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Gabapentin Gel. or other topical creams
Thu May 10, 2018 9:43 am by Rosie21
Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.
Comments: 2
Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?
Sat Aug 01, 2015 4:17 pm by Fielder
Hi everyone,
I'm a newbie. I live in the UK.
I'm trying to work out the best cushion to get for my vulvodynia. I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.
I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …
I'm a newbie. I live in the UK.
I'm trying to work out the best cushion to get for my vulvodynia. I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.
I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …
Comments: 11
An absolute success story- please read!
Fri Mar 08, 2019 10:57 pm by Persevere1990
Dear All,
I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.
I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …
I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.
I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …
Comments: 0
I'm sorry im rambling
Thu Feb 21, 2019 5:49 am by Jet227
hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …
Comments: 1
New member need advice please
Thu Feb 28, 2019 11:33 pm by PANDORA123
Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.
Thanks
Thanks
Comments: 5
MonaLisa Touch
Fri Feb 08, 2019 7:35 pm by rl2091
Hi All,
I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …
I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …
Comments: 3
Diagnosed Recently
Tue Jan 08, 2019 3:55 pm by flissyg
Hi All,
I’m so glad I’ve found a place where there are others who understand how I feel!
So this is my story:-
I’m 36, and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”. The following morning I woke up …
I’m so glad I’ve found a place where there are others who understand how I feel!
So this is my story:-
I’m 36, and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”. The following morning I woke up …
Comments: 4
New and need advice and help
Wed Dec 05, 2018 3:26 pm by Cin124
Hi everyone,
About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …
About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …
Comments: 6
New here would very much appreciate advice at the end of my rope
Wed Jan 09, 2019 9:09 pm by Jma990o
This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …
Comments: 3
Has any one seen a neurologist ?
3 posters
Page 1 of 1
Has any one seen a neurologist ?
zarli Mon Nov 18, 2013 11:56 am
Hi Girls just wondering if any one has seen a neurologist about nerve pain ?
zarli- Posts : 182
Join date : 2013-08-11
Location : Australia
Nope
21andcounting Sat Dec 14, 2013 5:47 am
Never gone to see one BUT my mom is a neurologist and she has been involved throughout my treatments. She didn't really bring any novel information to the table, even though she is a neurologist. She had some insight about certain drugs I tried, but no specialized knowledge besides that. This being said, she is just one neurologist and there may be others that specialize in nerve pain.
21andcounting- Posts : 17
Join date : 2013-12-05 -
Re: Has any one seen a neurologist ?
zarli Sat Dec 14, 2013 9:12 am
Thank you, I was disappointed to hear that but I guessed as much. I'll keep searching ......
zarli- Posts : 182
Join date : 2013-08-11
Location : Australia
Re: Has any one seen a neurologist ?
21andcounting Sat Dec 14, 2013 4:27 pm
Just curious, which types of specialists (if any) have you already tried?
21andcounting- Posts : 17
Join date : 2013-12-05 -
Re: Has any one seen a neurologist ?
zarli Sat Dec 14, 2013 9:54 pm
Thank you
-3 vulva pain specialist
-dermatologist
-2 physios
-2 pain specialist
-1 gyno
I also suffer from fibromyalgia, which came after vulvodynia. I have had MS ruled out. I don't know who to try next, I have a sneaky suspicion I will be putting up with this condition for the rest of my life. I go to the best Vulva specialist in Melbourne and am seeing her in March which we will be trying a nerve block, although I have read lots of negative results and also its just a cover up of the condition any way, I want it gone but I really think Vulvodynia is a condition all on its own and we may have to wait until they research it more to find a cure.
Sorry I rambled on......
-3 vulva pain specialist
-dermatologist
-2 physios
-2 pain specialist
-1 gyno
I also suffer from fibromyalgia, which came after vulvodynia. I have had MS ruled out. I don't know who to try next, I have a sneaky suspicion I will be putting up with this condition for the rest of my life. I go to the best Vulva specialist in Melbourne and am seeing her in March which we will be trying a nerve block, although I have read lots of negative results and also its just a cover up of the condition any way, I want it gone but I really think Vulvodynia is a condition all on its own and we may have to wait until they research it more to find a cure.
Sorry I rambled on......
zarli- Posts : 182
Join date : 2013-08-11
Location : Australia
Re: Has any one seen a neurologist ?
Alana3 Sat Dec 14, 2013 11:30 pm
All vulvodynia means is "painful vulva". Unfortunately everyone's condition isn't the same and there are many reasons why your vulva could hurt.
Alana3- Posts : 1093
Join date : 2012-09-25
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» How I cured my Vulvodynia!
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