Vulvodynia Support
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» Hope to all my suffering ladies
Doctor I saw was a real bitch EmptyFri Oct 23, 2020 12:04 am by ringostarr26

» Please tell me this can get better
Doctor I saw was a real bitch EmptySat Jul 18, 2020 7:38 pm by sammykramer

» By no means cured, but doing much better!
Doctor I saw was a real bitch EmptyMon Mar 16, 2020 1:26 pm by tinkerbelle2

» How I cured my Vulvodynia!
Doctor I saw was a real bitch EmptySat Dec 07, 2019 11:54 am by Millie

» 7 months since the diagnosis
Doctor I saw was a real bitch EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
Doctor I saw was a real bitch EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
Doctor I saw was a real bitch EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
Doctor I saw was a real bitch EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
Doctor I saw was a real bitch EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


Doctor I saw was a real bitch

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Post  Chelsea1991 Sun Nov 11, 2012 6:58 pm

she told me I might never get better and stuff like that. feel like crap been crying for the past week, the pain got worst since i had some lumps down there, no-one will help with that one doctor though it was herpes but i had a test and it came back negative. I dont know what to do it looks really red with what it look like with scar tissue and some lumps does anyone know what it could be it is on the right side too. sorry if this is a mess been crying when writting.

Chelsea1991

Posts : 20
Join date : 2012-01-24

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Post  Ceriane Sun Nov 11, 2012 8:04 pm

I have no idea....but vulvodynia is a distressing condition.....the lumps however I'm not sure about....don't hesitate to get a 2nd opinion....and I'm not suggesting for a second that it's an STD, but have you thought about trying your local GUM clinic, as even if it's non sexually transmitted they may have some ideas or tests they could run.

Ceriane

Posts : 76
Join date : 2012-02-16

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Post  Sunflower82 Mon Nov 12, 2012 6:35 am

Hi,
Sorry u have had a horrible experience! When I first got diagnosed and went back to the hospital three months later I got told I had warts doesn below and she tried to convience me this is what was causing my pain for the last 8 year even though I had been examined by at least 11 other people. I was so upset I went to any other GUM clinic even though I has been tested for everything before! They put vinegar down there the most painful exp I have ever had was in pain for 2 weeks after! I now get a spot small lump that comes up every now and again on the left hand side just at the entrance to my vagina, I was told this was a gland that comes up, it's not painful if I leave it alone but if I do a massage or use dilators then it's a bit painful.

I'd suggest u try another GP

Hope this helps

Sunflower82

Posts : 82
Join date : 2012-02-17

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