Vulvodynia Support
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» Hope to all my suffering ladies
Nottingham Hospital Gyno? EmptyFri Oct 23, 2020 12:04 am by ringostarr26

» Please tell me this can get better
Nottingham Hospital Gyno? EmptySat Jul 18, 2020 7:38 pm by sammykramer

» By no means cured, but doing much better!
Nottingham Hospital Gyno? EmptyMon Mar 16, 2020 1:26 pm by tinkerbelle2

» How I cured my Vulvodynia!
Nottingham Hospital Gyno? EmptySat Dec 07, 2019 11:54 am by Millie

» 7 months since the diagnosis
Nottingham Hospital Gyno? EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
Nottingham Hospital Gyno? EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
Nottingham Hospital Gyno? EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
Nottingham Hospital Gyno? EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
Nottingham Hospital Gyno? EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


Nottingham Hospital Gyno?

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Nottingham Hospital Gyno? Empty Nottingham Hospital Gyno?

Post  Kelle_Belle Mon Feb 11, 2013 2:22 am

Hey everyone, was just wondering if anyone in the uk can help me? After nearly 6 months of pain, overdosing on gabbapentin because a frozen parsnip was more effective, my gyno in my home town finally did something useful by getting me refered to Nottingham hospital to a Dr who specialises in this sort of thing!! I had to lol at the this sort of thing comment! I was just wondering if anyone has any experiance with Nottingham Clinic?? Thanks in advance! x
Kelle_Belle
Kelle_Belle

Posts : 15
Join date : 2012-11-05
Age : 43
Location : North Lincs UK

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Nottingham Hospital Gyno? Empty Re: Nottingham Hospital Gyno?

Post  Sarah001 Mon Feb 11, 2013 1:16 pm

Hi again, is it David Nunns at Nottingham you've been referred to? I'd guess it is, my vulvar dermatologist tried to refer me to him and the referral went to pain management instead because he was off with a broken leg at the time however I talked to his secretary and she said to ask for the referral to be made again once he was back at work. I didn't because i'm sure a couple of women on here have actually seen him and didn't really rate him but saying that he does have a team of physios who work with him who have all done the courses my excellent physio has done so they should know their stuff. For me I would definitely have been referred to his physio team but it was too far to travel regularly and my physio knows the same stuff but is much closer to home which was my main reason for not going there. One thing I believe someone else on here said about the physio there is they adhere to the 6 session rule and discharge you whether you're helped or not after that, most hospitals do that. On the bright side if you go and they find a pelvic floor/alignment problem and give you the 6 sessions then discharge you and you feel you need more you can always take what they've told you to a private physio, it's still a plus as at least this would rule in or out physio being a good option.

I'm sure one person on here said she didn't rate him because he basically only had the list of possible causes we can easily find and work through ourselves but it depends how many things you've tried so far as to whether that would be of use to you. It's worth a shot for the physio team alone and I hope you'll let us all know how you get on.
Sarah001
Sarah001

Posts : 1164
Join date : 2010-06-11
Age : 50
Location : UK

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Nottingham Hospital Gyno? Empty Nottingham treatment

Post  fedup.com Tue Apr 30, 2013 9:16 pm

I've only just seen this and extremely glad I have!!!!!!

My whole problem from symptoms to diagnosis to treatment attempts has all been in Nottingham and it'll be good to compare experiences with you both.

I experienced symptoms from 2009 and it took until 2011 to be referred to the hospital. I'm being treated at Nottingham Circle Clinic at QMC and have been for a year now. No luck yet with all of the treatments I've been faced with. Started to wonder whether I should go private but then I look at my bank account and realise no-can-do.

Where is the Nottingham Clinic? Is it the one I'm at? If not I'll be researching into that as I am extremely fed up!

Look forward to hearing your replies,

I'm so relieved to find this post.

fedup.com

Posts : 2
Join date : 2013-03-24

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Nottingham Hospital Gyno? Empty Re: Nottingham Hospital Gyno?

Post  Sarah001 Wed May 01, 2013 5:30 pm

I never went as it was way too far to travel with my severe joint issues so I've stuck with the physio nearer to home as I'm certain my problem is pelvic floor spasm/pelvic instability. Think kelle_belle did go and last I heard had been diagnosed with erosive lichen planus I believe (correct me if I'm wrong kelle_belle). I'm not sure exactly where David Nunns is based, I thought he was at the hospital but it's so long ago I was referred to him I can't remember. Sorry I couldn't help!
Sarah001
Sarah001

Posts : 1164
Join date : 2010-06-11
Age : 50
Location : UK

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Nottingham Hospital Gyno? Empty Re: Nottingham Hospital Gyno?

Post  Kelle_Belle Sat Mar 14, 2015 12:22 am

Wow, its been forever since I've been online. I had to stop logging in, sadly, I couldn't cope with the overwhelming sadness I was feeling. I hope you ladies are still on here? I just wanted to say that I went to Nottingham, within 10 mins I was diagnosed! I'm not mental! I have genital erosive lichaen planus. I cried! Mr Nunns has helped me so much, I cannot thank or praise him enough. He actually cares, he listens and wants to help. Not just with physical pain, but with mental pain too. I hope that you both have found some relief. Hope I get a reply x
Kelle_Belle
Kelle_Belle

Posts : 15
Join date : 2012-11-05
Age : 43
Location : North Lincs UK

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