Vulvodynia Support
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Vulvodynia Support

Does life feel like one huge pain in the Vulva??? I have created this forum so that women living with Vulvodynia (Vulva Pain) can have a place to share, chat and support each other.


The link to my research project is in the Announcements forum, please participate if you can!!
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Latest topics
» Hope to all my suffering ladies
any V Drs in or around Atlanta, Ga EmptyFri Oct 23, 2020 12:04 am by ringostarr26

» Please tell me this can get better
any V Drs in or around Atlanta, Ga EmptySat Jul 18, 2020 7:38 pm by sammykramer

» By no means cured, but doing much better!
any V Drs in or around Atlanta, Ga EmptyMon Mar 16, 2020 1:26 pm by tinkerbelle2

» How I cured my Vulvodynia!
any V Drs in or around Atlanta, Ga EmptySat Dec 07, 2019 11:54 am by Millie

» 7 months since the diagnosis
any V Drs in or around Atlanta, Ga EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
any V Drs in or around Atlanta, Ga EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
any V Drs in or around Atlanta, Ga EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
any V Drs in or around Atlanta, Ga EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
any V Drs in or around Atlanta, Ga EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


any V Drs in or around Atlanta, Ga

5 posters

Vulvodynia Support :: Vulvodynia Info

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any V Drs in or around Atlanta, Ga Empty any V Drs in or around Atlanta, Ga

Post  meelie Tue Jun 24, 2014 1:58 am

Hi all, have been having really bad days. Does anyone know of any Drs that really know something about this horrible curse in or around Atlanta, Ga. I actually live south of Atlanta. Or a Physical Therapist south of Atlanta. Was going to one in Decatur but didn't have good results. Thanks. I think she gave up on me.

meelie

Posts : 136
Join date : 2013-01-09
Location : Barnesville, Ga

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any V Drs in or around Atlanta, Ga Empty Re: any V Drs in or around Atlanta, Ga

Post  Alana3 Tue Jun 24, 2014 2:09 pm

Come to west palm beach florida!  I have the best doc!!! But when I searched for him I wrote in google "South Florida vulvodynia specialists" and found him that way, maybe you could do that for where you live?

Alana3

Posts : 1093
Join date : 2012-09-25

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any V Drs in or around Atlanta, Ga Empty Re: any V Drs in or around Atlanta, Ga

Post  SinclairSassy Sun Aug 07, 2016 7:09 pm

I know you posted your question a few years ago, but I wanted to send a reply to you. I live in Huntsville, AL. When I started having symptoms in June of 2016, I asked my gynecologist if she treated vulvodynia. She said she did not and referred me to Dr. Alex Childs in Birmingham, AL. She said he is the only doctor in the southeast that treats vulvodynia. I have not seen him yet, my appointment isn't until December. (My original appointment was for March of 2017, but got moved up to December of 2016 due to a cancellation.)

SinclairSassy

Posts : 27
Join date : 2016-08-02
Location : Huntsville, AL

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any V Drs in or around Atlanta, Ga Empty Re: any V Drs in or around Atlanta, Ga

Post  lindsey_taylor Sun Aug 07, 2016 10:39 pm

I'm in the same boat. Seeing a Dr. Weiss this week at the Emory Clinic. Sad

lindsey_taylor

Posts : 58
Join date : 2016-06-06
Age : 38
Location : Georgia, United States

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any V Drs in or around Atlanta, Ga Empty Re: any V Drs in or around Atlanta, Ga

Post  SinclairSassy Mon Aug 08, 2016 1:59 pm

Hey Lindsey! I lived in Alpharetta, GA, for most of my adult life. My husband and I moved to Huntsville, AL, for his job. I miss GA! Hearing that you have an appointment with a doctor in GA makes me skeptical of what my own gynecologist is telling me (i.e. that Dr. Childs is the only doctor in the SE that treats V). During routine annual exams and bladder treatments for BPS/IC, the MINUTE I mentioned anything outside the realm of "normal gynecological" procedures to my gynecologist, she literally shut down and pretended ignorance at the symptoms I was mentioning (painful urethra, vulva pain). After I researched my symptoms and asked her straight out about V, she sent me to Dr. Childs. Honestly, I don't know if I trust doctors that much anymore and that makes me sad and angry.

Please let me know how it goes with Dr. Weiss.

Hugs to you!!

SinclairSassy

Posts : 27
Join date : 2016-08-02
Location : Huntsville, AL

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any V Drs in or around Atlanta, Ga Empty Re: any V Drs in or around Atlanta, Ga

Post  lindsey_taylor Tue Aug 09, 2016 11:35 pm

Hello SinclairSassy! Thank you for the reply and the encouragement and hugs! I am seeing this doctor tomorrow morning and will let you know how it goes. I honestly don't know if this guy is a specialist or can help... but I hope.

lindsey_taylor

Posts : 58
Join date : 2016-06-06
Age : 38
Location : Georgia, United States

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any V Drs in or around Atlanta, Ga Empty How did the appt go

Post  surprisemom44 Mon Feb 20, 2017 9:04 am

I live in Marietta GA and need to find a gyn who handles this. How did your appt go?

surprisemom44

Posts : 4
Join date : 2017-02-20

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