Vulvodynia Support
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» Hope to all my suffering ladies
First acupuncture  EmptyFri Oct 23, 2020 12:04 am by ringostarr26

» Please tell me this can get better
First acupuncture  EmptySat Jul 18, 2020 7:38 pm by sammykramer

» By no means cured, but doing much better!
First acupuncture  EmptyMon Mar 16, 2020 1:26 pm by tinkerbelle2

» How I cured my Vulvodynia!
First acupuncture  EmptySat Dec 07, 2019 11:54 am by Millie

» 7 months since the diagnosis
First acupuncture  EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
First acupuncture  EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
First acupuncture  EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
First acupuncture  EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
First acupuncture  EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


First acupuncture

3 posters

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First acupuncture  Empty First acupuncture

Post  Zbrown Mon Mar 31, 2014 8:48 pm

Well I have a lot of trigger points and tension through out my body , after y first trip there has the needles put in at various points on my right leg and left arm but no relief from the v lol ! How many appointments before noticing a difference xox

Zbrown

Posts : 131
Join date : 2014-02-26

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Post  bridget234 Tue Apr 01, 2014 11:17 pm

Hi.. I tried acupuncture once a week for about 2 months. I honestly don't think it did anything except make me feel realized for about an hour.

I think it may also depend on your pain as well. For me, I have more external/nerve pain so the acupuncture can't really help with that. However, if your pain is more internal/muscle related, I think it could be beneficial. My acupuncurist said that it usually takes 8-12 weeks to see a difference though.

But everyone is different so it may work for you! Good luck!

bridget234

Posts : 13
Join date : 2014-03-22

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Post  Zbrown Wed Apr 02, 2014 5:14 pm

Mine seems to be generalized external but idk about internal a bit bit definitely external , what kind do you have ?? I haven tried any medication like antidepressants ect yet so far just avoid some things eg tight clothes sex ect they want me to try acupuncture first before any medication they said because I'm only 22 :/ but idk do medications ever be a cure or just cover symptoms up so new to all this ! They haven't even diagnosed me with vulvodynia like they never said the word but all the treatments they have talked about eg acupuncture, Pilates, antidepressants ect sounds like a by of a give away ??? :/ xox

Zbrown

Posts : 131
Join date : 2014-02-26

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Post  Alana3 Wed Apr 02, 2014 6:16 pm

I stopped going to it I would bleed and have horrendous cramps every time. And I'm pretty sure it was in my head when I did "feel better" after acupuncture. I wanted to believe it worked so it did, but not really. Medications can actually help it, but keep in mind there is not a cure for vulvodynia. There are things that can be done- I had surgery and even tho I'm 100% better I am not considered cured.

Alana3

Posts : 1093
Join date : 2012-09-25

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Post  Zbrown Wed Apr 02, 2014 7:25 pm

Yeah I jw when people said thy where cured was confused ? I honestly can't remember what it feels like I be normal and it's only been five months lol ! They said if acupunture didn't work but gapenitn or something sorry for bad spelling ?? Mine seems to be more generalized inner thighs ect too but I do feel as I my pelvic floor muscles are contributing with the pain. Is there any surgery for generalized I guess not ? Xox

Zbrown

Posts : 131
Join date : 2014-02-26

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Post  Alana3 Wed Apr 02, 2014 8:35 pm

More for local, but who knows. Try the gaba!

Alana3

Posts : 1093
Join date : 2012-09-25

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Post  Zbrown Wed Apr 02, 2014 10:16 pm

Yeah well I'm back for acupuncture this Monday and then the following week after but I may schedule another apointment with the doctor see if there's anything I could do in conjunction get more relief , it's all very draining lol thanks Alana !!! Xo

Zbrown

Posts : 131
Join date : 2014-02-26

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Post  Alana3 Wed Apr 02, 2014 11:44 pm

Trust me.I know and I wish I could help you but your problem was different than mine so I dont want to tell you wrong

Alana3

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Post  bridget234 Thu Apr 03, 2014 3:11 am

I have more external pain but I also had some muscle related pain. Acupuncture didn't help with either. I would ask your doctor about physical therapy. I think it kind of has the same goal outcome as acupuncture for the muscle related pain but you're doing more hands on work that works for more than just a little bit after a session.

I am only 21 and have had this for almost 3 years so I know how you feel, zbrown Sad. Ask your doctor to prescribe you so lidocain for temporary relief here and there... at least that would help sometimes.

bridget234

Posts : 13
Join date : 2014-03-22

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Post  Zbrown Thu Apr 03, 2014 10:34 am

Oh really are you only 21 too ?? It is frustrating like I had a normal life 5 months ago it's over welming sometimes . Where do you live yourself bridget234 xo

Zbrown

Posts : 131
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Post  bridget234 Thu Apr 03, 2014 5:04 pm

Yeah I'm 21, almost 22. I am right outside of Philadelphia.. what about you?? I know its soooo frustrating! I get so upset about it all the time because I'm so young and feel like I should just have a normal life.
Feel free to private message me so we can talk!

bridget234

Posts : 13
Join date : 2014-03-22

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Post  Zbrown Thu Apr 03, 2014 9:26 pm

I'm in Ireland , how donee personal message sounds crazy idk ??? Yeah no up until 5 months ago I was perfectly fine :/ xox

Zbrown

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Post  bridget234 Thu Apr 03, 2014 9:42 pm

Personal massages? My physical therapist does this and it seems to help..

bridget234

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Join date : 2014-03-22

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Post  Zbrown Thu Apr 03, 2014 10:25 pm

Ohh I
Meant private message i don't
Know how to personal message on this forumn x

Zbrown

Posts : 131
Join date : 2014-02-26

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Post  bridget234 Fri Apr 04, 2014 1:55 am

I'll message you...next to your username at the top there should be something that says 'you have __ new messages' !

bridget234

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