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Gabapentin Gel. or other topical creams
Thu May 10, 2018 9:43 am by Rosie21
Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.
Comments: 2
Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?
Sat Aug 01, 2015 4:17 pm by Fielder
Hi everyone,
I'm a newbie. I live in the UK.
I'm trying to work out the best cushion to get for my vulvodynia. I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.
I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …
I'm a newbie. I live in the UK.
I'm trying to work out the best cushion to get for my vulvodynia. I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.
I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …
Comments: 11
An absolute success story- please read!
Fri Mar 08, 2019 10:57 pm by Persevere1990
Dear All,
I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.
I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …
I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.
I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …
Comments: 0
I'm sorry im rambling
Thu Feb 21, 2019 5:49 am by Jet227
hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …
Comments: 1
New member need advice please
Thu Feb 28, 2019 11:33 pm by PANDORA123
Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.
Thanks
Thanks
Comments: 5
MonaLisa Touch
Fri Feb 08, 2019 7:35 pm by rl2091
Hi All,
I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …
I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …
Comments: 3
Diagnosed Recently
Tue Jan 08, 2019 3:55 pm by flissyg
Hi All,
I’m so glad I’ve found a place where there are others who understand how I feel!
So this is my story:-
I’m 36, and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”. The following morning I woke up …
I’m so glad I’ve found a place where there are others who understand how I feel!
So this is my story:-
I’m 36, and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”. The following morning I woke up …
Comments: 4
New and need advice and help
Wed Dec 05, 2018 3:26 pm by Cin124
Hi everyone,
About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …
About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …
Comments: 6
New here would very much appreciate advice at the end of my rope
Wed Jan 09, 2019 9:09 pm by Jma990o
This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …
Comments: 3
epidural for pain?
3 posters
Page 1 of 1
epidural for pain?
Hi everybody, haven't written for a while. I have been lurking and reading ya'll posts though. Have been going to PT. I thought it was helping but then my back started killing me. Went to a pain specialist. Had an MRI. Diagnosed with Spinal Stenosis. Was suggested to have an epidural for pain. Haven't had it yet, thinking I can do without it, then the V started back with a vengence. Wondering if an epidural for the pain of spinal stenosis would numb my V pain. But, when I'm not hurting, I'm still married, I do enjoy sex occasionally and would hate to number those particular nerves if you know what I mean. Any thoughts?
meelie- Posts : 136
Join date : 2013-01-09
Location : Barnesville, Ga
Re: epidural for pain?
It's a bandaid a temporary fix for a problem find a different doctor who is willing to be more proactive
Alana3- Posts : 1093
Join date : 2012-09-25
epidural for pain?
I didn't go see this Dr. for the V. I am so so sick of telling people about my pussy problem I didn't mention it. At this point I don't even want to go back to the PT, I have become so mortified about having to do what she does to help ease the tight muscles. I was seeing him for back pain that the PT just wasn't able to figure out. I know the epidural is a band aide, if it works at all for the SS. But was wondering if it could help my V pain. I am 99.99% sure it is muscle and nerve related not skin related. I just don't want to tell that dr. about my V. If you are talking about seeing a dr. for the V who would take a different approach, then please do tell. I can't find anyone that knows how to fix it. I am not even contemplating surgery for the SS at this point. I am an RN and I have seen too much in the line of surgery mishaps.
meelie- Posts : 136
Join date : 2013-01-09
Location : Barnesville, Ga
Re: epidural for pain?
South of Atlanta in Georgia.
meelie- Posts : 136
Join date : 2013-01-09
Location : Barnesville, Ga
Re: epidural for pain?
Id google something.like vulvodynia specialists in Georgia and see what comes up. I wouldn't shy from surgery just because you've seen bad things before those people werent you. Sometimes you have to take a risk to feel better...
Alana3- Posts : 1093
Join date : 2012-09-25
Epidural for pain
Hi,
I had a problem with my back and I had a nerve block at l4 l5 ! Within two weeks it took away all my vulvar pain, I was able to have pain free sex for a couple off months ! It did nothing for my back and leg pain, and the dr could not explain why it had stopped all the other pain ! After 4 months I had it done again, this time it felt different and it set of all my v pain for over 6 weeks, but this time it had an effect on the numb sensation I was getting down my leg! I'm convienced the two are connected but it hard to get the drs to agree !
Kt
I had a problem with my back and I had a nerve block at l4 l5 ! Within two weeks it took away all my vulvar pain, I was able to have pain free sex for a couple off months ! It did nothing for my back and leg pain, and the dr could not explain why it had stopped all the other pain ! After 4 months I had it done again, this time it felt different and it set of all my v pain for over 6 weeks, but this time it had an effect on the numb sensation I was getting down my leg! I'm convienced the two are connected but it hard to get the drs to agree !
Kt
Sunflower82- Posts : 82
Join date : 2012-02-17
Re: epidural for pain?
Thanks Sunflower, that is what I have been wondering. Did your V get any better after the second injection? Did you leg/back pain stay away for awhile? I am having such trouble deciding what to do. I have to drive 1 1/2 hrs to get the injection. I don't know how much my ins. will pay and am just kind of frozen in indecision. I would so def. do it if I thought it would take away this V burning. I
I think too that I've developed a real yeast infection on top of the V cause I'm itching and my burning is there in the morning which it usually is not. Don't know weather to try OTC or call GYN.
I stopped going to the PT for money and gasoline issues. Wish I had someone closer by but I don't.
Anyway thanks for your input and let me know how your V is doing and did you need a third inj?
I think too that I've developed a real yeast infection on top of the V cause I'm itching and my burning is there in the morning which it usually is not. Don't know weather to try OTC or call GYN.
I stopped going to the PT for money and gasoline issues. Wish I had someone closer by but I don't.
Anyway thanks for your input and let me know how your V is doing and did you need a third inj?
meelie- Posts : 136
Join date : 2013-01-09
Location : Barnesville, Ga
Epidural for pain
Hi,
After the second one the v pain for worse but my leg is no longer numb and I had it at the end if November ! My pain has settled down in term of the v but I still get the burning sensation and itching and sex is a little uncomfortable ! But it's not too bad, for a while after the injection it took away any sensation down below during sex, to the point that I couldn't really feel anything! Which was very different to before! Lately it's been sore and I tested positive for strep b so we haven't tried sex in the last month! The time we tried before the burning after has started to come back, but it's not as bad a it was before I had had the nerve block ! What level in your bk are they wanting to do the epidural ?
Kt
After the second one the v pain for worse but my leg is no longer numb and I had it at the end if November ! My pain has settled down in term of the v but I still get the burning sensation and itching and sex is a little uncomfortable ! But it's not too bad, for a while after the injection it took away any sensation down below during sex, to the point that I couldn't really feel anything! Which was very different to before! Lately it's been sore and I tested positive for strep b so we haven't tried sex in the last month! The time we tried before the burning after has started to come back, but it's not as bad a it was before I had had the nerve block ! What level in your bk are they wanting to do the epidural ?
Kt
Sunflower82- Posts : 82
Join date : 2012-02-17
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Fri Oct 23, 2020 12:04 am by ringostarr26
» Please tell me this can get better
Sat Jul 18, 2020 7:38 pm by sammykramer
» By no means cured, but doing much better!
Mon Mar 16, 2020 1:26 pm by tinkerbelle2
» How I cured my Vulvodynia!
Sat Dec 07, 2019 11:54 am by Millie
» 7 months since the diagnosis
Wed Aug 14, 2019 2:38 am by agtoronto
» Gabapentin Gel. or other topical creams
Sat Jun 15, 2019 5:22 pm by mary jane
» IMPORTANT FOR UK SUFFERERS
Sat Jun 15, 2019 5:21 pm by mary jane
» Help New Diagnosis
Sat Jun 15, 2019 5:07 pm by mary jane
» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
Tue Jun 11, 2019 12:56 am by VVSSufferer