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Anyone have pain with urination?

Tue Oct 16, 2018 2:35 pm by mertzwl

Hi everyone - I can't believe I've been dealing with this for almost 10 years and an appointment scheduler at a urogyn office is the one to suggest I look into vulvodynia. Honestly, I don't care, I just thankful I might have an answer.

I have pain in one specific spot right around the urethral opening so it always coincides with urinating (it's not a uti). Does anyone else deal with pain …

Comments: 6

Diagnosed recently, looking for advice

Sun Sep 02, 2018 12:51 am by Cloudberry

Hi everyone,

I'm so glad I found this forum! I was diagnosed with vulvodynia/vulvar vestibulitis (still not sure about the difference between all the different terms) a couple of months ago and I could do with some advice. This is probably going to be a lot of text because I just want to get everything off my chest, so please bear with me.

I’m a woman in my late 20s. Before getting diagnosed …

Comments: 4

From a concerned husband

Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot …

Comments: 4

Had this for 5 years, looking for people who understand

Sat Oct 06, 2018 9:46 pm by blackberrie

Hey all. I'm really struggling to find anyone in real life who can really understand what I'm going through. I've had vestibulodynia for 5 years now and I'm single. Obviously it has completely affected how I approach dating and sex and the fact that I can't really talk to people irl about it has made me feel very lonely. I've found that a lot of the women who have this problem are married and …

Comments: 2

6 year sufferer but I’ve found some hope

Wed Oct 10, 2018 1:33 am by Npage14

Hey, ladies! I’m new to this support group, I’ve thought about doing something like this for a while so I wanted to try this out! I’ve had vulvodynia for 6 years now, I am self diagnosed. I’m 20 now and the pain started when I had my first encounter with sexual contact when I was 14(I still remained a virgin though it was fingering). For a couple years the pain was so bad I could hardly …

Comments: 0

Hurting, Burning, Itching, and Worn Out

Thu Aug 09, 2018 10:55 pm by donnambr

This vulvodynia that I'm currently suffering with is so cruel. I hurt, I burn, I itch. When I first got this several years ago, before the internet, I though I was the only one with this awful disorder. Doctors couldn't figure it out. I felt so alone and devastated. Somehow it disappeared for a few years and now I'm suffering again. This dreaded V misery is back and I feel like I will be with …

Comments: 5

Hi girls! New in this forum

Fri Jul 13, 2018 2:31 pm by Gaby

Hi everyone!

Also joining the V club, Here my story:

It all started last year in september with a very bad throat infection for which i had to take antibiotics for about a month. This cause several yeast infections (candidia albicans).... one after the other!. I had them every month from october 2017 till march 2018. During this period i use an incredible amount of anti-fungal creams and …

Comments: 1

Newbie and feeling helpless

Wed Jul 11, 2018 1:52 pm by Taylor1

Hi, I found out a few weeks ago that I have this condition, started off at the end of April as a uti took strong antibiotics then got a thrush infection and now this.. My doctor has tried me on amitriptyline and gabipentin and both made me so poorly I couldn't take it plus I have seen what long use of these drugs has done to my mom for pain and its not good. I am using coconut oil which does …

Comments: 3

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 6

How do you know if tight muscles is causing your vulvodynia?

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How do you know if tight muscles is causing your vulvodynia?

Post  bluekangeroo on Thu May 17, 2012 7:43 pm

Hi there, I have provoked vulvodynia (vestibulodinia) although the provoking can be anything as little as sitting down, or my knickers rubbing on it which can make the pain pretty constant on some days. Other days I feel ok. Am totally confused.

Anyway - my question is this:

How do you know out of all the possible causes of this pain (hormonal, nerve endings, pelvis out of alignment, too much oxilates in your diet etc...) which one is your cause, and in particular how do you know if you muscles are tightened and shortened?

Have just finished reading Amy Stein's book - Heal Pelvic Pain, which is big on the 'say goodbye to your pelvic pain' vibe. And I have been doing the exercises and attempting the massage for over 2 weeks now, but with no relief at all. So how do you know if it is worth keeping going. It is a huge commitment of time and the internal massage is painful as hell.

Is there some test to see if your muscles are too tight? Is this what the biofeedback is all about? How do you get someone to do that for you?

Am starting to despair that I will ever find the cause of this problem.


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Re: How do you know if tight muscles is causing your vulvodynia?

Post  Songstress on Thu May 17, 2012 8:50 pm

I have vestibulodynia as well, and mine seems to be cause by muscle tension. To check this, I went to a physiotherapist who specializes in pelvic and urinary disorders. She did an examination (which was pretty uncomfortable) pushing different places on my stomach, sides, and lower back and inserting a finger to feel for tension. The examination was a bit boundary crossing, but she was very kind and gave me a lot of feedback and exercises. I don't know of any other way to check for such tension.

So two pieces of advice:
Make sure you find someone who is actually specialized in vulvar problems. The easiest way to find one may be to look up physiotherapists who specialize in pregnancy, and check with those. You can't just go to any old physio.

Make sure you find someone who inspires you with trust (it may be hard to tell from a website, so maybe give them a call and ask what they know about your condition).

All in all, it was a positive experience in retrospect, because it helped, but the actual procedure wasn't so pleasant. Of course, I don't like gyns either, so maybe I'm just sensitive.


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Re: How do you know if tight muscles is causing your vulvodynia?

Post  bluekangeroo on Fri May 18, 2012 8:55 am

Thanks Songstress, I think you are right, I need to find myself a good physio.

I'm seeing my doc next week, I'll see if i can be referred.

Doesn't sound pleasant but at least you get some answers.

I don't think you are just sensitive, I think you are very normal! :-)



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Re: How do you know if tight muscles is causing your vulvodynia?

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