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Gabapentin Gel. or other topical creams
Thu May 10, 2018 9:43 am by Rosie21
Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.
Comments: 2
Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?
Sat Aug 01, 2015 4:17 pm by Fielder
Hi everyone,
I'm a newbie. I live in the UK.
I'm trying to work out the best cushion to get for my vulvodynia. I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.
I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …
I'm a newbie. I live in the UK.
I'm trying to work out the best cushion to get for my vulvodynia. I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.
I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …
Comments: 11
An absolute success story- please read!
Fri Mar 08, 2019 10:57 pm by Persevere1990
Dear All,
I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.
I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …
I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.
I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …
Comments: 0
I'm sorry im rambling
Thu Feb 21, 2019 5:49 am by Jet227
hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …
Comments: 1
New member need advice please
Thu Feb 28, 2019 11:33 pm by PANDORA123
Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.
Thanks
Thanks
Comments: 5
MonaLisa Touch
Fri Feb 08, 2019 7:35 pm by rl2091
Hi All,
I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …
I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …
Comments: 3
Diagnosed Recently
Tue Jan 08, 2019 3:55 pm by flissyg
Hi All,
I’m so glad I’ve found a place where there are others who understand how I feel!
So this is my story:-
I’m 36, and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”. The following morning I woke up …
I’m so glad I’ve found a place where there are others who understand how I feel!
So this is my story:-
I’m 36, and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”. The following morning I woke up …
Comments: 4
New and need advice and help
Wed Dec 05, 2018 3:26 pm by Cin124
Hi everyone,
About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …
About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …
Comments: 6
New here would very much appreciate advice at the end of my rope
Wed Jan 09, 2019 9:09 pm by Jma990o
This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …
Comments: 3
Has anyone been told by the Gyno......
4 posters
Page 1 of 1
Has anyone been told by the Gyno......
When I first started havng problems, I noticed that my skin in my vaginal area was changing. I went to the doctor and he did a biopsy to see if there were any cancerous cells. Well, they were not and then he diagnosed me with vulvodynia..... Well, later on down the line, things started to get a little worse and then I was told that I have psoriasis...... Has anyone else been told this? I've looked up information on this but haven't been able to find much on psoriasis of/on the genitals.... Any info will be helpful... THANKS!
Intrestn1- Posts : 3
Join date : 2013-12-11
Re: Has anyone been told by the Gyno......
Hey, my GP ages ago thought I had psoriasis as she said it seemed quite 'dry' down there. She gave me emollient creams such as dactacourt and cetraben. They didn't really seem to do much, they didn't irritate which is good i guess and did seem to soothe slightly. But no real change. Now she doesn't think i have that :S
tinkerbelle2- Posts : 303
Join date : 2013-09-28
Age : 31
Location : Brighton, England, UK.
Re: Has anyone been told by the Gyno......
I was never told I had psoriasis but i had 1-3 periods per year and as I got older I started developing menopausal symptoms (dry vagina, hot flashes, urinary frequency) so the dr prescribed me provera to bring my periods down, which I never took, and eventually I started getting my periods regularly.
My very first "regular period" was march of this year and it came with a UTI, a yeast infection, and pain in my vulva. (I experienced vulva pain for the first time 5 yrs ago and it came back with the vengeance this year)
Dry vag can cause a variety of different problems because the skin becomes thin and easily irritated. I had to eliminate perfumed soaps and any other possible irritant. I get why the doc told you that it was psoriasis but i highly doubt it because the vag is still too moist regardless of the dryness. One of my dr's told me to use desitin (diaper rash creame found in baby isle) as a protectant. Not the scented one, the original. It adds moisture which = comfort.
Hope this helps.
EvieBee
My very first "regular period" was march of this year and it came with a UTI, a yeast infection, and pain in my vulva. (I experienced vulva pain for the first time 5 yrs ago and it came back with the vengeance this year)
Dry vag can cause a variety of different problems because the skin becomes thin and easily irritated. I had to eliminate perfumed soaps and any other possible irritant. I get why the doc told you that it was psoriasis but i highly doubt it because the vag is still too moist regardless of the dryness. One of my dr's told me to use desitin (diaper rash creame found in baby isle) as a protectant. Not the scented one, the original. It adds moisture which = comfort.
Hope this helps.
EvieBee
EviE°Bee- Posts : 72
Join date : 2013-09-30
Age : 40
Location : Southern Cali
Possible
Hi, I am not an expert w/ this, so I would encourage you to do some research, but I am 99% sure that psoriasis can be confirmed w/ a skin biopsy. There are a couple dermatologist in the US that soley focus on genital skin issues. I would recommend searching for genital dermatologist to see if there is one near you. If not, call around to clinics to see if you can find a dr that is experienced treating genital dermatology issues. It's my understanding genital dermatology is much different than regular dermatology since it is much different skin.
I know of someone who was able to get her psoriasis into a state of remission by doing an elimination diet to cut out common allergens (dairy, gluten, eggs). She did this with the help of a naturopath and has been able to slowly add done things back iin limit amounts w/ no issues. Hope some of these suggestions help you. Best of luck to you!!!
I know of someone who was able to get her psoriasis into a state of remission by doing an elimination diet to cut out common allergens (dairy, gluten, eggs). She did this with the help of a naturopath and has been able to slowly add done things back iin limit amounts w/ no issues. Hope some of these suggestions help you. Best of luck to you!!!
907hopeful- Posts : 17
Join date : 2014-01-03
Similar topics
» Does everyone get told the same from their gyno
» Was told it was all in my head!!!
» Specialist Gyno's in UK
» Was told it was all in my head!!!
» Specialist Gyno's in UK
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Fri Oct 23, 2020 12:04 am by ringostarr26
» Please tell me this can get better
Sat Jul 18, 2020 7:38 pm by sammykramer
» By no means cured, but doing much better!
Mon Mar 16, 2020 1:26 pm by tinkerbelle2
» How I cured my Vulvodynia!
Sat Dec 07, 2019 11:54 am by Millie
» 7 months since the diagnosis
Wed Aug 14, 2019 2:38 am by agtoronto
» Gabapentin Gel. or other topical creams
Sat Jun 15, 2019 5:22 pm by mary jane
» IMPORTANT FOR UK SUFFERERS
Sat Jun 15, 2019 5:21 pm by mary jane
» Help New Diagnosis
Sat Jun 15, 2019 5:07 pm by mary jane
» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
Tue Jun 11, 2019 12:56 am by VVSSufferer