Vulvodynia Support
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» Hope to all my suffering ladies
Pain Relief for Vulvodynia EmptyFri Oct 23, 2020 12:04 am by ringostarr26

» Please tell me this can get better
Pain Relief for Vulvodynia EmptySat Jul 18, 2020 7:38 pm by sammykramer

» By no means cured, but doing much better!
Pain Relief for Vulvodynia EmptyMon Mar 16, 2020 1:26 pm by tinkerbelle2

» How I cured my Vulvodynia!
Pain Relief for Vulvodynia EmptySat Dec 07, 2019 11:54 am by Millie

» 7 months since the diagnosis
Pain Relief for Vulvodynia EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
Pain Relief for Vulvodynia EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
Pain Relief for Vulvodynia EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
Pain Relief for Vulvodynia EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
Pain Relief for Vulvodynia EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


Pain Relief for Vulvodynia

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Post  jenniferjackson Sat Nov 03, 2012 3:54 pm

I 'm new to this board but I'm so excited to tell you about this.

I've been suffering with vulvodynia for almost 10 years now. I've tried everything. A friend of mine told me about a product that her husband uses for premature ejaculation. It's called Promescent. It's a topical anesthetic spray that slightly numbs the penis so that a man can last longer.

I called the company and they told me that they're working with a few OB-GYNs and have been getting really good results with vulvodynia. They're planning to do a clinical trial.

So I tried it Wow. Amazing results. Dramatic reduction in pain and discomfort. I just spray some on my fingers and rub it on the vulva area.

It's FDA approved so no concerns. And it's available ove-the-counter.

jenniferjackson

Posts : 6
Join date : 2012-11-03

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Post  kukubadi1987 Sat Nov 03, 2012 7:26 pm

hello,
I just saw your message and it really sounds very interesting and it also sounds logic.
at least if a man uses it in his penis it means that you can use it in genitalia without problem..i suppose that the worse thing to happen to us is not working...I leave in uk, how can I find it? only online??
if you have some more details to say about how you feel that would be great to share with us!
I think we could try it and have an opinion about that...
have a lovely weekend!
kate

kukubadi1987

Posts : 14
Join date : 2012-10-14
Age : 37
Location : London

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Post  jenniferjackson Sun Nov 04, 2012 1:27 pm

You can order on-line. I can't post a link being a new member. "www dot promescent dot com" or just to a search for 'promescent' and look for the search results for "premature ejaculation treatment"

I don't know if they'll ship to the UK but I vaguely I recall choosing a country in the shipping information.

I hope you have as good of and experience as I have. Please let us know.

Now I need to convince my husband to try it Wink

jenniferjackson

Posts : 6
Join date : 2012-11-03

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Post  kukubadi1987 Sun Nov 04, 2012 3:02 pm

of course he will! it is for both pleasure!
I am very happy for you, even that I don't know you. for me any woman in this planet has to deal with this problem is like a close person...
I hope your body keeps on accepting in. with vulvodynia what I have realised is that it could help anything depending to the bodies. do you know what I have realised that helps me??? Vibrators!! it's like the vibrators make massage to the region and make it relax.....how strange?? but real....

wish you the best,
if I order it and try it I will defenately let you know!

hug,
kate

kukubadi1987

Posts : 14
Join date : 2012-10-14
Age : 37
Location : London

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Post  jenniferjackson Sun Nov 04, 2012 8:27 pm

I also feel a connection to the women on this board (and other) boards. Good to know you're not alone. Difficult subject to discuss at a dinner party.

Everyone is different so I don't know if Promescent will work for you but apparently the OB-GYN who is leading the effort says that several of his patients say that it is "life changing".

re: the vibrator idea, I've been afraid to try it but I will. What a great way to alleviate symptoms !!


jenniferjackson

Posts : 6
Join date : 2012-11-03

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Post  kukubadi1987 Sun Nov 04, 2012 11:48 pm

hahah as long as it does not make things worst why not???? we are girls, we have needs.....
and anyway the women like me that we do not have a boyfriend we have to find a way to see for differences with our v.pain.
do you know what pisses me off most of the times??that with this situation I have my vagina in my mind most of the time during the day!!enough!!!I never thought I was going to have such a close relationship with "my little girl"!! ;-)


kukubadi1987

Posts : 14
Join date : 2012-10-14
Age : 37
Location : London

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Pain Relief for Vulvodynia Empty regaining my sexual confidence

Post  jenniferjackson Thu Nov 15, 2012 5:12 pm

I can't say that the vibrator helps, but it certainly didn't HURT !!

I'm starting to move beyong thinking about my vagina all the time w.r.t. to pain. I'm starting to think about my vagina as a source of pleasure !! I'm starting to regain my sexual confidence. Vibrator helps with that !! Thanks for the idea.

jenniferjackson

Posts : 6
Join date : 2012-11-03

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Post  kukubadi1987 Thu Nov 15, 2012 5:37 pm

i'm very happy for that!!i hope it keeps on helping!
i have to try promescent, i still haven't ordered it but i am really curious to see if it will work...
do you keep on using it?is it permitted to use it in everyday basis?
thanks for your message,
kate

kukubadi1987

Posts : 14
Join date : 2012-10-14
Age : 37
Location : London

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Post  jenniferjackson Wed Nov 21, 2012 2:22 pm

It's not a preventative so it's not a daily use kind of thing. But I use it to relieve pain when that occurs ... and so I do use it often. Do you understand the distinction?

jenniferjackson

Posts : 6
Join date : 2012-11-03

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Post  kukubadi1987 Wed Nov 21, 2012 2:31 pm

yes definitely!
thank you so much for the advice, it's so imprtant for me!

have a lovely day,
kate

kukubadi1987

Posts : 14
Join date : 2012-10-14
Age : 37
Location : London

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Post  jenniferjackson Thu Nov 22, 2012 2:03 am

Let me know if you try Promescent. From what I understand from my OB-GYN, there's just a few handful of us who have used it but every single user is really enthused by the results.

My girls are visiting for Thanksgiving .. gotta run.

jenniferjackson

Posts : 6
Join date : 2012-11-03

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Post  Kate1981 Thu Nov 22, 2012 9:56 pm

The best pain relief when you are having a really bad flare up and in excrutiating pain is dihydrocoedine! Within 15 minutes of taking one the pain is gone. Need to get them on prescription.

Kate1981

Posts : 88
Join date : 2012-08-17
Location : Manchester, UK

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