Vulvodynia Support
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» Hope to all my suffering ladies
A day in the life of this shit EmptyFri Oct 23, 2020 12:04 am by ringostarr26

» Please tell me this can get better
A day in the life of this shit EmptySat Jul 18, 2020 7:38 pm by sammykramer

» By no means cured, but doing much better!
A day in the life of this shit EmptyMon Mar 16, 2020 1:26 pm by tinkerbelle2

» How I cured my Vulvodynia!
A day in the life of this shit EmptySat Dec 07, 2019 11:54 am by Millie

» 7 months since the diagnosis
A day in the life of this shit EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
A day in the life of this shit EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
A day in the life of this shit EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
A day in the life of this shit EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
A day in the life of this shit EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


A day in the life of this shit

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Post  meaganmayes Sat Sep 28, 2013 1:51 am

It is nearly October now. I was diagnosed with vulvodynia in may. Can I just say MY LIFE FREAKIN SUCKS! not only does sex feel like knives stabbing me, but its getting worse. Now I am starting to get the burning sensations during the day. I cry a lot when I am alone. Is my life really going to end up like this? How am I supposed to lead a healthy relationship if I can't have sex with my partner? If anyone has advice, I welcome it!

meaganmayes

Posts : 1
Join date : 2013-09-28

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Post  Elc88 Sat Sep 28, 2013 5:49 pm

I still have days like this. It's frustrating, and I can sympathise with how you must be feeling. It's not impossible to maintain a healthy relationship without sex, and there are so many people on here doing just that! It takes patience and understanding on both sides, and sometimes just an extra-special sort of guy.

Elc88

Posts : 55
Join date : 2013-07-20

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Post  EviE°Bee Sun Oct 06, 2013 5:07 am

I feel ya, litterally. I try and have sex on "okay" days but its hard to enjoy because im gonna end up paying for it after. It sucks going from anytime sex to 1-2 times per month.

I have days where i try and stay positive, do the research, maintain mental stability, pray for the good and bad things. Other days i curse my life, i think im gonna go crazy, i think im doomed to spend my life in pain, i dont pray, i cry and get anxious.

I agree with Elc, its taxing on both parties but it can be done.

EviE°Bee

Posts : 72
Join date : 2013-09-30
Age : 40
Location : Southern Cali

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Post  mary jane Sun Oct 06, 2013 1:35 pm

Have you tired giving yourself a break from dating until you explore more options to get better?
I know it sounds like pointless advice, but having to deal with the pressure of an illness PLUS the pressure of having to maintain a relationship is too much to handle when there are other things like school/work on the line !!

Try everything there is, you have the general symptoms, I for one have throbbing and my entire bartholin gland hurts. As in every RAMIFICATION of it (it's like an octopus). So i have discomfort walking and have to hide it at uni.

Save some money to go to acupuncture, buy magnesium, vit C, it won't hurt.
some ladies have said they gave up all SLS-containing products and it worked for them.
Buy organic Dr Bronner's soap and something super-mild for the vulva, with zero alchohol or perfume.
mary jane
mary jane

Posts : 345
Join date : 2013-10-05
Location : UK

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Post  mary jane Sun Oct 06, 2013 1:37 pm

change your laundry detergent,shampoo and shower gel as well.
AND GET RID OF TAMPONS, CHOOSE NON-CHLORINATED PADS LIKE NATRACARE
mary jane
mary jane

Posts : 345
Join date : 2013-10-05
Location : UK

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