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Gabapentin Gel. or other topical creams
Thu May 10, 2018 9:43 am by Rosie21
Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.
Comments: 2
Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?
Sat Aug 01, 2015 4:17 pm by Fielder
Hi everyone,
I'm a newbie. I live in the UK.
I'm trying to work out the best cushion to get for my vulvodynia. I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.
I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …
I'm a newbie. I live in the UK.
I'm trying to work out the best cushion to get for my vulvodynia. I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.
I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …
Comments: 11
An absolute success story- please read!
Fri Mar 08, 2019 10:57 pm by Persevere1990
Dear All,
I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.
I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …
I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.
I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …
Comments: 0
I'm sorry im rambling
Thu Feb 21, 2019 5:49 am by Jet227
hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …
Comments: 1
New member need advice please
Thu Feb 28, 2019 11:33 pm by PANDORA123
Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.
Thanks
Thanks
Comments: 5
MonaLisa Touch
Fri Feb 08, 2019 7:35 pm by rl2091
Hi All,
I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …
I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …
Comments: 3
Diagnosed Recently
Tue Jan 08, 2019 3:55 pm by flissyg
Hi All,
I’m so glad I’ve found a place where there are others who understand how I feel!
So this is my story:-
I’m 36, and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”. The following morning I woke up …
I’m so glad I’ve found a place where there are others who understand how I feel!
So this is my story:-
I’m 36, and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”. The following morning I woke up …
Comments: 4
New and need advice and help
Wed Dec 05, 2018 3:26 pm by Cin124
Hi everyone,
About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …
About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …
Comments: 6
New here would very much appreciate advice at the end of my rope
Wed Jan 09, 2019 9:09 pm by Jma990o
This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …
Comments: 3
Successful surgery!
3 posters
Page 1 of 1
Successful surgery!
I had my 6 week postop appointment today, he said that everything looked good and now I just need to use some dialators and physical therapy and I would be good to go! I am so excited as I had been freaking out that the surgery didn't work. I didn't realize that my muscles were still sore, but at least that is something that can be worked on, so it's a much more positive prognosis. I am so excited to get my life back. If any of you are questioning or faced with surgery I will be happy to answer any of your questions. Hope everyone gets to feeling better soon
Alana3- Posts : 1093
Join date : 2012-09-25
questions on surgery
After three years of constant pain with HPN. Vulvadynia, My Doctor wants to cut out the nerve. it is on the outside, where I would get herpes. Same place all the time.
Have not had outbreak for three years since I am on 800 mg per day of antivirual.
Plus Lyrica, Plus, all kinds of shots down there. Very scared of surgery to make it even worse. Has anyone had the surgery on the outside near entrance.
Thank you very much.
Have not had outbreak for three years since I am on 800 mg per day of antivirual.
Plus Lyrica, Plus, all kinds of shots down there. Very scared of surgery to make it even worse. Has anyone had the surgery on the outside near entrance.
Thank you very much.
chilijackie@aol.com- Posts : 7
Join date : 2013-02-15
Re: Successful surgery!
That's where mine was but I don't have herpes. If it's for vulvodynia my surgery was successful
Alana3- Posts : 1093
Join date : 2012-09-25
My Vulvodynia
Thank you . MY never damage was caused by herpes. But they do call the after effects vulvodynia. or HPN. Did they remove any nerves in you surgery. How long did it take you to heal, how much pain was invovled after surgery. Thank You very much
chilijackie@aol.com- Posts : 7
Join date : 2013-02-15
Re: Successful surgery!
I have questions for both of you. What is the surgery called? I was told that they have a few surgeries that they can do, one is to cut out the vulva skin and pull up the good skin and stitch it or remove the nerves. I have Lichen Simplex Chronicus Vulva which is the thickening of the vulva skin because of this my nerves are very pissed off and the burning pain has spread to my butt and inner thighs. Was yours anything like this? Also, to chiliJackie, I didn't have herpes but I did have vaginal warts that was on my vulva and the Dr. froze them off. It took her like three times to do it and the last time I asked her to freeze them deep, just to make sure she got them all. This was about 12 yrs ago and it has left scars. Did your herpes leave any scars? I have always wondered if the freezing and scaring is why I got this horrible thing. I was also wondering, you said that you had gotten shots on your private area, what kind of shots were they? Ive been having procedures done around my tail bone area and so far they have failed. They were trying to burn the nerves in that area. But if they could burn the nerves through my vulva area, I would be happy as Hell. Nobody has suggested it. Im on Lyrica as well and it sucks because it doesnt work but it messes up my head and I can't think clearly. I am getting pissed off about this entire friggin thing. 2 years of constant pain and Im thinking about getting it cut out, prob. the nerves. I would be happy if they would just cut entire vagina out and sew the damn thing up.
Sorry, Im in a very crabby mood today. Constant pain, Bipolar, peri menopausal and my hair is falling out in hand fulls, will cause anyone to be crabby.
Sorry, Im in a very crabby mood today. Constant pain, Bipolar, peri menopausal and my hair is falling out in hand fulls, will cause anyone to be crabby.
BpCookie- Posts : 209
Join date : 2012-01-25
Location : Arizona
Re: Successful surgery!
I got a vestibulectomy. nothing what you have. Where are you our doc deals with ls I got the surgery you described.
Alana3- Posts : 1093
Join date : 2012-09-25
Jackie
HI. My herpes simplex 2. One blister only 2010 . When it healed completly in 10 days.
It does not leave any scares or anything that you can see with the eye. I was left with a nerve ending that will not stop screaming at me. The shots were cortisone, and what ever else he put in them. I did have more pain after the shots, and also was black and blue all the way to my butt hole. It was not pretty and hurt like hell. The shots have also brought the nerve to the surface so you can now feel a lump where before it was only pain. I was told botox would not work for me if though muscle spasms do not help the nerve. I am only on 50mg of Lyrica. My doctor wanted me to start at 150 mg. I could not even talk or walk on that amount, tried it for four days, then dropped to 50mg. Which I can tolerate. I guess I do not realize how foggy my head is. I will probably have the surgery. My Doctor is well know and trusted. It took alot to find him.
He does call vuvaldyniia what I have but also calls it HPN since it was caused by the herpes to start. Any thing you want to know, just ask.
It does not leave any scares or anything that you can see with the eye. I was left with a nerve ending that will not stop screaming at me. The shots were cortisone, and what ever else he put in them. I did have more pain after the shots, and also was black and blue all the way to my butt hole. It was not pretty and hurt like hell. The shots have also brought the nerve to the surface so you can now feel a lump where before it was only pain. I was told botox would not work for me if though muscle spasms do not help the nerve. I am only on 50mg of Lyrica. My doctor wanted me to start at 150 mg. I could not even talk or walk on that amount, tried it for four days, then dropped to 50mg. Which I can tolerate. I guess I do not realize how foggy my head is. I will probably have the surgery. My Doctor is well know and trusted. It took alot to find him.
He does call vuvaldyniia what I have but also calls it HPN since it was caused by the herpes to start. Any thing you want to know, just ask.
chilijackie@aol.com- Posts : 7
Join date : 2013-02-15
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Fri Oct 23, 2020 12:04 am by ringostarr26
» Please tell me this can get better
Sat Jul 18, 2020 7:38 pm by sammykramer
» By no means cured, but doing much better!
Mon Mar 16, 2020 1:26 pm by tinkerbelle2
» How I cured my Vulvodynia!
Sat Dec 07, 2019 11:54 am by Millie
» 7 months since the diagnosis
Wed Aug 14, 2019 2:38 am by agtoronto
» Gabapentin Gel. or other topical creams
Sat Jun 15, 2019 5:22 pm by mary jane
» IMPORTANT FOR UK SUFFERERS
Sat Jun 15, 2019 5:21 pm by mary jane
» Help New Diagnosis
Sat Jun 15, 2019 5:07 pm by mary jane
» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
Tue Jun 11, 2019 12:56 am by VVSSufferer