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Gabapentin Gel. or other topical creams
Thu May 10, 2018 9:43 am by Rosie21
Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.
Comments: 2
Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?
Sat Aug 01, 2015 4:17 pm by Fielder
Hi everyone,
I'm a newbie. I live in the UK.
I'm trying to work out the best cushion to get for my vulvodynia. I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.
I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …
I'm a newbie. I live in the UK.
I'm trying to work out the best cushion to get for my vulvodynia. I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.
I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …
Comments: 11
An absolute success story- please read!
Fri Mar 08, 2019 10:57 pm by Persevere1990
Dear All,
I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.
I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …
I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.
I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …
Comments: 0
I'm sorry im rambling
Thu Feb 21, 2019 5:49 am by Jet227
hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …
Comments: 1
New member need advice please
Thu Feb 28, 2019 11:33 pm by PANDORA123
Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.
Thanks
Thanks
Comments: 5
MonaLisa Touch
Fri Feb 08, 2019 7:35 pm by rl2091
Hi All,
I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …
I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …
Comments: 3
Diagnosed Recently
Tue Jan 08, 2019 3:55 pm by flissyg
Hi All,
I’m so glad I’ve found a place where there are others who understand how I feel!
So this is my story:-
I’m 36, and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”. The following morning I woke up …
I’m so glad I’ve found a place where there are others who understand how I feel!
So this is my story:-
I’m 36, and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”. The following morning I woke up …
Comments: 4
New and need advice and help
Wed Dec 05, 2018 3:26 pm by Cin124
Hi everyone,
About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …
About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …
Comments: 6
New here would very much appreciate advice at the end of my rope
Wed Jan 09, 2019 9:09 pm by Jma990o
This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …
Comments: 3
Vulvodynia caused by Bartholin cyst
4 posters
Page 1 of 1
Vulvodynia caused by Bartholin cyst
Hi everyone,
I'm writing this in my bed as my pain levels are at 5 out of 10.
I was diagnosed with vulvodynia after a month of uni-lateral pain.
Strangely, my symptoms are very different from the vast majority
I had a small bartholin cyst which ruptured (it was on the upper vulva) and ever since then, I keep having constant pain ranging from 2 to 8.
My symptoms are: Discomfort walking (I feel like there is a bulge on my labia), pressure when standing up still, pain when touching,
painful arousal (10/10), and constant VIBRATINg/PULSATING feeling in labia.
The other one is perfectly healthy though.
I have ZERO burning, redness or irritation. I also have vaginismus, but it was never a very serious issue in previous relationships.
It's more present when I go to the doctor, as I associate the touching with previous Bartholin cyst examinations.
I'm thinking of getting botox
does anyone else have bartholin cysts and vulvodynia ?
I'm writing this in my bed as my pain levels are at 5 out of 10.
I was diagnosed with vulvodynia after a month of uni-lateral pain.
Strangely, my symptoms are very different from the vast majority
I had a small bartholin cyst which ruptured (it was on the upper vulva) and ever since then, I keep having constant pain ranging from 2 to 8.
My symptoms are: Discomfort walking (I feel like there is a bulge on my labia), pressure when standing up still, pain when touching,
painful arousal (10/10), and constant VIBRATINg/PULSATING feeling in labia.
The other one is perfectly healthy though.
I have ZERO burning, redness or irritation. I also have vaginismus, but it was never a very serious issue in previous relationships.
It's more present when I go to the doctor, as I associate the touching with previous Bartholin cyst examinations.
I'm thinking of getting botox
does anyone else have bartholin cysts and vulvodynia ?
mary jane- Posts : 345
Join date : 2013-10-05
Location : UK
Re: Vulvodynia caused by Bartholin cyst
I am currently taking B12, Magnesium+Calcium and cod liver oil (anti-inflammatory) for my nerve pain and hopefully to calm the pulsating feeling.
A short treatment with Naproxen for my sciatica eased my vestibulitis pain, but not I'm all out.
In the mean time, I have had to wait 3 weeks to see a GP in London. (I'm seeing him on tuesday)
A short treatment with Naproxen for my sciatica eased my vestibulitis pain, but not I'm all out.
In the mean time, I have had to wait 3 weeks to see a GP in London. (I'm seeing him on tuesday)
mary jane- Posts : 345
Join date : 2013-10-05
Location : UK
I found out the reason for my pain
I found out why Naproxen is helping me with the pain.
I also think I have vulvar vestibulitis, not vulvodynia. (silly doctors)
"In the past ten years, the problem of vestibulitis has been increasingly recognized as a cause of painful sexual intercourse. Women with this disorder report "burning" pain that is right at the opening (vestibule) of the vagina. In more severe cases, the pain is present during normal daily activities, as well as during sex.
Careful examination reveals redness and unusual sensitivity of the tissue at the opening of the vagina. It seems to be what is called a "neuro-inflammatory" condition.
This means that inflammation starts (for any one of a long list of reasons, such as vaginal infection) which causes pain; the nerves involved in sensing the pain then release chemicals that promote inflammation, and this inflammation causes further pain. Thus, a "vicious cycle" gets started that can last for years."
The regimen we use now is one we have arrived at as the result of over 10 years of experience in treating this disorder, having tried many different treatment methods. Our most successful treatment has been a combination of estradiol (estrogen hormone) and lidocaine (local anesthetic) compounded in a special preparation. Applied three times daily over 6 to 8 weeks, many women note considerable improvement.
source:med.unc.edu/obgyn /Patient_Care/specialty-services/advanced-laparoscopy-pelvic-pain/vulvar-vestibulitis
I also think I have vulvar vestibulitis, not vulvodynia. (silly doctors)
"In the past ten years, the problem of vestibulitis has been increasingly recognized as a cause of painful sexual intercourse. Women with this disorder report "burning" pain that is right at the opening (vestibule) of the vagina. In more severe cases, the pain is present during normal daily activities, as well as during sex.
Careful examination reveals redness and unusual sensitivity of the tissue at the opening of the vagina. It seems to be what is called a "neuro-inflammatory" condition.
This means that inflammation starts (for any one of a long list of reasons, such as vaginal infection) which causes pain; the nerves involved in sensing the pain then release chemicals that promote inflammation, and this inflammation causes further pain. Thus, a "vicious cycle" gets started that can last for years."
The regimen we use now is one we have arrived at as the result of over 10 years of experience in treating this disorder, having tried many different treatment methods. Our most successful treatment has been a combination of estradiol (estrogen hormone) and lidocaine (local anesthetic) compounded in a special preparation. Applied three times daily over 6 to 8 weeks, many women note considerable improvement.
source:med.unc.edu/obgyn /Patient_Care/specialty-services/advanced-laparoscopy-pelvic-pain/vulvar-vestibulitis
mary jane- Posts : 345
Join date : 2013-10-05
Location : UK
Re: Vulvodynia caused by Bartholin cyst
sob. small update: my life is hell. I self-tested today to see if arousal still hurts. upon self-touching my bartholin gland swells up pretty fast, and much more than the other. I'm doomed. My only option is probably a vestibulectomy with gland excision
mary jane- Posts : 345
Join date : 2013-10-05
Location : UK
Re: Vulvodynia caused by Bartholin cyst
update: I relaised today my vibrating feelings are caused by pelvic floor hypertonicity.
at least now I know the reason for my pain!
at least now I know the reason for my pain!
mary jane- Posts : 345
Join date : 2013-10-05
Location : UK
Re: Vulvodynia caused by Bartholin cyst
I now have a new bartholin cyst on the healthy side.
this means more pain
this means more pain
mary jane- Posts : 345
Join date : 2013-10-05
Location : UK
Re: Vulvodynia caused by Bartholin cyst
I am seeing Wendy Reid in 2weeks privately. Am selling some of my designer clothes for it :/
I pray she will help me
I pray she will help me
mary jane- Posts : 345
Join date : 2013-10-05
Location : UK
Re: Vulvodynia caused by Bartholin cyst
I'm sorry to hear you are in pain praying you find relief love.
Lms911- Posts : 30
Join date : 2013-11-07
Re: Vulvodynia caused by Bartholin cyst
I just read the thing about a vicious cycle being set up. That definitely sounds accurate for me !
tinkerbelle2- Posts : 303
Join date : 2013-09-28
Age : 31
Location : Brighton, England, UK.
Re: Vulvodynia caused by Bartholin cyst
Sorry to hear that - I think Wendy Reid is meant to be one of the best - I hope she helps you.
Kathy100- Posts : 95
Join date : 2012-12-17
Re: Vulvodynia caused by Bartholin cyst
THANK YOU EVERYONE. HOW SWEET OF YOU ALL !!
mary jane- Posts : 345
Join date : 2013-10-05
Location : UK
Similar topics
» Bartholin's cyst surgery?
» Ovarian Cyst
» Vulvodynia Caused by Lichen Sclerosus & Inflammatory Vaginitis?
» Ovarian Cyst
» Vulvodynia Caused by Lichen Sclerosus & Inflammatory Vaginitis?
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Fri Oct 23, 2020 12:04 am by ringostarr26
» Please tell me this can get better
Sat Jul 18, 2020 7:38 pm by sammykramer
» By no means cured, but doing much better!
Mon Mar 16, 2020 1:26 pm by tinkerbelle2
» How I cured my Vulvodynia!
Sat Dec 07, 2019 11:54 am by Millie
» 7 months since the diagnosis
Wed Aug 14, 2019 2:38 am by agtoronto
» Gabapentin Gel. or other topical creams
Sat Jun 15, 2019 5:22 pm by mary jane
» IMPORTANT FOR UK SUFFERERS
Sat Jun 15, 2019 5:21 pm by mary jane
» Help New Diagnosis
Sat Jun 15, 2019 5:07 pm by mary jane
» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
Tue Jun 11, 2019 12:56 am by VVSSufferer