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Hi im a 21 year old ladyyy, and had been diagnosed with vulvodynia almost 3 years ago now, i must of had it also when i was 13 and starting my period as it was always painful to sit down but i always thought it was how a period was!
Even as a toddler my mum mentioned i was always crying and sore down below. So im wondering if that might have been anything to do with it.
So......my experience with it. Mine seems to flare up when im stressed, im thinking it might be something to do with nerve endings swelling up or something? And i dont understand how they can offer surgery to something they dont know about?! They could be messing with the wrong thing and cause other problems! The only thing they offer is 'lidocaine' (spelt right?!) and even that does not help in the most stressful of times. i tried going to my doctor asking if there was any chance to go back to the clinic i was sent to and just talk to someone, for comfort. Do you know what, she fobbed me off, apparently it wouldnt help, and i already know what i got, and more or less shoved me out the door!
Its been so bad latley i have no one to speak to , or who understands, there should be more groups like this! Im coping with this by myself and its not right. Im not myself anymore, ive tried all sorts of holistic therapy. I feel like doctors who dont understand think it isnt that bad. But as some of you know when you go for a wee and it feels like one thousand knives slicing into you its not a laughing matter.
I just wanted to share my thoughts, maybe have some opinions, advice, your experiences. Ill keep on looking through these posts in the mean - time.

I was turned away by a doctor who told me thats just the way i was and i should worry about it when its time to have kids. I was 17 im 21 now and still scared. Im looking deep into surgery because the same liodine u were prescribed i was too and it helps to an extent but I need more. I feel alone. My new doctor is helpful and understanding. He tried all differnt opitions first but now his pushing really hard for surgery and im scared ill wake up be in debt and still have this problem. Ik this really didnt help much but i just want you to know you arent alone

aaww no, its nice for someone to talk to that has the same thing! My opinion i would avoid surgery, again they dont know what it is so how can it work.... i want a nice doctor

My doctor now is so nice. He has introduced me to many women who thr surgey has worked form some waited for five years or more tO get it done and regreted waiting. I just want someone to come to me and say "this is exactly what you need and this will work"! Haha but i can hope right