So glad to know I am not crazy!

I have been suffering for approx. 7 years now. Pain started after I got a hysterectomy. Like 3 months later I was in emergency room as It felt like my clitoris was going to explode. Then the pain would sometimes move down a little bit. Dr. in emergency room told me that they could give me a shot to kill the nerve however it would make all numb down there. I didn't think that was the right thing to to. He also informed me I was basically doing this to myself. That stress aggrevated it and I just needed to chill. So over the years I have suffered with it and used lydocain gel thinking I was doing this to myself so deal with it. However I have really been hurting for like a week now. Out of lydocaine. I got on a medical site and asked for some relief. Was then told it sounded like I had volvodynia. OMG! I went to the medical websites reading on it. There is a name for what I have. How I feel. Its not me beating myself up thinking I am doing this to myself. I am so happy I found this site and would appreciate any and all advice anybody can give me!

I'm so sorry to hear how long you've been suffering without getting help. It is definitely not in your head. It's so sad doctors tell this to us and don't know anything about this conidtion.

You also might want to research clitorodynia, if you haven't already. I think it's still considered vulvodynia, but it's a subtype of it. How vulvodynia is classified always confuses me. It seems like everyone has their own way of classifiying and labeling this condition along with the subsets of symptoms and pain.

I wish you luck in finding a doctor that can help you.

welcome to the forum Linder!

I hope you find support here. theres a facebook group (secret one) we set up so you're welcome to join us there too. just message Sebby or me xxxx