Vulvodynia Support
Would you like to react to this message? Create an account in a few clicks or log in to continue.
Log in

I forgot my password

Latest topics
» Hope to all my suffering ladies
Help Please - Doctor Put Silver Nitrate On Daughter With VV - What Does This Mean For Recovery? EmptyFri Oct 23, 2020 12:04 am by ringostarr26

» Please tell me this can get better
Help Please - Doctor Put Silver Nitrate On Daughter With VV - What Does This Mean For Recovery? EmptySat Jul 18, 2020 7:38 pm by sammykramer

» By no means cured, but doing much better!
Help Please - Doctor Put Silver Nitrate On Daughter With VV - What Does This Mean For Recovery? EmptyMon Mar 16, 2020 1:26 pm by tinkerbelle2

» How I cured my Vulvodynia!
Help Please - Doctor Put Silver Nitrate On Daughter With VV - What Does This Mean For Recovery? EmptySat Dec 07, 2019 11:54 am by Millie

» 7 months since the diagnosis
Help Please - Doctor Put Silver Nitrate On Daughter With VV - What Does This Mean For Recovery? EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
Help Please - Doctor Put Silver Nitrate On Daughter With VV - What Does This Mean For Recovery? EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
Help Please - Doctor Put Silver Nitrate On Daughter With VV - What Does This Mean For Recovery? EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
Help Please - Doctor Put Silver Nitrate On Daughter With VV - What Does This Mean For Recovery? EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
Help Please - Doctor Put Silver Nitrate On Daughter With VV - What Does This Mean For Recovery? EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


Help Please - Doctor Put Silver Nitrate On Daughter With VV - What Does This Mean For Recovery?

4 posters

Go down

Help Please - Doctor Put Silver Nitrate On Daughter With VV - What Does This Mean For Recovery? Empty Help Please - Doctor Put Silver Nitrate On Daughter With VV - What Does This Mean For Recovery?

Post  mcm Tue Nov 27, 2012 2:17 pm

Thank you so much for this forum...

I will make this brief but would greatly appreciate your input. My 18 year old daughter is going to be registering here in the future, for much needed support beyond what "mom" can offer - but I do have a very important question I'm hoping you can help with...

A year ago, my daughter started complaining of vulvar pain and we just "rode it out" for a while. She had/still has a steady boyfriend, was sexually active - wasn't sure what it was, but felt certain it was related to intercourse or latex allergy, etc. Then she noticed a little "tear" so off to the ob/gyn we went last spring. The gynecologist did not diagnose VV at that time. Then she put silver nitrate on the tear! At that appointment she said the sting should go away in 24 hours, etc.

Well as you might guess, the pain intensified x 1000 for weeks, making us go back for follow up. The skin tear was gone, the tissue looked perfect and healthy, yet my daughter couldn't bear the pain of touch in the area.

THAT was when she was diagnosed with VV.

Since then, we have absorbed everything on virtually every VV site on the internet, we devisied a care "plan", trying one thing at a time, taking notes on any change. To date, nothing helps and my daughter is becoming very depressed. But we haven't been at this long and we have many hopeful things to try in the future.

Here is what keeps nagging at me as we keep trying this, trying that:

How did the silver nitrate on already damaged VV tissue impact my daughter's recovery (can tissue recover from silver nitrate, will response be longer, pain be worse)?

I can see how this "error" could happen with women who initially present with a tear/abrasion in the area...with gyne not thinking it is VV at first. I worry this gyne made things much, much worse by using this treatment. My daughter's pain has certainly been worse since silver nitrate was administered last spring. I'm upset that her doctor did this, absolutely...but my energy needs to be spent on helping my daughter find peace and healing.

Thanks so much in advance for your time...

mcm

Posts : 3
Join date : 2012-11-27

Back to top Go down

Help Please - Doctor Put Silver Nitrate On Daughter With VV - What Does This Mean For Recovery? Empty Re: Help Please - Doctor Put Silver Nitrate On Daughter With VV - What Does This Mean For Recovery?

Post  Alana3 Wed Nov 28, 2012 7:43 pm

I know absolutely nothing about silver nitrate, but once you have Vulvodynia, you have it, there is no "recovery". You can try different treatments, or I'm doing surgery to help resolve mine...

As for being made worse and from last spring, I'd assume its going to stay like that, but get a knowledgable doctor regarding VV and you should be on a good path. I know when I tried different things if it was made worse, there was no getting better by itself, but everyone's different and there are treatments. Where are you from?

Alana3

Posts : 1093
Join date : 2012-09-25

Back to top Go down

Help Please - Doctor Put Silver Nitrate On Daughter With VV - What Does This Mean For Recovery? Empty Re: Help Please - Doctor Put Silver Nitrate On Daughter With VV - What Does This Mean For Recovery?

Post  mcm Wed Nov 28, 2012 8:40 pm

Thanks for your reply...

My concern with my daughter's vestibulitis is that the painful area already has thin skin, susceptible to tears, etc. Nerves are more sensitized in that area already - so worried that the silver nitrate caused even more damage to nerves. Her pain was never as bad as it has been since it was administered.

I call both Montana and Illinois home, by the way (rv full time)...

mcm

Posts : 3
Join date : 2012-11-27

Back to top Go down

Help Please - Doctor Put Silver Nitrate On Daughter With VV - What Does This Mean For Recovery? Empty Re: Help Please - Doctor Put Silver Nitrate On Daughter With VV - What Does This Mean For Recovery?

Post  Alana3 Wed Nov 28, 2012 8:56 pm

I don't mean to be a party pooper, but (at least in my case) when the damage is done its done and I had to just move foward and not focus on what happened in the past. That being said most doctors are morons. I have an amazing doctor down here in Florida if you can work up to coming here he is doing my surgery but really is conservative and will help with your needs. Where in Illinois???

I don't even know what silver nitrate is to be honest but I'm assuming if it caused damage it won't be reveresed, but I don't know for sure, I'm just going off my personal case. I will tell you though, my pain was made worse with certain treatments. Thin skin could have atrophy and there is hormonal treatment for it... But all of us who have vv unforunately have a ton of nerve issues. Sad

Alana3

Posts : 1093
Join date : 2012-09-25

Back to top Go down

Help Please - Doctor Put Silver Nitrate On Daughter With VV - What Does This Mean For Recovery? Empty Re: Help Please - Doctor Put Silver Nitrate On Daughter With VV - What Does This Mean For Recovery?

Post  Sarah001 Wed Nov 28, 2012 10:12 pm

I'm very confused why silver nitrate was used, here's a link:

http://www.nhs.uk/medicine-guides/pages/MedicineOverview.aspx?medicine=Silver%20nitrate

It would seem to imply the doctor thought he was dealing with warts but it does state it should not be used on genital warts so it seems it would definitely be inappropriate to use it on your daughter's tear.

Some forms of vulvar pain do produce tears in the skin, my physio has mentioned it briefly to me before but not in depth as I don't have tears. I don't know if the area will calm down or not, I have seen a few women on forums who've had tears during childbirth mention silver nitrate and some of them have said it has since calmed down so it's still possible. My advice to anyone is try everything you can by yourself first so removing irritants, calcium citrate tablets and the low oxalate diet, being screened for evey infection possible and steroid creams for a week and no longer to see what happens. After that read "When Sex Hurts" which helps establish the cause. It is possible your daughter has tensed her muscles up because of the silver nitrate pain and they could need some physio (PT) or perhaps medication would dull the pain down in the meantime too. If something makes no difference there's nothing to be gained by obssessing about it so in my case removing bubble bath didn't help so I put it back in again. There are a couple of books about the PT angle if you want to read them, "Ending Female Pain" by Isa Herrera and "Heal Pelvic Pain" by Amy Stein, they can be helpful in giving an idea of what needs to be done, biofeedback on it's own isn't going to help if there are trigger points etc etc. Relaxing the pelvic floor is explained in both books and if it helps to relax it at all it's worth pursuing PT.

I hope your daughter finds her cause and cure and don't listen to anyone who says she will never recover because without knowing the cause it isn't possible to make such a prediction.
Sarah001
Sarah001

Posts : 1164
Join date : 2010-06-11
Age : 50
Location : UK

Back to top Go down

Help Please - Doctor Put Silver Nitrate On Daughter With VV - What Does This Mean For Recovery? Empty Re: Help Please - Doctor Put Silver Nitrate On Daughter With VV - What Does This Mean For Recovery?

Post  Alana3 Wed Nov 28, 2012 10:56 pm

Wait a second I never said she wouldn't recover if that was in reference to me I would never say that! But that being said there are lots.of.options to go thru

Alana3

Posts : 1093
Join date : 2012-09-25

Back to top Go down

Help Please - Doctor Put Silver Nitrate On Daughter With VV - What Does This Mean For Recovery? Empty Re: Help Please - Doctor Put Silver Nitrate On Daughter With VV - What Does This Mean For Recovery?

Post  mcm Thu Nov 29, 2012 12:29 am

Oh Geez,

I hope I was clear enough...never meant to cause a rift...

I'm gonna try once more (and appreciate everyone's input! thank you!)...

Before ever knowing my daughter had vestibulitis (even before her gyne made the diagnosis), my daughter had a small "tear." Doc thought tear was from intercourse OR latex allergy OR tampon use, etc...it was an "out of the blue" thing and tissue looked healthy, so assumption was made that my daughter's pain was from tear.

Silver nitrate was used to "quickly heal up the tear" and would "be better in a few days." However, now that we know it was vestibulitis, with thin skin exposing more sensitive nerves, etc...adding that onto such damaged skin caused much, much more pain for the long haul.

I'm not looking backwards wishing we didn't do it...I'm wondering if silver nitrate incorrectly being placed on vestibulitis tissue will make the different treatments/trials we are doing much less likely to succeed...causing MORE damage to already damaged tissue. Did it make an already uphill climb become a nearly 100% vertical climb?

Hope this clarification helps?

Thanks again....

mcm

Posts : 3
Join date : 2012-11-27

Back to top Go down

Help Please - Doctor Put Silver Nitrate On Daughter With VV - What Does This Mean For Recovery? Empty Re: Help Please - Doctor Put Silver Nitrate On Daughter With VV - What Does This Mean For Recovery?

Post  Alana3 Thu Nov 29, 2012 4:05 am

No rift I just wanted to make sure I wasn't saying it was a cure. Honestly it's a question for the doc but I can safely tell you that my problem was made worse from drugs however I was given periods of relief. Regardless of whether or not it was made worse there are possibilities to make it better. I doubting made it any more or less worse but the treatment is the same I would imagine I honestly wouldn't concentrate on that idk whether anyone can tell you if it made it worse but.im not sure it matters or has a huge effect. The only thing id it would have an affect is id it miraculously went away which .bb it gonna lie would be awesome!

Alana3

Posts : 1093
Join date : 2012-09-25

Back to top Go down

Help Please - Doctor Put Silver Nitrate On Daughter With VV - What Does This Mean For Recovery? Empty Re: Help Please - Doctor Put Silver Nitrate On Daughter With VV - What Does This Mean For Recovery?

Post  Sarah001 Thu Nov 29, 2012 1:51 pm

It's not referring to you Alana3 it's referring to all the people online and offline who will say it can't be cured without even knowing what the cause is.
Sarah001
Sarah001

Posts : 1164
Join date : 2010-06-11
Age : 50
Location : UK

Back to top Go down

Help Please - Doctor Put Silver Nitrate On Daughter With VV - What Does This Mean For Recovery? Empty Re: Help Please - Doctor Put Silver Nitrate On Daughter With VV - What Does This Mean For Recovery?

Post  Alana3 Thu Nov 29, 2012 1:58 pm

Ahh gotcha, sorry I just wanted to clarify and mention that's not what I meant if it came out like that lol I'm the first that will say there can be something done.

Alana3

Posts : 1093
Join date : 2012-09-25

Back to top Go down

Help Please - Doctor Put Silver Nitrate On Daughter With VV - What Does This Mean For Recovery? Empty Re: Help Please - Doctor Put Silver Nitrate On Daughter With VV - What Does This Mean For Recovery?

Post  Alana3 Thu Nov 29, 2012 2:22 pm

I just read about silver nitrate from a vulvodynia point of view. Essentially, it is used for bladder pain and if you have cervix bleeding (and perhaps warts I didn't get into that). Most of the people said they ALSO had vulvodynia but the silver nitrate was NOT used for that particular issue. Some people said it made their problems worse. Others were used for cauterization or granulation. So perhaps this was a treatment for your daughter's tear, but in some people it works and others it doesn't? Just like every other treatment for vv- sometimes it works sometimes it doesn't. That's what I got out of what I read, but again I could have misinterperted it and I only read a few things, but none were mentioned for specific vulvodynia but other gynecological issues (which I'm guessing is what the doctor thought she originally had).

Alana3

Posts : 1093
Join date : 2012-09-25

Back to top Go down

Help Please - Doctor Put Silver Nitrate On Daughter With VV - What Does This Mean For Recovery? Empty Re: Help Please - Doctor Put Silver Nitrate On Daughter With VV - What Does This Mean For Recovery?

Post  Loulou Sat Dec 01, 2012 10:00 pm

Mcm - i don't know anything about silver nitrate but if it has further irritated your daughter's already irritated skin then i guess it might take a little longer for things to settle down. But people respond to treatments differently and heal at different rates so its impossible to predict. My personal view, based on my own experience, is that i would be wary of further topical treatments in her situation - if you keep putting stuff on an irritated vulva (stuff that is not natural to your vulva) its not going to help when the nerves are on fire. Is it possible to focus on non-topical treatments first e.g. physical therapy? Even if tight pelvic floor muscles aren't the primary cause of your daughter's vvd it is likely that they will have tightened up in response to the pain (a guarding effect), so some physical therapy might help ease your daughter's pain somewhat to allow her to then try other treatments.

Also I think the body does have an underlying natural need and drive to heal in order to be in a healthy balanced state (i'm got a bit evangelical about that since my vvd!) so i've been giving it as much of a helping hand as i can by being as healthy as possible so your daughter might want to try this too - good multivitamins (especially the B vits which help with repair of nerve damage), exercise (gentle yoga and pilates have helped to significantly reduce my pain), plenty of sleep, manage stress, etc. At the very least doing all that won't make things worse!


Loulou

Posts : 124
Join date : 2012-01-18

Back to top Go down

Help Please - Doctor Put Silver Nitrate On Daughter With VV - What Does This Mean For Recovery? Empty Re: Help Please - Doctor Put Silver Nitrate On Daughter With VV - What Does This Mean For Recovery?

Post  Sponsored content


Sponsored content


Back to top Go down

Back to top

- Similar topics

 
Permissions in this forum:
You cannot reply to topics in this forum