Vulvodynia Support
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» Hope to all my suffering ladies
Steroid ointments/creams EmptyFri Oct 23, 2020 12:04 am by ringostarr26

» Please tell me this can get better
Steroid ointments/creams EmptySat Jul 18, 2020 7:38 pm by sammykramer

» By no means cured, but doing much better!
Steroid ointments/creams EmptyMon Mar 16, 2020 1:26 pm by tinkerbelle2

» How I cured my Vulvodynia!
Steroid ointments/creams EmptySat Dec 07, 2019 11:54 am by Millie

» 7 months since the diagnosis
Steroid ointments/creams EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
Steroid ointments/creams EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
Steroid ointments/creams EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
Steroid ointments/creams EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
Steroid ointments/creams EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


Steroid ointments/creams

+3
Intrestn1
Kathy100
Elc88
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Steroid ointments/creams Empty Steroid ointments/creams

Post  Elc88 Sun Nov 24, 2013 7:49 pm

I am currently battling away with steroid ointment and Dermol 500 wash to see if that will help with things, but I'm getting increasingly concerned that my genitals feel swollen after I apply them, and I don't feel like they should be.

In particular, I've notices my lady bits feel a lot more pronounced and solid when I apply the Dermol 500, which is a type of antiseptic skin wash for eczema and dermatitis, meant to form a protective barrier to stop whatever is harming you from getting in.

I really don't like the idea of things being constantly swollen in that area, to me it seems like a bad idea, and I feel like it's going to somehow lead me to other skin problems in later life. Anyone tried this out before?

Elc88

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Post  Elc88 Sun Nov 24, 2013 7:50 pm

Should add, it means I've not been applying the steroid ointment every day, to give the swelling a chance to go down, which means my pain isn't getting any better either! If it's OK, I'll be more inclined to apply it.

Elc88

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Post  Kathy100 Mon Nov 25, 2013 2:39 pm

My dr gave me steroid cream to try and after 3 days it made my bits very painful and swollen! Dr said it was a rare allergic reaction to the cream - so I stopped taking it. I haven't tried Dermol 500 though.

Kathy100

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Post  Elc88 Tue Nov 26, 2013 9:31 pm

Do you remember what cream it was?

I was given Betnovate cream, which made me very swollen and painful. I was told it was an allergic reaction, and they allergy tested me for it, but I wasn't allergic to any of the ingredients. I had a spot of dermatitis on my leg, and put a bit on. It helped the dermatitis, but all the normal skin around it went really dry, cracked, painful and blistery. The problem is it's really hard to only apply it to the affected area on that part of the body.

I am now on Eumovate ointment, coupled with Dermol 500. Eumovate has a mild impact, but not as much as betnovate.


Elc88

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Post  Kathy100 Wed Nov 27, 2013 10:59 am

It was a hydrochoritizone (not sure about spelling) cream - in small tube low strength - I think 1%. I applied on the vulva only a very small amount.

Weirdly enough I've just had a bout of dermatitis on my sides / stomach & the pharmacist gave me the same cream to use & it hasn't irritated me there.

Is the Eumovate helping you?

Kathy100

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Post  Elc88 Sun Dec 08, 2013 8:11 pm

Kathy100 wrote:It was a hydrochoritizone (not sure about spelling) cream - in small tube low strength - I think 1%.  I applied on the vulva only a very small amount.

Weirdly enough I've just had a bout of dermatitis on my sides / stomach & the pharmacist gave me the same cream to use & it hasn't irritated me there.

Is the Eumovate helping you?
Sorry for not responding sooner - I've been very busy, and not had time to log in for a while.

I'm not sure if the eumovate is helping me just now, it's very mild, and apparently will take months to make a difference. I've not managed to get into a good habit of applying it every day, so I haven't notices much of a difference yet.

Elc88

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Steroid ointments/creams Empty Cream that I was prescribed.....

Post  Intrestn1 Wed Dec 11, 2013 1:48 am

Hello. I have the intense itching and then once I begin to rub or scratch, I get the intense burning...... It almost drives me to tears.... I was prescribed a cream for it.... It helps but I wish it would help cure it and not just pit it at bay.... When I have a flare up that is not that bad or sense one coming I apply this cream BUT if the flare up is very very bad, I have to go and wash my "tutsie" to settle it down and then put some cream on it..... It usually helps but......its just NOT A PERMANENT FIX WHICH DRIVES ME CRAZY!! The cream that my gyno at the time prescribed me is DESOXIMETASONE Cream USP, 0.25%... I have never asked him to up the dosage so it may help more if I did.... (gotta find the time to get back to the gyno). I do not use it intravaginally, just on the inside and outside genitalia..... (My panty line along with the crown area of my vagina (the part where the hair is at the top) is the worse.... ) Anyway, that cream helps until the flare up is soo bad until I have to just hold my breath while I bite my lip as it slowly passes......

Intrestn1

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Post  EviE°Bee Thu Dec 12, 2013 10:26 am

I was on the same steroid ointment Kathy.

8 freakin months. The first week it was ehh, a lil better. After that, i felt a little swollen, irritated, it just didn't feel right. The dr swore I had dermatitis on my vag, turns out it was a yeast infection.

Steriods are bad bad for the vag, in my opinion. Too many possibilities of what the problem is and steroids is a strong drug.

Good luck and research.

EvieBee

EviE°Bee

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Post  tinkerbelle2 Thu Dec 12, 2013 10:39 am

tinkerbelle2
tinkerbelle2

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Post  EviE°Bee Fri Dec 13, 2013 3:33 pm

Negative.

I hear Boric Acid stings like a mofo and messes up ur skin.

I was thinking about our normal flora. Its supposed to guard a against other bacterias, our vag guard, if you will. Either we lack normal flora or just don't have any. Different bacteria then thrive and are hard to eliminate.


EviE°Bee

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Post  Kathy100 Fri Dec 13, 2013 4:00 pm

I think it depends on what's causing your V too. If the cause is muscular like mine - I don't think that creams can help much.

Kathy100

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Post  Elc88 Mon Dec 16, 2013 10:27 pm

Well I definitely have dermatitis, but I don't know if that's the only thing wrong down there!

I've been reading about some alternatives, and they recommend natural coconut or sweet almond oil, Vitamins A, D & E and fish oils, possibly aloe vera extract as well. I don't like the idea of steroids down there because I feel like I'm treating one problem by creating another. But I would like something with results a little more noticeable!

Elc88

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Post  tinkerbelle2 Tue Dec 17, 2013 9:46 am

Maybe not boric acid then! Not sure if I want to try it
tinkerbelle2
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Post  Leslieg Tue Dec 17, 2013 2:55 pm

Hello!   Boric acid suppositories are usually used for yeast infection.  I had this prescribed for me way back.....5 years ago when all of this started. It sounds far more harsh than it is.

Anyway....I've definitely developed some kind of dermatitis as well.  I had allergy testing that revealed sensitivity to an ingredient in shampoo, hand soaps, and dove sensitive skin soap.  Now I realize this ingredient is pretty much in everything. My dermatologist recommended vanicream soap and shampoo.  The ingredients list for these products seem to contain a lot of sulfates.  I wasn't feeling much better.  Then one day, I had a really bad flare and I couldn't understand why.  Then I remembered adding fabric softener to the laundry because my husband made a comment that the clothes weren't smelling clean. (I had been using only free and clear detergents with extra rinsing.....no fragrance.)  That was the only change I could attribute the increased flare to.  I started to pay attention to the skin on the rest of my body as well.   My arms and belly frequently have red blotches after  shower and tiny hives on my belly and I think by back too but it's hard to see.  I seem itchy a lot.......I thought this was dry skin especially in the winter.  I am fare skinned.  I feel itchy when I wear certain materials.  I guess I just thought all this was normal and it seemed to subside quickly and not bother me too much. I just put moisturizer on to soothe. I guess my vulva had enough.....

I read about a woman who changed to organic and natural everything and felt better.  Her only symptom was provoked pain. She recommended some products that I bought..... Dr Bronner's bar soap and Nellie's laundry soda. I plan to buy some new hand soap too (using dawn dish soap now).......I carry a tiny bottle in my purse and at work.  

Fingers and toes and everything else crossed.........I am feeling better not perfect yet but better for sure.  I get the sting and pinch every now and again but take a deep breath.  I still use lidocaine intermittently.  I have not had a lot of sex recently.......I am scared to tear.  I sometimes tear at 6 o'cock and I fear scar tissue. Hopefully that will be ok too. I struggle to release the fear of pain and the aftermath.  But I bought "slippery stuff" lube that my dr recommended.   Apparently its supposed to be very slippery.  I'm thinking of applying vitamin E to the 6 o'clock spot to help with the scar tissue and hopefully strengthen skin.

To ELC88, I have used pure, fragrance and dye free aloe for a time a while back.  I have always tried to limit the steroid ointments I've been prescribed and lidocaine over the years. They sometimes seemed to make matters worse for me. The aloe seemed to help a lot for a few months but then I began to get what looked like hives on my vulva and a sore near my clitoris.  Sooooooooo itchy. I stopped using the aloe and that reaction went awary. At the time, I thought it was some other disease process (lichen issues) progressing.  I was shocked the aloe took so long to give me a reaction. No regrets, however, because this hew issue prompted a trip to my clinic and the new dr I saw referred me to see the vulvar dermatologist who then recommended allergy testing and who told me I did not have lichen (I was convinced I did) and so began my process of changing products and looking at this with a whole new perspective.

I did not think dermatitis or allergies were an issue at all because 5 years ago I did the recommended change of products to all sensitive skin versions and fragrance free versions and nothing changed.  Ironically enough I am sensitive to the ingredient that is supposed to be mild and is in most products for sensitive and baby skin.  If I continue to improve, I'll write all of the things I've tried in hopes to help someone.  

I am realizing that my skin is sensitive to far more than the one chemical they found in the allergy testing.  Example, I switched to Aveeno oatmeal bar soap.....very few ingredients and had a vulvar flare, bum itching and body skin itching......worse than the soap with the offending chemical.  Go figure.......
Dr. Bronner's soap is my 4th or 5th soap to try.

Hopefully food for thought ladies.  By the way, I really like the Nellie's laundry soda (fingers crossed again).....its only been about a week.  It's pretty cheap (amazon). It smells really clean and you only need a small scoop for a large load so it seems it will last awhile.  
Will see.....  

Best wishes ladies....... xo


Leslieg

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Post  Alana3 Tue Dec 17, 2013 6:44 pm

I didn't read everything just where you're feeling better and I just wanted to say I'm happy for you, hopefully this is a good track for you and you will continue to feel good! Keep us posted Smile

Alana3

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