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» Please tell me this can get better
Today at 2:10 am by anon99

» Acupuncture advice please
Today at 12:00 am by Bx11

» Lichen Sclerosus
Fri Feb 16, 2018 2:47 am by ryn207

Thu Feb 15, 2018 10:04 pm by infinitelywondering

» my rock bottom, psychological effects of vulvodynia, I told him he can leave me
Wed Feb 14, 2018 6:43 am by renegade_magdalena

» Some interesting information about nerve pain in general
Wed Feb 14, 2018 3:58 am by Athena

» Sore after using dilator for first time in a year
Wed Feb 14, 2018 3:45 am by Athena

» What helped me
Wed Feb 14, 2018 3:38 am by Athena

Wed Feb 14, 2018 3:33 am by Athena


Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist

after having a vestibulectomy with no success, I decided to visit …

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Sat Feb 10, 2018 12:18 am by rockylife


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Newby not sure where to turn

Thu Feb 01, 2018 3:32 pm by Cerjo87

Hi this is all very new to me , well the talking about it bit is , the pain while having sex and also the uncomfortable feelings after and feeling like I have  sistitus most of the time I’m very used to , I’ve suffered for 7 years now I’m only 30 . Finally after all this time the doctors or should I say my gp has said I have Vulvodynia and have givin me gabapentin to try .i told her I’d …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad

Comments: 8

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 4

Vulvodynia from #metoo media coverage

Thu Jan 25, 2018 9:01 pm by dooleyhornberg

I am wondering if anyone else in this forum has experience an increase or flare up in their vulvodynia as a result of the coverage of the sexual abuse scandals in Hollywood, DC, and the recent gymnastics scandal. I have definitely had a flare up.

Comments: 0

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 11

How do you know if tight muscles is causing your vulvodynia?

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How do you know if tight muscles is causing your vulvodynia?

Post  bluekangeroo on Thu May 17, 2012 7:43 pm

Hi there, I have provoked vulvodynia (vestibulodinia) although the provoking can be anything as little as sitting down, or my knickers rubbing on it which can make the pain pretty constant on some days. Other days I feel ok. Am totally confused.

Anyway - my question is this:

How do you know out of all the possible causes of this pain (hormonal, nerve endings, pelvis out of alignment, too much oxilates in your diet etc...) which one is your cause, and in particular how do you know if you muscles are tightened and shortened?

Have just finished reading Amy Stein's book - Heal Pelvic Pain, which is big on the 'say goodbye to your pelvic pain' vibe. And I have been doing the exercises and attempting the massage for over 2 weeks now, but with no relief at all. So how do you know if it is worth keeping going. It is a huge commitment of time and the internal massage is painful as hell.

Is there some test to see if your muscles are too tight? Is this what the biofeedback is all about? How do you get someone to do that for you?

Am starting to despair that I will ever find the cause of this problem.


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Re: How do you know if tight muscles is causing your vulvodynia?

Post  Songstress on Thu May 17, 2012 8:50 pm

I have vestibulodynia as well, and mine seems to be cause by muscle tension. To check this, I went to a physiotherapist who specializes in pelvic and urinary disorders. She did an examination (which was pretty uncomfortable) pushing different places on my stomach, sides, and lower back and inserting a finger to feel for tension. The examination was a bit boundary crossing, but she was very kind and gave me a lot of feedback and exercises. I don't know of any other way to check for such tension.

So two pieces of advice:
Make sure you find someone who is actually specialized in vulvar problems. The easiest way to find one may be to look up physiotherapists who specialize in pregnancy, and check with those. You can't just go to any old physio.

Make sure you find someone who inspires you with trust (it may be hard to tell from a website, so maybe give them a call and ask what they know about your condition).

All in all, it was a positive experience in retrospect, because it helped, but the actual procedure wasn't so pleasant. Of course, I don't like gyns either, so maybe I'm just sensitive.


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Re: How do you know if tight muscles is causing your vulvodynia?

Post  bluekangeroo on Fri May 18, 2012 8:55 am

Thanks Songstress, I think you are right, I need to find myself a good physio.

I'm seeing my doc next week, I'll see if i can be referred.

Doesn't sound pleasant but at least you get some answers.

I don't think you are just sensitive, I think you are very normal! :-)



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Re: How do you know if tight muscles is causing your vulvodynia?

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