Vulvodynia Support
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» Hope to all my suffering ladies
C.A.T therapy EmptyFri Oct 23, 2020 12:04 am by ringostarr26

» Please tell me this can get better
C.A.T therapy EmptySat Jul 18, 2020 7:38 pm by sammykramer

» By no means cured, but doing much better!
C.A.T therapy EmptyMon Mar 16, 2020 1:26 pm by tinkerbelle2

» How I cured my Vulvodynia!
C.A.T therapy EmptySat Dec 07, 2019 11:54 am by Millie

» 7 months since the diagnosis
C.A.T therapy EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
C.A.T therapy EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
C.A.T therapy EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
C.A.T therapy EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
C.A.T therapy EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


C.A.T therapy

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Post  naomi Mon Nov 08, 2010 11:36 pm

So my usual head doctor has referred me to a friend of hers who works as a psychotherapeutic cousellor. Not that she wanted to bunk me off to someone else, but she thought it might be good to gain another persons perspective on my situation etc.

So I went today (dragging my heals - I hate change!) and the lady seemed really lovely... she completely 'gets' me and is going to work with the below...CAT

•Cognitive Analytic Therapy (CAT)
CAT focuses its attention on discovering how problems have evolved and how the procedures devised to cope with them may be ineffective. It is designed to enable clients to gain an understanding of how the difficulties they experience may be made worse by their habitual coping mechanisms.

In my life i feel like im just treading water to keep my head just above water to stop my drowning!! I know that sounds a bit dramatic but thats how it feels. So she intends to help me find coping stratorgies (spelling!?!) etc.

I think im going to have a good stab at it. Its the only thing i have going on a weekly basis...the medical side of all this has ground to a halt practically and its so frustrating as my consultant wont reply my letters or phone messages....do that actually give a flying fuck about helping me?!!! tossers.
naomi
naomi
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Post  naomi Mon Nov 08, 2010 11:37 pm

sorry bit of a rant on there! Just makes me so angry I could punch something!!

Bed for me anyhooz Im shattered

hope u guys r ok xxxxxx
naomi
naomi
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Post  tweety Tue Nov 09, 2010 12:02 pm

Hey Naomi,

That sounds interesting... it sounds like something I should prolli try too if I can learn better coping strategies.

Let me kno how your first session goes.

Cheers,

Sue

tweety

Posts : 71
Join date : 2010-03-14
Location : Melbourne

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Post  Sarah001 Tue Nov 09, 2010 2:37 pm

It's good that you've found someone to talk through coping with, I think we all understand the treading water feeling. Have you thought about getting or borrowing a copy of Amy Stein's Heal Pelvic Pain? It's full of good advice and exercises if you don't fancy going to a Women's Health Physio, she covers exercises for the external muscles to help the pelvic floor relax and massage for internal and external to help the pelvic floor relax. The great thing about the book is it doesn't cost much either, I think my copy was about £7 and it's a really good book. Like most of us you've been let down by conventional doctors so it's probably time to start looking at your options to help yourself. Hope you at least have a read through it in a library to get some handy hints on things to try, and inflamed skin is mentioned too!
Sarah001
Sarah001

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Post  Sebby (Admin) Tue Nov 16, 2010 8:48 pm


That sounds great Naomi! I get cbt with my therapist who also takes a person centered approach so its a mix really

I find it very helpful so I wish you luck!!!!

Sebby
xxx
Sebby (Admin)
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https://vulvodyniasupport.forumotion.net

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