Ladies who can get to London

I received this email a couple of days ago:

THE VULVAL PAIN SOCIETY

Invites you to attend a Super-Workshop on Saturday 4th December 2010
Royal College of Obstetricians and Gynaecologists, 27 Sussex Place, London, NW1 4RG. 9 a.m. till 5 p.m.


This event is geared towards women with vulval pain due to vulvodynia. It's a full day of information given by leaders in the field from all disciplines including dermatology, pain management, physiotherapy, gynaecology and more! We have changed the format of the workshops from our usual layout to cram as much information into the day as possible.

The cost for the day is £15 per person, lunch and drinks are included. If you would like to book a place please send a cheque made payable to the Vulval Pain Society to Workshops, VPS, PO Box 7804, Nottingham, NG3 5ZQ or book and pay online at www.vulvalpainsociety.org (see Meetings & Workshops). If you have any questions or you would like to know more, please call 07837 533 992. Bookings will be on a first-come-first-served basis as the venue is limited 80 delegates,
with priority given to sufferers and partners. If you are vegetarian please let us know. IMPORTANT! VPS regrets fees are not refundable in the event that you are not able to attend after booking. In order to save on costs, VPS does not issue tickets or receipts for the workshops.

Workshops are friendly and informal and are geared towards women, not health professionals. All aspects of vulval health are discussed openly including issues relating to the impact on intimate relationships.

VPS Management Committee
David Nunns
Kay Thomas

Agenda for VPS Super- Workshop Saturday 4th December 2010

Venue – Royal College of Obstetricians and Gynaecologists, 27 Sussex Place, Regent's Park, London, NW1 4RG
PROFILING VULVODYNIA

9:00 Registration and tea/coffee

9:30 Welcome and overview of the VPS and services in the UK – David Nunns FRCOG,
Kay Thomas

9.45 Vulval skin conditions
Dr Karen Gibbon Mb Chb, Consultant Dermatologist, Whipps Cross Hospital, London

TREATMENT STRATEGIES FOR VULVODYNIA

10:30 Vulval Pain Syndrome and the Central Nervous System
Dr A Baranowski MB BS BSc (Hons) FRCA MD FFPMRCA, Consultant in Pain Management,
UCL, London

11:15 Acupuncture/Osteopathy
Brent Osborn-Smith TD MBA BSc (Ost Med) DO ND

11.45 Physiotherapy for Vulval Pain
Helen Forth, Lead Physiotherapist - Women's Health, Royal Free Hospital, London

12:30 Lunch and informal discussion

13:45 How much does my doctor know? Education and training issues on vulval disease.
Miss Wendy Reid FRCOG, Consultant Gynaecologist, Royal Free Hospital, London

14:30 Cognitive Behavioural Strategies
Dr Alexandra Mizara, Clinical Psychologist and Specialist in Psychodermatology, Royal Free Hospital, London

15:00 Support groups and informal support
Sally Turner, London Vulval Pain Support Group

15:30 Informal discussion

17:00 Close

This workshop is designed for women and partners to gain information on vulval pain and its treatment options. The format is different from our usual style of workshop in that it involves a whole day with an early 9.00am start, so please arrive in good time. We have a variety of different health professionals who are considered experts in the field to give you an overall, holistic approach to problems. There will plenty of time for informal discussion with other women during lunch and at the end of the day. Some stalls will be set up and run by
various support groups/charities and companies and we hope these will be of interest to you.



I personally can't travel to London but if any of you ladies on the forum are close enough and interested it would be really helpful for all of us to hear what these specialists have to say.

hiya! went to this but in Shrewsbury last yr, was good for folk with vulval pain, not so good for folk like me with physical symptoms (redness, inflammation, soreness). Dr Nunn is sooo lovely though

Wow that sounds fab! Did you meet other people Naomi?

I feel so alone with this. I feel like I'm the only one in NZ and I'm sure that's not true! I also have generalised so feel a bit embarrassed really that I can do things that you guys can't. I have pain all of the time and at the minute it's really pissing me off.

A lovely lady I know told me about her friend who had to have surgery because her bits virtually closed up. I'm really tempted to ask her to give the friend my details so she can contact me if she likes. A cuppa with someone who understands would be lovely. I'm pretty sure I will know her as well as we have a large number of friends in common and we live in a small town... well we don't really but I thought a bit a John Mellencamp wouldn't go astray.

I find it really difficult trying to act "normal". Grinning and bearing it is getting harder - if only people knew... "oh sorry I don't feel like doing that I have massive pain in my fanny"

That's a shame Naomi, red inflamed skin is my biggest problem too but the way I had it explained to me was it's just another facet of vulvodynia that some women get and others don't, still caused by the same issues (pelvic floor problems, nerve problems etc). You'll all be pleased to know my useless vulvar "specialist" isn't at that event!!

Great! thank you for this!! I will look at booking a place!! :-)