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» 7 months since the diagnosis
6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process! EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process! EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process! EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process! EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process! EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

» Vestibulectomy next week in London!! - questions!!
6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process! EmptyWed Apr 24, 2019 8:32 pm by HedvigB

» Dating with Vulvodynia and Vaginismus advice
6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process! EmptyFri Apr 19, 2019 10:25 pm by Tartufo

» Research Participants Needed!
6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process! EmptyThu Apr 11, 2019 2:09 pm by PelvicPainProject

» Does anyone else have Endometriosis?
6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process! EmptyMon Apr 08, 2019 7:54 am by Jo44

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!

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Post  HedvigB on Thu May 09, 2019 3:34 pm

Hi ladies

To all of you who have had a vestibulectomy, I need your help!

I had my partial vestibulectomy 6 days ago and I’m going a bit mad worrying about the healing of the wound!!

It has started to itch down there which I know is a good sign because it means that the wound has started to heal. What I’m worried about is that there’s also some odour coming from there (not super strong but still there…). I’m keeping it clean with sitz baths and avoiding underwear in order to let my vagina ‘breathe’. I have been trying to look at the wound with a mirror but I can’t see ANYTHING! I think it might be too swollen to see any of the stitches etc and I’m worried that the swelling prevents the wound from ‘breathing’ and therefore causing some kind of infection?? could you see your wound and stitches a week after surgery? Should I ‘force’ my swollen labia apart to see what’s going on in there hehe? I’m so terrified to touch/see it. Is the odour a bad sign or is it normal?

It also takes me ages to start peeing once I’ve sat down on the toilet…don’t know if this is because of the swelling too or maybe because I tense up so much because of fear? Did you have the same issue? The surgeon removed from point 3 to 9 so it should not be affecting my urethria right?

One more thing: I’ve bought one of those doughnut cushion to sit on. To my happy surprise it doesn’t hurt when sitting on it but I was wondering if it is too early to start sitting up? Is it “dangerous” for the healing to but too much body pressure on? When did you start to sit up after your vestibulectomy?

I’m sorry, I sound like a mad woman but I can’t stop worrying about EVERYTHING! I’ve always been worried and anxious about my vagina (have had provoked vulvodyina since the age of 14…) but it doesn’t help that I physically can’t do anything else than laying still on the sofa worrying for 2 weeks post surgery haha. NIGHTMARE.

I’m having my post op check up in 4 weeks but seriously don’t know how I will survive until then!! Just want a gyno to look at it and tell me that everything looks fine!!

If you’ve had a vestibulectomy, can you please tell me about your healing process and also if you had any of these issues above? Is it dangerous for the healing to start moving around a bit more a week post surgery?

Thank you all for such a great forum and for all the wonderful support <3

Hedvig

HedvigB

Posts : 4
Join date : 2018-07-02

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6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process! Empty Re: 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!

Post  VVSSufferer on Tue Jun 11, 2019 12:56 am

I've private messaged you Smile

Hope the recovery is going well

VVSSufferer

Posts : 6
Join date : 2017-10-10

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