I'm New and need my fellow V's

Hi Ladies, I’m so glad to know I’m not alone in this journey! For 24 years I’ve had signs of V, but just here and there.
26 months ago it felt like my body totally turned on me! I had slowly built up to walking 5 miles, so proud of myself! Then my world crashed! **My vulva and inner thighs were so painful and swollen! **My fibromyalgia flared big time! **My painful feet all of the sudden had big, painful lumps in the middle of my arches. **My seborrhea dermatitis erupted all over my face.
So here I was, it was too painful to walk or stand, too painful to sit, too painful to wear panties let alone pants, no more sitting like a lady with my knees together not even in a dress! Sad to say, that’s still my story, though I‘m not still falling apart emotionally.
After various doctors and a lot of research… mine is Generalized V. -constant vulva pain often times into the inner thighs. Painful sex is more common now and dryness, which I use Coconut oil for. Mine stems from 24 yrs. of unresolved hip and pelvis pain, I’m doing 2 treatments that are showing promise and the low oxalate diet. (because with the FM I had IBS for 22 yrs.) which has lessened the extreme V pain by 1/2 so far. My heart goes out to all of you dear women! I hope I'm not going on too long for my intro! Nancy

Hello Nancy! Welcome to the forum. You are not alone. There are many wonderful ladies on here. Read through all the posts and I'm sure you will find inspiration, hope and comfort in that we all understand what you are going through. What treatments are you doing that have helped? I too found that coconut oil was helpful. Now I use Crisco which is a little more emollient which makes it last longer.
Delilah

hello Nancy! Sorry to hear you have been suffering too and for so long! I currently can't say anything has substantially helped me.. yet ! Trying to stay hopeful x

Thank you so much for your replies Delilah and Tinkerbelle  Yes, I've been reading for weeks, gaining knowledge and strength. Delilah the two therapies that I've started are by the same practitioner, 30 minutes of PRRT (pronounced 'pert') Primal Reflex Release Technique then 30 min. of Bowen Therapy. PRRT because of previous unresolved trauma causing my pelvis and sacrum to constantly rotate out. They are both forms of soft tissue massage but so much more. I'm pleasantly shocked at how powerful they each are! If you look into Bowen at Bowen directory .com thoroughly look into their training, the 2 in my area both had the same title "advanced training" though looking into their schools programs - one had only basic training and mine had the most extensive training at a different school. It's the first time I've had real hope for relief in this old system for so long!!!
The only downside - the very evening after my first treatment I broke out with an extreme rash where my vv connects to my inner thighs. I've never seen anything like it, not painful - since 95% of the time I'm in bed but after Castor oil not clearing it up I tried Fluocinonide until she told me it was my body releasing toxins so not to try to get rid of it but to let it run it's course with natural oil to sooth it. That gave me a lot of peace, I have no doubt that is the most toxic area of my body especially with all of those sharp oxalate crystals and what a big sign of how quickly it's working on my stubborn system. I've had other major signs of their having good work in me too. How good to be able to share therapies and encouragement!!!
xo Nancy

Welcome to the forum