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» New here would very much appreciate advice at the end of my rope
Fri Jan 11, 2019 1:46 am by Jma990o

» Diagnosed Recently
Tue Jan 08, 2019 3:55 pm by flissyg

» Looking for suggestions or encouragement
Thu Jan 03, 2019 11:09 am by Gaby

» Clinical Trial for Vulvodynia Treatment
Wed Dec 19, 2018 7:13 pm by wramirez

» New and need advice and help
Thu Dec 13, 2018 9:48 am by Derry59

» Things that have worked for me
Tue Dec 11, 2018 11:32 am by Amethyst

» Found relief after more than 15 years of pain!
Tue Dec 11, 2018 11:17 am by Amethyst

» I'm new to this forum and would love some advice! :)
Tue Dec 11, 2018 3:06 am by Cin124

» I think I know what causes vulvodynia-it's the memory of pain
Sat Dec 08, 2018 1:24 pm by foxysugarpants

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 2

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 0

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 6

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 4

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 13

Hello. Happy to have found this group.

Fri Dec 07, 2018 9:01 pm by foxysugarpants

I am new here and hope to gain some insight into my vulva pain. I suffered for a long time not realizing that there are ways to feel better. I saw the Dr. yesterday and I am starting P/T pelvic and valium suppositories. queen

Comments: 0

Had this for 5 years, looking for people who understand

Sat Oct 06, 2018 9:46 pm by blackberrie

Hey all. I'm really struggling to find anyone in real life who can really understand what I'm going through. I've had vestibulodynia for 5 years now and I'm single. Obviously it has completely affected how I approach dating and sex and the fact that I can't really talk to people irl about it has made me feel very lonely. I've found that a lot of the women who have this problem are married and …

Comments: 3

Anyone have pain with urination?

Tue Oct 16, 2018 2:35 pm by mertzwl

Hi everyone - I can't believe I've been dealing with this for almost 10 years and an appointment scheduler at a urogyn office is the one to suggest I look into vulvodynia. Honestly, I don't care, I just thankful I might have an answer.

I have pain in one specific spot right around the urethral opening so it always coincides with urinating (it's not a uti). Does anyone else deal with pain …

Comments: 6

Diagnosed recently, looking for advice

Sun Sep 02, 2018 12:51 am by Cloudberry

Hi everyone,

I'm so glad I found this forum! I was diagnosed with vulvodynia/vulvar vestibulitis (still not sure about the difference between all the different terms) a couple of months ago and I could do with some advice. This is probably going to be a lot of text because I just want to get everything off my chest, so please bear with me.

I’m a woman in my late 20s. Before getting diagnosed …

Comments: 4


How do you know if tight muscles is causing your vulvodynia?

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How do you know if tight muscles is causing your vulvodynia?

Post  bluekangeroo on Thu May 17, 2012 7:43 pm

Hi there, I have provoked vulvodynia (vestibulodinia) although the provoking can be anything as little as sitting down, or my knickers rubbing on it which can make the pain pretty constant on some days. Other days I feel ok. Am totally confused.

Anyway - my question is this:

How do you know out of all the possible causes of this pain (hormonal, nerve endings, pelvis out of alignment, too much oxilates in your diet etc...) which one is your cause, and in particular how do you know if you muscles are tightened and shortened?

Have just finished reading Amy Stein's book - Heal Pelvic Pain, which is big on the 'say goodbye to your pelvic pain' vibe. And I have been doing the exercises and attempting the massage for over 2 weeks now, but with no relief at all. So how do you know if it is worth keeping going. It is a huge commitment of time and the internal massage is painful as hell.

Is there some test to see if your muscles are too tight? Is this what the biofeedback is all about? How do you get someone to do that for you?

Am starting to despair that I will ever find the cause of this problem.


bluekangeroo

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Re: How do you know if tight muscles is causing your vulvodynia?

Post  Songstress on Thu May 17, 2012 8:50 pm

I have vestibulodynia as well, and mine seems to be cause by muscle tension. To check this, I went to a physiotherapist who specializes in pelvic and urinary disorders. She did an examination (which was pretty uncomfortable) pushing different places on my stomach, sides, and lower back and inserting a finger to feel for tension. The examination was a bit boundary crossing, but she was very kind and gave me a lot of feedback and exercises. I don't know of any other way to check for such tension.

So two pieces of advice:
Make sure you find someone who is actually specialized in vulvar problems. The easiest way to find one may be to look up physiotherapists who specialize in pregnancy, and check with those. You can't just go to any old physio.

Make sure you find someone who inspires you with trust (it may be hard to tell from a website, so maybe give them a call and ask what they know about your condition).


All in all, it was a positive experience in retrospect, because it helped, but the actual procedure wasn't so pleasant. Of course, I don't like gyns either, so maybe I'm just sensitive.

Songstress

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Re: How do you know if tight muscles is causing your vulvodynia?

Post  bluekangeroo on Fri May 18, 2012 8:55 am

Thanks Songstress, I think you are right, I need to find myself a good physio.

I'm seeing my doc next week, I'll see if i can be referred.

Doesn't sound pleasant but at least you get some answers.

I don't think you are just sensitive, I think you are very normal! :-)

A

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Re: How do you know if tight muscles is causing your vulvodynia?

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