Vulvodynia Support
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Vulvodynia Support

Does life feel like one huge pain in the Vulva??? I have created this forum so that women living with Vulvodynia (Vulva Pain) can have a place to share, chat and support each other.


The link to my research project is in the Announcements forum, please participate if you can!!
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    » Hope to all my suffering ladies
    After 2 Surgeries Im Doing 40% better EmptyFri Oct 23, 2020 12:04 am by ringostarr26

    » Please tell me this can get better
    After 2 Surgeries Im Doing 40% better EmptySat Jul 18, 2020 7:38 pm by sammykramer

    » By no means cured, but doing much better!
    After 2 Surgeries Im Doing 40% better EmptyMon Mar 16, 2020 1:26 pm by tinkerbelle2

    » How I cured my Vulvodynia!
    After 2 Surgeries Im Doing 40% better EmptySat Dec 07, 2019 11:54 am by Millie

    » 7 months since the diagnosis
    After 2 Surgeries Im Doing 40% better EmptyWed Aug 14, 2019 2:38 am by agtoronto

    » Gabapentin Gel. or other topical creams
    After 2 Surgeries Im Doing 40% better EmptySat Jun 15, 2019 5:22 pm by mary jane

    » IMPORTANT FOR UK SUFFERERS
    After 2 Surgeries Im Doing 40% better EmptySat Jun 15, 2019 5:21 pm by mary jane

    » Help New Diagnosis
    After 2 Surgeries Im Doing 40% better EmptySat Jun 15, 2019 5:07 pm by mary jane

    » 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
    After 2 Surgeries Im Doing 40% better EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

    Gabapentin Gel. or other topical creams

    Thu May 10, 2018 9:43 am by Rosie21

    Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

    Comments: 2

    Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

    Sat Aug 01, 2015 4:17 pm by Fielder

    Hi everyone,

    I'm a newbie.  I live in the UK.  

    I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

    I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

    Comments: 11

    An absolute success story- please read!

    Fri Mar 08, 2019 10:57 pm by Persevere1990

    Dear All,

    I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

    I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

    Comments: 0

    I'm sorry im rambling

    Thu Feb 21, 2019 5:49 am by Jet227

    hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

    Comments: 1

    New member need advice please

    Thu Feb 28, 2019 11:33 pm by PANDORA123

    Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

    Thanks

    Comments: 5

    MonaLisa Touch

    Fri Feb 08, 2019 7:35 pm by rl2091

    Hi All,

    I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

    Comments: 3

    Diagnosed Recently

    Tue Jan 08, 2019 3:55 pm by flissyg

    Hi All,

    I’m so glad I’ve found a place where there are others who understand how I feel!

    So this is my story:-

    I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

    Comments: 4

    New and need advice and help

    Wed Dec 05, 2018 3:26 pm by Cin124

    Hi everyone,

    About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

    Comments: 6

    New here would very much appreciate advice at the end of my rope

    Wed Jan 09, 2019 9:09 pm by Jma990o

    This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
    So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

    Comments: 3


    After 2 Surgeries Im Doing 40% better

    4 posters

    Vulvodynia Support :: Support and Advice

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    After 2 Surgeries Im Doing 40% better Empty After 2 Surgeries Im Doing 40% better

    Post  BpCookie Mon Mar 03, 2014 3:13 pm

    Hello all you girls sitting on ice packs, Nope, I have not forgotten about you all. Ive had two surgeries where my Dr. cut away skin from my episiotomy scar, my Labia Minora and into my vagina (mostly around the entrance) and he also cut away the Hymen Crunicals (sp). I still have to take Lyrica twice a day, which totally sucks, but along with the surgeries and Lyrica, Im feeling about 40% better. I can sit at the computer and play computer games for 2 or 3 hours, where as before, 1 hour was the most that I could sit for at one time. Ive been able to go out to dinner and actually enjoy myself with out wanting to get the Hell out of there ASAP because of pain. I just bring my little pillow with me and sit on it, which helps. Next month I am being really daring and am going on a short vacation with my hubby. Its a 3 hour drive to our vacation destination and that will be the longest drive that Ive taken in 3 years Smile Also it will be the first vacation that we have had in 3 yrs., because the burning pain prevented me from going any where before. I can't wait to go.

    In a few more months, I will see my Dr. and will find out if he can lower my pain even more. I will keep you posted.

    I keep you all in my prayers.

    Love to you all,
    Cookie
    BpCookie
    BpCookie

    Posts : 209
    Join date : 2012-01-25
    Location : Arizona

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    Post  Alana3 Mon Mar 03, 2014 5:43 pm

    Omg I missed you! And that's good news glad something finally worked for you!

    Alana3

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    After 2 Surgeries Im Doing 40% better Empty Alana

    Post  BpCookie Tue Mar 04, 2014 12:28 am

    You were the first person I thought of when I posted today. Smile Hope things are shiny and bright for you.
    BpCookie
    BpCookie

    Posts : 209
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    Location : Arizona

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    Post  BpCookie Tue Mar 04, 2014 12:43 am

    Wanted to add that my Dr. also gave me a script for Lidocaine ointment 5%. It may burn when you first apply it but then it numbs the skin quite well. I think many of you women would get pain relief from this. Make sure its the ointment and not the jelly crap (totally useless) and also make sure its 5% and not 1% (total crap also).

    I use it before I have intercourse too. I rub it in and then tell the hubby "you have 15 mins. to get ready and then Im gonna jump you". Its a strange feeling because the outside is numb but the inside isn't. Also, the ointment doesn't seem to bother my hubby. Could you imagine how long our sexual encounters would last if his ya-hoo got numb as well. LOL. It would be like "dude, I don't have all day!!!".

    Good luck girls
    Cookie
    BpCookie
    BpCookie

    Posts : 209
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    Location : Arizona

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    Post  Alana3 Tue Mar 04, 2014 2:16 am

    Haha nice missed you! Yeah I just had a hysteroscopy Friday trying to recover I'm over this but glad you're getting relief! Your hubby I'm sure loves hearing "15 minutes" lol

    Alana3

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    After 2 Surgeries Im Doing 40% better Empty That's awesome Cookie!

    Post  Rainy Day Fri Mar 07, 2014 11:18 pm

    Once in a great while I check up on the site to see how everyone is doing. I came down with V over 2 years ago, but I have been feeling good for over a year. I still have flares now and then, but I would say I am at least 90% better. I am on very little medication. But Cookie, it makes me so happy to hear you are on the road to recovery. The better you feel...the more positive you are...the more your nerves will take a rest. So happy for you!!!

    Rainy Day

    Posts : 54
    Join date : 2012-07-19
    Location : US

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    Post  BpCookie Thu Mar 13, 2014 8:39 pm

    Rainy Day hun, Thank you so much and I am very happy for you as well. hugs
    BpCookie
    BpCookie

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    Post  Loulou Fri Mar 28, 2014 9:15 pm

    Hi BPCookie - haven't been on for ages but popped in tonight and was pleased to see your post as you had gone off the radar last time I was here. And even happier to read that something is working for you woo hoo! Hope you go from strength to strength. x

    Loulou

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