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» VULVODYNIA AND SUICIDE
Yesterday at 11:20 pm by Faezeh

» a video for you guys
Yesterday at 2:53 am by lavrose

» my rock bottom, psychological effects of vulvodynia, I told him he can leave me
Yesterday at 2:45 am by lavrose

» New and need some help
Fri Feb 23, 2018 1:12 pm by fairlight10

» Acupuncture gave me my life back!
Thu Feb 22, 2018 11:25 pm by Bx11

» Anyone from New Jersey
Thu Feb 22, 2018 10:47 pm by LindafromNJ

» vaginal cream
Thu Feb 22, 2018 10:46 pm by LindafromNJ

» Acupuncture advice please
Thu Feb 22, 2018 2:25 am by ryn207

» Please tell me this can get better
Mon Feb 19, 2018 2:10 am by anon99

New and need some help

Wed Feb 21, 2018 4:30 pm by LindafromNJ

New to this site ad trying to figure out how it works.  I am trying to post as a new member so I am hoping this goes thru.  I am a senior adult and have just been diagnosed by the Drexil Vaginitis Center to have vulvodynia along with Vestibulitis (not sure if spelled correctly).  My symptoms are vaginal burning, itching, soreness around the vaginal opening with one spot in particular.  Some …

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Anyone from New Jersey

Thu Feb 22, 2018 10:47 pm by LindafromNJ

Looking to maybe talk to someone from NJ to see if there are any support groups in this state.

Comments: 0

vaginal cream

Thu Feb 22, 2018 10:46 pm by LindafromNJ

I have been given ABC cream to start using for my condition. This is gabapentin, amitriptyline and baclofen cream. Has anyone tried this. Also has anyone used lidocaine. My doctor told me not to use it. It is so sore at the vaginal opening. Has anyone used it there. Please respond!!

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MAY HAVE FOUND A CURE- PLEASE READ

Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist


after having a vestibulectomy with no success, I decided to visit …

Comments: 0

NO PAIN DURING SEX

Sat Feb 10, 2018 12:18 am by rockylife

I HAVE NO PAIN DURING SEX, BUT I FEEL THIS BURNING SENSATION ALL DAY JUST BESIDE THE VAGINAL OPENING. DO I REALLY HAVE A VULVODYNIA? I'M CONFUSED.

Comments: 2

Newby not sure where to turn

Thu Feb 01, 2018 3:32 pm by Cerjo87

Hi this is all very new to me , well the talking about it bit is , the pain while having sex and also the uncomfortable feelings after and feeling like I have  sistitus most of the time I’m very used to , I’ve suffered for 7 years now I’m only 30 . Finally after all this time the doctors or should I say my gp has said I have Vulvodynia and have givin me gabapentin to try .i told her I’d …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



Comments: 8

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 4

Vulvodynia from #metoo media coverage

Thu Jan 25, 2018 9:01 pm by dooleyhornberg

I am wondering if anyone else in this forum has experience an increase or flare up in their vulvodynia as a result of the coverage of the sexual abuse scandals in Hollywood, DC, and the recent gymnastics scandal. I have definitely had a flare up.

Comments: 0


My Story and My Questions

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My Story and My Questions

Post  junobug85 on Sun Apr 22, 2012 11:43 pm

After 4 months of being sexually active with my boyfriend I got my first UTI, followed by my first yeast infection, follow by my first bacterial vaginosis infection, and from that day on I never felt any better... I constantly thought I had a yeast and bladder infection was prescribed diflucan over and over again and popped Uristat like candy. I thought I had herpes or gonorrhea but after dozens of OBGYN's telling me there was nothing wrong with me, my boyfriend was probably well endowed, I eating poorly, not exercising enough or my pants were too tight, I saw a Uro-gynecologist who told me it sounded like I had vulvadynia. This was the best news of my life to find out that someone believed me and that there was help and I wasn't crazy. I saw Dr. Schulze in north NJ who was amazing and for the past 4 months, I have religiously been on a low oxidant diet (which is challenging!), I take xanex, perideum, and use estrogen cream. All these treatments have helped significantly, but I still have soreness, sting, pain and bladder infection symptoms. I am considering the surgery, but Dr. Schulze does not take my insurance so I need to look into other doctors. My first question is does any one have any recommendations because I can't find any other doctors that even believe in this condition. My second question is what are my chances of the surgery not working? I have had vulvadynia for 5 years now and I have read that the longer you wait, the more chance you have of the surgery not working.

junobug85

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Re: My Story and My Questions

Post  LizLemonny on Sun Apr 29, 2012 8:53 am

Why are the doctors still so ignorant even specialists - it is well documented now. I remember all those diagnoses from 1985-90 when I was trying to find out what was wrong with me. Do you have the pain constantly (vulvodynia) or just during and after intercourse or friction such as running (vestibulodynia).

LizLemonny

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Re: My Story and My Questions

Post  junobug85 on Mon Apr 30, 2012 12:26 am

thank you for responding! This past November my symptoms seemed to be around the clock, but with the estrogen cream and xanex the pain and discomfort comes and goes and is usually triggered by friction. I have found some doctors in my area that take my insurance and believe in vulvadynia so I am very hopeful.

junobug85

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Re: My Story and My Questions

Post  LizLemonny on Thu May 10, 2012 4:12 pm

Yes - once it is triggered it does take a while to settle down. It makes sense to use the creams before going for walks and certainly before sex, so that you don't get this problem or you lessen it as much as possible. It sometimes feels to me as though the pain creates more pain. Lidocaine is good. I haven't tried estrogen but I have been thinking of trying it.

LizLemonny

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Re: My Story and My Questions

Post  junobug85 on Thu May 10, 2012 5:29 pm

I feel like I constantly am swollen and have an infection. The glands around my bladder feel swollen as well and make me feel like I constantly have to pee. It is challenging to fall asleep and I wake up a lot during the night feeling like I am going to wet the bed. It is really depressing... I just want to feel normal Sad My other problem is is that when my symptoms really flair up, I feel it in all parts of my private area, not only my vestibular glands, like a fire..... it burns a lot. Sometimes I test for Yeast Infections and I have tested for BV 3 times in 5 years, but most of the time I do not have an infection. When this happens, the creams, xanax and peridium do not really help. I just ordered folic acid and coconut oil tablets because one person in this blog said they help.

junobug85

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Re: My Story and My Questions

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