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Gabapentin Gel. or other topical creams
Thu May 10, 2018 9:43 am by Rosie21
Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.
Comments: 2
Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?
Sat Aug 01, 2015 4:17 pm by Fielder
Hi everyone,
I'm a newbie. I live in the UK.
I'm trying to work out the best cushion to get for my vulvodynia. I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.
I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …
I'm a newbie. I live in the UK.
I'm trying to work out the best cushion to get for my vulvodynia. I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.
I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …
Comments: 11
An absolute success story- please read!
Fri Mar 08, 2019 10:57 pm by Persevere1990
Dear All,
I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.
I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …
I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.
I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …
Comments: 0
I'm sorry im rambling
Thu Feb 21, 2019 5:49 am by Jet227
hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …
Comments: 1
New member need advice please
Thu Feb 28, 2019 11:33 pm by PANDORA123
Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.
Thanks
Thanks
Comments: 5
MonaLisa Touch
Fri Feb 08, 2019 7:35 pm by rl2091
Hi All,
I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …
I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …
Comments: 3
Diagnosed Recently
Tue Jan 08, 2019 3:55 pm by flissyg
Hi All,
I’m so glad I’ve found a place where there are others who understand how I feel!
So this is my story:-
I’m 36, and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”. The following morning I woke up …
I’m so glad I’ve found a place where there are others who understand how I feel!
So this is my story:-
I’m 36, and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”. The following morning I woke up …
Comments: 4
New and need advice and help
Wed Dec 05, 2018 3:26 pm by Cin124
Hi everyone,
About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …
About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …
Comments: 6
New here would very much appreciate advice at the end of my rope
Wed Jan 09, 2019 9:09 pm by Jma990o
This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …
Comments: 3
Pelvic Floor Educator
4 posters
Page 1 of 1
Pelvic Floor Educator
I received my pelvic floor educator today and have to say it's very dinky! I was a bit worried about the size because I knew it would hurt to insert it if it was too big but it's very small. I won't be using it for a few days because I'm currently on my period but I will update once I try it. Anyone thinking of buying one and worrying about the size, don't it's very small and anyone thinking of buying one should check out ebay for a seller called "medsave" as they are cheap and deliver quickly.
I'll let you know how it goes!
I'll let you know how it goes!
Sarah001- Posts : 1164
Join date : 2010-06-11
Age : 50
Location : UK
Re: Pelvic Floor Educator
Here's a bit of an update on what the pelvic floor educator is like to use.
Good points:
I could see if I was using the right muscles, and I actually was!!
I could tell when the muscles were fatigued because the outer wand no longer moved downwards, this was very useful because the muscles fatigued way before I thought they would so I knew when to stop.
I could see I was using one side of the pelvic floor more than the other, I expected this as my transversus abs are asymmetrical too so I could add a bit more effort to the weaker side to balance things up.
Bad points:
Just one actually which is the wand on the outside can irritate already irritated vulvas, I found placing a finger in between it and my body stopped that though so it isn't a huge problem.
Overall a useful item to use so I'll be continuing with it.
Good points:
I could see if I was using the right muscles, and I actually was!!
I could tell when the muscles were fatigued because the outer wand no longer moved downwards, this was very useful because the muscles fatigued way before I thought they would so I knew when to stop.
I could see I was using one side of the pelvic floor more than the other, I expected this as my transversus abs are asymmetrical too so I could add a bit more effort to the weaker side to balance things up.
Bad points:
Just one actually which is the wand on the outside can irritate already irritated vulvas, I found placing a finger in between it and my body stopped that though so it isn't a huge problem.
Overall a useful item to use so I'll be continuing with it.
Sarah001- Posts : 1164
Join date : 2010-06-11
Age : 50
Location : UK
Where did you get this?
Hi Sarah,
I'm happy to hear this is working for you! Could you please let me know where you purchased yours?
Thank you!
Sunny
I'm happy to hear this is working for you! Could you please let me know where you purchased yours?
Thank you!
Sunny
simplysunny- Posts : 2
Join date : 2010-08-13
Re: Pelvic Floor Educator
I bought it online from an ebay seller but I know for a fact Amazon do them. They're also good to use before you go and do biofeedback with a therapist because they are shaped exactly the same as the probe for most machines.
Sarah001- Posts : 1164
Join date : 2010-06-11
Age : 50
Location : UK
Re: Pelvic Floor Educator
oh I will have a look at Amazon!
I downloaded this app on my andriod phone called the Kegel Muscle Exerciser. It just times you when to relax and when to tighten lol only used it once..
by the way welcome to the forum simplysunny
Sebby
xxx
Re: Pelvic Floor Educator
It's an excellent thing to buy because it gets you used to the probe size and provides feedback when you know what you're supposed to be doing with it but I would still say get your pelvic floor checked out professionally to see how many reps and sets of fast and slow contractions you should be doing and to get a feel for the relaxing the pelvic floor, I was doing kegels in what I thought was the correct way before I went to the physio and turns out I wasn't relaxing the pelvic floor at all in between reps and of course the slow contractions I thought I was doing fine I was losing the contraction after a few seconds so I wasn't at all!
Sarah001- Posts : 1164
Join date : 2010-06-11
Age : 50
Location : UK
Re: Pelvic Floor Educator
Hi Sarah,
Did you get to choose the size of the probe? When I did it I went for the 'anal' sized probe because the 'vaginal size' was too scary to even contemplate.
Cheers,
Sue
Did you get to choose the size of the probe? When I did it I went for the 'anal' sized probe because the 'vaginal size' was too scary to even contemplate.
Cheers,
Sue
tweety- Posts : 71
Join date : 2010-03-14
Location : Melbourne
Re: Pelvic Floor Educator
No she only uses vaginal probes on women and saves the anal probes for her male clients! She did drench it in lube though and told me how to insert it with the least problems so I got it in fine. It was getting it out again once my tight pelvic floor had got a grip on it that was a bit of a problem but I just reversed her insertion instructions and managed it. It did look like it was going to be a huge problem but it wasn't, the sore skin didn't help things but I think it's worth it to see what's going on in there.
Sarah001- Posts : 1164
Join date : 2010-06-11
Age : 50
Location : UK
Page 1 of 1
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Fri Oct 23, 2020 12:04 am by ringostarr26
» Please tell me this can get better
Sat Jul 18, 2020 7:38 pm by sammykramer
» By no means cured, but doing much better!
Mon Mar 16, 2020 1:26 pm by tinkerbelle2
» How I cured my Vulvodynia!
Sat Dec 07, 2019 11:54 am by Millie
» 7 months since the diagnosis
Wed Aug 14, 2019 2:38 am by agtoronto
» Gabapentin Gel. or other topical creams
Sat Jun 15, 2019 5:22 pm by mary jane
» IMPORTANT FOR UK SUFFERERS
Sat Jun 15, 2019 5:21 pm by mary jane
» Help New Diagnosis
Sat Jun 15, 2019 5:07 pm by mary jane
» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
Tue Jun 11, 2019 12:56 am by VVSSufferer