Vulvodynia Support
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» Hope to all my suffering ladies
I HAVE FOUND THE CURE TO MY VULVODYNIA - BRISBANE AREA EmptyFri Oct 23, 2020 12:04 am by ringostarr26

» Please tell me this can get better
I HAVE FOUND THE CURE TO MY VULVODYNIA - BRISBANE AREA EmptySat Jul 18, 2020 7:38 pm by sammykramer

» By no means cured, but doing much better!
I HAVE FOUND THE CURE TO MY VULVODYNIA - BRISBANE AREA EmptyMon Mar 16, 2020 1:26 pm by tinkerbelle2

» How I cured my Vulvodynia!
I HAVE FOUND THE CURE TO MY VULVODYNIA - BRISBANE AREA EmptySat Dec 07, 2019 11:54 am by Millie

» 7 months since the diagnosis
I HAVE FOUND THE CURE TO MY VULVODYNIA - BRISBANE AREA EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
I HAVE FOUND THE CURE TO MY VULVODYNIA - BRISBANE AREA EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
I HAVE FOUND THE CURE TO MY VULVODYNIA - BRISBANE AREA EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
I HAVE FOUND THE CURE TO MY VULVODYNIA - BRISBANE AREA EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
I HAVE FOUND THE CURE TO MY VULVODYNIA - BRISBANE AREA EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


I HAVE FOUND THE CURE TO MY VULVODYNIA - BRISBANE AREA

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Post  Vulvo1 Sun Mar 23, 2014 6:07 am

Hi all you ladies!

I feel your pain. I have Vulvodynia & also Strep B. It put a massive strain on my relationship with my fiancé, nearly broke us up multiple times & also sent me into depression. The worst part was not being able to show my love to my fiancé, being too embarrassed to talk to anyone about the issue & basically being told I'm a freak by doctors after going through test after test, medication after medication, etc, etc & never having any results.

But I am here to tell you there is hope!! I am from around the Brisbane area & have been seeing Alyssa Tait from Equilibria at Salsibury. This woman is a miracle worker! I am still seeing her for issues related to my Strep B & PH levels but she has pretty much cured my Vuvodynia! Through her I have gone from not even being able to have my fiancé touch down there to being able to make love to him on a weekly basis in less than a year! This has happened through her amazing knowledge regarding this area, physio related exercises, using dilators & using supplements for zinc, magnesium as well as Blackmoore's Woman's Bio Balance probiotics & specific washes designed to "cleanse" & re-establish the PH levels (ones from Alyssa & the pharmacy - NOT the ones you get from a supermarket). There has also been research to state that using garlic can sometimes help (which is something I have been looking into).

I have also been seeing an amazing psychologist specialised in this area at Spring Hill, her name is Alice Hucker. Her main clients are women with our exact issues & she understands how much it can affect not only your sex life but also your confidence, relationships & how exhausting it is never getting answers!

Hope everything works out for you & hope I have given some of you a new path to finding an answer/cure for this!

Vulvo1

Posts : 4
Join date : 2014-03-23

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Post  Alana3 Sun Mar 23, 2014 5:02 pm

Um I took antibiotics for strep b and it never came back

Alana3

Posts : 1093
Join date : 2012-09-25

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Post  Vulvo1 Sun Mar 23, 2014 10:17 pm

Yeah I have been on 3 types of anti-biotics plus a cream from my gyno but nothing changed.. we believe I was born with it & there has been studies on women exactly like me using these alternative treatments & them working in 9 out of 10 they tested so that's why I am going down this road now

Vulvo1

Posts : 4
Join date : 2014-03-23

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