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Gabapentin Gel. or other topical creams
Thu May 10, 2018 9:43 am by Rosie21
Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.
Comments: 2
Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?
Sat Aug 01, 2015 4:17 pm by Fielder
Hi everyone,
I'm a newbie. I live in the UK.
I'm trying to work out the best cushion to get for my vulvodynia. I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.
I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …
I'm a newbie. I live in the UK.
I'm trying to work out the best cushion to get for my vulvodynia. I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.
I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …
Comments: 11
An absolute success story- please read!
Fri Mar 08, 2019 10:57 pm by Persevere1990
Dear All,
I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.
I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …
I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.
I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …
Comments: 0
I'm sorry im rambling
Thu Feb 21, 2019 5:49 am by Jet227
hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …
Comments: 1
New member need advice please
Thu Feb 28, 2019 11:33 pm by PANDORA123
Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.
Thanks
Thanks
Comments: 5
MonaLisa Touch
Fri Feb 08, 2019 7:35 pm by rl2091
Hi All,
I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …
I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …
Comments: 3
Diagnosed Recently
Tue Jan 08, 2019 3:55 pm by flissyg
Hi All,
I’m so glad I’ve found a place where there are others who understand how I feel!
So this is my story:-
I’m 36, and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”. The following morning I woke up …
I’m so glad I’ve found a place where there are others who understand how I feel!
So this is my story:-
I’m 36, and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”. The following morning I woke up …
Comments: 4
New and need advice and help
Wed Dec 05, 2018 3:26 pm by Cin124
Hi everyone,
About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …
About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …
Comments: 6
New here would very much appreciate advice at the end of my rope
Wed Jan 09, 2019 9:09 pm by Jma990o
This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …
Comments: 3
I got the surgery!
3 posters
Page 1 of 1
I got the surgery!
Hey everyone! I just want to say that I was where each of you are right now. I wanted to give up. I cried every single day from the pain. I couldn't even be intimate with my husband.
3 weeks ago, I got the surgery. I can already tell a massive difference. I can't have sex for a few more months but wanted to ask those who have had surgery how big of a success it was & if penetration worked!
As goes for my doctor, he is amazing. His name is Dr. Watts. He's located in Salt Lake City, utah. Women from all over the country fly to get he surgery done. He does a ton of them, & even does them in his office to cut costs for those who can't afford it. He's so sensitive e to your needs & cares about helping you get better.
3 weeks ago, I got the surgery. I can already tell a massive difference. I can't have sex for a few more months but wanted to ask those who have had surgery how big of a success it was & if penetration worked!
As goes for my doctor, he is amazing. His name is Dr. Watts. He's located in Salt Lake City, utah. Women from all over the country fly to get he surgery done. He does a ton of them, & even does them in his office to cut costs for those who can't afford it. He's so sensitive e to your needs & cares about helping you get better.
tandaschroeder- Posts : 26
Join date : 2012-10-30
Age : 36
surgery?
I've seen a few posts about a "surgery." My doctors have not recommended nor mentioned any sort of surgery. The only surgery I've had was a hymenectomy and that was a trigger for my vulvodynia. What is this all about? Can someone explain it? Thanks!
Jenn89- Posts : 16
Join date : 2013-08-19
Age : 34
Location : Mass
Re: I got the surgery!
Yes! I got it! They basically remove your vestibule hence "vestibulectomy". They take away the painful parts. Unfortunately, its only recommended for certain cases. Usually if its provoked localized vulvodynia. Its usually only done as a last resort they will try other treatments before they do that on you. It took me 5 years and a lot of frustration before it was even an option and even then they made me do other treatments first before I said I've had enough. Where are you from?
Alana3- Posts : 1093
Join date : 2012-09-25
Re: I got the surgery!
I'm from Mass. My doctors have never talked about ANY sort of surgery. What does provoked localized vulvodynia mean? I know it might seem kind of dumb, but I've basically been in denial... doing the therapies and such, but not LEARNING about the condition, so I don't understand some of the things people are posting about
Jenn89- Posts : 16
Join date : 2013-08-19
Age : 34
Location : Mass
Re: I got the surgery!
It means that it is painful when touched (provoked) and in one spot (localized). There is general unprovoked which is pretty much everywhere and all the time pain from what I understand. Have you tried going to Dr. Goldstein? Hes in New York and supposedly really good at what he does. I felt lost too when I first got diagnosed but you learn quick for your own sanity really.
Alana3- Posts : 1093
Join date : 2012-09-25
Re: I got the surgery!
So I suppose I would fall under the provoked localized category. I can pinpoint pretty much exactly where it hurts, but it only hurts if I'm sitting funny - which can put pressure on the spots, or if it's touched.Alana3 wrote:It means that it is painful when touched (provoked) and in one spot (localized). There is general unprovoked which is pretty much everywhere and all the time pain from what I understand. Have you tried going to Dr. Goldstein? Hes in New York and supposedly really good at what he does. I felt lost too when I first got diagnosed but you learn quick for your own sanity really.
I have not even heard of Dr. Goldstein.. I see a specialist and a physical therapist right now, but I feel like I've tried so many methods and none of them seem to be working. My doctor insists I try one specific PT, but she's really far from me, and does not accept insurance. I'm 23, and I don't have a very good paying job, so I can't afford it..
Jenn89- Posts : 16
Join date : 2013-08-19
Age : 34
Location : Mass
Re: I got the surgery!
Hmmmm yeah I'm 27 and my parents help me with medical it's just awful and I have endometriosis too yuck. I wouldn't go straight toward surgery until you've literally tried everything. My pain was thank god only with sex but it was awful and traumatic. No treatments helped until they did surgery but its a lot to think about. I will say it was easy but it was mentally taxing if that makes sense.
Alana3- Posts : 1093
Join date : 2012-09-25
Re: I got the surgery!
makes sense. Just the thought of it is nerve wracking! I'm looking it up now though, and I'm not good with anatomy, but it looks like what they cut out, isn't where I feel my pain. But I'm not sure. I'll bring it up to my PT next week anyway just so it's out there and to see what she thinks.
Jenn89- Posts : 16
Join date : 2013-08-19
Age : 34
Location : Mass
Re: I got the surgery!
I don't know how to explain it... It's right at the opening towards the bottom (or I suppose it would be the back..) so it hurts sometimes when I sit.. but more-so when something is touching it like a tampon, or my dilators. It seems like they take out a bunch of skin that is NOT painful for me.
I suppose if you picture a clock, I feel pain from 8-4 right at my opening.
I suppose if you picture a clock, I feel pain from 8-4 right at my opening.
Jenn89- Posts : 16
Join date : 2013-08-19
Age : 34
Location : Mass
Re: I got the surgery!
It looks like they take out a lot of the tissue around the opening. Like they take away from the labia almost? Like I said, I'm horrible with anatomy so I don't really know what I'm saying, but my pain is just RIGHT in that circle.. and they take out all this extra surrounding skin.
I was going to post a jpg from Paint to show what I meant, but I can't get it to work.
I was going to post a jpg from Paint to show what I meant, but I can't get it to work.
Jenn89- Posts : 16
Join date : 2013-08-19
Age : 34
Location : Mass
Re: I got the surgery!
No they take out the vestibule not the labia you can hardly tell anything was done
Alana3- Posts : 1093
Join date : 2012-09-25
Re: I got the surgery!
Hmm I don't know. I'm gonna mention it to my physical therapist at my next appointment just to see what she says. I'm not looking for a definite answer, but it would be nice to just communicate about it with her to see what she thinks.
Jenn89- Posts : 16
Join date : 2013-08-19
Age : 34
Location : Mass
Re: I got the surgery!
Sorry girls! I just barely saw that you replied to my original comment. I just want you to know you're not alone. That's for sure. But on the bright side, the way you're explaining things is exactly what I had. I had the pain for a year and a half before I finally got fixed. I saw many doctors and all of them told me I didn't need any kind of surgery because, well, most doctors don't know a lot about it. My doctor said he had people contact him from all around the country. He does many surgeries and truly is AMAZING. He's located in Salt Lake City, Utah. Like Alana said, I would definitely try everything before you jump into surgery. I tried literally everything and nothing worked until I got surgery. It was the best decision I ever made. And if I could give one thing of advice, it would be to not worry about the cost. Because if your condition is as bad as mine was, I would literally be paying it off the rest of my life to be pain-free. If you have any questions, please feel free to ask!!Jenn89 wrote:I don't know how to explain it... It's right at the opening towards the bottom (or I suppose it would be the back..) so it hurts sometimes when I sit.. but more-so when something is touching it like a tampon, or my dilators. It seems like they take out a bunch of skin that is NOT painful for me.
I suppose if you picture a clock, I feel pain from 8-4 right at my opening.
tandaschroeder- Posts : 26
Join date : 2012-10-30
Age : 36
Re: I got the surgery!
What kind of things did you try before choosing the surgery? I feel like I've tried it all. She has no new recommendations for me when I go in there anymore. She just tells me to keep using the halobetasol and lidocaine or to go see this very expensive PT that's far away from me
Jenn89- Posts : 16
Join date : 2013-08-19
Age : 34
Location : Mass
Re: I got the surgery!
I tried all types of estrogen cream, physical therapy, exercises, and a lot of medications. There aren't many doctors who know what they're talking about & it sort of sounds like your doctor is one of those. I can give you my doctor's phone # and maybe you can talk to his nurse and tell them you live in another state but have heard things about him. He might have options. But it's hard when he has to SEE you. It all comes down to what you're willing to do to fix it. Because it can be expensive, it can cost an arm & a leg, but if it's worth it to become completely pain-free to you, then you should do it!Jenn89 wrote:What kind of things did you try before choosing the surgery? I feel like I've tried it all. She has no new recommendations for me when I go in there anymore. She just tells me to keep using the halobetasol and lidocaine or to go see this very expensive PT that's far away from me
The doc is Dr Watts and is phone number is (801) 268-6811. He also has a fabulous nurse named Brooke who talked to me about it on the phone a few times.
tandaschroeder- Posts : 26
Join date : 2012-10-30
Age : 36
Re: I got the surgery!
Hmm maybe I'll try it. Everyone here says my doc & PT are great... But I've had no results in over 5 years. Close to 7
Jenn89- Posts : 16
Join date : 2013-08-19
Age : 34
Location : Mass
Similar topics
» Surgery Update - 5 Week Post-Surgery
» I GOT THE SURGERY!!
» Post-vestibulectomy (partial) recovery- going back to work?
» I GOT THE SURGERY!!
» Post-vestibulectomy (partial) recovery- going back to work?
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Fri Oct 23, 2020 12:04 am by ringostarr26
» Please tell me this can get better
Sat Jul 18, 2020 7:38 pm by sammykramer
» By no means cured, but doing much better!
Mon Mar 16, 2020 1:26 pm by tinkerbelle2
» How I cured my Vulvodynia!
Sat Dec 07, 2019 11:54 am by Millie
» 7 months since the diagnosis
Wed Aug 14, 2019 2:38 am by agtoronto
» Gabapentin Gel. or other topical creams
Sat Jun 15, 2019 5:22 pm by mary jane
» IMPORTANT FOR UK SUFFERERS
Sat Jun 15, 2019 5:21 pm by mary jane
» Help New Diagnosis
Sat Jun 15, 2019 5:07 pm by mary jane
» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
Tue Jun 11, 2019 12:56 am by VVSSufferer