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» Cleveland Clinic - Pain Management, Weston, FL
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» UK Vulvodynia Clinics
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» 8 years and struggling
Thu May 17, 2018 11:22 pm by Kezz

» Vestibulectomy recovery question!
Thu May 17, 2018 11:11 pm by Kezz

» Gabapentin Gel. or other topical creams
Thu May 17, 2018 11:55 am by Rosie21

» What has been helping ME (much less pain over time!!)
Wed May 16, 2018 3:43 am by leoscc

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 5

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0

Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 6

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 4

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14


The good oil!!!

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The good oil!!!

Post  Mouse on Tue Aug 16, 2011 2:52 am

We all know the beauty of coconut oil. Today I found a new use for it and it's still not going in a salad.

I have seasonal dermatitis according to my GP. Naomi and I both doubt that's true but hey we're only the guinea pigs! I tried the medication she gave me, along with my new diagnosis of fibromyalgia. I'm allergic to it and puffed out like a goldfish. I was thinking maybe this is one of those get worse before you get better scenarios. She also said don't use water on your face. This is proving tricky because the fibro news has shattered my world (this really is a positive story). One pain condition I felt I could conquer - the auto immune disease is what it is and is never going away. So lots of fluid has been coming out of the eyes making the burning and swelling unbearable.

Anyhoo Naomi told me to try some other things (loads of helpful links as well!) and while I was talking to my friend who owns a health shop she said try almond oil. Now anyone who has been on the Dr Betty site knows about almond oil. It's a fab lubrication with healing properties. I said I have some of that and I also have coconut oil. Even better she said!

So my good news story is I can leave the house again without scaring small animals and children. Now I just need to stop bursting into tears. Maybe cannabis oil will cure that Twisted Evil

Mouse

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Re: The good oil!!!

Post  Aussie on Tue Aug 16, 2011 5:50 am

Sorry to hear of your diagnosis Vicki.

Try Max GSL it accelerates your glutathione production, which is basically an anti inflammatory your body produces itself.

My mum has been using it for 4 weeks and is so so much better.

Worth a shot!

Oh and cannabis will help too Smile

Aussie

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Re: The good oil!!!

Post  Sebby (Admin) on Tue Aug 16, 2011 12:37 pm


*Hugs* Vicki and wishing you healing all round

I love coconut oil and use it for my biofeedback, great stuff cheers

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Re: The good oil!!!

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