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Diagnosed recently, looking for advice

Sun Sep 02, 2018 12:51 am by Cloudberry

Hi everyone,

I'm so glad I found this forum! I was diagnosed with vulvodynia/vulvar vestibulitis (still not sure about the difference between all the different terms) a couple of months ago and I could do with some advice. This is probably going to be a lot of text because I just want to get everything off my chest, so please bear with me.

I’m a woman in my late 20s. Before getting diagnosed …

Comments: 3

Hurting, Burning, Itching, and Worn Out

Thu Aug 09, 2018 10:55 pm by donnambr

This vulvodynia that I'm currently suffering with is so cruel. I hurt, I burn, I itch. When I first got this several years ago, before the internet, I though I was the only one with this awful disorder. Doctors couldn't figure it out. I felt so alone and devastated. Somehow it disappeared for a few years and now I'm suffering again. This dreaded V misery is back and I feel like I will be with …

Comments: 5

Hi girls! New in this forum

Fri Jul 13, 2018 2:31 pm by Gaby

Hi everyone!

Also joining the V club, Here my story:

It all started last year in september with a very bad throat infection for which i had to take antibiotics for about a month. This cause several yeast infections (candidia albicans).... one after the other!. I had them every month from october 2017 till march 2018. During this period i use an incredible amount of anti-fungal creams and …

Comments: 1

Newbie and feeling helpless

Wed Jul 11, 2018 1:52 pm by Taylor1

Hi, I found out a few weeks ago that I have this condition, started off at the end of April as a uti took strong antibiotics then got a thrush infection and now this.. My doctor has tried me on amitriptyline and gabipentin and both made me so poorly I couldn't take it plus I have seen what long use of these drugs has done to my mom for pain and its not good. I am using coconut oil which does …

Comments: 3

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 6

From a concerned husband

Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot …

Comments: 3

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 10

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0


Just been diagnosed with Vulvodynia and would like some help dealing with it please!

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Just been diagnosed with Vulvodynia and would like some help dealing with it please!

Post  JS007 on Wed Dec 02, 2015 2:21 pm

Hi everyone, I am new to this forum but would like some advice and support on this subject. I am 33 years old and I went to the gyneo today after seeing several GP's and being given medication for thrush and UTI's etc over the past 5 months. This was a second appointment as at my first referral she kindly did all the swab tests and had a good look round...luckily today with was confirming how my symptons have been etc. I am currently on 30mg of Amitriptyline which I was given by my GP has was not great over the past couple of months. I have now been told to keep increasing this drug and try to get to grips with this diagnosis! my anxiety is not great and I am worried that I am going to have to live with this forever and the sensations I have down below are not going to leave me????
I would really love to hear some positive stories about this condition - sadly my trigger appears to be going to the toilet, as soon as I wake up and go to the bathroom it all starts and stays for the rest of the day?? has anyone else struggled with this trigger??
I am trying to stay positive but as you all know this condition is mentally and physically draining!! My husband has been fantastic and we are trying for our first bubba so would like something positive to focus on!!
I hope to hear from other people that this will sort itself out! Smile

JS007

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Re: Just been diagnosed with Vulvodynia and would like some help dealing with it please!

Post  PainBlogger on Wed Dec 02, 2015 4:41 pm

My main trigger seems to be going to the toilet. Sometimes my pain will be at a low background level of 1/10 and then I'll empty my bladder and my pain level will shoot up. I've had the problem since thrush and a UTI about 17 months ago. Generally, my pain is less than it was back then though. I do now have days when, if not provoked by touching the problem area (that includes by sitting on hard chairs), my pain is as low as 1/10. So, when I have the bad days, I try to keep thinking positively that it will slowly continue to get better.

It's good that you have something positive to focus on and are able to try for a baby with this condition. The thing I find most difficult to cope with with my condition is that my OH and I can't try and I'm not getting any younger.

Have you tried eliminating all problem foods and drinks from your diet like caffeine, alcohol, chocolate, artificial sweeteners, citrus fruit and juice, vinegar (basically anything acidic or bladder/urethra/vulva irritating)? Some people find a low oxalate diet helps. If you search low oxalate diet you can get a list of high oxalate foods. Urine is most concentrated in the morning as it's been accumulating overnight in the bladder. I always have a drink of water before I go to bed. Sometimes it means I wake quite early desperate for the toilet, but better to have something in the bladder (sometimes I have urgency to go with little in there and then it hurts even more).


PainBlogger

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