Log in

I forgot my password

Latest topics
» Did going off antidepressants cause this?
Today at 2:08 am by ryn207

» 7 months since the diagnosis
Yesterday at 11:43 pm by agtoronto

» Sex after vulvodynia (husband edition)
Mon Aug 13, 2018 12:15 pm by emalita

» burning sensation and small cut? Maybe thrush?
Sun Aug 12, 2018 8:24 pm by emalita

» can v return after vestibulectomy?
Sun Aug 12, 2018 12:01 pm by Alana3

» Cleveland Clinic - Pain Management, Weston, FL
Sat Aug 11, 2018 12:37 pm by Alana3

» Hurting, Burning, Itching, and Worn Out
Fri Aug 10, 2018 7:55 pm by fairlight10

» GREATFULL FOR THIS WEBSITE
Thu Aug 09, 2018 8:37 pm by Nicola Jost

» Can you guys tell me your experiences with diflucan/Fluconazole?
Tue Aug 07, 2018 6:01 am by Guest

Hurting, Burning, Itching, and Worn Out

Thu Aug 09, 2018 10:55 pm by donnambr

This vulvodynia that I'm currently suffering with is so cruel. I hurt, I burn, I itch. When I first got this several years ago, before the internet, I though I was the only one with this awful disorder. Doctors couldn't figure it out. I felt so alone and devastated. Somehow it disappeared for a few years and now I'm suffering again. This dreaded V misery is back and I feel like I will be with …

Comments: 1

Hi girls! New in this forum

Fri Jul 13, 2018 2:31 pm by Gaby

Hi everyone!

Also joining the V club, Here my story:

It all started last year in september with a very bad throat infection for which i had to take antibiotics for about a month. This cause several yeast infections (candidia albicans).... one after the other!. I had them every month from october 2017 till march 2018. During this period i use an incredible amount of anti-fungal creams and …

Comments: 1

Newbie and feeling helpless

Wed Jul 11, 2018 1:52 pm by Taylor1

Hi, I found out a few weeks ago that I have this condition, started off at the end of April as a uti took strong antibiotics then got a thrush infection and now this.. My doctor has tried me on amitriptyline and gabipentin and both made me so poorly I couldn't take it plus I have seen what long use of these drugs has done to my mom for pain and its not good. I am using coconut oil which does …

Comments: 3

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 6

From a concerned husband

Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot …

Comments: 3

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 10

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4


How do you know if tight muscles is causing your vulvodynia?

Go down

How do you know if tight muscles is causing your vulvodynia?

Post  bluekangeroo on Thu May 17, 2012 7:43 pm

Hi there, I have provoked vulvodynia (vestibulodinia) although the provoking can be anything as little as sitting down, or my knickers rubbing on it which can make the pain pretty constant on some days. Other days I feel ok. Am totally confused.

Anyway - my question is this:

How do you know out of all the possible causes of this pain (hormonal, nerve endings, pelvis out of alignment, too much oxilates in your diet etc...) which one is your cause, and in particular how do you know if you muscles are tightened and shortened?

Have just finished reading Amy Stein's book - Heal Pelvic Pain, which is big on the 'say goodbye to your pelvic pain' vibe. And I have been doing the exercises and attempting the massage for over 2 weeks now, but with no relief at all. So how do you know if it is worth keeping going. It is a huge commitment of time and the internal massage is painful as hell.

Is there some test to see if your muscles are too tight? Is this what the biofeedback is all about? How do you get someone to do that for you?

Am starting to despair that I will ever find the cause of this problem.


bluekangeroo

Posts : 44
Join date : 2012-05-17

View user profile

Back to top Go down

Re: How do you know if tight muscles is causing your vulvodynia?

Post  Songstress on Thu May 17, 2012 8:50 pm

I have vestibulodynia as well, and mine seems to be cause by muscle tension. To check this, I went to a physiotherapist who specializes in pelvic and urinary disorders. She did an examination (which was pretty uncomfortable) pushing different places on my stomach, sides, and lower back and inserting a finger to feel for tension. The examination was a bit boundary crossing, but she was very kind and gave me a lot of feedback and exercises. I don't know of any other way to check for such tension.

So two pieces of advice:
Make sure you find someone who is actually specialized in vulvar problems. The easiest way to find one may be to look up physiotherapists who specialize in pregnancy, and check with those. You can't just go to any old physio.

Make sure you find someone who inspires you with trust (it may be hard to tell from a website, so maybe give them a call and ask what they know about your condition).


All in all, it was a positive experience in retrospect, because it helped, but the actual procedure wasn't so pleasant. Of course, I don't like gyns either, so maybe I'm just sensitive.

Songstress

Posts : 7
Join date : 2012-03-21

View user profile

Back to top Go down

Re: How do you know if tight muscles is causing your vulvodynia?

Post  bluekangeroo on Fri May 18, 2012 8:55 am

Thanks Songstress, I think you are right, I need to find myself a good physio.

I'm seeing my doc next week, I'll see if i can be referred.

Doesn't sound pleasant but at least you get some answers.

I don't think you are just sensitive, I think you are very normal! :-)

A

bluekangeroo

Posts : 44
Join date : 2012-05-17

View user profile

Back to top Go down

Re: How do you know if tight muscles is causing your vulvodynia?

Post  Sponsored content


Sponsored content


Back to top Go down

Back to top

- Similar topics

 
Permissions in this forum:
You cannot reply to topics in this forum