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» 7 months since the diagnosis
How to ease sex  EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
How to ease sex  EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
How to ease sex  EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
How to ease sex  EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
How to ease sex  EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

» Vestibulectomy next week in London!! - questions!!
How to ease sex  EmptyWed Apr 24, 2019 8:32 pm by HedvigB

» Dating with Vulvodynia and Vaginismus advice
How to ease sex  EmptyFri Apr 19, 2019 10:25 pm by Tartufo

» Research Participants Needed!
How to ease sex  EmptyThu Apr 11, 2019 2:09 pm by PelvicPainProject

» Does anyone else have Endometriosis?
How to ease sex  EmptyMon Apr 08, 2019 7:54 am by Jo44

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


How to ease sex

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Post  Sallyjane on Thu Feb 06, 2014 8:27 pm

I have provoked vulvodynia. My boyfriend is completely fine about not having sex however I'm not and really want to be able to at least have sex with only minimal discomfort. Has any one found any treatments or anything to ease sex that has worked for them?

Sallyjane

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Post  alessandria on Thu Feb 06, 2014 10:27 pm

Again... I mentioned this in the other thread, but you probably should hold off on penetrative intercourse until you can really lessen your provoked vulvodynia first, otherwise you are risking killing your libido in the future. Your brain WILL associate sex with pain if you're not careful, and it will "solve" the problem by not allowing you to get aroused ever. Patience is key, even if it is frustrating. That being said, if your pain is just at the vaginal opening, many women find lidocaine helpful (your OB/GYN will give you an aqueous solution that only will affect you, and not rub off on your partner). Because you said you are burning for hours after sex though, I'm concerned that this will not really help you the way you need it to. If you want a temporary solution, I'd give the advice of going slow, using lots of lubricant (Slippery Stuff seems to not irritate most people with V), and use lidocaine before starting. If you find there is pain as soon as the lidocaine wears off though, I'd refrain from having vaginal penetrative sex until you get some improvement.

I want to emphasize this: you can still be a sexual person! There are many people who cannot have penetrative vaginal sex who still have very fulfilling sex lives, and I encourage you to do some research on the topic and get some ideas. I have no doubt that you can fully satisfy your boyfriend and yourself if you keep an open mind.

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Post  mary jane on Sat Feb 08, 2014 4:08 pm

I have the same worry...I have pure neuropathy which responds to amitriptyline, I have a combo I want to try if I get the guts to try sex again: pregabalin, amitriptyline 50 mg, lidocaine or vaginal valium..... vaginal valium is used by a lot of the ladies with painful bladders (IC) and it helps ... you have a great boyfriend if he is so relaxed about it !
mary jane
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Post  Alana3 on Sat Feb 08, 2014 9:51 pm

I tried vaginal valium it burned life the devil

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Post  mary jane on Sun Feb 09, 2014 10:03 pm

rectal valium ?Very Happy
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Post  Alana3 on Mon Feb 10, 2014 12:03 am

If youre comfortable shoving something up your butt why not? But I've heard it can make your bowels loosey goosey haha but what is that gonna do with your hooha? Who knows it may work for you but keep in mind it ONLY worjs for muscle spasms so if you dont have muscular problems its not gonna work. So for you since you have redness (right?) It might not work.

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Post  alessandria on Mon Feb 10, 2014 8:10 am

Just as a heads up, the only randomized control study done on vaginal valium showed it was not effective for pelvic pain -- there's a good post here summarizing why it's probably not the best idea in the context of pelvic pain. (Just don't want you ladies spending money/time on something that doesn't work!)

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Post  mary jane on Mon Feb 10, 2014 9:32 am

sob sob I'll stick with my secret stash of narcotics then (=Tramadol/ultram)
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Post  Alana3 on Mon Feb 10, 2014 1:27 pm

Eh you don't know if something works until you try it so I wouldn't give that advice. It actually worked for me kinda but not for nerve pain its for muscles and not a miracle drug. Also tramadol isn't a narcotic I take it everyday where it acts like one its not classified as one. The only thing it really does is make you tired. If you can have sex knocked out more power to you! Lol And all it is is a painkiller it's not gonna treat anything or prevent. Your pain. It's just gonna mask it until it wears off. Same with valium.

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Post  Alana3 on Mon Feb 10, 2014 1:28 pm

But it wont give you side effects since its bypassing your liver

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Post  mary jane on Mon Feb 10, 2014 3:33 pm

I've taken it before in the past when I had bartholin cysts (pain from hell) and if it was able to work for THAT, then I kind of trust it to work again ??  the pills never made me feel sleepy, more like hyper and very drugged out/high Very Happy
I know I'm not treating my pain just masking it, but at least I can lead a life until I find a decent dr
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Post  Alana3 on Mon Feb 10, 2014 3:37 pm

oh itll help its just not gonna treat is all i'm saying. Smile continue with it, but try to find a more accurate treatment than popping pills.

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Post  mary jane on Mon Feb 10, 2014 10:36 pm

I'm screwed. I've fallen in love with a guy. I am so screwed. My pain consultant better give the maximum pills. better throw anything and everything at me
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Post  amy1918 on Thu Feb 20, 2014 1:47 am

I find it really difficult to have sex with my fiancé,he gets so frustrated and I do too,I just feel unbelievable discomfort and pain but all I get off people is 'it's in your head'..it's not in my head!! I feel so selfish because I've taken away my partners sex life and feel sometimes he'd be better off with out me..I need advice on least painful positions etc. Please help x

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Post  Alana3 on Thu Feb 20, 2014 2:46 am

Experiment what works for you may not work for me and you're not selfish

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Post  alessandria on Thu Feb 20, 2014 5:39 am

amy1918 wrote:I find it really difficult to have sex with my fiancé,he gets so frustrated and I do too,I just feel unbelievable discomfort and pain but all I get off people is 'it's in your head'..it's not in my head!! I feel so selfish because I've taken away my partners sex life and feel sometimes he'd be better off with out me..I need advice on least painful positions etc. Please help x

Amy, what have you tried so far to treat your pain? Vulvodynia is actually many different disorders with different causes, and how you work with it depends on what kind you have.

First. You are NOT selfish. You have had the bad luck of developing a condition that is both physically and emotionally painful, and while you and your partner might not be able to have vaginal penetrative sex the way you want to, that does not make you selfish. You are a strong person dealing with a bad situation the best you can. Your fiancé loves you, and that is something that transcends whether vaginal penetrative sex is something you can have all the time. I'm not going to lie and say vaginal penetrative sex doesn't matter, it DOES suck to not be able to have it painlessly, but there are a lot of other options for intimacy that should be your everyday go-to. I think it's important to be just as sexual as you were before, but to challenge yourself to find new ways to enjoy intimacy (there's a lot of things that most V sufferers can still do!).

When you DO want to have sex: do you have lidocaine? Do you use a large quantity of non-irritating lube? Do you make sure to engage in a ton of foreplay to make sure you're properly warmed up and ready for action? As far as positions go, it depends on your type of pain. If most of your pain is from insertion/withdrawal, any position that places a larger emphasis on grinding rather than thrusting will be less painful. If your pain is more in the vulva or clitoris, but less with insertion/withdrawal, find positions such that they're oriented away from contact while allowing penetration. As a rule, woman on top is a good idea for those with sexual pain, since it puts you in control of the angle, the speed, and the type of motion.

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