Vulvodynia Support
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Vulvodynia Support

Does life feel like one huge pain in the Vulva??? I have created this forum so that women living with Vulvodynia (Vulva Pain) can have a place to share, chat and support each other.


The link to my research project is in the Announcements forum, please participate if you can!!
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Latest topics
» Hope to all my suffering ladies
New boyfriend :) EmptyFri Oct 23, 2020 12:04 am by ringostarr26

» Please tell me this can get better
New boyfriend :) EmptySat Jul 18, 2020 7:38 pm by sammykramer

» By no means cured, but doing much better!
New boyfriend :) EmptyMon Mar 16, 2020 1:26 pm by tinkerbelle2

» How I cured my Vulvodynia!
New boyfriend :) EmptySat Dec 07, 2019 11:54 am by Millie

» 7 months since the diagnosis
New boyfriend :) EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
New boyfriend :) EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
New boyfriend :) EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
New boyfriend :) EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
New boyfriend :) EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


New boyfriend :)

4 posters

Vulvodynia Support :: Celebrating the Positive

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New boyfriend :) Empty New boyfriend :)

Post  Alana3 Thu Aug 08, 2013 3:10 pm

I was always scared to date because let's face it, most men only want one thing. Therefore, I always kept everyone at a distance. I never thought I would find a guy who'd want to be with me (even though I had the surgery and was successful who wants to move that slow?). So we started dating back in May and just took it extremely slow. The other night we messed around (not sex, but use your imagination) and I can safely say, IT DID NOT HURT!!!! I mean it's sore now, but I asked my friends and they all say that it hurts them too if they haven't done anything in a while and they have normal hooha's. I feel so AMAZING about this. But back to the guy. We're still a work in progress, but the other night he told me that even if I could never have sex with him, he was happy with me and that it just didn't matter. So I guess there ARE some awesome guys out there who don't just want to get laid. I am totally excited about him and my current situation that I wanted to tell people who actually understand why this is such a big deal. My friends here are like yeah that's cute, but they can't really grasp why this is such an amazing thing for me. Anyway, if any of you are considering the surgery, I completely recommend it as it worked wonders for me and "sex" actually felt good, I couldn't believe it and now I'm hooked haha Smile

Alana3

Posts : 1093
Join date : 2012-09-25

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Post  Loulou Mon Aug 12, 2013 8:45 pm

I'm so happy for you Alana! Very Happy Sounds like you got a good guy there. ENJOY!!!
Lx

Loulou

Posts : 124
Join date : 2012-01-18

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Post  Alana3 Tue Aug 13, 2013 2:09 pm

Thank you! He is awesome

Alana3

Posts : 1093
Join date : 2012-09-25

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Post  Delilah1 Sun Aug 18, 2013 8:44 pm

That's wonderful!! Sounds like you found a genuinely nice man! Congratulations!Very Happy 

Delilah1

Posts : 55
Join date : 2013-04-24

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Post  Alana3 Mon Aug 19, 2013 12:00 am

Thank you

Alana3

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Post  Alana3 Mon Aug 19, 2013 12:25 am

Let's hope it lasts!

Alana3

Posts : 1093
Join date : 2012-09-25

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Post  Jenn89 Mon Aug 19, 2013 12:50 am

That's awesome! I have the same mindset as you. Men only want one thing, so when we find one that is okay with the situation, it feels like a miracle! Best wishes to you two! Smile

Jenn89

Posts : 16
Join date : 2013-08-19
Age : 34
Location : Mass

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Post  Alana3 Mon Aug 19, 2013 1:26 am

Thank you so much! It was really scary to say anything but so far so good Smile

Alana3

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Join date : 2012-09-25

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Vulvodynia Support :: Celebrating the Positive

 
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