I’ve found some hope

Wed Oct 10, 2018 1:33 am by Npage14

Hey, ladies! I’m new to this support group, I’ve thought about doing something like this for a while so I wanted to try this out! I’ve had vulvodynia for 6 years now, I am self diagnosed. I’m 20 now and the pain started when I had my first encounter with sexual contact when I was 14(I still remained a virgin though it was fingering). For a couple years the pain was so bad I could hardly …

Comments: 0

Hurting, Burning, Itching, and Worn Out

Thu Aug 09, 2018 10:55 pm by donnambr

This vulvodynia that I'm currently suffering with is so cruel. I hurt, I burn, I itch. When I first got this several years ago, before the internet, I though I was the only one with this awful disorder. Doctors couldn't figure it out. I felt so alone and devastated. Somehow it disappeared for a few years and now I'm suffering again. This dreaded V misery is back and I feel like I will be with …

Comments: 5


Just been diagnosed with Vulvodynia and would like some help dealing with it please!

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Just been diagnosed with Vulvodynia and would like some help dealing with it please!

Post  JS007 on Wed Dec 02, 2015 2:21 pm

Hi everyone, I am new to this forum but would like some advice and support on this subject. I am 33 years old and I went to the gyneo today after seeing several GP's and being given medication for thrush and UTI's etc over the past 5 months. This was a second appointment as at my first referral she kindly did all the swab tests and had a good look round...luckily today with was confirming how my symptons have been etc. I am currently on 30mg of Amitriptyline which I was given by my GP has was not great over the past couple of months. I have now been told to keep increasing this drug and try to get to grips with this diagnosis! my anxiety is not great and I am worried that I am going to have to live with this forever and the sensations I have down below are not going to leave me????
I would really love to hear some positive stories about this condition - sadly my trigger appears to be going to the toilet, as soon as I wake up and go to the bathroom it all starts and stays for the rest of the day?? has anyone else struggled with this trigger??
I am trying to stay positive but as you all know this condition is mentally and physically draining!! My husband has been fantastic and we are trying for our first bubba so would like something positive to focus on!!
I hope to hear from other people that this will sort itself out! Smile

JS007

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Re: Just been diagnosed with Vulvodynia and would like some help dealing with it please!

Post  PainBlogger on Wed Dec 02, 2015 4:41 pm

My main trigger seems to be going to the toilet. Sometimes my pain will be at a low background level of 1/10 and then I'll empty my bladder and my pain level will shoot up. I've had the problem since thrush and a UTI about 17 months ago. Generally, my pain is less than it was back then though. I do now have days when, if not provoked by touching the problem area (that includes by sitting on hard chairs), my pain is as low as 1/10. So, when I have the bad days, I try to keep thinking positively that it will slowly continue to get better.

It's good that you have something positive to focus on and are able to try for a baby with this condition. The thing I find most difficult to cope with with my condition is that my OH and I can't try and I'm not getting any younger.

Have you tried eliminating all problem foods and drinks from your diet like caffeine, alcohol, chocolate, artificial sweeteners, citrus fruit and juice, vinegar (basically anything acidic or bladder/urethra/vulva irritating)? Some people find a low oxalate diet helps. If you search low oxalate diet you can get a list of high oxalate foods. Urine is most concentrated in the morning as it's been accumulating overnight in the bladder. I always have a drink of water before I go to bed. Sometimes it means I wake quite early desperate for the toilet, but better to have something in the bladder (sometimes I have urgency to go with little in there and then it hurts even more).


PainBlogger

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