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Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 11

7 years later and life looks bleak :(

Wed Dec 06, 2017 2:50 am by RainyShay77

So 7 years ago I had a case of BV...the antibiotic caused a horrible yeast infection which took 5 months to 'get rid of'. During this time I had allergic reactions to 2 of the yeast infection creams which magnified the pain. Over the past 7 years I've tried multiple rounds of physical therapy (they only slightly helped), chiropractic, nerve blocks, medications to target nerve pain (amitriptyline, …

Comments: 4

Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Hello,
Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

Comments: 1

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 3

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1

Vulvodynia help

Tue Nov 14, 2017 4:27 pm by Katiej

Hi guys new here and newly diagnosed. So I had bv and then after alot of antibiotics and home remedies I still continued to have weird symptoms despite swabs being negative. Two seperate gynes have told me I have vulvodynia as a result of the area being overwhelmed. So first gave me lidocaine which xidnt do much. No I am on amitriptyline for the past 5 days. Seems to be kicking in a little (im a …

Comments: 3

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5


My Story and My Questions

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My Story and My Questions

Post  junobug85 on Sun Apr 22, 2012 11:43 pm

After 4 months of being sexually active with my boyfriend I got my first UTI, followed by my first yeast infection, follow by my first bacterial vaginosis infection, and from that day on I never felt any better... I constantly thought I had a yeast and bladder infection was prescribed diflucan over and over again and popped Uristat like candy. I thought I had herpes or gonorrhea but after dozens of OBGYN's telling me there was nothing wrong with me, my boyfriend was probably well endowed, I eating poorly, not exercising enough or my pants were too tight, I saw a Uro-gynecologist who told me it sounded like I had vulvadynia. This was the best news of my life to find out that someone believed me and that there was help and I wasn't crazy. I saw Dr. Schulze in north NJ who was amazing and for the past 4 months, I have religiously been on a low oxidant diet (which is challenging!), I take xanex, perideum, and use estrogen cream. All these treatments have helped significantly, but I still have soreness, sting, pain and bladder infection symptoms. I am considering the surgery, but Dr. Schulze does not take my insurance so I need to look into other doctors. My first question is does any one have any recommendations because I can't find any other doctors that even believe in this condition. My second question is what are my chances of the surgery not working? I have had vulvadynia for 5 years now and I have read that the longer you wait, the more chance you have of the surgery not working.

junobug85

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Re: My Story and My Questions

Post  LizLemonny on Sun Apr 29, 2012 8:53 am

Why are the doctors still so ignorant even specialists - it is well documented now. I remember all those diagnoses from 1985-90 when I was trying to find out what was wrong with me. Do you have the pain constantly (vulvodynia) or just during and after intercourse or friction such as running (vestibulodynia).

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Re: My Story and My Questions

Post  junobug85 on Mon Apr 30, 2012 12:26 am

thank you for responding! This past November my symptoms seemed to be around the clock, but with the estrogen cream and xanex the pain and discomfort comes and goes and is usually triggered by friction. I have found some doctors in my area that take my insurance and believe in vulvadynia so I am very hopeful.

junobug85

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Re: My Story and My Questions

Post  LizLemonny on Thu May 10, 2012 4:12 pm

Yes - once it is triggered it does take a while to settle down. It makes sense to use the creams before going for walks and certainly before sex, so that you don't get this problem or you lessen it as much as possible. It sometimes feels to me as though the pain creates more pain. Lidocaine is good. I haven't tried estrogen but I have been thinking of trying it.

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Re: My Story and My Questions

Post  junobug85 on Thu May 10, 2012 5:29 pm

I feel like I constantly am swollen and have an infection. The glands around my bladder feel swollen as well and make me feel like I constantly have to pee. It is challenging to fall asleep and I wake up a lot during the night feeling like I am going to wet the bed. It is really depressing... I just want to feel normal Sad My other problem is is that when my symptoms really flair up, I feel it in all parts of my private area, not only my vestibular glands, like a fire..... it burns a lot. Sometimes I test for Yeast Infections and I have tested for BV 3 times in 5 years, but most of the time I do not have an infection. When this happens, the creams, xanax and peridium do not really help. I just ordered folic acid and coconut oil tablets because one person in this blog said they help.

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