Vulvodynia Support
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» Hope to all my suffering ladies
Any good consultants in the UK? EmptyFri Oct 23, 2020 12:04 am by ringostarr26

» Please tell me this can get better
Any good consultants in the UK? EmptySat Jul 18, 2020 7:38 pm by sammykramer

» By no means cured, but doing much better!
Any good consultants in the UK? EmptyMon Mar 16, 2020 1:26 pm by tinkerbelle2

» How I cured my Vulvodynia!
Any good consultants in the UK? EmptySat Dec 07, 2019 11:54 am by Millie

» 7 months since the diagnosis
Any good consultants in the UK? EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
Any good consultants in the UK? EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
Any good consultants in the UK? EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
Any good consultants in the UK? EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
Any good consultants in the UK? EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


Any good consultants in the UK?

4 posters

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Any good consultants in the UK? Empty Any good consultants in the UK?

Post  natbyte Sun Jun 02, 2013 7:27 pm

Hi, I am new to this site. Probably like many of you I was misdiagnosed with reccurent thrush for 12 years. I was diagnosed with Vulvodinya after having my first child (it took a very long time to get pregnant as sex has always been painful.) Both of my pregnancies I have experienced no vaginal pain throughout the pregnancy. Since having my second child I have been in pain for over a year, sometimes I have a week of comfort in a month, but not much more than that. I was wondering if anyone had simelar experiences after child birth, or if there are any really good consultants out there?

Natalie

natbyte

Posts : 1
Join date : 2013-06-02

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Post  Tashie999 Mon Jul 29, 2013 5:29 pm

Professor Wendy Reid in London is very good. Was the first out of all the specialists I saw to acknowledge that I had a problem rather than just assuming a STD or that it was in my head.


Tashie999

Posts : 3
Join date : 2013-07-25

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Post  Elc88 Thu Aug 01, 2013 9:02 pm

Only Drs I have seen are on the NHS. I have seen two specialists. The first diagnosed me as vulvodynia, and told me to come back every 6 months for a chat to see if there's anything new we could try. It didn't get me anywhere, as she'd literally smile, nod and tell me to persevere and come back in 6 months...

When I moved I was referred to Dr Manzo in Cambs, and she was very proactive. The impression I got was that she doesn't believe in vulvodynia, and didn't settle until we found the underlying cause of the pain.

Elc88

Posts : 55
Join date : 2013-07-20

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Post  Muffster Thu Sep 26, 2013 12:04 pm

Dr Wendy Reid at the Royal Free is excellent. I've been through years of seeing consultants, been sent packing with anathestic gel. I've had Physio too and it didn't work. Wendy referred me to one of her physios who has been doing trigger point therapy AND its working! Had I only known 5 years ago that my burning, often thrush like pain and soreness was related to exceptionally tight and knotted muscles! This had all happened after a 2 bouts of urinary infection.They are really good at the royal free, my womens Physio referred me to a normal Physio too who did loads of work on my really tight hamstrings-these and my weak glutes were causing me to hold more tension and pressure in my pelvic floor which were adding to my problems-an important holistic and simultaneous approach. Appallingly my Physio told me that pelvic and vaginal pain is NOT on the syllabus for medicine, even if you specialise in gynaecology, unbelievable! Especially given the number of appts so many have had with different specialists, trying to get to the bottom of things. Wendy Reid has specifically researched and studied it, which is why she is a leader. She is really empathetic too.

Muffster

Posts : 1
Join date : 2013-09-26

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