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    » 7 months since the diagnosis
    Help New Diagnosis EmptyWed Aug 14, 2019 2:38 am by agtoronto

    » Gabapentin Gel. or other topical creams
    Help New Diagnosis EmptySat Jun 15, 2019 5:22 pm by mary jane

    » IMPORTANT FOR UK SUFFERERS
    Help New Diagnosis EmptySat Jun 15, 2019 5:21 pm by mary jane

    » Help New Diagnosis
    Help New Diagnosis EmptySat Jun 15, 2019 5:07 pm by mary jane

    » 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
    Help New Diagnosis EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

    » Vestibulectomy next week in London!! - questions!!
    Help New Diagnosis EmptyWed Apr 24, 2019 8:32 pm by HedvigB

    » Dating with Vulvodynia and Vaginismus advice
    Help New Diagnosis EmptyFri Apr 19, 2019 10:25 pm by Tartufo

    » Research Participants Needed!
    Help New Diagnosis EmptyThu Apr 11, 2019 2:09 pm by PelvicPainProject

    » Does anyone else have Endometriosis?
    Help New Diagnosis EmptyMon Apr 08, 2019 7:54 am by Jo44

    Gabapentin Gel. or other topical creams

    Thu May 10, 2018 9:43 am by Rosie21

    Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

    Comments: 2

    Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

    Sat Aug 01, 2015 4:17 pm by Fielder

    Hi everyone,

    I'm a newbie.  I live in the UK.  

    I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

    I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

    Comments: 11

    An absolute success story- please read!

    Fri Mar 08, 2019 10:57 pm by Persevere1990

    Dear All,

    I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

    I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

    Comments: 0

    I'm sorry im rambling

    Thu Feb 21, 2019 5:49 am by Jet227

    hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

    Comments: 1

    New member need advice please

    Thu Feb 28, 2019 11:33 pm by PANDORA123

    Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

    Thanks

    Comments: 5

    MonaLisa Touch

    Fri Feb 08, 2019 7:35 pm by rl2091

    Hi All,

    I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

    Comments: 3

    Diagnosed Recently

    Tue Jan 08, 2019 3:55 pm by flissyg

    Hi All,

    I’m so glad I’ve found a place where there are others who understand how I feel!

    So this is my story:-

    I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

    Comments: 4

    New and need advice and help

    Wed Dec 05, 2018 3:26 pm by Cin124

    Hi everyone,

    About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

    Comments: 6

    New here would very much appreciate advice at the end of my rope

    Wed Jan 09, 2019 9:09 pm by Jma990o

    This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
    So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

    Comments: 3


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    Post  tela91 on Mon Apr 01, 2019 12:20 pm

    The following includes what has happened to me over the course of roughly 5 months. Starting in November I started having symptoms that include: outer vulva and entry of vagina itching/burning/tingling, general discomfort of genitals, and sometimes burning after sex or touch.

    1. I was negative for all STDS, but in Israel my test was positive for M.Hominis, Urea Urealyticum, and Urea Parvum. The doctors told me I do not need to treat this as these are normal bacteria in some people.

    2. In February my GP diagnosed me with bacterial vaginosis and I was treated with clindamycin.

    3. In March I saw a gynaecologist and he also diagnosed me with bacterial vaginosis has not gone away and prescribed me metronidazole gel. This did not improve my condition at all.

    4. I found a different gynaecologist who diagnosed me with lichen sclerosis (without biopsy). I did not feel that the steroid cream he gave me helped at all and was unsure of his diagnosis.

    5. Two weeks ago I found another gynaecologist t and she said I was negative for bacterial vaginosis and diagnosed me with a yeast infection and possible vulvodynia and prescribed me anti-fungal pills as well as numbing cream to help with the pain.

    I have tried several antibiotics, yeast infection treatments, steroid creams, numbing creams and several natural therapies such as boric acid, coconut oil, apple cider vinegar, garlic and oregano supplement, and probiotics internally and orally. My quality of life is extremely diminished and I have lost hope. My symptoms are constant 24/7 without any relief daily.

    I do not know if anyone else has constant, itching pain 24/7.

    tela91

    Posts : 1
    Join date : 2019-04-01

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    Post  Gaby on Fri Apr 19, 2019 2:31 pm

    Dear Tela

    I've been through the same hell!!.
    I've tried everything and still nothing has worked for me.

    I am currently pregnant, and i have a little bit less pain, which it can be related to the hormones my body is producing now (progesterone).
    I was following a treatment with local cream based on pregabaline and gabepantine (which i still use) it helps a little but the pain remains.

    The doctor told me that we should wait until i give birth to start a new treatment based on hormones (even though i dont like the idea very much), because this is how i have experience less pain.

    So i would advise you to have your hormones checked if you havent done so.
    Hopefully you'll find the cure soon for this horrendous sickness.

    Good luck!

    Gaby

    Posts : 8
    Join date : 2018-07-10

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    Help New Diagnosis Empty Re: Help New Diagnosis

    Post  mary jane on Sat Jun 15, 2019 5:07 pm

    5 months is too long for no treatment.
    The first choice for this is amitriptyline or Cymbalta if the amitriptyline doesn't work. Vulvodynia can have periods of remission so if you start this treatment you have all the chances for improvement. Google for a specialist doctor in your area
    mary jane
    mary jane

    Posts : 345
    Join date : 2013-10-05
    Location : UK

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