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Gabapentin Gel. or other topical creams
Thu May 10, 2018 9:43 am by Rosie21
Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.
Comments: 2
Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?
Sat Aug 01, 2015 4:17 pm by Fielder
Hi everyone,
I'm a newbie. I live in the UK.
I'm trying to work out the best cushion to get for my vulvodynia. I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.
I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …
I'm a newbie. I live in the UK.
I'm trying to work out the best cushion to get for my vulvodynia. I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.
I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …
Comments: 11
An absolute success story- please read!
Fri Mar 08, 2019 10:57 pm by Persevere1990
Dear All,
I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.
I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …
I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.
I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …
Comments: 0
I'm sorry im rambling
Thu Feb 21, 2019 5:49 am by Jet227
hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …
Comments: 1
New member need advice please
Thu Feb 28, 2019 11:33 pm by PANDORA123
Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.
Thanks
Thanks
Comments: 5
MonaLisa Touch
Fri Feb 08, 2019 7:35 pm by rl2091
Hi All,
I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …
I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …
Comments: 3
Diagnosed Recently
Tue Jan 08, 2019 3:55 pm by flissyg
Hi All,
I’m so glad I’ve found a place where there are others who understand how I feel!
So this is my story:-
I’m 36, and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”. The following morning I woke up …
I’m so glad I’ve found a place where there are others who understand how I feel!
So this is my story:-
I’m 36, and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”. The following morning I woke up …
Comments: 4
New and need advice and help
Wed Dec 05, 2018 3:26 pm by Cin124
Hi everyone,
About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …
About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …
Comments: 6
New here would very much appreciate advice at the end of my rope
Wed Jan 09, 2019 9:09 pm by Jma990o
This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …
Comments: 3
Ending Female Pain
3 posters
Page 1 of 1
Ending Female Pain
I received a copy of Ending Female Pain today, it's a pretty expensive book (around 30-something pounds I think) but I had some Amazon vouchers and thought rather than use them on everyone else at Xmas why not buy myself something! It's got alot of information in it about the pelvic floor, different types of self massage, positive thinking, topical applications etc and the author is a previous sufferer who recovered. She treats people at her clinic in New York but wrote the book for those of us who can't get there and it's also got alot of testimonals from previous clients who are doing really well with these methods. I haven't absorbed all the info yet but it seems it was well worth buying it, there are 11 different reverse kegel positions in it alone and yoga and pilates style stuff, it seems like a really good book.
Sarah001- Posts : 1164
Join date : 2010-06-11
Age : 50
Location : UK
Re: Ending Female Pain
Wow I like the sound of that book!! Especially as it has been written by a previous sufferer who has recovered!!
Hey maybe I can contact the author and let her know about this forum, maybe she will do an question and answer session!! sounds like a good idea!!
I just may treat myself to an early xmas present!!
Thanks so much for the info
Hope you are doing ok
Sebby
xxx
Re: Ending Female Pain
A question and answer session would be fantastic if she'd do it! As she's in NY most of us would have to try and coordinate our times on here, I'll look at her name next time I'm near the book and let you know how to contact her.
She also mentions the other condition you have (vagi... forgotten the rest! The one where the muscles clamp up) and says that's often a pelvic floor issue too. And in the back is a few pages of photos showing the best place for TENS pads for various problems, she has one that affects the pudendal nerve so I might try that!
One thing I really like about the book though is no matter where you are on the pelvic floor work she still gives exercises for you to do so even if you are still in the release stage like I am you can do some of the other exercises but in a way designed not to tighten the pelvic floor up again.
And she also tells us how to find certain muscles that are usually implicated in this, the obturator internus is one I knew where it was but didn't know exactly how to isolate it to massage it and she explains that too. It's a really good book!
She also mentions the other condition you have (vagi... forgotten the rest! The one where the muscles clamp up) and says that's often a pelvic floor issue too. And in the back is a few pages of photos showing the best place for TENS pads for various problems, she has one that affects the pudendal nerve so I might try that!
One thing I really like about the book though is no matter where you are on the pelvic floor work she still gives exercises for you to do so even if you are still in the release stage like I am you can do some of the other exercises but in a way designed not to tighten the pelvic floor up again.
And she also tells us how to find certain muscles that are usually implicated in this, the obturator internus is one I knew where it was but didn't know exactly how to isolate it to massage it and she explains that too. It's a really good book!
Sarah001- Posts : 1164
Join date : 2010-06-11
Age : 50
Location : UK
Re: Ending Female Pain
since i have a tens unit, i think i will buy this book. i need all the info i can get. also want to know about messaging the inside of my lady part.
jules- Posts : 225
Join date : 2010-03-17
Re: Ending Female Pain
The massage advice is good, there's a couple of techniques you can do by hand and she gives advice on using a dilator to reach trigger points higher up which is very helpful. I know for a fact I've got trigger points in my pelvic floor as the physio pressed one when she was testing my contractions with her finger! She also gives some external massage for the vulva to reduce restrictions in the superficial muscles which is something I've not come across before. I like that she's a former sufferer and she's made it her life's work to figure out ways to help the problem.
Sarah001- Posts : 1164
Join date : 2010-06-11
Age : 50
Location : UK
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Fri Oct 23, 2020 12:04 am by ringostarr26
» Please tell me this can get better
Sat Jul 18, 2020 7:38 pm by sammykramer
» By no means cured, but doing much better!
Mon Mar 16, 2020 1:26 pm by tinkerbelle2
» How I cured my Vulvodynia!
Sat Dec 07, 2019 11:54 am by Millie
» 7 months since the diagnosis
Wed Aug 14, 2019 2:38 am by agtoronto
» Gabapentin Gel. or other topical creams
Sat Jun 15, 2019 5:22 pm by mary jane
» IMPORTANT FOR UK SUFFERERS
Sat Jun 15, 2019 5:21 pm by mary jane
» Help New Diagnosis
Sat Jun 15, 2019 5:07 pm by mary jane
» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
Tue Jun 11, 2019 12:56 am by VVSSufferer