Vulvodynia Support
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» Hope to all my suffering ladies
What worked for me. EmptyFri Oct 23, 2020 12:04 am by ringostarr26

» Please tell me this can get better
What worked for me. EmptySat Jul 18, 2020 7:38 pm by sammykramer

» By no means cured, but doing much better!
What worked for me. EmptyMon Mar 16, 2020 1:26 pm by tinkerbelle2

» How I cured my Vulvodynia!
What worked for me. EmptySat Dec 07, 2019 11:54 am by Millie

» 7 months since the diagnosis
What worked for me. EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
What worked for me. EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
What worked for me. EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
What worked for me. EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
What worked for me. EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


What worked for me.

3 posters

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What worked for me. Empty What worked for me.

Post  bhaukti Tue Dec 11, 2012 9:21 pm

Hi, I had suffered from vulvodynia for over 10 years. After several bladder infections and a few episodes of yeast it then became apparent later that I had a chronic pain with intercourse that then later became a debilitating almost full time stinging,rawness that consumed my life. I tryed everything you can imagine and spent a whole lot of money and time looking for answers and like many here thought of suicide many times because nothing worked and the pain was so unrelenting for so long and I wasn't able to function well anymore. Finally by accident I went back to something an alternative M.D gave me for my health in general, as he tested my hair and said I had too high copper and some mercury and thought that taking NAC,C and spirulina would slowly take these heavy metals out. I only did this for a short time and moved on to other things like acupunture ect. Years later I thought maybe I would do it again and to my surprise I found that this practically 24/7 discomfort would go away in about 4 hours after taking this combo (NAC 600mgs, Vit.C 2,000mgs and spirulina) all pretty cheap supplements from my local vitamin shop. Right now I very rarely need to take the combo as I took it daily for a year and then felt that after I read that NAC can not only take out heavy metals but also good minerals that I needed to back off and take some minerals. But I found that the burning didn't come back and if I felt something I just take it once and then it seems to go away for a long time now a days. I know of two women who tryed this also and got the same relief as me,,,so if anyone is in constant pain like I was I think it's worth a try. And I want to add that the only negative side effects of taking this combo is that over a long period you can deplete some good minerals, so you need to supplement with a mineral complex and also you need to take NAC with 3 times the amount of vitamin C. flower

bhaukti

Posts : 6
Join date : 2012-12-11

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Post  sablenicoise Tue Aug 13, 2013 9:06 am

hello
can you please tell me if you took NAC 600mg, Vitamin C 2000 mg and Spirulin 3 capules all at once or did you take them fractioned, like 600mg Vitamin C in the morning, 600 at lunch and 600 at evening and 1 capsule of Spirulin in the morning, lunch and evening? (as far as for NAC i noticed that it is in 600 mg dose so i assume that couldn't be fractioned)
i already take this combination of meds for about a week and don t feel better but i took them as follows :
morning- vitamin c 600 mg, 1 spirulin
lunch- vitamin c- 600 mg, 1 spirulin, 1 NAC
evening- vitamin c 600 mg, 1 spirulin
should i try taking all 7 pills at once, because that seems a bit scary but i'm willing to try anything!
thanks a lot!

sablenicoise

Posts : 3
Join date : 2013-08-03

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Post  Alana3 Tue Aug 13, 2013 2:10 pm

Be aware you can take too much vitamin c and you'll eventually just pee it all out...

Alana3

Posts : 1093
Join date : 2012-09-25

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