Vulvodynia Support
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» Hope to all my suffering ladies
My story... EmptyFri Oct 23, 2020 12:04 am by ringostarr26

» Please tell me this can get better
My story... EmptySat Jul 18, 2020 7:38 pm by sammykramer

» By no means cured, but doing much better!
My story... EmptyMon Mar 16, 2020 1:26 pm by tinkerbelle2

» How I cured my Vulvodynia!
My story... EmptySat Dec 07, 2019 11:54 am by Millie

» 7 months since the diagnosis
My story... EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
My story... EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
My story... EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
My story... EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
My story... EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


My story...

2 posters

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Post  cristina1133 Thu May 23, 2013 12:22 pm

Hi everyone! My name is Cristina I'm italian but i currently live in London.
I stated suffering of vuvlodinya 9 months ago, and everything started without no reason or previous symptoms, just one day it came. I spent the first 4 months seeing doctors and no one was able to give me a right diagnosis and made me take loads of antibiotics saying that they reconised that I was feeling bad and it could have been some kind of sofisticated virus not visible on the analysis but that we had to kill in any case.
While I started these cures I felt worseand worse. When it started I'd just moved to the UK, I will always remember it as the worst moment of my life.. So difficoult to handle. I didn't even know how to ask for a GP, went to the hospital several time but too difficoults to explain how I was feeling.. I mean I know a bit of english (in fact I also saysorry for that, hope you understant).
By the way the previous doctors that I mentioned are italian from my city which is Bari , in the very south of Italy, because finally I decided to be cured by my doctors. What happened I've already told youbefore.
They never convinced me and I've always belived that was not the right way and I started searching on the internet untill I finally discovered the vulvodynia.I have to thank Aida who is also a member of this forum plus she is the creator of the italian forum Volvodiniapuntoinfo.com because I found all the information about it and also a very qualified doctor in Rome who is curing me from last december. I'm taking as medicines Laroxyl which is the antidepressant used most for the vulvodynia but I'm also doing pelvic physioterapy.
Today I feel much better and If I only think how I was feeling bad until a few months ago i would probably kill myself.. It's really hard but we have to belive it will finish one day! it's also difficoult to find comprehension around us, isn't it? I decided to share my story here as well, also if some of you have any suggestion about specialists, cures, supports here in London I would much aprreciate because I'm here alone and once a month I usually go to rome to see my doctor. It's also hard to afford.. I don't know if here in the UK there is any support in terms of money for the vulvodynia, because in Italy we do not have any advantage and the cure are very expensive! I realized preatty soon that you must be rich to cure the vulvodynia! Rolling Eyes that's the end of the history! Thanks to everyone who read my story, thank you girls for your patience, I wish the best of luck for all of us!
take care
Cristina

cristina1133

Posts : 1
Join date : 2013-05-08
Age : 43
Location : London UK

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Post  tinkerbelle2 Sat Oct 19, 2013 4:43 pm

Hey Cristina,

I see this post is old, , hope things have improved.

I know what you mean about not wanting to live with this! It can really ruin things.

What are your symptoms and is your pain provoked or unprovoked?

Belle x
tinkerbelle2
tinkerbelle2

Posts : 303
Join date : 2013-09-28
Age : 31
Location : Brighton, England, UK.

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