Vulvodynia Support
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» Hope to all my suffering ladies
What are you supposed to do if it is some sort of invisible infection?  EmptyFri Oct 23, 2020 12:04 am by ringostarr26

» Please tell me this can get better
What are you supposed to do if it is some sort of invisible infection?  EmptySat Jul 18, 2020 7:38 pm by sammykramer

» By no means cured, but doing much better!
What are you supposed to do if it is some sort of invisible infection?  EmptyMon Mar 16, 2020 1:26 pm by tinkerbelle2

» How I cured my Vulvodynia!
What are you supposed to do if it is some sort of invisible infection?  EmptySat Dec 07, 2019 11:54 am by Millie

» 7 months since the diagnosis
What are you supposed to do if it is some sort of invisible infection?  EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
What are you supposed to do if it is some sort of invisible infection?  EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
What are you supposed to do if it is some sort of invisible infection?  EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
What are you supposed to do if it is some sort of invisible infection?  EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
What are you supposed to do if it is some sort of invisible infection?  EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


What are you supposed to do if it is some sort of invisible infection?

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What are you supposed to do if it is some sort of invisible infection?  Empty What are you supposed to do if it is some sort of invisible infection?

Post  tinkerbelle2 Tue Dec 10, 2013 7:58 am

Mine feels like really really bad burning thrush, and I have had relief from thrush creams in the past, but the burning always came back. Now whenever they test me there's apparently no bv or yeast. But I've read things about infections living in the glands rather than discharge so they may not be detectable on swabs. Is there a way to find out if that is the cause of your problem? I have had thrush and bv before. The bv didn't cause me pain or itching but a disgusting odour - sorry to be gross but it was actually like rotten fish! Lol. And lots of yellowy discharge. It all went away with antibiotics quickly thank god.
tinkerbelle2
tinkerbelle2

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Join date : 2013-09-28
Age : 31
Location : Brighton, England, UK.

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What are you supposed to do if it is some sort of invisible infection?  Empty Re: What are you supposed to do if it is some sort of invisible infection?

Post  Alana3 Tue Dec 10, 2013 11:53 am

Your doctor should be swabbing your glands anyway but they produce a fluid that mixes with discharge anyway

Alana3

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Post  Leslieg Tue Dec 10, 2013 2:12 pm

Tinkerbelle, maybe try a quality probiotic for vaginal health.  I'm reading about them and apparently you have to be sure they're refrigerated.  Some women have had success with fem dophilus or Ultimate Flora for vaginal health.  They are expensive, however. :/
Hope you find relief soon.   Over the years I've used the yeast cream medicine and found temporary relief as well.  my doctor felt the relief may have been due to anti-inflammatory properties in the medicine not necessarily yeast relief.  Such a puzzle.  Is your skin inflamed?  If it is an infection......quality probiotics may help.

Leslieg

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Join date : 2013-08-09

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What are you supposed to do if it is some sort of invisible infection?  Empty Re: What are you supposed to do if it is some sort of invisible infection?

Post  tinkerbelle2 Tue Dec 10, 2013 6:13 pm

Alana - I just don't know about doctors anymore lol. Leslie, thanks so much for the info! I have started taking multivitamins and have heard probiotics are good too. Is there a specific type that you suggest? I'm sure Holland and barrett would do them. Hope you find relief soon too!


Ahh just saw you mentioned some names, will check 'em out!


Last edited by tinkerbelle2 on Tue Dec 10, 2013 6:15 pm; edited 1 time in total (Reason for editing : mistakes)
tinkerbelle2
tinkerbelle2

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Post  tinkerbelle2 Tue Dec 10, 2013 6:16 pm

The vestibule does look inflamed and irritated and much more red than it's natural pink
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Post  Alana3 Tue Dec 10, 2013 6:46 pm

Could be vulovdynia or an infection do they have AZO over in the UK? It really helps, or try taking a Garlic supplement they are supposed to help with yeast infections. Assuming of course it is yeast lol... Have you been in recently? I went the other day because my entire hooha felt awful and I thought my vulvodynia was coming back turns out I had a cervical infection that was so bad it was mimicking yeast and turning my vulva red. The worst part about this we thought we were fighting yeast the ENTIRE time because cervical infections mimic yeast and don't rear their ugly heads making it obvious months later (I was in pain for 3 months- they didn't even think of doing a pap because I just had one 3 months ago and it was normal). That being said, this is NOT cancer just an infection, but holy sweet jesus it hurt SO bad. I'm def not saying that's what you have, but I would hate for you to treat something thinking it was yeast and than have something else instead. You do not want to build a yeast resistance to meds. If you haven't been to your doc in a while I would recommend it! Just trying to help and share what's helped for me. Obviously we're all different which sucks Sad

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Post  tinkerbelle2 Mon Jun 16, 2014 7:38 pm

I havent tried AZO yet but must try some. Has any one tried femdophilus?
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