Vulvodynia Support
Would you like to react to this message? Create an account in a few clicks or log in to continue.
Log in

I forgot my password

Latest topics
» Hope to all my suffering ladies
New Member - Not Offically Diagnosed, But Frustrated EmptyFri Oct 23, 2020 12:04 am by ringostarr26

» Please tell me this can get better
New Member - Not Offically Diagnosed, But Frustrated EmptySat Jul 18, 2020 7:38 pm by sammykramer

» By no means cured, but doing much better!
New Member - Not Offically Diagnosed, But Frustrated EmptyMon Mar 16, 2020 1:26 pm by tinkerbelle2

» How I cured my Vulvodynia!
New Member - Not Offically Diagnosed, But Frustrated EmptySat Dec 07, 2019 11:54 am by Millie

» 7 months since the diagnosis
New Member - Not Offically Diagnosed, But Frustrated EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
New Member - Not Offically Diagnosed, But Frustrated EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
New Member - Not Offically Diagnosed, But Frustrated EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
New Member - Not Offically Diagnosed, But Frustrated EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
New Member - Not Offically Diagnosed, But Frustrated EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


New Member - Not Offically Diagnosed, But Frustrated

5 posters

Go down

New Member - Not Offically Diagnosed, But Frustrated Empty New Member - Not Offically Diagnosed, But Frustrated

Post  ehalaska Tue Oct 29, 2013 8:23 pm

About three months ago my partner and I got into a pretty deep discussion about our lack of sex-life. I told him that I had actually been feeling pain for probably the last two years. Since I was regularly getting bacterial infections and yeast infections I kind of always just assumed that it was something that would go away. But when he brought it up, it sort of blew me away that it had been that long. I realized it was a bigger issue.

So I made an appointment with my regular NP at the local women's clinic. She found a small amount of both bacteria and yeast, but she also suggested that Vulvodynia may be the underlying culprit. The clinic I go to leans towards the natural, so we tried an alkaline cleanse to flush out my system, boric acid suppositories, and we did do a bomber antibiotic to try and deal with the bacteria. The bacteria didn't go away, and I'm still experiencing pain during sex. She's also referred me to a physical therapist for pelvic floor therapy. I haven't yet had my first appointment.

Reading on here, it's clear that what's going on with me is not even remotely as severe as it could be, but yesterday my partner had a bit of a meltdown about our relationship and sex-life. We've been together eight years and for most of those years we were really sexual. But the last couple have dwindled. I've now realized that it's due to the fact that I've been experiencing pain, which I kind of just have been plowing through because I still feel pleasure, and still want him to be fulfilled, but because of the pain, it's really hard for me to initiate. If he initiates and gets me going, I can just kind of ride the train through the pain and then deal with burning afterwards.

I think the most frustrating thing is that it all feels like a guessing game to me. Maybe I have vulvodynia, maybe I don't, but even if I do, that doesn't actually help anything because it seems like every treatment is a guess.

The one definite thing is that I feel sharp pain during vaginal penetration and experience intense burning after sex - every time. The meltdown my relationship had yesterday covered a lot of things, but more than anything, it felt like it was the lack of intimacy, and my seeming lack of interest in sex, at the root of it all. I'm getting worried, and frustrated, and a little scared.

He's a good partner, and I think with this being new to both of us, I'm not sure he realized just how much pain I've been in (probably cause I never told him...). Talking about it last night he suggested I get online and try and find a forum and see if other people have ideas for treatment. Don't know why I haven't done it before, because just reading through these other posts at least made me feel less alone. Really glad I found this site

ehalaska

Posts : 2
Join date : 2013-10-29

Back to top Go down

New Member - Not Offically Diagnosed, But Frustrated Empty Re: New Member - Not Offically Diagnosed, But Frustrated

Post  EviE°Bee Sun Nov 03, 2013 4:01 am

It could be your hunny giving you an infection, it's not unheard of. Unfortunately, sex and VV go hand in hand regarding pain.

Here are a few tips I've heard of, maybe they will help you:
° Lidocane 10-15 mins before sex, nickel sized amount.
° Cold compresses after sex can really help
° Baking soda bath with warm water, not hot
° Gentle sex
° Try different sex positions, some don't cause as much pain
° Non penetration sex. It's a long list, you should look that up.
° Anal sex (not for everyone)

Personally, I used to have sex often, right now it's 2x a month, maybe 2x a week. It just depends on how your feelin. If I have 2-3 good days (pain is 1-2 on a scale of 10) then i'll try and have sex. If not then he can wait lol.

Hope this helps a little.

Evie bee

EviE°Bee

Posts : 72
Join date : 2013-09-30
Age : 40
Location : Southern Cali

Back to top Go down

New Member - Not Offically Diagnosed, But Frustrated Empty Re: New Member - Not Offically Diagnosed, But Frustrated

Post  Kathy100 Wed Nov 06, 2013 11:46 am

Hopefully the physical therapy will start to help you - it has done with me. Other things to try are deep breathing and pelvic drops to relax the whole pelvic floor area (which is usually tight if you have v as the muscles tense up) before & after sex. Amy Steins book Heal Pelvic pain has some exercises in to stretch the pelvic floor.

Lidocaine numbs the area - so can work or you could ask your doctor for some painkillers - notriptyline helped me with burning initially.

Kathy100

Posts : 95
Join date : 2012-12-17

Back to top Go down

New Member - Not Offically Diagnosed, But Frustrated Empty Re: New Member - Not Offically Diagnosed, But Frustrated

Post  tinkerbelle2 Sun Nov 10, 2013 9:59 am

Hey ehalaska,

I totally get what you mean about the guessing game. It seems to be a really vague condition. I was told that vulvodynia is kind of an umbrella term which just means 'unexplained pain in vulva/vaginal area'. It isn't a disease or infection but more of a condition. So if that's what you have then you can call it vulvodynia. I agree with all Evie bee's suggestions. And keep trying with doctors! I try and think to myself, if there was a time when I didn't have this, surely it can go away again.
tinkerbelle2
tinkerbelle2

Posts : 303
Join date : 2013-09-28
Age : 31
Location : Brighton, England, UK.

Back to top Go down

New Member - Not Offically Diagnosed, But Frustrated Empty Re: New Member - Not Offically Diagnosed, But Frustrated

Post  Fingerscrossed Tue Nov 12, 2013 10:51 pm

I also only have pain during sex, so I understand your frustrations. My issues started about four years ago and I have always had pain during pelvic exams and at the beginning of sex, but for a while it was fine. I was diagnosed with vulvodynia and pelvic floor dysfunction in March and have since been placed on meds and regular physical therapy. I'm going to have a vestibulectomy in December. My now husband does get frustrated with our lack of a sex life, particularly since I tend to avoid too much intimacy, but he has been wonderful.

I hope that your problems get better without resorting to surgery or medicines! Sounds like you've got a good, supportive guy. Just keep communicating with him.

Fingerscrossed

Posts : 25
Join date : 2013-09-17
Age : 34
Location : Kentucky

Back to top Go down

New Member - Not Offically Diagnosed, But Frustrated Empty Re: New Member - Not Offically Diagnosed, But Frustrated

Post  Sponsored content


Sponsored content


Back to top Go down

Back to top

- Similar topics

 
Permissions in this forum:
You cannot reply to topics in this forum