Vulvodynia Support
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    » Hope to all my suffering ladies
    Would you say you're stressed?  EmptyFri Oct 23, 2020 12:04 am by ringostarr26

    » Please tell me this can get better
    Would you say you're stressed?  EmptySat Jul 18, 2020 7:38 pm by sammykramer

    » By no means cured, but doing much better!
    Would you say you're stressed?  EmptyMon Mar 16, 2020 1:26 pm by tinkerbelle2

    » How I cured my Vulvodynia!
    Would you say you're stressed?  EmptySat Dec 07, 2019 11:54 am by Millie

    » 7 months since the diagnosis
    Would you say you're stressed?  EmptyWed Aug 14, 2019 2:38 am by agtoronto

    » Gabapentin Gel. or other topical creams
    Would you say you're stressed?  EmptySat Jun 15, 2019 5:22 pm by mary jane

    » IMPORTANT FOR UK SUFFERERS
    Would you say you're stressed?  EmptySat Jun 15, 2019 5:21 pm by mary jane

    » Help New Diagnosis
    Would you say you're stressed?  EmptySat Jun 15, 2019 5:07 pm by mary jane

    » 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
    Would you say you're stressed?  EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

    Gabapentin Gel. or other topical creams

    Thu May 10, 2018 9:43 am by Rosie21

    Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

    Comments: 2

    Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

    Sat Aug 01, 2015 4:17 pm by Fielder

    Hi everyone,

    I'm a newbie.  I live in the UK.  

    I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

    I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

    Comments: 11

    An absolute success story- please read!

    Fri Mar 08, 2019 10:57 pm by Persevere1990

    Dear All,

    I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

    I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

    Comments: 0

    I'm sorry im rambling

    Thu Feb 21, 2019 5:49 am by Jet227

    hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

    Comments: 1

    New member need advice please

    Thu Feb 28, 2019 11:33 pm by PANDORA123

    Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

    Thanks

    Comments: 5

    MonaLisa Touch

    Fri Feb 08, 2019 7:35 pm by rl2091

    Hi All,

    I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

    Comments: 3

    Diagnosed Recently

    Tue Jan 08, 2019 3:55 pm by flissyg

    Hi All,

    I’m so glad I’ve found a place where there are others who understand how I feel!

    So this is my story:-

    I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

    Comments: 4

    New and need advice and help

    Wed Dec 05, 2018 3:26 pm by Cin124

    Hi everyone,

    About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

    Comments: 6

    New here would very much appreciate advice at the end of my rope

    Wed Jan 09, 2019 9:09 pm by Jma990o

    This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
    So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

    Comments: 3


    Would you say you're stressed?

    +3
    zarli
    Zbrown
    Micrm
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    Would you say you're stressed?  Empty Would you say you're stressed?

    Post  Micrm Wed Apr 16, 2014 1:21 am

    Just curious if general stress and tension is common among us all. Not afterwards but perhaps as a common cause/contributor?

    Micrm

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    Post  Zbrown Wed Apr 16, 2014 7:37 am

    Yeah I would say I am a stressed person also a very big worrier over small things always have been :/ x

    Zbrown

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    Post  zarli Wed Apr 16, 2014 10:22 am

    Yes I was extremely stressed and anxiety when my v started

    zarli

    Posts : 182
    Join date : 2013-08-11
    Location : Australia

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    Post  meelie Thu Apr 17, 2014 2:35 pm

    Yes, I was also extremely stressed at the time. Probably more stressed than I have ever been in my then 65 years on earth. I was thinking it was from holding muscles tight on the right side because of my left pelvic fx, but when I think of it, it is probably both together. Mine is from pelvic muscle dysfunction, we are 99% sure of this. Skin and tissue look fine, just had a gyn appointment on Monday. I am about sick to death of this. The only thing I think that keeps me from eating a bullet is that the burning goes away at night while I'm sleeping (not stress or pressure on the muscles) and usually does not start back until about 10 AM. I so feel for you guys that are hurting all the time and for such a long long time. I cannot not imagine such burning for such a long time. I do have some contact V when my husband wants sex but with lots of lub it is usually bearable.

    meelie

    Posts : 136
    Join date : 2013-01-09
    Location : Barnesville, Ga

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    Post  bridget234 Thu Apr 17, 2014 5:43 pm

    Yes and a big worrier about every little thing!

    bridget234

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    Join date : 2014-03-22

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    Post  Delilah1 Thu Apr 17, 2014 10:22 pm

    My V started after one of the most stressful times in my life.

    Delilah1

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    Post  meelie Fri Apr 18, 2014 1:46 am

    This is very interesting. I hope someone would do an investigation into this. I think we have hit upon a very common thing. All the girls answering yet to this, have you come to the conclusion that it is pelvic floor dysfunction/muscle underlying cause?

    meelie

    Posts : 136
    Join date : 2013-01-09
    Location : Barnesville, Ga

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    Post  meelie Fri Apr 18, 2014 1:47 am

    one more question, have any of your taken a warm bath with soda to help relieve the inflamation in there?

    meelie

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    Location : Barnesville, Ga

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    Post  zarli Sat Apr 19, 2014 11:25 am

    A bath of any sort for me is off limits. I seriously believe vulvodynia is caused by stress affecting the nervous system. I am a sufferer of anxiety but I went through the worst time of my life then vulvodynia started. There has to be a link I am convinced.

    zarli

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    Post  Micrm Sun Apr 20, 2014 8:12 am

    thanks for posting everyone. I too am a worrier/clencher and have many tight muscles. My stress was something I never noticed until my vulvodynia flared up again in my 20s. It's interesting that so far we all share this commonality.

    Micrm

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    Post  meelie Sun Apr 20, 2014 11:39 pm

    okey dokey, now that we know it's stress and muscle clenching and the like, why can't someone come up with the answer to stop it, put it to rest, make it relax. Oh my God, I so need to find a way to make them relax and fix the nerves that I am sure it has affected.

    meelie

    Posts : 136
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    Post  aspaceodyssey Wed May 07, 2014 6:07 pm

    yes, I can be a very stressed out person, have always had anxiety problems, etc. but I try my best to manage it through various outlets like meditation, exercise, getting enough sleep...I think there's definitely a connection and I have read before that a lot of women with vulvodynia or chronic pain in general also have issues like anxiety, depression, etc.

    in my particular case I don't think pelvic floor dysfunction is the root of the issue, I think it stems from autoimmunity and skin problems.

    aspaceodyssey

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    Post  bridget234 Wed May 07, 2014 10:40 pm

    I did have pelvic floor dysfunction but physical therapy fixed that. The root of my problem is the nerves. My theory is that it is also caused by something autoimmune as I do have a few of those diseases.

    bridget234

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