Vulvodynia Support
Would you like to react to this message? Create an account in a few clicks or log in to continue.
Log in

I forgot my password

Latest topics
» Hope to all my suffering ladies
What do you do for your period? EmptyFri Oct 23, 2020 12:04 am by ringostarr26

» Please tell me this can get better
What do you do for your period? EmptySat Jul 18, 2020 7:38 pm by sammykramer

» By no means cured, but doing much better!
What do you do for your period? EmptyMon Mar 16, 2020 1:26 pm by tinkerbelle2

» How I cured my Vulvodynia!
What do you do for your period? EmptySat Dec 07, 2019 11:54 am by Millie

» 7 months since the diagnosis
What do you do for your period? EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
What do you do for your period? EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
What do you do for your period? EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
What do you do for your period? EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
What do you do for your period? EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


What do you do for your period?

5 posters

Go down

What do you do for your period? Empty What do you do for your period?

Post  Kathye10 Sat Apr 06, 2013 8:04 pm

Hi ladies,

Wondering if any of you would mind sharing what you do when Aunt Flow comes to town. I was able to comfortably wear tampons until January (my issues started last Nov) I've found that regular pads rub me raw, so I've been, well....bleeding in old undies, but clearly need an alternative. (Sorry for the TMI)

I just found out about cloth pads but don't have time to wait for them to ship and the "Whole Foods" type grocery stores around me don't have them in stock. Any suggestions would be greatly appreciated. Very Happy

Thank you!
Kathye10
Kathye10

Posts : 82
Join date : 2013-02-18
Location : Los Angeles

Back to top Go down

What do you do for your period? Empty Re: What do you do for your period?

Post  Loulou Sun Apr 07, 2013 8:26 pm

Hi there Kathye10

'Aunt Flow' - i like that! Very Happy I call mine Mr Blobby! (only people from the UK will get that reference!)

Like you i haven't used tampons since my vvd started in Nov 11. Although i'm feeling better now i haven't yet dared go back to them. I use Natracare sanitary towels - organic, 100% cotton, not bleached - they seem to irritate less. I also put coconut oil on vestibule and labia which acts as both a lubricant and a bit of a barrier so again helps reduce irritation.

Other things which also seem to help - i change my pads more frequently than i did pre-vvd even if my flow isn't heavy, i keep a small jug (or small water bottle if i'm out) handy and rinse every time i change the pad and i stop wearing the pads as soon as i can (even tho it means i have to wear old knickers in the last few days of my period in case of any last 'dregs'!

I looked at cloth pads but never got round to trying them as i found the Natracare ok for me. I also bought a Mooncup but haven't dared try that yet!

Loulou

Posts : 124
Join date : 2012-01-18

Back to top Go down

What do you do for your period? Empty Re: What do you do for your period?

Post  Loulou Sun Apr 07, 2013 8:33 pm

PS and i tried panty liners for those last few days but i found they irritated me more than pads, even the Natracare liners.

Loulou

Posts : 124
Join date : 2012-01-18

Back to top Go down

What do you do for your period? Empty Re: What do you do for your period?

Post  Kathye10 Sun Apr 07, 2013 8:40 pm

Hi LouLou,

Thank you for your response. Too funny, I just bought the Nutracare pads (Haven't started my period yet) and I'm hoping they will be okay because they don't have the plastic covering over the cotton. The coconut oil is a great idea!! I thought about the mooncup, but like you I'm also scared. The cloth pad idea will be my last resort because one, they are expensive and two, having to hand wash them seems like a bit of a pain and I'm lazy so...haha

Thanks again for sharing!


Kathye10
Kathye10

Posts : 82
Join date : 2013-02-18
Location : Los Angeles

Back to top Go down

What do you do for your period? Empty Re: What do you do for your period?

Post  Alana3 Mon Apr 08, 2013 12:41 am

God tampons are so bad for you but I hate pads ugh bring a woman is truly a curse :/

Alana3

Posts : 1093
Join date : 2012-09-25

Back to top Go down

What do you do for your period? Empty Re: What do you do for your period?

Post  Sarah001 Mon Apr 08, 2013 12:51 pm

Talking of the "plastic cover" thing, I used to use Always which have that waxy top layer and a nurse at our doctors surgery told me to use Bodyform instead because they don't have it either so i use those pads now. They do rub a bit but all pads will rub a bit. I occasionallly use tampons but not often as I tend to get thrush if I use them regularly. I tried the Natracare range but didn't find them any better than Bodyform and I had to order them online which made it a very expensive purchase with the postage!
Sarah001
Sarah001

Posts : 1164
Join date : 2010-06-11
Age : 50
Location : UK

Back to top Go down

What do you do for your period? Empty Re: What do you do for your period?

Post  Kathye10 Mon Apr 08, 2013 2:28 pm

Hi Sarah,

Hmmm....I haven't heard of bodyform...is that something normally just sold in the UK?
Kathye10
Kathye10

Posts : 82
Join date : 2013-02-18
Location : Los Angeles

Back to top Go down

What do you do for your period? Empty Re: What do you do for your period?

Post  Sarah001 Mon Apr 08, 2013 6:02 pm

Now that's something I don't know, they're a big company and available everywhere here in the UK so I assumed they would be worldwide, try googling them.
Sarah001
Sarah001

Posts : 1164
Join date : 2010-06-11
Age : 50
Location : UK

Back to top Go down

What do you do for your period? Empty Re: What do you do for your period?

Post  Alana3 Mon Apr 08, 2013 6:33 pm

I wanted to try all natural but the pads are straight from the 70s blah. May as well get depends

Alana3

Posts : 1093
Join date : 2012-09-25

Back to top Go down

What do you do for your period? Empty Re: What do you do for your period?

Post  Kathye10 Mon Apr 08, 2013 7:50 pm

Says they are a British company. That's okay, glad they work for you though!!! Very Happy

Alana, do you mean the all cotton organic version or the cloth ones that you wash yourself?
Kathye10
Kathye10

Posts : 82
Join date : 2013-02-18
Location : Los Angeles

Back to top Go down

What do you do for your period? Empty Re: What do you do for your period?

Post  Alana3 Mon Apr 08, 2013 8:18 pm

Cotton organic God I don't want a bloody mess that I have to wash yuck lol

Alana3

Posts : 1093
Join date : 2012-09-25

Back to top Go down

What do you do for your period? Empty Re: What do you do for your period?

Post  Kate1981 Mon Apr 08, 2013 8:46 pm

I also use natracare towels they are very soft and don't irritate they just are not as good as absorbing I have to use super plus. I used to use always but they really do irritate me.

Kate1981

Posts : 88
Join date : 2012-08-17
Location : Manchester, UK

Back to top Go down

What do you do for your period? Empty Re: What do you do for your period?

Post  Kathye10 Mon Apr 08, 2013 10:12 pm

Hahaha, I know, me neither, which is why I'm hoping the cotton pads do the trick.

Good to know Kate. Glad they work for ya! Very Happy
Kathye10
Kathye10

Posts : 82
Join date : 2013-02-18
Location : Los Angeles

Back to top Go down

What do you do for your period? Empty Re: What do you do for your period?

Post  Sponsored content


Sponsored content


Back to top Go down

Back to top

- Similar topics

 
Permissions in this forum:
You cannot reply to topics in this forum